Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

Discussion in 'Support' started by Adam Reynolds, Jul 11, 2022.

    1. Adam Reynolds

      Adam Reynolds Member

      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Unsure
      Hey guys and gals!

      Loooong time lurker on these forums. I felt that it was my duty to come here and tell you about my experience. Before I get to far ahead of myself I would like to apologize for the grammar and format as I am not an English major and just a regular person that once had crippling tinnitus.

      I first experienced crippling tinnitus in 2016. I woke up in bed with this loud ringing in my ear and freaked out. Went to the doctors and they had no answers. After I went on Google and researched everything I thought my life was over. It was EXTREMELY HARD for me to wrap my head around me living with this condition for the rest of my life. I thought my life was over.

      I’ve gone through some rough patches in life, but this was the worst. My relationships and career suffered greatly.

      I Googled way too much. Google was my enemy during this whole ordeal. My mind was consumed by other people’s experiences with tinnitus and I quickly realized that most people that get better do not come back and post success stories.

      I decided to come back and tell you that it ABSOLUTELY DOES GET BETTER!

      People that get better rarely come back here to post. I was one of them but felt like I was obligated to because I know how awful you can feel. Please reach out to me or anyone else if you need guidance or help.
       
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    2. dan
      Chatty

      dan Member Hall of Fame

      Location:
      Toronto, Canada
      Tinnitus Since:
      06/2011
      Cause of Tinnitus:
      Loud noise
      "Crippling tinnitus" - as in unmaskable?
       
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    3. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      Most people with mild stable tinnitus get better yeah.
       
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    4. Yorleny

      Yorleny Member

      Tinnitus Since:
      03/2021
      Cause of Tinnitus:
      Antipsychotic medication - Seroquel pill - Permanent
      Is your tinnitus better now or bearable? I’m happy for you. This is nice to see as I’m at the moment kind of scared because tinnitus is still new to me. I got it last year April. It’s scary but I have accepted it and deal with it.

      Do you have any advice?
       
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    5. Joe Cuber
      Curious

      Joe Cuber Member Podcast Patron Benefactor

      Location:
      California, USA
      Tinnitus Since:
      03/2022
      Cause of Tinnitus:
      Gradual hearing loss + a huge amount of stress
      Thanks for your enthusiastic optimism @Adam Reynolds. I'd sure like to believe I'll get better in time. I'm having one of those bad days today, so I'm not the most optimistic myself right now.

      What was your tinnitus experience like and how long did it take for you to recover? Did you do anything in particular to aid in your recovery?

      I bet I could rummage through your history here, but thought I'd ask up front since I'm exhausted right now from the day I've been having, and I'm ready to try to get some shut eye, cheers!
       
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    6. Leila
      Cold

      Leila Member Benefactor

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      1 chiropractic treatment, 2 and 3 no cause
      I'm happy to hear your tinnitus improved to the point you "got your life back" - it's encouraging to hear that after so many years there still is a chance of improvement :)
       
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    7. Rayk

      Rayk Member

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Probably loud music through headphones followed by Stress
      Some people do get better and some people don't.
       
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    8. makeyourownluck
      Sad

      makeyourownluck Member

      Location:
      Scotland
      Tinnitus Since:
      07/2021
      Cause of Tinnitus:
      Unknown
      Did you not mention recently that your tinnitus does not spike as easily, and is ‘better’ following a terrible 7 month period?

      There are several people on here who have habituated to severe multi-tonal tinnitus after a few years. Maybe you will get to this point eventually.
       
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    9. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      Oh yes, I am much more stable than before. By habituate you mean not hear it? That would be impossible of course, at least at the level it's now. If you mean that I don't suffer as much anymore and try to do things I enjoy regardless (that don't spike me), then yeah, I guess you can say I somewhat habituated.
       
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    10. SmallRonnie
      Ape-like

      SmallRonnie Member Podcast Patron Benefactor

      Location:
      Ireland
      Tinnitus Since:
      H since 2018. T since 2021
      Cause of Tinnitus:
      Loud noise
      I see you post here quite a bit. You obviously have a severe case of tinnitus.

      Have you ever tried any therapy? CBT or TRT?

      You have a much lower chance of tinnitus reducing in volume with your current mindset.
      I read this after I wrote the above to you. Seems like you are habituating slowly.

      The noise never fully goes away in people who habituate. They just stop caring about it.
       
    11. makeyourownluck
      Sad

      makeyourownluck Member

      Location:
      Scotland
      Tinnitus Since:
      07/2021
      Cause of Tinnitus:
      Unknown
      Thanks for clearing that up.

      No, I didn’t mean that you won’t hear it. I don’t think many truly severe cases will get to that point, but they will be more able to cope and enjoy life again.

      It’s important that people reading this know that even catastrophic cases can see improvement. Everyone thinks their tinnitus is severe/catastrophic in the beginning. It’s a very delicate period.
       
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    12. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      There's a point when these things stop being effective. I passed that a while ago.

      Well, It still impedes my everyday life quite a lot. I can't really go outside or to gatherings etc.
       
    13. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      Oh yeah I agree. 99.9% of people will never get as bad as me. However I was patient and improved somewhat eventually.
       
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    14. Stacken77
      Wishful

      Stacken77 Member Benefactor Hall of Fame

      Location:
      Sweden
      Tinnitus Since:
      10/2020
      Cause of Tinnitus:
      Noise (likely headphones & cars), Acoustic trauma did me in
      CBT or counseling are good options when one is trying to deal with their current volume of tinnitus, however they are completely powerless in the face of severely reactive/unstable tinnitus, as @AnthonyMcDonald mainly refers to. Stability is key here.
      The volume of the tinnitus is objective and can very likely accurately be measured with future technology. I think objective volume improvements (or worsening) is completely independent of one's mindset. The mindset may however be very important with regards to how we deal with the tinnitus, but that's entirely different.
       
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    15. dan
      Chatty

      dan Member Hall of Fame

      Location:
      Toronto, Canada
      Tinnitus Since:
      06/2011
      Cause of Tinnitus:
      Loud noise
      That's true, read member @Telis' early posts and compare after 4-5 years. He practically got his life back over the course of about 5 years (volume reduction plus habituation). Unfortunately, like many, we get complacent (myself included) and worsen to unfathomable levels - then we say we miss our old "severe" tinnitus.

      I hope he is alright today....
       
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    16. makeyourownluck
      Sad

      makeyourownluck Member

      Location:
      Scotland
      Tinnitus Since:
      07/2021
      Cause of Tinnitus:
      Unknown
      Seems like @Telis often takes long breaks from the forum and then reappears. Hopefully he has improved.
       
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    17. Toby1972
      Sleepy

      Toby1972 Member Benefactor

      Tinnitus Since:
      2021
      Cause of Tinnitus:
      Noise drama and stress
      My tinnitus also has a stable direction. It's definitely getting worse every year.
       
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    18. AUTHOR
      AUTHOR
      Adam Reynolds

      Adam Reynolds Member

      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Unsure
      Hey Day! Yes and no. It doesn’t bother me like it used to.
       
    19. AUTHOR
      AUTHOR
      Adam Reynolds

      Adam Reynolds Member

      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Unsure
      Sorry to hear that :(
       
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    20. AUTHOR
      AUTHOR
      Adam Reynolds

      Adam Reynolds Member

      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Unsure
      My tinnitus was far from mild. It’s still there but I’ve learned ways to cope with it and my life is back to what it was before.
       
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    21. AUTHOR
      AUTHOR
      Adam Reynolds

      Adam Reynolds Member

      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Unsure
      Yes it gets better.
       
    22. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      Does it spike daily from noise less than 40 dB?
       
    23. fishbone
      Shitfaced

      fishbone Member Hall of Fame

      Tinnitus Since:
      1988
      Cause of Tinnitus:
      loud noise and very bad sickness
      Tinnitus is such a complex ordeal, there could be many moving parts within it. I have dealt and still do with many aspects of it these days. Seeking improvement is something all of us want. I like to think about it this way - I have dealt with many setbacks (some have, really impacted my tinnitus) and then a new journey begins.

      The setbacks could bring back old issues that I may have faced years ago and it could bring on new elements as well.

      It's like having to start over at times and this can be difficult.

      As I said, there are so many parts to the tinnitus we face each day.

      All of us are unique and deal with certain issues and situations.

      For me getting "better" is more subjective - If I am dealing with multiple issues because of my tinnitus, seeing even one part of it improve, can be a small win for me.

      In my decades living with tinnitus, I rely on those small wins.

      It takes and it has taken "lots" of efforts to see those small wins, but it's possible for them to happen.

      This philosophy lends itself, to life outside of tinnitus as well.

      We need to try to find our "small" wins.
       
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    24. Eleanor89
      Approved

      Eleanor89 Member

      Location:
      Barrow in Furness
      Tinnitus Since:
      1995
      Cause of Tinnitus:
      Unknown
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    25. DirM
      Pensive

      DirM Member Benefactor

      Location:
      San Diego
      Tinnitus Since:
      July 11, 2016
      Cause of Tinnitus:
      TMJ/TMD
      Since I have not logged in for a couple of years, I thought I would post here since I did "come back" after remembering Tinnitus Talk after seeing it in an old email.

      And why did I forget about this site? Since my tinnitus doesn't bother me (I've had it for six years). It is still around, about a 2/10 on most days, going to a 4/10 on many.

      Now, I did get some volume relief early on, bringing it down from a 6-8 when it started, making it easier to habituate (mine is caused by TMJ, so some relief through therapy was possible).

      The best advice I remember about habituating is that you have to separate the emotional response from the noise. Early on it was anguish, anger, sadness, and so on, and a video I remember (but can't find now) was to simply state out loud the feelings you are feeling about the tinnitus. Now I hear it and simply think of it as noise, I don't have an emotional response to it.

      I had to go through a lot to get there - not only physical therapy but also emotional therapy. And I had to accept that I will have this the rest of my life. Accepting that I think made habituating easier since I did all I could do, and now it will be a part of me until I die.

      So most of the day I don't hear it - I watch TV, read, listen to music, have conversations, and I don't hear it. Like right now, you don't feel your bottom touching whatever you are sitting on, until you read that sentence. Your mind is bombarded by stimuli constantly - touch, sight, sound - most of which is filtered out if it doesn't need your attention. After a time (sometimes years), for most, the tinnitus will become one of many stimuli that is filtered out, like your seat bottom.

      It isn't easy, and I was doubtful about this when it started, thinking it was something for people who have given up. But I think it is true for most if you give it time.
       
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