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Nes
Yesterday was a great day I had almost 0 pain and tinnitus was very low. I over did with digital audio it and today it's spiking badly. I am genuinely fed up with this, my life felt so normal and great yesterday, just for it to be bad again the next day. I don't care if the tinnitus gets worse, I just want to be able to not wear protection 24/7 and go outside. I want to play video games with sound again. I want to be able to speak with my friends over the phone. Just give me that and I'll be happy
Wolfka
Sigh. Another ear problem. My hearing dropped again, but when I plug both ears, my voice sounds the same in both. What is this?
kingsfan
Even the tiniest bit of fluid in your eustachian tube can drop hearing quite a bit. Perhaps the dry winter air, allergies, or very slight illness?
S
I really hate how those hearing drop out/tinnitus episodes we've all likely experienced throughout life now last so much longer... Always spikes my anxiety when it lasts longer than 30 seconds that this time it's not going to end. Plus they always make my ear feel crap afterwards now.
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delta784
you mean fleeting tinnitus?
S
@delta784 Yes except I now go a lot more deaf than when I used to experience it.
S
@kingsfan Thankfully that stopped happening after the 6th month mark, just one every month or two now.

Edit: Did you put a curse on me or something, this morning I've woken up and had two drop outs within 15 minutes of each other :LOL:
tobyharrixon
I've been producing music everyday for nearly a whole month now, just on my laptop speakers, mostly quiet. i used to produce a lot of music before in headphones (and never got T from that). Anyway, it's the only thing that makes me not wanna die and I don't hear the T during it, I helps me forget my reality. That's the beauty of music. But overall I think it's making my T worse so I need to take it easy :(
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tobyharrixon
kingsfan
@tobyharrixon It's been years. I was signed to a Universal imprint label for a while, then played in the hardcore scene in San Diego—shared a practice space with Lower Definition and some of the guys from Of Mice & Men—then did some live session work in Los Angeles with an up-and-coming Warner Records artist before settling down with a family. Anything after that has been just messing around, playing covers, etc. I can't really play at all anymore, even unplugged, with hyperacusis/noxacusis troubles.
S
@tobyharrixon Don't have to keep the session as a whole short, just take lots of breaks to give your ears a bit of a rest.
tobyharrixon
my 30th birthday is 30th January, planning to return up into the stars & asteroids then. Tinnitus, unexplained foot pain & crippling depression is too big a hole and I can't face what my life has become.
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Yosemite
Have you had some improvements since then? Was it the acupuncture that made it worse the most?
tobyharrixon
improved after initial onset, then had shoulder injury and stupidly decided to take mirtazapine & zopiclone to sleep, made things worse. got a bit better after that but then worse after random high pitched pure tone exposure from my phone - that was the worse spike, introduced new very high pitch T and T no longer went quiet in mornings after. . also dabbled in benzos, and tried trazodone once which didn't do any good either.

Foot pain currently bad and hard to sleep but really don't want to take any more meds so loading up on herbal teas and valerian and magnesium etc but feel like even some of that causes spikes.

if i hadn't had shoulder injury and avoided meds, i'd be a lot better or even healed by now.
Yosemite
Last year I took three minimal doses of Lexapro, and it made my T so much worse. I'm not exaggerating when I say it took months to subside, so hang in there. You can and will get better.
tobyharrixon
do you mean you don't wanna live like posting/checking on the forum all the time or do you mean giving up completely aka deleting yourself?
delta784
I've given up lol i don't wanna live like this. Wishing you all the best for your future. I will not be posting anything.
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H
Don't give up brother, you will be fine overtime. We just need to hold into patience and faith that our condition will improve. Look at what you can still do as walking in the forests, hiking… You just to live a very quiet life. I have hyperacusis and palinacusis so I know how hard it is to live like this but just give it time…You will be better, do not give up on yourself. I read on reddit that someone found relief with his pain hypercausis with yokukansan from Japan. Before giving up on yourself try this médication it might help you
L along the way
@Scruffiey i mean, i would try to balance it out a bit. Just imagine, whilst having t, for example, also go through life in a wheelchair, or some other issue. It wouldn't be better at all. I hope and pray things can get better in time
S
@L along the way Understand the sentiment but uh, I don't think I'll need to worry about "going through life" with any additional issues is my point. Ain't rushing to the finish line, but when the time comes, I've made my peace with it, so I'm enjoying my last few years as best I can.
Plus with 70dB tolerance before pain, honestly wouldn't make much difference to my life being in a chair anyway, I spend nearly all my time indoors now anyway!
FlatDarkEarth
Hi there. Just wondering what your final impression was of the lidocaine/dex perfusion from Shea Clinic?
H
Hey mate, did you have a relief with your loudness hyperacusis and auditory hallucinations with clonazepam ? I have palinacusis :(;
delta784
i don't have loudness h or auditory hallucinations i have pain h and tinnitus and visual snow bye
S
Remember to be gentle to yourself. This condition is tough, exhausting and sometimes it brings even the best of us on their knees. That's why we need to love ourselves more than anything. We deserve the best life we can have. You are the key to that life.
UKBloke
I really like this sentiment.

The other morning in a local retail car park, a guy asked me if the trolley I'd just unloaded was available for him to take. I replied that it was, and on his way he turned back and said, "Thanks mate, have the best day you can."

That's a really unusual use of English but I loved it because it kind of sums up our tinnitus existence: have the best day you can.
E
How did you get along with Mirtazapine, mate ? I can't decide whether or not to start taking it.
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E
Did it help you sleep better, Ernie ?
E
Hello there, hope you're doing fine. Been taking Mirtazapine again, 4 days in a row, I have a slight spike but not a new sound; not sure if it's coincidence or not. How are you doing?
E
Yes I do sleep better with Mirtazapine, but my spike is concerning me
B
Has anyone had success with NeuroMed? The protocol is $5000 and I'm not sure if it's worth it or just another black hole for my money to fall into.
ECP
I'm stopping by to wish my fellow Americans a relaxing, quiet Thanksgiving tomorrow. I hope you see, smell, taste, and touch things that bring you joy.
Eric N
My tinnitus is through the roof after getting a neck ultrasound I don't understand how the test only lasted for 10 to 15 seconds and there was no noise
tobyharrixon
just wanna smoke weed and make music... what's stopping me? oh yea this brain piercing sound
cjbhab
how does marijuana effect your tinnitus? Admittedly, i was never a smoker, but I tried edibles once and it made my T go through the roof.
Flyingsheep
1.5 years on the same dosage of oral minoxidil for tinnitus reduction. Even more improvement than last update. It's very controlled and mild except for a few bad days here and there, but the bad days are manageable and I can easily forget it. Biggest quality of life upgrade I could have ever asked for. If anyone else is willing to experiment with this like I did, I hope it helps you.
Marcello
Hey man!
What is the dosage are you using per day? And what time you take it?
kingsfan
I've only heard of minoxidil spiking tinnitus. This is intriguing. I wouldn't mind a fuller head of hair either. 🤔
Nes
I'm having a huge spike. My hyperacusis has been insanely sensitive, to the point I have nausea when exposed to sounds. My ears feel weird, it's painful but at the same time it's not. I'm not sure if I removed protections too quickly as it happened the night after a discord call. Going to see ENT on Thursday.
in_the_shadows
How are you doing? I have been experiencing something similar, it's not painful but nerves are feeling kind of raw. Tinnitus is electric and fast-changing, every sound is mentally uncomfortable even though there's no pain. I suspect temporary neuro-inflammation from overexposure. Maybe try taking another break from sounds (especially digital) and take some antioxidants like NAC, it helped me in the past.
Nes
  • Nes

    Nes

@in_the_shadows the setback subsided ! It was very unstable for 2 weeks, almost 3. I shielded myself from sounds and took clonazepam. I believe the clonazepam nuked the crisis because I took one on last Thursday and a few hours after the spike was gone and has been gone for a week. Unfortunately for me, nac makes my tinnitus way worse ! (temporarily of course)
R
Hi Adam, I do not know the details of what happened to your ears (acoustic trauma?) or what treatment you underwent. Have you tried CBT? I am asking because I am also from Poland and I am seeing on regular basis a very good CBT person who specializes in tinnitus. She is helping me a lot. She also does on-line visits.
adpolandam
Hi. CBT won't work for me. The problem lies in the middle ear, inner ear, and trigeminal nerve. Thank you for the suggestion. Where are you from?
delta784
If i had no tinnitus i think i could deal with ear pain better. Its just easy tinnitus is relentless its in your brain non stop doesn't even give you time to relief.
kingsfan
Stable tinnitus that wouldn't worsen and no ear pain would be good enough for me. Trying to avoid pain and worsening is mental torture beyond just the horrible ringing and hissing.
delta784
i want to go back in time and not get these IV injections then i could be happy again this isn't me i know it :)
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