Visual Snow Syndrome: Proposed Criteria, Clinical Implications, and Pathophysiology

Discussion in 'Research News' started by brokensoul, Jan 31, 2020.

    1. Sevv

      Sevv Member Benefactor

      Tinnitus Since:
      12.04.2019
      Cause of Tinnitus:
      Loud concert
      If you worry enough maybe. Anxiety is a major cause. But I guess only few people with tinnitus get VS, otherwise VS wouldn't be so unknown.
       
    2. Skity

      Skity Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Noise trauma / TMJ
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    3. aot
      Bookworm

      aot Member Benefactor Hall of Fame

      Location:
      USA
      Tinnitus Since:
      2016. Worsened 11/2019.
      Cause of Tinnitus:
      Probably sound induced, worsened due to noise expouse + flu.
      Has anyone had their VS get temporarily worse, and then go back to baseline?

      I work up at 5:00 on monday and my VS was crazy. A bunch of crazy shapes were everywhere, trailing was insane, and of course my tinnitus was louder.
      I made to the bathroom and my vision was thumping in correlation with my heartbeat. I splashed some water on my face and calmed myself down. The visual symptoms went back to baseline, and the tinnitus went down after about 15 minutes.

      I've been super stressed lately. Could that be the cause?
       
    4. FGG
      No Mood

      FGG Member Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      I had something similar recently. I saw these green effects over my regular VS. It was almost similar to something out of the Matrix. I felt like I could almost make out these type writer type letters swirling in there too.

      My tinnitus was amped up *very* loud when this happened but I made myself fall back asleep and when I woke up it was back to baseline.

      For me, it seemed definitely tied to waking up in the middle of the night. I thought at first maybe it was a night terror but now I'm wondering if disturbing the brain during part of sleep can do this.
       
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    5. Orions Pain
      Dreaming

      Orions Pain Member Benefactor

      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Loud music
      Mine is terrible when I wake up in the middle of the night. If I walk to my bathroom it starts pulsating as you mentioned.
       
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    6. Skity

      Skity Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Noise trauma / TMJ
      Anyone knows what's up with Visual Snow Initiative’s Visual Imagery Project (VIP) trial?

      They popped out of nowhere with this trial and I couldn't find any information whatsoever regarding it or any science to back it up. If it wasn't free I'd call it snake oil but quite frankly I'm just confused.
       
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    7. aot
      Bookworm

      aot Member Benefactor Hall of Fame

      Location:
      USA
      Tinnitus Since:
      2016. Worsened 11/2019.
      Cause of Tinnitus:
      Probably sound induced, worsened due to noise expouse + flu.
      It didn't pop out of nowhere. VSI has been vocal about it's development on their social media for the past few months. Thing is that's it's been delayed a bunch of times due to money issues.
       
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    8. Sevv

      Sevv Member Benefactor

      Tinnitus Since:
      12.04.2019
      Cause of Tinnitus:
      Loud concert
      It's probably similar to residual inhibition for tinnitus. Certainly worth a try.
       
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    9. Skity

      Skity Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Noise trauma / TMJ
      Okay, I'm with you on this, especially as I got nothing to lose, just finished session number one, went alright, really lost time perspective while doing this as I thought I'm only half way through and all of a sudden I got the finished message.
       
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    10. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I tried it a few hours ago and my static is mostly gone. I still see it with my eyes closed but when I look at the wall I usually see the most static on in my room it’s just not there.

      Also palinopsia has been all over the place. It’s reduced a bit but right now it’s a bit worse than usual.
       
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    11. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Yeah for some reason the timer begins while the session begins, NOT when the video begins. Poor web design in my opinion.
       
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    12. Skity

      Skity Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Noise trauma / TMJ
      Oh so it was probably not just my wrong sense of time but I really did miss out a few minutes as I was preparing, hope it won't harm the progress, but I find it hard to believe.
       
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    13. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Will this new treatment only work for the static vision aspect of visual snow or also the associated visual disturbances, I wonder?

      Visual snow is a lot more than just static vision (as you all probably know)
       
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    14. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      It's not supposed to, in fact apparently reduction in not just VS, but palinopsia, halos, tinnitus, migraines, and limb numbness are being tested. Apparently 47% of people experienced both reduction in visual and these non visual symptoms, but the team improved it. Lets see if it's much better.
       
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    15. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Wow, that's actually quite exiting to hear.

      I see someone on here already reporting starting treatment. Where do one get this treatment?
       
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    16. aot
      Bookworm

      aot Member Benefactor Hall of Fame

      Location:
      USA
      Tinnitus Since:
      2016. Worsened 11/2019.
      Cause of Tinnitus:
      Probably sound induced, worsened due to noise expouse + flu.
      https://visualsnowproject.com/

      Best if viewed on a laptop or desktop.
       
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    17. Sevv

      Sevv Member Benefactor

      Tinnitus Since:
      12.04.2019
      Cause of Tinnitus:
      Loud concert
      How long did the effect last? Or does it still?
      Also, how bad are/were your symptoms?

      Mine's a 1/10 (translucent), trailing maybe a 2/10, negative afterimages a 1/10. No big deal after getting used to, but don't wanna make it worse.^^
       
      • Good Question Good Question x 1
    18. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      For me, it wore off completely by nightfall (8 hours later). Bear in mind it was the first day though.
       
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    19. Sevv

      Sevv Member Benefactor

      Tinnitus Since:
      12.04.2019
      Cause of Tinnitus:
      Loud concert
      8 hours? Holy shit, that's long. So this was sort of your first day in years with normal sight?
       
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    20. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Thanks. I'll try it.

      Like I said I'm not too bothered by my very mild static/snowy vision, but it would be interesting to see (punny :D) if this treatment could actually make my vision clearer, and maybe help other visual disturbances, which I am more bothered about, like afterimages, or glare and halos (I don't expect it to work on floaters, as they are a physical thing).

      EDIT: Well, it seems I can't watch the video. My internet connection is so bad, it keeps stopping :/
       
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    21. Sevv

      Sevv Member Benefactor

      Tinnitus Since:
      12.04.2019
      Cause of Tinnitus:
      Loud concert
      Did one session. Changed the way my VS looked a bit and because of that it seemed slightly worse (because I wasn't habituated to this pattern) for a couple minutes. Afterimages were also increased for maybe 2-3 minutes. Maybe my VS is too mild?
      Can't you preload then play the video?
       
    22. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Not really, I've had a few days where it was gone because I took Xanax. But yes this was the first time it did it without medicine, and it happened right after the treatment so it cant be a coincidence.
       
    23. Sevv

      Sevv Member Benefactor

      Tinnitus Since:
      12.04.2019
      Cause of Tinnitus:
      Loud concert
      Interesting, maybe Xanax would help mine too. But I'm not gonna touch that stuff unless forced...
       
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    24. aot
      Bookworm

      aot Member Benefactor Hall of Fame

      Location:
      USA
      Tinnitus Since:
      2016. Worsened 11/2019.
      Cause of Tinnitus:
      Probably sound induced, worsened due to noise expouse + flu.
      EXnFEMhU0AAS-9U.jpg
       
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    25. Lucifer

      Lucifer Member Podcast Patron Benefactor

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Ear Infection
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    26. Skity

      Skity Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Noise trauma / TMJ
      Just finished the fourth day, and I have to admit, this is by far one of the most boring things I've ever done, and I don't think I can handle another day of this, its like watching paint dry.

      Result wise, I don't really notice any difference in my visual snow, but my visual snow is pretty mild and honestly I don't notice it unless looking at a white wall or at the sky so it doesn't really bother me that much.
       
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    27. pinklights98
      No Mood

      pinklights98 Member

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      Loud Noise Exposure
      Does this work on floaters?
       
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    28. ASilverLight
      In pain

      ASilverLight Member Benefactor

      Tinnitus Since:
      01/2020
      Cause of Tinnitus:
      Probably noise, stress and a neck injury.
      I tried this even though my VS is really, really mild (blank surfaces / bright light only) but after just 2 sessions my symptoms got worse so I quit. Been a few days and it's back to normal now.

      Should add tho I had this low level of VS years before tinnitus.
       
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    29. aot
      Bookworm

      aot Member Benefactor Hall of Fame

      Location:
      USA
      Tinnitus Since:
      2016. Worsened 11/2019.
      Cause of Tinnitus:
      Probably sound induced, worsened due to noise expouse + flu.
      Interesting. Well, it certainly does something. Some people have reported improvements, some worsening. And this seems to vary depending on what day they're on. Both effects seem to be temporary.

      I wonder if it depends on the severity of your VS.

      Still, I wasn't expecting much. It's only in its first incarnation. I wish there was a forum section for VS. The subreddit and Tapatalk forums aren't really that active.
       
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    30. Allan Mcmillan

      Allan Mcmillan Member

      Tinnitus Since:
      April 30 2019
      Cause of Tinnitus:
      Acoustic shock from playing guitar with headphones

      Energyflare here. I think I had temporary visual snow when I developed tinnitus for the first time. However, I got full blown visuals from HPPD one year after that. So yeah, I think it can go away if caused by tinnitus/HPPD but other pathologies seem to be irreversible.
       

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