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PennyCat
I didn't stay away very long. I don't know how to get through this. The distortions are driving me crazy. Clonazepam made it temporarily louder. Vomiting daily. Crying all the time. I'm so scared
PennyCat
I genuinely don't know what to do anymore. I reached habituation and then the rug was pulled from under my feet and now I'm worse off than I've ever been. I keep getting new tones because my nervous system is shot. I can't calm down, can't stop obsessing, researching, crying.
BrOKeN_1
Maybe it's just me. But anytime I find a public bathroom with a paper towel dispenser I give a little prayer of thanks. Lol.
MindOverMatter
I can assure its not just you @BrOKeN_1 Nothing beats plain paper 😅
kingsfan
First thing I do when I enter a restroom is check for hand dryers. If there are any I march right back out and find somewhere else. Those little family restrooms are a life saver sometimes.
W
I feel this.
Sodlin
Anxiety seems to mostly have subsided now which is great. Now im more "annoyed" then scared of the spike. Tinnitus still loud tho, hope it will subside
MindOverMatter
Painful feelings are, by their very nature, temporary. They will weaken over time as long as we don't prolong or amplify them through resistance or avoidance. The only way to eventually free ourselves from debilitating pain, therefore, is to be with it as it is. The only way out is through. - Kristin Neff
Sodlin
Still in the wardrobe spike. Anxiety kind off comes in "wawes" its like im feeling okey then suddenly i get heatstroke and getting butterflies in my stomatch etc. I hope the spike will subside when the anxiety symptoms end. Its not fun when u cant mask it and u have 2 more sounds in your head. Hope every1 is feeling well!
orenge01
Reading this, I think we might have a very similar spike in terms of characteristics, this gives me some more hope that this will in fact subside, thank you :)
Samy
I took the airplane 2 times this Summer (with ear protection), and also did lots of small road trips WITHOUT ear protection!!
Sodlin
Whooop Whoop! So glad for you! what a victory! If i would be better i would easy travel around the world! :)
Samy
@Sodlin I hope it'll be you too soon! It took me 2 years after my onset to re-start really travelling.
Sodlin
Still in the spike, anxietywise i feel alot better with less doom and gloom thinking but the spike is still agressive and loud. If it is bc of the anxiety over the wardrobe accident i wonder how long after the anxiety is gone the spike will actually calm down.
PennyCat
I'm going to try to stay off of here for a little while. I know anxiety is not the cause of my tinnitus but it sure as hell is making it sound 10x worse right now. I need to stop fixating and calm my nervous system down because I'm in a really bad place. I'll check back in at some point, hopefully I'll be doing better
DorianP
@DimLeb I think I'm experiencing the same thing you describe in your post from Apr 27, 2025. Do you still have this?
D
I really don't know, it's weird. There are a few sounds in my routine which seem to have that distortion, but in most other situations I don't hear it. Either I fixated on those sounds, thinking they have a distortion in my ears, or it is a distortion but it's happening in a very specific (and weird) pattern.
D
I still do hear it on one TV we have, but in the end it maybe just its bad quality. You can't not be paranoid about sound if you get so many ear problems... I also get terrifying episodes of ear pressure/reactive tinnitus that definitely are distorting my hearing.
H
Hey Markku, thank you for all that you do for us. It's greatly appreciated. How have you been? You don't talk about yourself often. Could you let us know how your tinnitus has been lately? Again, thank you for everything you do.
PennyCat
Along with the gabapentin, I got prescribed clonazepam today. I'm scared due to risks of both, however they are only for me to take as needed when my anxiety is severe, not consistently/daily. So I think I'll be okay. Don't comment anything suggesting otherwise lol, thanks
BrOKeN_1
My unofficial opinion with the clonazepam is to try and take it closer to bed time and not if your already deep into an anxiety attack. Benzos are a great last resort and you can really minimize side effects if taken sparingly. For what it's worth meditation (Mostly controlled breathing) helped calm me somewhat when I was spiraling. Be patient and trust yourself.
PennyCat
@BrOKeN_1 Thanks for the insight, I really appreciate it. I haven't been able to pick it up yet because my pharmacy and their warehouse are apparently out of stock, so I have to try to find a different pharmacy that has it and then wait for my psychiatrist to send in a prescription there. The gabapentin hasn't done anything for me so the clonazepam is gonna be my hail mary lmao.
DorianP
Is complete silence bad for reactivity? Everything I do seems to make it worse, I don't know what to do anymore. I also have this weird distorded mettalic sound with it.
Kam75
Salut, I also have a sort of electric/metallic sound that seems to move around inside my head.
This is one of the 5 sounds I hear that bothers me the most.
Complete silence is not good for hyperacusis. Your hears have to get used little by little to noise. But loud noise is definitely dangerous!
S
We can only pray that someday Tinnitus and other ear related symptoms are not "treated" like in medieval times. It amazes me that only treatments they offer is therapy and anti-depressants. This is not depression, or mental issue. Do you heal broken bones with anti-depressants or therapy?
dexxr9
Checking in…hope everyone is doing well 😊
View previous comments…
2049v
@dexxr9, do you have mild tinnitus? How does it affect you while flying? Thanks!
dexxr9
Hi again! You know, I was so worried when I returned to work after being off the line for 8 months but it doesn't bother me at all because of the aircraft noise. So relieved! lol
2049v
@dexxr9 so it doesn't cause your tinnitus to flare up. That's good.
PennyCat
Is gabapentin safe for tinnitus? My psychiatrist really wants me to take it right now because I'm so severely anxious but I'm scared of worsening even more
View previous comments…
RunningMan
Some people get visual snow or other visual symptoms, which may go away if you stop. Some people report it has been very effective for sleep.
PennyCat
@DimLeb It's not 'just' anxiety. It's so severe and debilitating, I can't stop vomiting multiple times a day and crying all day. Nothing is helping. If I don't have the support of medication I don't think I'll be here much longer
B
For what is worth, I have been on Gabapentin for many years without any change in my tinnitus, and it has helped my anxiety. I definitely would keep the dose low, but if you are at your breaking point, a trial of it might make sense.
DorianP
This reactivity is killing me. I can't believe it only started because I paid attention to my TTTS again and built up anxiety. I really hope it gets better.
PennyCat
The thing causing me the most issues rn is dysacusis. I keep getting more distortions over my fan and it gives me a lot of anxiety. Does this usually improve?
PennyCat
I need my fan to sleep but the distortions scare me so much. I've vomited 3 days in a row from anxiety and I can't stop crying all day every day. I don't know how to get through this anymore
Sodlin
Today we drove past a construction site when i was talking to my mom in the car. I held my fingers in my ear while we drove past the site since they were using jackhammer right next to the car and responded to her question. I was like "wow that was loud talking with the fingers in the ears" i know that occulision effect can make it louder but there is no way that can actually be damaging right?
Sodlin
I am not as anxious about the incident anymore but im very irritated since its very hard to not hear it and im also for some weird reason im very sleepy.
imagine doing something so silly that running into a wardrobe could ruin ur entire week... -.-
PennyCat
Okay last post for now. Sorry I haven't replied to everyone, I read all of your messages and appreciate every one, I'm just too overwhelmed to reply a lot of times. Thank you everyone, seriously.
PennyCat
Also, random, but how do you react to posts now?? I only see the like option but sometimes I wanna use a different reaction. I'm not used to the updated site yet lol
DorianP
You have to hover your mouse over the "Like" icon for a few seconds to see all the reactions. It took me a while to figure out as it doesn't seem to work on mobile.
PennyCat
Ah okay @DorianP that makes sense, I only ever come here on mobile and was wondering why I couldn't get it to work
PennyCat
Thanks for the words of encouragement everyone. It means more than you know. I turn 25 in a little less than a month and hope I'll be feeling better by then. I was a scared 22 year old when I first got T. Now I'm a scared near 25 year old… lol
Kam75
I first got tinnitus when I was 21 year old, during my Erasmus exchange program (but it was very mild). So I know what it is to have hearing issues during youth. I'm 34 now, and I have been having exremely disabling tinnitus for 6 years.
PennyCat
I just want someone to help me. But nobody can help with this and I can't help myself
View previous comments…
H
Hey, it's been a while. I don't visit as much as I used to, but I've had plenty of ups and downs—tones that have come and gone. There are occasions when you can fall out of habituation; it's only natural. You're going to have to ride it out; you'll be okay, I promise you.
PennyCat
Hi @Hardwell, long time no see. Thanks for taking the time to write to me. It's oddly comforting seeing some familiar people who were with me at my worst. It's been really hard dealing with the loss of habituation and the new distortions/tones but I'm doing my best to plug along. Hopefully I feel better soon
Kain
Sorry you're going through a tough time at the moment. Even though we can't help you directly, know that all of us know what you're going through and you are not alone. We're all rooting for you.
PennyCat
I genuinely can't get through this. It's worse and worse every day. I don't know what to do. I can't do it I really can't
View previous comments…
Kam75
It's almost the same for me, my tinnitus keeps getting worse each year :cry: Even the strong combination of drugs I take too sleep no longer works (Mirtazapine, Quetiapine, Alimemazine, Melatonin). I'm stuck in my room, losing my mind and my life. This terrible condition took everything from me... I don't want to live like this for the 40 years to come, but I don't want to kill myself neither.
kingsfan
I felt this way the past couple of months after my trip to LA, but through all the negative thoughts, sleepless night, and horrible agonizing anxiety my brain was silently adjusting. I'm already having better days, and even though I do have new tones, I am adjusting to them. I still have trouble when I'm at the store with earplugs in and trying to focus over the new noise, but it's a work in progress.
kingsfan
You'll get there even if you go kicking and screaming.
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