Tinnitus Hub / Talk Survey Results

Discussion in 'Research News' started by Steve H, Mar 22, 2016.

tinnitus forum
    1. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      An article about the survey was published in American Tinnitus Association's Tinnitus Today magazine (Spring 2016 issue).

      Attached (also attached this to the first post of the thread).
       

      Attached Files:

      • Like Like x 5
    2. Starthrower

      Starthrower Member

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      This is excellent!

      The reason for my first post on your site. Nice work after all the hardships since beginning your website. I am not active on the internet world but I do follow what is going on. And I know how hard it is to get this far. Never stop moving forward.
       
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    3. wishingluck
      No Mood

      wishingluck Member Benefactor

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      not sure, but probably acoustic trauma
      Thank you Steve! don't worry about the quality of the print, etc, that stuff is never important, what matter is the content. I see in the survey that there's several 'treatments' that have an high score, all treatments I thought were useless, such as TRT, etc....I will have to investigate. Hope you feel better.
       
    4. jeannie
      Stressed

      jeannie Member

      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Noise-induced, Ear Infection, Medication... Who knows?
      Thank you Steve.very interesting.
       
    5. Jamclem
      Fine

      Jamclem Member

      Location:
      Switzerland
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Flying then Sport (Probs)
      So by the looks for it Retigabine and Gaba drugs such as Xanax are probably most effective?? Interesting how rTMS is rated not highly in effectiveness. I am actually taking part in a clinical trial in February for deep brain stimulation tRNS2-tin but doubt it is the same as rTMS.
       
    6. Sailboardman
      Frustrated

      Sailboardman Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      04/21/2014
      Cause of Tinnitus:
      Sensorineural hearing loss right ear.
      Nice work @Steve H.

      In regards to my T, I have it only in one ear, even after two years and it came about after SSHL. My right ear lost hearing from 2-8k standard test and at 65-70db's straight across. This occurred overnight. I believe I'm probably, profoundly deaf above 11K. Can't hear any high frequencies. Without a hearing aid I wouldn't hear much at all out of that ear.

      Being there's such an imbalance from one ear to the other, my T is percieved in my ear, not my brain. I have many frequency shifts in my bad ear during the day, which indicates to me, the cochlear is creating this, not my brain. It's more mechanical in nature, than psychological.

      It still baffles me how so many people I meet with hearing aid(s) have no T at all and some with no hearing loss have T. This makes me believe, a one drug fits all cure, is many years away. There's just so many variables with this condition.
       
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    7. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
      @Sailboardman do you think treatment is possible within the next 5-10 years ?
       
    8. Sailboardman
      Frustrated

      Sailboardman Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      04/21/2014
      Cause of Tinnitus:
      Sensorineural hearing loss right ear.
      Anything is possible. However, with so many different ways to acquire tinnitus, I'm doubtful a complete cure, will come in a drug form.

      For hearing loss, I could invision stem cell treatments, doing most of the heavy lifting, in revitalizing hair cells. I honestly believe, researchers are only beginning, to understand what exactly will restore a damaged cochlear.

      The problem is, the human hearing system is a delicate instrument, encased in solid bone. Nano surgery would be required to tinker with such a tiny and complicated device. Plus, our hair cells are floating in fluid, like strands of seaweed, waving back and forth in the sea currents. I'm not sure invasive surgery, would ever do much good anyway?

      I suspect when I die, the last thing I'll hear, is my tinnitus. If I was twenty, maybe before I died, there would be a "true" cure.
       
    9. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
      I am 20 but I've had every hearing test possible done and I have zero hearing loss
       
    10. wishingluck
      No Mood

      wishingluck Member Benefactor

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      not sure, but probably acoustic trauma
      there's no rational reason that would impede that, and there's no rational reason that would guarantee it.

      Me, I am hopeful, although not delusional. As I always say, being optimistic and being a total pessimist, isn't rational.
       
      • Agree Agree x 1
    11. wishingluck
      No Mood

      wishingluck Member Benefactor

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      not sure, but probably acoustic trauma
      I respect your opinion, but completely fail to see the point.

      Why do you 'suspect' that when you die, the last thing you'll hear is your tinnitus? You aren't dead yet.

      In 10 years, anything can happen, indeed, from another world war to a cure for cancer. The only thing I can be sure about, is that no one can predict the future, and pretending we can is a waste of time.

      Look at history....from a year to the next there have been world wars, right when life really was pretty good. And right when the Hitler seemed to have the upper hand, he got his ass beaten.

      No one knows the future. Things can change and be better or worse. People die of cancer. But they also win jackpots. Anything is possible, indeed. The real problem is, no one has any control over it.
       
      • Agree Agree x 2
    12. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
      They can have another World War but not until they cure T
       
    13. Dutchy
      Not worthy

      Dutchy Member Benefactor

      Location:
      Netherlands
      Tinnitus Since:
      12/2014
      Cause of Tinnitus:
      Neuronmodulation suggests noise induced?
      According to current standards,who knows what kind of damage they're not detecting with their tests.
      Just to make it clear that I made this observation from my personal experience with the audiologist,
      they would've settled with the results from the test up to 8KHz and I had to make a separate request
      to test for the higher frequencies which shows me having trouble hearing beyond 14KHz.
      So is their testing methodology even valid?that is my overall feelings towards the existing literature.
       
    14. OnceUponaTime
      Facebooking

      OnceUponaTime Member Benefactor

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      Fantastic job! Thank you for all you do.
       
    15. marqualler
      Nerdy

      marqualler Member Benefactor

      Location:
      Minneapolis, MN
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Ear infection / Mild Noise Induced Hearing Loss
      Fantastic work! Tinnitus Hub & Tinnitus Talk (and their members) are making a splash just like we should... great work all around everybody.
       
      • Agree Agree x 3
      • Like Like x 2
    16. Alue

      Alue Member

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      Bump.
      @Steve H Did you ever find a statistician to analyze the data?
       
    17. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      It's in progress. We potentially have a stats prof but he may be a little busy. There is a plan b though which I'll update on very soon.

      Whatever happens we will be getting the analysis and will also soon plan a follow up based on the more interesting findings.
       
    18. Alue

      Alue Member

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      @Steve H

      It's been 6 months, any luck with getting the data analyzed?
       
    19. Rasmus
      Chicken

      Rasmus Member

      Location:
      Denmark
      Tinnitus Since:
      around 02/2015
      Cause of Tinnitus:
      Not sure maybe to much noise
      I don't have hearing loss and mine has been checked. At least Noise ear throat doctor says my hearing is fine, and I don't have problem with any hearing at all :/ I don't think T has something to do with hearing, I think it's something else in your ears. (Maybe it could also be jaw or neck but this is unlikely I think). I can hear up to around 16.000 Hz in both ears.
       
    20. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      Something is coming out pretty soon. It's not a full analysis but it's a paper looking at the data and comparing to other data sources. As soon as it's live we'll link to it.
       
      • Like Like x 4
    21. Kelvin

      Kelvin Member Benefactor

      Location:
      UK
      Tinnitus Since:
      June 2016
      Cause of Tinnitus:
      Dental Work
      Wow !! that shows just how complex this damn thing is. Hopefully you can share with medical researchers if they show interest. I guess thats a big 'if ' though Give the complexity and individuality of T I would guess that drug companies are unlikely to make a big profit from a one pill fits all solution. Thanks for doing that. Its fascinating - even to a layman.(y)
       
      • Like Like x 1
    22. racerfish
      No Mood

      racerfish Member Benefactor

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      Noise / T worsened with antiobiotics
      This is great work that you've done here. I found a lot of the information very interesting. Of most interest to me were success and failure stats for various treatments. Is there a way to break that info down somehow so you could see, for example, most of the people who responded well to steroids got T from noise but not from some other cause. Or most people who didn't respond to Gingko, for example, got T as a result of a head injury.
       
    23. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      Yes we can do some basic correlations within the survey software. If you have a particular thing to look at I can try and find it out.
       

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