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S
Okay explain this one... past couple of days my bad ear seems to be losing hearing, or at least the hyperacusis is quickly dying down, but my droning tinnitus tone is simultaneously getting quieter with it?
I had a literal air raid siren & cacophony of squealing brakes 5 months ago, the hell is going on in there.
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S
@vilebubbles It is, in a way, this is downright liveable, but I've now been through so much and have zero idea of what's actually happened that I don't know how I'll reclaim life without fear of worsening it...

I hope you do too, I'm sure once the benzo taper is over you'll eventually get some improvement though :)
Tryn2BHopeful
I hope it continues for you. I was having similar progress in December 2024. Since my last setback the "drone" has been terrible, along with the high pitched reactive T. Going past month 3 of that setback and onto year 2 of T. Not to scare you, but all I can say is be careful, its easy to feel complacent when things are going well, and one thing can undo all your progress and then some.
S
@Tryn2BHopeful Nope! The drone came back of its own accord this afternoon... but having a lay-in this morning with just my 'ear against the pillow electric'... better than sex.

Oh I'm well aware, but I'm quite content living the quiet life as long as I can get out in nature a bit now and then... wouldn't mind a holiday one day but we'll cross that bridge when it comes to it.
vilebubbles
Ears are so sensitive. Every car that drives by causes a squeak or a reaction in tinnitus. Can't get away from the cars. Some pain around ear.
Tryn2BHopeful
Thinking about my future is depressing... Will I make it 1, 2, 5 years? I am still feeling the latest set back more than ever, persistent humming, higher hissing, ear discomfort and sensitivity... Guess I am cooked....
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Tryn2BHopeful
@adpolandam Almost 2 years for me as well... started after a couple doses of Lexapro... Not sure if that was a the catalyst or what, but it doesn't much matter anymore. My daughter is the only one who seems to empathize with me and offer me some support, otherwise I have been on my own like many people here. Turned away at every ENT/Audiologist again like many people here.
MindOverMatter
@Tryn2BHopeful
Even though you might struggle at the moment, things can shift with time. Ive seen and experienced this so many times myself. Ive had long lasting setbacks that has resolved after 4-6 months ++ several times. You will make it through 🙏
Tryn2BHopeful
@MindOverMatter I certainly pray that comes to fruition. I always appreciate your positivity. Especially when I am having trouble seeing it. Trying to stay strong. Hard day today.
2049v
How are you doing mate?
tomytl
Hi,
after a while of a slight recovery, I am again tortured of this ear pressure and also new high pitched T.
I also got a covid infection 6 weeks ago, this made my system even more messed up!

How are you doing? I really hope much better, Mate!
2049v
I'm trying to do better but you know how this thing is. It's been a long time since we talked 😃
J
Hi Dr Nick. Just wondering if your low pitch hum ever went away? And how are you coping with it? Mine is similar to yours in that it is spiked by car trips. Having a terrible time currently and would love your insight. Thank you
henkess
I miss when you was little, no trouble and life was good :)
2049v
Yeah dude I know exactly what you mean. Those days are gone forever.
henkess
For shure man
Lynny
Rereading my old posts from years ago made me shed a tear. After losing my hearing aids a lot of old fears and memories came back. I almost forgot how hopeless and dark it used to be. I don't think people understand how traumatic going through something like this can be. Wishing everyone else on here an upward process, perseverance and hope for the future.
L
Ugh. Nursing a spike. LOUD motorcycle drove close to me. I am so mad at myself for being nearby. I am feeling very frustrated.
henkess
Doctors are not helping me for my problem with spasm in ear :( happy that a fan and magnesium work alittle atleast
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cjbhab
what kind of magnesium are you using? i recommend adding potassium too. i'm beginning to get bad spasms the last couple days again. I've had it before, im confident it can go away.
henkess
I take Biscycinat, thanx i will try that! Thats to bad, have you tried muscel relaxers?
cjbhab
@henkess i have tried some OTC muscle relaxers, i dont think they helped. I seem to get this problem for 1-2 months at a time and then it will go away and return again later. not sure what makes it come and go.
SharonBell
I actually ordered it off Amazon. I sleep with it on every night, leave it on nonstop in my bedroom and sleep with my fan on that has helped me so much.
henkess
Thanx will try it for my Tensor tympani syndrom :) i have a fan on when my ears start to spasmer it helps. I cant hear my spasmer in ear then
Nes
A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.
henkess
happened to me to, i hate that. It takes some days for me to settle down
Nes
@henkess it's gone now, but it took almost a week to go away. Usually, it lasts four days max.
Nes
I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week. When it's not vacuums, it's alarms. I rarely have a full night of sleep; it's insane.
Juliane
How are you all doing? Life is tough on me atm. Hugs to you
henkess
Sorry to here that, hope it gets better :) i´m struggle to with tenstor tympani syndrom
adpolandam
Hey. Nice to see you :) I don't feel well, I would say it's getting worse. One day we'll meet, all the sufferers on the other side:) We'll have a big party. There'll be loud music, fireworks and screaming, and we won't care :)
Lynny
Everything was going better until I lost my hearing aids😭 I'm too broke to replace them… does anyone have suggestions?
Nes
I get a tingling sensation from my cheekbone to above my lips when i'm exposed to too much sound. It's not painful but it's annoying. I used to get that when i was very stressed or when my tmj is very bad.
Does anyone else have that?
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Nes
@Scruffiey probably just stress as I do not have (visible) hearing loss! I always thought my tmj damaged my nerve, but the tightening hypothesis makes much more sense
S
@Nes Could just be the TMJ, but I'm thinking if it was nerve damage you'd be getting more actual numbness than just tingling and possibly some pain or cold/warmth.
Guess one way to test it... once it's settled down, purposefully tense up your face for a minute or two and see if it's the same feeling?
Nes
@Scruffiey IT IS! Why did I never think of that!
Sodlin
Today there was a "heated meeting" for like 20-30 min where ppl where raising their voices alot talking about some issues at my workplace. i sat there like an idiot without earplugs and got stressed in this 4X4 metre room with like 10 people. Should just have put my earplugs in. Got a spike. Hopefully just because of the stress of being in that enviroment. Just use ur normal indoor voice god damit....
hunu92
do u have any hearing loss? have u tested extended high frequencies?
vilebubbles
Yesterday wasn't too bad. We will see what today holds. Left ear feeling very sensitive and popping along with unstable tinnitus and H in both ears still. Nox seems…controlled? (Fingers crossed).
Joshua Macleod
My fingers are crossed for you, mate. Taking it day by day feels so difficult but you're doing great.
vilebubbles
thank you. Today was weird. I took a nap and as I was falling asleep my ears began just screaming with a new tone. It left but it was terrifying…for now I'm back to baseline auditory nightmare lol.
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