Things People Say When You Tell Them You Have Tinnitus

Discussion in 'Support' started by Forever hopeful, Mar 12, 2021.

    1. Gabriel5050
      Balanced

      Gabriel5050 Member Podcast Patron Benefactor

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Noise exposure (most likely)
      I feel very sad to hear this. I think about you sometimes, because I remember talking with you before here on Tinnitus Talk. Tinnitus is a day by day, hour by hour affair to deal with. I don't know how much this means to you, but I believe you can go on, since you have made it this far. I sincerely hope you will have better days ahead of you.
       
    2. linearb
      Psychedelic

      linearb Member Benefactor Hall of Fame

      Location:
      beliefs are makyo and reality ignores them
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      "That's a real bitch, mine drives me crazy sometimes" is a thing I hear with some frequency.

      But I hang out with people who do loud stuff.
       
    3. Gman45

      Gman45 Member Benefactor

      Location:
      Oklahoma USA
      Tinnitus Since:
      12/13/2020
      Cause of Tinnitus:
      Concussion or ETD
      I sometimes get, "it's just tinnitus", or "I know this person or that person with tinnitus and it's no big deal". Of course, those people have tinnitus that is barely there "in quiet rooms". If I had to seek it out in quiet rooms only to hear it, it wouldn't be a big deal to me either. One person said, well at least you're not on the street and broke. Honestly, I'd take that over 24/7 tinnitus. At least being broke can be overcome. I think that's the main difference between tinnitus and other problems including many medical problems. Most problems at least have something you can try to make it better. Tinnitus just does whatever the heck it wants. We all hope it goes away or improves, but there is nothing we can do to usher that in.
       
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    4. BuzzyBee
      Bookworm

      BuzzyBee Member Benefactor

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Not Sure
      A friend told me to eat red cabbage. Thanks.
       
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    5. AUTHOR
      AUTHOR
      Forever hopeful
      Depressed

      Forever hopeful Member

      Location:
      USA
      Tinnitus Since:
      2015 resolved, 4/20 L ear, increase 2/21
      Cause of Tinnitus:
      2015,noise,2020-21 SNHL
      Well unless people suffer from it, finding a truly understanding person is difficult.

      So today I saw a world renowned neuro/otologist at Massachusetts Eye & Ear. And by world renowned I mean that he is an educator and speaks at national/international conferences etc. Very nice man. He told me that everybody, and I quote “everybody” who has hearing loss has some degree of tinnitus. And I countered that with the fact that my father doesn’t, and he has profound hearing loss and has bilateral hearing aids and he still can’t hear even with those hearing aids. So I’m not sure that was 100% accurate. My dad must be one of those people who can only hear tinnitus in a sound proof room. That said, he basically told me that there is no correlation between the amount of hearing loss you have and the loudness of the tinnitus as one experiences it, because of course, I’m concerned that as I continue to lose hearing as I age, my tinnitus is only going to get worse as it already has, and I asked what to expect. But he did spend a fair amount of time explaining to me that my anxiety around the tinnitus is making it worse. And although he’s ordered a bunch of tests to rule out an acoustic neuroma etc., his final verdict was my left ear is damaged for reasons we may never know. He said that damaged ears have fluctuating hearing, and that it is not uncommon for hearing to get worse, then better, then perhaps worse again. I should’ve asked him if he had tinnitus. He seemed to be about the age where he would have some age related hearing loss. I think I’ll put that on my question list for when I have my telehealth visit with him following my brain MRI.

      I left with a referral to a mind/body specialist. I’m not saying it won’t be helpful, but the one thing that was clear, and this from a neurologist, there is not a damn thing that medicine can do to help tinnitus. Not that this was news to me or any of us on this forum.

      One other thing he said that I thought was interesting is that typically, it takes about two months for the brain to register that there has been a shift in hearing, and for the neurons to start firing and create the tinnitus sounds.
       
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    6. BrStan@

      BrStan@ Member Benefactor

      Location:
      London
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Acoustic trauma
      That's not all of it. I have chronic prostatitis now and I am in pain every day. Painkillers make my tinnitus worse. I can't take anything for pain. Then I need to be on a long course of antibiotics, Doxycycline or Ciprofloxacin (both can cause or worsen tinnitus). I can't take any of them. I have made it until now but I don't think can push any further. I can't take ototoxic medication. I am not in a position to experiment.
       
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    7. LilSass
      Loved

      LilSass Member

      Location:
      Ontario, Canada
      Tinnitus Since:
      November 2019
      Cause of Tinnitus:
      Likely ototoxic medication
      Hi @BrStan@!

      Have you heard of Kratom or Kava Kava? They are both natural painkillers. I am currently trying Kratom for my chronic back pain and migraines. I'll update if it works.
       
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    8. Psych
      Wishful

      Psych Member Podcast Patron Benefactor

      Tinnitus Since:
      Many moons...
      Cause of Tinnitus:
      Unknown
      I'm wondering if I'm going to be able to, with how it's going today. I am in a job search, with several debilitating symptoms going on at once, but I need to make money. The symptoms I have are, like the tinnitus, invisible, so I get a lot of the reactions that people get to invisible chronic illness, like "but you look fine!" And they wonder why it would affect my working...

      Hope we all get some help sooner rather than later!
       
    9. Julien87
      Not amused

      Julien87 Member Benefactor

      Location:
      France
      Tinnitus Since:
      2006
      Cause of Tinnitus:
      Noise exposure (concert)
      One of my friends told me, "Oh, I couldn't" [bear this].

      Which is probably the most annoying answer I could think of. It's not like we have the choice.
       
    10. Mattv
      Busy

      Mattv Member

      Location:
      lincoln, MA
      Tinnitus Since:
      September 2017
      Cause of Tinnitus:
      unknown
      "Oh, I have that too"

      I had low level tinnitus too for many years. I only recognize what it was now. It was very slight and not at all intrusive. When people say that I play a recording of what I hear most of the time. That pretty much stops the conversation...

      But really, what is anyone going to say? Before my tinnitus about 8 years ago, I would have had no sensitivity to this if someone said they had it, I like to think I'm a generally empathetic person.

      Fortunately, even though my tinnitus is quite loud, it really doesn't freak me out (it did in the first 6 months). People with other emotional/psychological issues seem to be the most affected, by FAR.
       
    11. Latte08

      Latte08 Member

      Tinnitus Since:
      05/2021
      Cause of Tinnitus:
      Unknown
      The most recent one I’ve gotten was “Are you sure it’s not a tumor?”
       
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    12. Danail

      Danail Member

      Tinnitus Since:
      October 2021 (moderate/severe)
      Cause of Tinnitus:
      caloric test
      I used to have that all my life before the incident happened and I received as a gift this 5 tonal monster in my head.

      I used to love the silence (the 0.2/10 tinnitus hissing) when I was going to sleep with or without my earbuds.
       
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    13. Damocles
      Pooptoast

      Damocles Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Ear Infection
      "oh [NAME], you're such a p*ssy"

      Work colleague, after I returned to work from a week long absence, not having slept more than 30 minutes a day, and wondering if I ever would again, due to newly onset severe tinnitus.

      "I mean, if we all took time off work just because of a little ringing..."

      work.gif

      Doctor, refusing to provide my employer with a sick note justifying my week long absence from work, due to newly onset severe tinnitus.
       
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    14. Stacken77
      Wishful

      Stacken77 Member Benefactor Hall of Fame

      Location:
      Sweden
      Tinnitus Since:
      10/2020
      Cause of Tinnitus:
      Noise (likely headphones & cars), Acoustic trauma did me in
      A statement like that would make my blood boil till evaporation.
       
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    15. Juan

      Juan Member Hall of Fame

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      Those are doctors who have never suffered from tinnitus and do not know personally any sufferers.

      I once met a doctor that totally understood this condition and knew that it can prevent people from sleeping etc.
       
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    16. Damocles
      Pooptoast

      Damocles Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Ear Infection
      lol

      I see this a lot, but mostly on the internet.

      Online doctors and health forums.

      The minute anyone mentions "tinnitus" there's always a self taught forum scientist/expert (or legit Doctor even) to step in and declare:

      "It could be an acoustic neuroma! You need to get it checked out immediately!"

      ASAP.gif
       
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