Spontaneous Recovery Stats: Many Recover (3 Studies)

Discussion in 'Success Stories' started by Bill Bauer, Apr 28, 2017.

    1. John Meyers
      Artistic

      John Meyers Member

      Location:
      Chicago, IL
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Just One (1) Loud Rock Concert!
      Seems to help provide more periods of unnoticeable T during the day. -- Not sure why but I do feel more relaxed as well.

      It's only been a week and I chose these 3 supplements since they got the best reviews from other T sufferers.

      Even if they only give me the placebo effect, I am fine with that. :)
       
      • Hug Hug x 1
    2. John Meyers
      Artistic

      John Meyers Member

      Location:
      Chicago, IL
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Just One (1) Loud Rock Concert!
      The ENT said that I had very slight hearing loss in my Left ear, however, that was probably there before since it is my Right ear that has the "24 hour dentist drill".

      If you have pain, you should still keep seeing the ENT. -- I only stopped since they can't do anything for T..
       
    3. Casper

      Casper Member Benefactor

      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Loud music at concert
      Dentist drill? That sounds like a very high frequency. Have you ever tried to measure to determine the exact frequency? I've given up on trying to find my frequency, but I suspect it's a small range of frequencies somewhere around 2-3kHz. It's definitely not a pure tone, which is what I experience when I get fleeting T.

      I'm going back to the ENT in a few weeks for my six-month follow-up. Last time I was there, he simply looked in my ears, throat, and nose and told me that my ears look good. This can't be true, because I constantly have this feeling of fullness in one of my ears (it's strange how it seems to switch ears every few days). Steam inhalation provides temporary relief. I think I'm going to write a detailed post on here of questions to ask him before my next appointment.
       
    4. DaveB
      Depressed

      DaveB Member

      Tinnitus Since:
      Feb 2017
      Cause of Tinnitus:
      Low freq noisy neighbor then sinus wash
      Do you think you might have Eustachian tube dysfunction? Maybe the pressure in your middle ears is unbalanced. You might try holding your nose and gently and i mean GENTLY blowing air until you feel your inner ears inflate (this is called the Valsalva maneuver). I will warn you that it's been reported on the forum that doing this hard might hurt your ears and cause T actually.
       
    5. Casper

      Casper Member Benefactor

      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Loud music at concert
      I'm pretty sure that I have some form of ETD, but every source online states that the only real treatment is to wait for it to clear up by itself. Yet, I've had it for seven months now. I've done the Valsalva maneuver before, but only very gently. I can feel my ears "pop" while doing it, but the relief doesn't last long. This is why I believe there is a physical problem in my ears (in addition to the original noise exposure, but possible as a result of it), but so far my ENT has been unable to find it.
       
    6. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      my ENT also said its nothing to worry about, and could not get me out fast enough. I request a masker and she said I was not loud enough, I don't know is an 8 in my head loud enough
       
    7. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      April /1996
      As I have said to you @MBH, I don't advise you to go down the route of using a masker/white noise generator at this time. These are specialist devices and have to be used correctly. ENT doctors prefer to start treating tinnitus after a patient has had it for 6 months. There is good reason for this. The ear is a delicate and sophisticated organ. Starting treatment too early could make symptoms worse. The best treatment for tinnitus in the early stages is to do nothing. Use sound enrichment especially at night. If you are feeling stressed have a word with your GP as something can be prescribed to help settle you. Please read my articles on tinnitus in the links I have sent you. If you click on my "started threads" you can read more articles and I suggest you read: new to tinnitus, what to do?

      All the best
      Michael
       
      • Agree Agree x 1
    8. John Meyers
      Artistic

      John Meyers Member

      Location:
      Chicago, IL
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Just One (1) Loud Rock Concert!
      It's more like a dentist drill in the next room. -- High frequency but I don't measure it since others have suggested that I should not focus on the noise levels, etc.

      Today was actually a pretty good day with hours of me not even noticing Mr T, probably because I was busy running around. -- I'll take whatever I can get.. :)
       
      • Like Like x 1
    9. Phendran
      Benevolent

      Phendran Member

      Location:
      Sweden
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Unknown
      So called "Doctors" like these need to suffer as we do to experience what it is like in order to understand it seems.
      It makes me frigging furious when a person whose job is to help and alleviate treats another person with such disregard.
       
      • Agree Agree x 4
    10. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      Hello, The GP, ENT will not gie me anything. MEds are bad they say. The only thing I done so far is take Tylenol PM, which works most nights, and I do Breathing exercising. If I can get Meds which one to take the edge off?
       
    11. Casper

      Casper Member Benefactor

      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Loud music at concert
      It sounds like your T is considerably more intrusive than mine. I'm really glad to hear that you're able to ignore it at times despite that :)
       
    12. AUTHOR
      AUTHOR
      Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      Amitriptyline has helped me to sleep. It is non-addictive, and it would not make me feel drowsy the next morning.
       
    13. Berik
      Rebellious

      Berik Member Benefactor

      Tinnitus Since:
      11/2016
      Cause of Tinnitus:
      Unknown
      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4912237/

      not sure whether already posted, couldn't find it. Compares results of Am111 and 101 for tinnitus resolution statistics. It seems people with mild to moderate hearing loss have quite a chance of tinnitus resolving in the early phase and at least improving a lot. perhaps some hope for the newly onsets.
       
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      • Informative Informative x 1
    14. humberto

      humberto Member

      Tinnitus Since:
      1 month
      Cause of Tinnitus:
      Not sure
      Has anyone heard of tinnitus going away by itself or with a treatment?

      It's already been 2 months for me and not going away.

      I am going crazy.
       
      • Agree Agree x 1
    15. AUTHOR
      AUTHOR
      Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      Has it faded, or changed pitch?

      Yes, the studies in posts 1 and 37 in this thread imply that it goes away for many people. A number of members of this forum reported hearing complete silence. The bad news is that ears take forever to heal. One person's T ended after 18 months.

      You might want to avoid moderately loud noises like that of a vacuum cleaner or blender.
       
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    16. AUTHOR
      AUTHOR
      Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      To quote the article:
      "In acute ISSNHL, tinnitus loudness decreased rapidly in cases of mild-moderate hearing loss, and tinnitus had completely resolved in two-thirds of patients after 3 months. Hearing recovery preceded tinnitus resolution. When associated with severe-profound hearing loss, tinnitus improved significantly less. Complete hearing recovery and full tinnitus remission were both about three times more frequent in mild-moderate hearing loss patients than in severe-profound cases."
      If you read the article, you will see that they stopped observing those patients about 5.5 months after the onset of their T (due to sudden deafness). The results are consistent with people gradually getting better, albeit painfully slowly, for some.
       
    17. vermillion
      Depressed

      vermillion Member Benefactor

      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Bad karma
      I am a little skeptical about this. I mean if there were so many people that literally recovered, we would have tinnitus remission stories apart from those with habituation. Those who habituated why bothered to report so many times? Yes probably those who were cured they didn't want to bother but i cannot believe ALL of those who experienced remission automatically have the same mindset not to bother. If spontaneous remission during 2 years was statistically high, i believe we would have more success stories of that kind. In the success stories you can find people that god rid of their tinnitus usually after the first weeks from the onset but super rarely after 2 years.
       
      • Agree Agree x 2
    18. Paulmanlike

      Paulmanlike Member

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      It's because it's untrue. Spontaneous recovery after 2 years is rare.
       
      • Agree Agree x 2
    19. jjflyman

      jjflyman Member

      Location:
      Michigan, USA
      Tinnitus Since:
      09/2016
      Cause of Tinnitus:
      noise (Concert)
      I think the word "spontaneous" might be a little misleading. I don't think it means you go to bed one night with Tinnitus, and wake up in silence. I think the recovery from noise induced T is very slow and gradual, so by the 2 year mark, "most" noise induced T sufferers see significant improvement or total recovery.
       
      • Agree Agree x 3
      • Optimistic Optimistic x 2
    20. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      We still have a big question mark about whether restoring hearing is going to have an impact on T. At least in this case, there is a hunch about causality links.
       
      • Like Like x 2
    21. AUTHOR
      AUTHOR
      Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      The person who hears T 24/7 but is not bothered by it too much is still being reminded of T every day (if not every waking hour). Eventually they might share their story. In contrast, someone who starts hearing silence won't be reminded of T, and so will be less likely to share their story here.
       
      • Agree Agree x 3
    22. vermillion
      Depressed

      vermillion Member Benefactor

      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Bad karma
      Actually I would think the opposite. If hypothetically after 1 or 2 years my tinnitus resolved, I would report it for sure due to the excitement.
       
    23. AUTHOR
      AUTHOR
      Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      It never resolves overnight. It keeps fading over a period of months. So the excitement is spread out over months, and by the time it disappears, one is already used to not being bothered by T.

      I would probably NOT report it for fear of jinxing it.
       
      • Agree Agree x 8
    24. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Not only that, but many T sufferers are told that they need to stop thinking about T, and that if they do it may come back "to their consciousness", so once they feel like it's gone, I doubt they want to "jump back into the T pool" and risk a resurgence.
       
      • Agree Agree x 1
    25. Tom Cnyc

      Tom Cnyc Member

      Location:
      NYC
      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      Warehouse event after years of enjoying music.
      Guys, tinnitus definitely can go away or get so close that it doesn't matter. I've listed a handful of people in this thread that improved to a point where it is a non issue.

      I am living, breathing, proof of how much it can improve. Just a recap:

      I started off with extreme tinnitus that would modulate a whole octave when I moved my eyes. It was like a laser beam through my head and could be heard above literally anything. It felt like the roof of my mouth was a tesla ball from trigeminal involvement. I'd sit in my 1 BR NYC apt with the dishwasher, washer, dryer, two AC units, and TV on - and it'd be blaring above all that noise. I didn't sleep more than 2 hours for 4 months.

      My tinnitus truly bothers me about 3-4 days a month. I'm in a 60db room right now and can barely hear it at all. It's been 16 months. I have an ever present hiss, but the ringing has largely subsided, and continues to subside. If I spend 3-4 days in the country it gets even better. City noise sucks.

      I was in a bar with a live band on Monday. I didn't die. Earplugs work wonders. You know how many pro musicians waited too long to start with plugs? MOST of them. They continue to play with proper protection. Clapton is STILL touring. Bone conduction isn't as serious as you think. Bone conduction is the sound attenuated by 40-60 db. That means a 110db concert is 70db at best via bone conduction. And that's at the peak. Show's tend to average more at like, 95db. Very loud clubs average at 105. http://www.audiologyonline.com/ask-the-experts/hearing-loss-through-bone-conduction-522

      Most won't even join a forum. And those that do? Not everyone will check back. Most wont, actually, due to superstition. I know its 90% of the reason I'm reluctant to call my progress a "success". Go out in the real world though and you'll be amazed how many people are living with this well, or have recovered from it. I was shocked to realize I know ten plus people who have dealt with this, most of whom have healed in a meaningful way. I've accepted I will never have true silence again. I also realize I haven't had it for years and didn't even notice until it ramped up heavily. I'm fine with that level of T in my life.
       
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    26. VincentWinters
      Dreaming

      VincentWinters Member

      Location:
      Essex, UK
      Tinnitus Since:
      Aug 2017
      Cause of Tinnitus:
      unknown
      It is weird how many people I know, or who them selves know people with this. They all seem to be coping.
       
    27. AUTHOR
      AUTHOR
      Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      "Tinnitus may improve spontaneously. In 1 cohort study,
      nearly 50% of patients with significant tinnitus (moderate
      severity, sleep problems, or both) improved after 5 years, with
      43% of those improved reporting complete resolution and the
      remaining 57% reporting only mild symptoms.
      In another study, 82% of patients who reported tinnitus at baseline had persistent tinnitus after 5 years, suggesting close to a 20% rate of spontaneous improvement
      . Similarly, subjects assigned to the “wait-list” control groups of some clinical trials show small, but
      significant, improvements in tinnitus distress. The largest spon-
      taneous improvement is seen with short duration tinnitus, younger
      age, and longer intervals between pre- and post-assessment. For
      example, in 1 study, 28% of subjects with acute tinnitus (last-
      ing < 6 months) improved spontaneously in a control group that
      received only educational information.

      The severity of tinnitus can fluctuate. Hallam et al. reviewed the psychological aspects of tinnitus and described a natural habituation process that improves tinnitus tolerance. An observational study of 528 patients seen in otolaryngology clinics found that, regardless of symptom duration, tinnitus severity declined over time in 3% to 7% of patients. Another large cohort study found that 55% of patients with severe tinnitus reported only moderate, or mildly bothersome, symptoms 5 years later."

      Looks like about 20%-30% of those who get Moderate tinnitus, eventually recover. However, for those whose symptoms have been improving, it is likely that the probability of recovery is higher than that (it is probably closer to 43% [so 40%-50%], see above). If initially you had only minor tinnitus, your chances of recovery are probably a lot higher...
       
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    28. AUTHOR
      AUTHOR
      Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      By the way, the title of this thread says that up to 70% recover. I guess the discrepancy (70% vs. 20% to 30% given by the study in the previous post) is due to the cause of tinnitus. The figures in the previous post are for tinnitus sufferers in general (independently of the cause). The figures in the studies in the first post of this thread are for the people whose T is a result of a one-time acoustic trauma.
       
      • Agree Agree x 1
    29. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      this makes me feel so much better.
       
      • Like Like x 2
    30. AUTHOR
      AUTHOR
      Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      It makes sense to have the post below in this thread:
       

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