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Safari1999
1/3: I don't know if anyone remembers me but I was 16 and developed Hyperacusis back in 2022. I received support here but I also scared myself silly reading all the posts I did, I wish I had just pursued medical help. I remember some of the people I spoke with but a lot of them seem to be inactive now :(. I'm back here again at 19 because I never improved unfortunately and I'm pretty sure my condition is permanent.
MindOverMatter
You are young,so a lot can still happen for you. My number one rule for everyone unfortunate enough to get t/h is to stay away from "horror stories". It will feed the brain with information that reinforces that fight or flight cycle. Not a good starting point at all. If you haven't seeked out for any professional help yet, you should take the step.
Safari1999
@MindOverMatter thank you so much! and you're very right about the horror stories. got a few other health issues to resolve rn but seeing an audiologist or something is def on my list.
SharonBell
How are you doing. I'm hanging in there. So glad summer is here. Been working in my yard and going to my sisters next weekend.
Tryn2BHopeful
I am really trying... but I am not sure I can "recover" from this more than once. I should of been more careful. Water under the bridge as they say. Every time it seems like things are going in a positive direction, T smacks me down again. Life can be cruel. 😢
Ken219
Sorry you're going through a rough patch. I'm in the same situation. 35 years of tinnitus with many spikes. As we know time will help us habituate. We did it before and it can be done again! Pray for better treatments or cure! Hang in we're in this together.
kingsfan
It's so difficult. It's hard not to ruminate about what we could have done differently.
delta784
Hey Sharon how old are you happy for you since you are dealing better this shit is worst disease on planet
SharonBell
I will be 51 this month. Yes it is the worst think ever, but I just stay busy and try not to think about it even though I hear it all the time. I do the things I use to and try to have a normal life because I really don't have a choice or stay shut up in my house.
delta784
i am only 29 can i live with this shit i have visual snow syndrome , dysacusis (sound distortions), nox(although feels mild), terrible tinnitus most bothersome seems to be like tinnitus
sandyknight
Hi Erika. I hope you're doing well. I saw that you mentioned your distortions came back. Did they go away a second time? I'm dealing with my own second round of distortions after beating the first.
ErikaS
Hi @sandyknight so sorry I am only responding now. When it comes to distortions, they come and go, but don't seem to stick around or bother me to the extent they used to. Something that I learned that really exacerbates my distortions was wearing in-ear protection, from foam to custom ear plugs. Talking with those in make everything worse for me, especially distortions.
ErikaS
@sandyknight Definitely give your ears rest in lower level sounds, they went away once and should fade again with some time.
Sodlin
Ive actually had 2 days of VERY calm and good tinnitus. Ive even manage to hammer down conrete stuff that you walk on with a rubber hammer (ofc with earplugs) and no spike! So nice being outside in the warmth and do "labour" and just be able to be to good use for once! :)
delta784
Hello are you still on clonazepam since you live in Gent have you talked with Dirk De Ridder about long term clonazepam usage for tinnitus , dysacusis ? thank you
zatara92
Extremely loud spike in T the last few weeks. I've been so careful this last year, I have no idea why it's so bad suddenly.
Danikam
I miss you!

I think about you often and wish I could have done more for you.

I was visiting your Facebook page at least once a year but I think it's been taken down now, it was my way of paying my respects since I don't know where or if you were buried.
Danikam
I think about the final moments of your life and how alone you must of felt and it haunts me, I can't let go of how I didn't reach out that week, life just got in the way but the what ifs...the what ifs will haunt me for the rest of my life.
Danikam
I'll always treasure our phone conversations where we laughed and talked about meeting in real life.

You are not forgotten friend, I carry you with me and will for the rest of my life.
delta784
im suicidal should i take benzos long term im having panic attacks every single day
erthwyrm
if you are feeling suicidal please reach out for help. benzo's are effective at reducing symptoms of anxiety but if you use them please do so with extreme caution. maybe ask your doctor about the dangers of benzo addiction
delta784
what type of help i can get im severe
erthwyrm
are you able to find a counselor or therapist? maybe your family doctor can offer some suggestions?
S
Can the tinnitus either shut up or can I please have a brain aneurysm and end this cleanly... Is that too much to ask.
Tom Okay
I am getting more days where my tinnitus is not the first thing I think about in the morning. But it's still on my mind at least once a day. It's been more than 2½ years since it got worse.
delta784
My tinnitus is med induced not noise induced both ears multitonal same since 7 months only got worse what happens if i use clonazepam rest of my life it works for now why did you stop after 2 years
Fields
Hi, I figured I'd send you a message outside of the Elections thread. How are you holding up?
just1morething
Hi @Fields and thanks for asking. l'm doing pretty good today, just a little moderate hissing, but my mood could be better. I bought a couple bottles of Flonase to try to calm down the inflammation in my left Eustachian tube. I'm supposed to see a neurotologist next month regarding some issues with my left temporal bone area. How are you doing overall? How well are you coping with your tinnitus?
Tryn2BHopeful
Interesting thought - Is Anxiety and Stress a possible precursor to T? As our brain undergoes whatever changes that ultimately causes T, do we experience it as a result? There seems to be a link, but I wonder which is the result of the other.
BrOKeN_1
Possibly. Although I had my generalized anxiety and depression nearly completely under control before tinnitus onset. Ever since few of those methods work anymore.
vilebubbles
I think so. Excitoxicity
ErikaS
A very stressful week + louder noise exposure to music over a 2 hour period has left me with bad TTTS vibration in right ear/head. It's the worst in silence, especially when going to bed & waking up. Temporarily cuts out when I talk or hear external sound. It's only been 7 days since onset, but I'm already frustrated & anxious about it. Praying it goes away.
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MindOverMatter
Stress management, shifting focus, walks in nature if you can + magnesium glycinate and possibly bioflavonoids. It will pass, stay positive about that - but it might stick around for many months.
ErikaS
Thanks for the feedback as always @MindOverMatter .. To reframe it in my mind, I think of it like an eye twitch. I've gotten many of those over the years, haven't had one in a while but the worst being during stressful, run down times. Some cleared in a couple weeks, others a couple months. That helps my anxiety over it and to know it will fade, just like an annoying eye twitch.
MindOverMatter
Thats actually a good way of reframing it @ErikaS Don't give it to much space. One day at a time. You will get there 🙏
L
Went to the gym. Of course someone is crashing every cable-based machine imaginable. Can only dream of a home gym. :banghead: Feeling super anxious.
John78
How to help medicine research company raising money to advance in clinic trial for tinnitus treatment
T
If they were still looking for further study subjects I would make the 800km trip to participate. I am frustrated at the responses from health professionals about my tinnitus. They dont get it. It would be good to have an objective measurement.
T
I know. I asked my tinnitus researcher about it. She was aware of the article. She reckons it has all gone quiet. Nothing further has been published by the Bionic Institute about fNIRS.
N
Hi @trevl I saw your post about bionics institute. It was in a different thread though, so I reply here. The fnri does not measure the sound. The sound is not really relevant in research as much as it is to the patient. Presence and severity is measured.
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