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Hi I saw an older post you have about itching in your ear. I was at a concert about 6 weeks ago and the day after I would start experiencing this "dull ache" sensation if I listened to music too loud.

Over the past few weeks I notice an itching sensation in place of what use to be the dull aches. Do you still have itching or did that eventually go away ?

I was at an ENT and the hearing came back pretty normal and he thought it might have been TMJ which I know its not the case.

Thank you,
Believe me, I know how you feel. Mine isn't nearly as loud as it was in the beginning, but it still causes me a lot of anxiety. I alternate between "I'll be fine" and "My life is ruined" every other minute. The hardest part is not knowing what the future holds. I'd be fine if I knew for a fact it would resolve and a general timeline. I try to see each night as a new chance for healing and remember that most people do recover, regardless of age or cause, even if it takes awhile. I have recovery stories taped to my doors and walls. Each day is long, but hopefully one day soon this will just be a bad memory. Keep in mind it's still early days. Many, many people don't see the first signs of recovery until after Month 6. There's still time.
Hey. I read your post and was wondering if you could link me to the video by Benn Jordan that you mentioned, please ?

Thank you.
Fenrisulfr
Sure thing!

The title doesn't immediately hint that tinnitus is a talking point, but a good third to half of the video is about Tinnitus and its connection to hearing loss and its potential treatments.
How are you doing?
E
I don't wish to be all doom & gloom Sonia, I really don't. But I've dropped into a pretty bad depression. I just can't see an escape from this hellhole right now. I'm going around in circles. Its not even particularly loud at the moment but its there, and that frightens me. I'm such a defeatist.

How are you ?
hello jenny is that you in pfp you look lovely hopefully we get our lives back its hard it will never be the same but functional maybe
Imagine you are in city, where is trial for CL-102, you have acute SSHL, but your loss in only 40 db, instead of 65db+. So you can't entrol in this study 😫
how old are you mate how loud is your tinnitus are you young like me im only 30
FellowSufferer
I'm 23, my tinnitus these days is like a 3 /10 but at the start of the year and for the 3 years before that it was like a 6/10
Even in terrible grief after the passing of a close one tinnitus doesn't leave me alone - its almost painful.
In need of a bit of advice : I'm weening off hearing protection at home, my hyperacusis is really settling down, but my tinnitus is getting worse. It gets so loud by just having simple conversations although it does not hurt my ears
delta784
im so sorry nes do you have tinnitus felt in skull middle of my brain
Nes
@delta784 not really, mine is more localized in my ears directly (both ear are drastically different)
I have been getting a loud cricket chirping in both ears for a few days now. Is it due to sertraline? Does anyone have any experience with it? I can't shake the feeling that I'm a particularly bad case.
No idea where this low bass like sound comes from. It comes and goes as it pleases, but I feel like it's becoming more and more frequent
:(
Still getting this weird nausea feeling after certain sounds. I just played old game trought CRT-TV and the volume was not even loud. But it's the high pitch whining that gets to me.
Kain
Yeah I hate booting up my N64 and PS2 on the CRT, that high pitch noise is rough.
I saw you reached out to some of these doctors who are pursuing DBS. Would you send me their email addresses? I might be able to help them with some of their funding challenges.
H
Cheung, Steven <Steven.Cheung@ucsf.edu>
Larson, Paul Sloan - (pslarson) <pslarson@arizona.edu>
The first dr is the one who did the first trial in america for tinnitus, he pointed me to the second dr. Who said they might start next year if funding allows. Good luck.
Scrolling thru my own profile posts should provide me enough reassurance that my TTTS will subside again as it has done many times before. But my anxiety will not let me believe that. I can't stop freaking out and am terrified it won't go away this time. Please tell me I'll be okay. I'm so miserable
I think i have cochlear synaptopathy due to glutamate excitoxicity which methylprednisolone caused rare as f
I'm so afraid that everything keeps getting worse and staying worse. I'm not sure it'll ever get better. I know I've improved before, but this time idk. I feel like I have to just give up.
When I woke up my hearing in my left ear was muffled (not completely, just had an underwater sensation). It lasted maybe an hour and mostly seems okay now. Also had loud, frequent fleeting T in that ear. ENT said they can see me tomorrow - should I go even if it seems better? If it was SSHL I'd think it would be persisting longer than this. Could maybe just be from my TTTS?
D
This kind of episodes troubles me as well. Sudden pressure, loud (different than my usual) tinnitus and sometimes changes in hearing (temporary, lasting around 1 hour). The description fits hydrops, but everytime I saw a doctor they found no other signs of hydrops. So they told me it might be transient ear ischemia, ear migraine, spasm or SBUTT. I also got TTTS and MEM, so I don't know what to think anymore.
D
Just in case, I suggest you take some steroids/Prednisone, Betahistine, vasodilators or anything you have in hand.
how are you
Joshua Macleod
I'm okay at the minute. More importantly, how are you?
delta784
i have so much anxiety non stop except im sleeping and ear pain + tinnitus im planning to start gabapentin for anxiety. i had no choice its making me how can i say non functional
Joshua Macleod
I feel that, @delta784 - sorry to hear it's non-stop.

Keep us updated on how the gabapentin works out.