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Nes
In need of a bit of advice : I'm weening off hearing protection at home, my hyperacusis is really settling down, but my tinnitus is getting worse. It gets so loud by just having simple conversations although it does not hurt my ears
delta784
im so sorry nes do you have tinnitus felt in skull middle of my brain
Nes
@delta784 not really, mine is more localized in my ears directly (both ear are drastically different)
DamagedJoe
I have been getting a loud cricket chirping in both ears for a few days now. Is it due to sertraline? Does anyone have any experience with it? I can't shake the feeling that I'm a particularly bad case.
S
Still getting this weird nausea feeling after certain sounds. I just played old game trought CRT-TV and the volume was not even loud. But it's the high pitch whining that gets to me.
Kain
Yeah I hate booting up my N64 and PS2 on the CRT, that high pitch noise is rough.
W
I saw you reached out to some of these doctors who are pursuing DBS. Would you send me their email addresses? I might be able to help them with some of their funding challenges.
H
Cheung, Steven <Steven.Cheung@ucsf.edu>
Larson, Paul Sloan - (pslarson) <pslarson@arizona.edu>
The first dr is the one who did the first trial in america for tinnitus, he pointed me to the second dr. Who said they might start next year if funding allows. Good luck.
PennyCat
Scrolling thru my own profile posts should provide me enough reassurance that my TTTS will subside again as it has done many times before. But my anxiety will not let me believe that. I can't stop freaking out and am terrified it won't go away this time. Please tell me I'll be okay. I'm so miserable
delta784
I think i have cochlear synaptopathy due to glutamate excitoxicity which methylprednisolone caused rare as f
PennyCat
I'm so afraid that everything keeps getting worse and staying worse. I'm not sure it'll ever get better. I know I've improved before, but this time idk. I feel like I have to just give up.
PennyCat
When I woke up my hearing in my left ear was muffled (not completely, just had an underwater sensation). It lasted maybe an hour and mostly seems okay now. Also had loud, frequent fleeting T in that ear. ENT said they can see me tomorrow - should I go even if it seems better? If it was SSHL I'd think it would be persisting longer than this. Could maybe just be from my TTTS?
D
This kind of episodes troubles me as well. Sudden pressure, loud (different than my usual) tinnitus and sometimes changes in hearing (temporary, lasting around 1 hour). The description fits hydrops, but everytime I saw a doctor they found no other signs of hydrops. So they told me it might be transient ear ischemia, ear migraine, spasm or SBUTT. I also got TTTS and MEM, so I don't know what to think anymore.
D
Just in case, I suggest you take some steroids/Prednisone, Betahistine, vasodilators or anything you have in hand.
delta784
how are you
Joshua Macleod
I'm okay at the minute. More importantly, how are you?
delta784
i have so much anxiety non stop except im sleeping and ear pain + tinnitus im planning to start gabapentin for anxiety. i had no choice its making me how can i say non functional
Joshua Macleod
I feel that, @delta784 - sorry to hear it's non-stop.

Keep us updated on how the gabapentin works out.
Sodlin
Still spike from below incident. Cant really understand why it spiked so huge. wore earplugs and everything so makes no sense....
View previous comments…
kingsfan
You have to take into account the attenuation of the earplug across frequencies. NRR and SNR ratings are an average of about ~9 frequencies (from 125-8,000 Hz). There will be variances among all of the frequencies attenuated. There's also really no testing above 8,000 Hz, so who knows how much protection is being provided against the ultra-high frequencies of a child's scream.

But even apart from that, certain frequencies seem just be spike things in general, regardless of the volume, probably due to the over-excitability of neurons that have been observed in tinnitus patients.
Sodlin
@kingsfan most (if any) people are unable to produce sounds over 8000Hz i can almost promise you that. If you take your lips and make really harsh "SHHH" sounds its typically around 4-6000 hertz. Also higher frequencies are often attenuenting more since it has less piercing effect thru objects. but i see what your getting. my earplugs make 20 DB at 63 Hz and 25 at 250 HZ and to 8000HZ.
Sodlin
i 100 % agree with ur last sentence. Seems like somethings just make it spikes even tho the sound itself isnt that loud (or sometimes not even bothersome). Spike is sadly still ongoing. sad to hear about urs also been from loud noise exposure
delta784
how long you used clonazepam which dose
streifzug
0.5mg, 3 years. It helped half a year then it started to worsen tinnitus even though I was still taking it every day. I tried to taper it carefully and very slowly (5% per month), but the attempt resulted in catastrophic tinnitus. I reinstated but that only made it worse. One year later I am on tinnitus death row. I worsen from every little bit of stress and even sounds below 65db. I regret taking this poison every day. There is noone who can help me now and I believe that I am dying from this shit.
delta784
i can feel you im the same im only taking once a week since 6 months 0.5 is it bad?

I think it worsened mine too both dcn and ear tinnitus im plannning to stop should i taper even i take once or twice a week how old are you

can you help me with taper like i told i take once 0.5 a week when i meet my gf sometimes twice tuesday and saturdays 0.5 never upped a dose but definitely doesnt work as it used to before
streifzug
You're ok I think. Clonazepam starts getting problematic if you take it longer than 1-2+ weeks every single day. Quitting once a week shouldn't need a taper. I'd ask your doc or chatgpt for more info.
delta784
I had tinnitus my whole life basically very low level only right ear never bothered by it exploded after intravenous methylprednsilone became bilateral, gave me visual snow dysacusis and ear pain. the funny part is i used that medication for mild sound exposure i was actually aware how shitty severe ear problems are how idiot i am health anxiety and ocd ruined my life and my future. im only 30 im %100 sure i damaged my inner ear structure and i am last person on earth to deserve that shit i never been in loud stuff im asocial
S
I feel this man i'm only 27 and dealing with this shit hearing loss and tinnitus is so annoying man and there is no cure sad world we live in bro.
delta784
hows sertraline i am same with you trust me i want to try something for my pain and mental health
DamagedJoe
Sorry, i forgot to answer. Had to reduce the dose from 75mg to 50mg because it spiked my T. My mental health now a 2/10 from a 1/10. How are you doing?
Tom Okay
Sitting on a bench on a chilly early autumn evening enjoying my tinnitus masked a little by the wind in the trees.
alwaysmasking
I worked today. T started off bad. But it seemed to level off throughout the shift, and now it's much reduced... I don't need to mask at all.

I've noticed this is a common trend. Days where I don't work usually means terrible T all day. Days where I work... I'm OK once I get back.

This isn't a matter of, oh, I'm noticing it less - it's objectively quieter.

I wonder why this happens, and how to replicate it on days where I don't work?
S
Got a free ticket to theater to watch Romeo&Juliet. Decided to take the risk. Earplugs on of course. Tomorrow I will know how it went. Right now I feel OK.
S
Well. I managed it somehow, but it was still bit too much. Would I do it again? Maybe, but with better ear protection.
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