Freerunner
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Freerunner

Member, Male

My eyes detoriated within 1 week. Massive eye floaters and visual snow. Brutal sensitivity to light. So I have the whole package. Apr 28, 2022

    1. dennis_me
      dennis_me
      Hi Freerunner! How are you doing? Have your eye problems improved ?
      1. NYCGuy likes this.
      2. Freerunner
        Freerunner
        Hi @dennis_me , only a sight improvement in light sensitivity. It is better but nowhere near as normal.

        Regarding the other stuff - I still have visual snow and massive and numerous eye floaters.
        May 9, 2022
      3. dennis_me
        dennis_me
        Ohh man,I’m so sorry, I hope it continues to improve over time. I wish you all the best !
        May 9, 2022
        Freerunner likes this.
    2. Freerunner
      Freerunner
      My eyes detoriated within 1 week. Massive eye floaters and visual snow. Brutal sensitivity to light. So I have the whole package.
      1. dennis_me likes this.
      2. SB1981
        SB1981
        So sorry to hear about this. These conditions are relentless. They constantly find new ways to torture us.
        Apr 28, 2022
        Steph1710 likes this.
      3. dennis_me
        dennis_me
        I'm so sorry... Keep fighting. I wish you both all the best, life will get better...
        Have you looked to make an appointment with an opthalmologist? Don't know if it's possible with your hyperacusis ?!
        Apr 28, 2022
      4. Marshall
        Marshall
        What caused this, I’m so sorry this is happening..
        Apr 30, 2022
    3. dennis_me
      dennis_me
      Hi Freerunner, I saw your profile in some posts and I'm so so so sorry that your tinnitus and hyperacusis keeps getting worse. I hope that you are doing a little better today
      1. Rockman likes this.
      2. Freerunner
        Freerunner
        @dennis_me , thank you man
        Unfortunatelly no progress for me. How are you?
        Apr 21, 2022
    4. Ela Stefan
      Ela Stefan
      Hi! how are you?Could you do the stem cells therapy? I dont know how to pray anymore..but you are in my prayers!
      1. Freerunner
        Freerunner
        @Ela Stefan Hi there, I did not do the procedure since my hyperacusis worsened and I was not able to travel.
        Apr 17, 2022
      2. Ela Stefan
        Ela Stefan
        Im sorry.how do you feel now? is t any better?
        Apr 18, 2022
      3. Freerunner
        Freerunner
        Unfortunately no... Still getting worse tinnitus weekly as well
        Apr 21, 2022
    5. Freerunner
      Freerunner
      T keeps getting worse out of nowhere. Each week.Sometimes 2-3 times a week. Permanently.H is crippling, can't go out. I think I already died
      1. View previous comments...
      2. Freerunner
        Freerunner
        @catchthebus , my tinnitus is very severe , reactive and it keeps getting only worse. I doubt I can make it better. It is already devastating. It does not only worsen with sound exposure. But also mechanically, when I touch my ear for example. It is ridiculous but that's what happens. It is really loud and I have more than 10 tones.
        Mar 27, 2022
        catchthebus likes this.
      3. catchthebus
        catchthebus
        That truly sounds like a nightmare that just keeps getting worse. Hopefully, you can find some things to try to at least possibly take some of the edge off. If you never reached out to a clinic or something like that, it might be worth giving it a shot if you can afford it and you have nothing else to lose.
        Apr 3, 2022
      4. catchthebus
        catchthebus
        At any rate, I hope you can find something that works for you even if there is no cure, at least something that makes things even a little bit better or more tolerable for you. I’ll keep you in my thoughts! (when I’m not thinking about this horrible ringing sound in my brain )
        Apr 3, 2022
    6. Freerunner
      Freerunner
      I never imagined I will be one of the severest cases on the forum and in the world. For under 3 months I was already homebound.What happened
      1. DocTors_94
        DocTors_94
        @Freerunner I am sorry man. I am also in a really bad spot. I still feel trapped in a nightmare, like all of this happening right now seems surreal...
        Mar 16, 2022
      2. Freerunner
        Freerunner
        @DocTors_94 , I am sorry for you man. Do you have hyperacusis as well or only reactive tinnitus?
        Mar 17, 2022
        DocTors_94 likes this.
      3. DocTors_94
        DocTors_94
        @Freerunner I can't say I think I have mild/moderate H but T might be reactive, sometimes just gets worse for no fucking reason? 4 months into this and I still don't know/understand this monster fully...
        Mar 17, 2022
    7. MartinPihl
      MartinPihl
      I just read your posts, and can completely relate to not seeing a lot of improvement / none at all.
      This morning my hearing got extremely muffled on my left ear, and T through the roof.... I work as a teacher, so i panicked in the classroom :/
      Have you seen any improvement?
      1. Freerunner
        Freerunner
        No improvements at all
        Mar 15, 2022
      2. MartinPihl
        MartinPihl
        Im sorry to hear that. Grab your shield and sword and fight through this!
        Mar 15, 2022
        Freerunner likes this.
      3. Freerunner
        Freerunner
        If I did not have crippling hyperacusis I would have been able to fight it. But it feels I lost the battle.
        Mar 15, 2022
    8. Freerunner
      Freerunner
      H keeps getting worse and it was already catastrophic. Lost the ability to talk with muffs. They do not work anymore. Homebound and sad.
      1. Gabriel5050 likes this.
      2. AbeS
        AbeS
        Doesn't your voice sound louder when wearing muffs? It does for me. Deeply inserted earplugs works better.
        Mar 14, 2022
      3. Freerunner
        Freerunner
        It does sound a little louder
        Mar 15, 2022
    9. Freerunner
      Freerunner
      All my dreams, all my hard work and studying, everything that I went through to succeed. All this progress wiped out by 1 min caloric test.
      1. DocTors_94
        DocTors_94
        @Freerunner sorry man, I feel your struggle. I've lost everything too and I also suffer A LOT being homebound. We are young, we deserve our lifes back, at least with some berable T (or better not any T at all). I send you strengh.
        Mar 1, 2022
        Barry098 likes this.
      2. Freerunner
        Freerunner
        @DocTors_94 Thanks man. I hope we win this battle. Tinnitus and hyperacusis in brutal scales are only a small minority. Unfortunately, I feel I am one of them. My heart goes with all the people suffering.
        Mar 2, 2022
        Barry098, SB1981 and DocTors_94 like this.
    10. Freerunner
      Freerunner
      I have a T sound which activates only when I start moving or I take a deep breath. When sleeping, I try not to move so not to provoke it...
      1. NYCGuy and Steph1710 like this.
      2. Steph1710
        Steph1710
        @Freerunner I had the same thing this year, but now, thankfully it’s stopped. Every time I took a step, it started. It was so annoying.
        Feb 26, 2022
      3. Freerunner
        Freerunner
        @Steph1710 , This is with me from Christmas Eve. After the spike I had then, it changed my tones and this one in particular became quite irritating . I wonder how can my tinnitus be that bad? I mean seriously - it has only been 4 months. How much time did it take for ours to go away?
        Feb 26, 2022
    11. Wrfortiscue
      Wrfortiscue
      Hope you’re doing a little better today <3
      1. NYCGuy, ZFire, Steph1710 and 2 others like this.
      2. Freerunner
        Freerunner
        @Wrfortiscue , I am not unfortunately . I was able to cope somehow when the H was not crippling. 1.5 months I am homebound. How about you? When reading your posts I was left with the impression you are holding it together. I hope your progress continues !
        Feb 22, 2022
        ZFire and Wrfortiscue like this.
      3. Wrfortiscue
        Wrfortiscue
        @Freerunner sorry to hear that you may just need more time. I am doing a lot better both habituation and T wise. Still need ways to go
        Feb 22, 2022
        Freerunner and ZFire like this.
    12. IntotheBlue03
      IntotheBlue03
      Hey @Freerunner hows the new round of Grandaxin going for u? I hope good.
      1. JPGL and NYCGuy like this.
      2. View previous comments...
      3. IntotheBlue03
        IntotheBlue03
        I hope that new Rx is giving u relief :)
        Feb 22, 2022
        JPGL likes this.
      4. Freerunner
        Freerunner
        @IntotheBlue03 not at all. I discontinued clonazepam after 10 days and left only with the deanxit. At least mood wise I am a little bit better I suppose.
        Feb 22, 2022
        IntotheBlue03 likes this.
      5. IntotheBlue03
        IntotheBlue03
        So mood and anxiety is better for u? I’m wondering if I’m experiencing rebound anxiety from the Grandaxin. I was only on it for 3 weeks at this point and taking it twice a day in pieces. Hope I didn’t somehow encourage tolerance/withdrawal, I’m assuming that would be rare.
        Feb 22, 2022
    13. Freerunner
      Freerunner
      If getting new tones was a competition, I would be on the top. New tone in the right ear. I just keep on adding them out of the blue.
      1. JPGL, NYCGuy and Barry098 like this.
      2. View previous comments...
      3. aura
        aura
        When i don't sleep though i'm losing it in maximum 3 days. And the biggest problem is reactivity and hyperacusis.
        Feb 20, 2022
        Barry098 and Damocles like this.
      4. kingsfan
        kingsfan
        This reminds me of that scene in Jaws when they are comparing scars.
        Feb 21, 2022
        Damocles and aura like this.
      5. Freerunner
        Freerunner
        My tinnitus is severe, but my biggest issue is hyperacusis for sure because it keeps me homebound. I have many tones, I cannot even count them anymore.some of them either went away or changed pitch.
        Feb 21, 2022
        JPGL and aura like this.
    14. Freerunner
      Freerunner
      Watching my favorite team play. The feeling I get when I understand I will never be able to watch them on the stadium. I am even homebound
      1. View previous comments...
      2. Barry098
        Barry098
        @Freerunner I had to give up on the idea of ever performing music live again. This has been my passion, career and entire life as far back as I can remember. But, I can either look at it as the end of my life or the beginning of something new.
        Feb 21, 2022
        Freerunner likes this.
      3. Barry098
        Barry098
        I’m not done yet on this planet so as painful as it is to let go of everything I know and love, I try to choose every day to move forward into the unknown with the hope that answer to my new path will unveil itself.
        Feb 21, 2022
        Freerunner likes this.
      4. Barry098
        Barry098
        You will find your way through the darkness my friend…don’t lose hope.
        Feb 21, 2022
        Freerunner likes this.
    15. Freerunner
      Freerunner
      Tradition has been continued. Another new tone emerging in my left ear.
      1. NYCGuy likes this.
    16. Freerunner
      Freerunner
      I now spike from things like - short talk, eating... Each week I add a new tone to the collection and I am homebound. What's next?
      1. Wrfortiscue
        Wrfortiscue
        Sorry you’re suffering… just got to find a way to keep going on
        Feb 9, 2022
        Barry098 and Exit like this.
      2. DocTors_94
        DocTors_94
        You aren't alone... I'm also desperate to have a stable T. It's hell.
        Feb 10, 2022
        Barry098 likes this.
    17. Freerunner
      Freerunner
      40 days after H setback - still homebound, no improvement. T is 50 percent worse... Is there any hope? I think that was it. I did my BEST
      1. JPGL, NYCGuy and Wrfortiscue like this.
      2. Guywithapug
        Guywithapug
        Sorry to hear this, hoping for some improvement for you and for all of us on here.
        Feb 8, 2022
        Barry098, Exit, Freerunner and 4 others like this.
      3. aura
        aura
        It's still too early. Yes, i think there is hope. Don't give up.
        Feb 8, 2022
    18. Freerunner
      Freerunner
      After appointment with dr de Ridder - prescription for Deanxit and Clonazepam for 3 weeks. How do you guys think - should I follow this ?
      1. JPGL likes this.
      2. View previous comments...
      3. Freerunner
        Freerunner
        Deanxit basically keeps me calmer so I think I am going to continue taking it. I am tapering of Clonazepam. It did make me go to sleep faster but that was it.
        Feb 18, 2022
      4. aura
        aura
        @Freerunner it just keeps you calmer or does it also lower T/hyperacusis?
        Feb 18, 2022
        Damocles likes this.
      5. Freerunner
        Freerunner
        @aura So far no effect in T and H. I just felt H might be better the first couple of days but this might be a coincidence/placebo.
        Feb 19, 2022
        Damocles likes this.
    19. DocTors_94
      DocTors_94
      Hey, how are you doing? Are you any better?
      1. NYCGuy likes this.
      2. Freerunner
        Freerunner
        Getting worse on weekly basis. How about you?
        Feb 6, 2022
      3. DocTors_94
        DocTors_94
        @Freerunner getting worse too almost daily... Just no idea what to do. This condition is a joke... Doing really bad atm. So many regrets and desperation...
        Feb 7, 2022
        Exit likes this.
    20. IntotheBlue03
      IntotheBlue03
      Hey @Freerunner sorry one more question for u. Did your dr recommend a taper from Grandaxin or did u switch medications cold Turkey?
      1. View previous comments...
      2. IntotheBlue03
        IntotheBlue03
        @Freerunner I hope it works better for u this time I have been taking it 3x daily and it’s cut my T in half. That’s based on a very old study for it reducing T. I’m also looking into Alpha Stim to further reduce anxiety, it’s supposedly as effective as benzos. There’s a thread or 2 on here about it from @Tybs @Lane about its efficacy.
        Feb 6, 2022
        Barry098 likes this.
      3. IntotheBlue03
        IntotheBlue03
        I know u can get it without an Rx online if ur not in the stupid country of the USA. Hopefully it can help u. My heart breaks for all the severe T sufferers like urself. @Freerunner
        Feb 6, 2022
        Barry098 likes this.
      4. IntotheBlue03
        IntotheBlue03
        The Grandaxin has helped and it’s only been a week since I’ve started it but I’ve had severe constant panic that’s coming down each day but would be great to supplement with a non drug treatment like the Stim to help get me functional again. Hope something similar can do the same for you. @Freerunner
        Feb 6, 2022
        Barry098 likes this.
    21. Freerunner
      Freerunner
      Ear infection eardrops prescribed by ENT for possible ear infection. ( nitrofural/tetracaine hydrochloride/phenazone). Any suggestions?
      1. NYCGuy likes this.
    22. Freerunner
      Freerunner
      My left ear is surely damaged by the earplug the other day. All tinnitus sounds are much higher, new ones unlocked and it hurts.Going to ENT
      1. NYCGuy likes this.
      2. Freerunner
        Freerunner
        ENT was clueless about T and did not know what H is. I was not surprised. He inspected my ear and found nothing. Why Is it muffed then, it hurts and I have a louder tinnitus???
        Feb 2, 2022
    23. Freerunner
      Freerunner
      My ENT wants me to he hospitalized for T and H. How zo you think? Is there a point going after 3.5 months...?
      1. Stacken77 likes this.
      2. View previous comments...
      3. Barry098
        Barry098
        @DocTors_94 I actually had that very same thought awhile back. I think that the problem would be muscles quickly atrophying. If only cryonics worked…
        Feb 2, 2022
        DocTors_94 likes this.
      4. DocTors_94
        DocTors_94
        @Barry098 I wouldn't mind the muscle atrophy as far as it means no suffering from T... Wouldn't mind at all seriously...
        Feb 3, 2022
        Barry098 likes this.
      5. Barry098
        Barry098
        I hear you @DocTors_94...have hope though, it does get easier with time...I promise. For me 6 months seems to be the magic number. Not sure why, but both times I have had screaming tinnitus, things started to become more manageable right around the 6 month mark. I'm about 7 months in now on my 2nd bout of T and I can feel that it is starting to lose its death grip on my neck...
        Feb 5, 2022
    24. Freerunner
      Freerunner
      Can I damage my eardrum with foam plugs? I wore them yesterday 30 minutes but inserted them deep. Now left ear hurts and it is muffed a bit
      1. View previous comments...
      2. Freerunner
        Freerunner
        @Stacken77 usually this is the case with me as well. However yesterday I did feel a little pain when inserting them but thought nothing much of it. But I am paying it now.
        Jan 30, 2022
      3. Freerunner
        Freerunner
        I am ordering an otoscope so I can check inside. I want to go to my ENT but I cannot afford it due to the severity of the hyperacusis. Bad thing is that tinnitus tones in my left ear are now much higher... May be 30 percent increase ...
        Jan 30, 2022
      4. Ela Stefan
        Ela Stefan
        @Stacken77 what kind of earplugs do you use please?
        Apr 14, 2022
    25. Freerunner
      Freerunner
      I feel like fate did not give me the chance to fight this.I tried all my best really,up to the point where I got crippling H and 7-8 sounds
      1. guenguer likes this.
      2. guenguer
        guenguer
        Same + quite a lot hearing loss
        Jan 29, 2022
      3. Freerunner
        Freerunner
        @guenguer , how long did it take you to get so many sounds? I am just 3 months in...
        Jan 29, 2022
      4. guenguer
        guenguer
        @Freerunner well it was stable and very mild the first 8 years, but after that just months, still worsening.
        Jan 29, 2022
    26. Freerunner
      Freerunner
      Please recommend any relatively SAFE anti anxiety drugs that do not affect T and H.I really need something to chill me out since H worsened
      1. View previous comments...
      2. guenguer
        guenguer
        @Leila Johanniskraut worsened my VSS though.
        Jan 29, 2022
      3. Leila
        Leila
        @guenguer, thank you very much for pointing that out. I haven't tried St. John's wort myself. A friend of mine, who is neither a T nor H sufferer, uses it to battle his winter depression and reports that it helps him a lot. I guess, as with every new remedy, it's a bit of trial and error.
        Jan 29, 2022
        guenguer likes this.
      4. guenguer
        guenguer
        @Leila it's definitely an alternative to antidepressants, as usual results may vary :)
        Jan 30, 2022
    27. Freerunner
      Freerunner
      Another fleeting T episode left me with permanent tonal sound. It is the loudest tone I have.....
      1. guenguer likes this.
      2. aura
        aura
        Maybe it's not permanent!
        Jan 26, 2022
      3. Freerunner
        Freerunner
        Well I cannot say for certain. It either seems to reduce in volume and merged with my other sounds or it has disappeared.
        Jan 26, 2022
    28. Freerunner
      Freerunner
      H is 20/10.Sound tolerance dropped to hell levels. Earmuffs at home are not helping at all.What I am going to do? IT got so severe im SCARED
      1. Exit likes this.
      2. View previous comments...
      3. Freerunner
        Freerunner
        @Vassili Bro I keep on setting new records. I have pain hyperacusis that worsens constantly. I cannot even breathe or chew without this being so loud. Earmuffs do not help. I am so severe. I do not underestimate your case at all. I know what you mean. I was getting better from H but probably re-injured my ears and I am now homebound.
        Jan 25, 2022
      4. Barry098
        Barry098
        @Freerunner you need to start desensitizing your ears little by little or your H won’t improve. Think about it like a broken bone injury. You have to do PT in order to rehab it properly. I had severe H in 2017 from over protecting, but I very slowly exposed my ears to more sound and over the course of a few months it resolved. Playing a quiet instrument like acoustic guitar or ukelele is a great way to do this.
        Jan 25, 2022
        Steph1710 likes this.
      5. AnthonyMcDonald
        AnthonyMcDonald
        I'm sorry @Barry098 but I don't think that Freerunner is going to benefit from this advice. This type of desensitization advice when I was really bad is exactly what made me worsen to catastrophic levels.
        Feb 1, 2022
        Barry098 likes this.
    29. Jose Luis
      Jose Luis
      How are you doing? Hug! Jose Luis
      1. JPGL likes this.
      2. Freerunner
        Freerunner
        Not good at all my friend. How are you?
        Jan 23, 2022
    30. Freerunner
      Freerunner
      Cried to my mother for an hour over the phone. I am paying it already with T and H spike. I will better be off this world. It all felt apart
      1. View previous comments...
      2. ZFire
        ZFire
        Are you able to take a leave of absence from work? If yes, I would take at least 6 months off. If you are still not feeling well(unlikely) by then, then do what you have to do. Your health comes first.
        Jan 25, 2022
        Barry098 and Exit like this.
      3. Freerunner
        Freerunner
        I cannot take more than a couple of weeks unfortunately. My parents insist on doing the stem cells however I kept explaining them the severity of H and that I cannot travel now. They so not get it. They said that i will have to endure the pain but try to help myself
        Jan 25, 2022
        Exit likes this.
      4. Exit
        Exit
        Can’t blame them.., no one understands this unless you have it.
        Jan 25, 2022
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  • About

    Gender:
    Male
    Tinnitus Since:
    10/2021
    Cause of Tinnitus:
    Caloric test