Safari1999

Safari1999

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  • Safari1999
    3/3:Just wanted to come on here and update.. It doesn't always resolve itself. Ive read that for most people it gets better with time, for me it didn't. Astonishingly, I don't have tinnitus and I don't think I have hearing loss so at least I have that. Also, I get some pain but not that much and, like I previously mentioned, my condition never worsened.
    Safari1999
    2/3 My tolerance is not good so I am constantly 'on guard' but I am pleased to say I didn't get worse? I also struggle with high frequency sounds which means I always need to be wearing ear plugs when I leave my house because those noises are distressing, not because I believe they are harming me. I think I have TTS too because my main symptoms are aural fullness and feeling my ear drum 'jump'.
    Safari1999
    1/3: I don't know if anyone remembers me but I was 16 and developed Hyperacusis back in 2022. I received support here but I also scared myself silly reading all the posts I did, I wish I had just pursued medical help. I remember some of the people I spoke with but a lot of them seem to be inactive now :(. I'm back here again at 19 because I never improved unfortunately and I'm pretty sure my condition is permanent.
    MindOverMatter
    You are young,so a lot can still happen for you. My number one rule for everyone unfortunate enough to get t/h is to stay away from "horror stories". It will feed the brain with information that reinforces that fight or flight cycle. Not a good starting point at all. If you haven't seeked out for any professional help yet, you should take the step.
    Safari1999
    @MindOverMatter thank you so much! and you're very right about the horror stories. got a few other health issues to resolve rn but seeing an audiologist or something is def on my list.
    haha ear go eeee
    Hey there, I'm just seeing how you're doing! Have you improved at all?
    Damocles
    Last I heard from her she had made a lot of improvement, followed by a small relapse.

    She's young, so my guess would be she's now living with mild symptoms that are steadily resolving over time.
    haha ear go eeee
    @Damocles Okay good, I'm very glad you heard from her. I got a little bit worried cause she hasn't been online for a few months.
    Safari1999
    my tolerance dropped again but this time it isn't springing back. i think my sensitivity is affected by bad sleep and headaches and stuff.
    Sammy0225
    Hey so I got loudness H in my left ear. Stuff like dishes clanking or sudden loud burst that are not really loud make the ear spasm has yours improved any?
    Safari1999
    yes and i get the same thing even almost a year on and it's improved a lot. i still hate kitchens tho.
    Safari1999
    omg the reality of being a teenager with hyperacusis is that people think i have autisum when i cover my ears? i just realised this 0.o
    makeyourownluck
    I don't think this is specific to teenagers.
    kuromi
    I'm not really a teenager anymore, but I have autism and it definitely gives me some degree of sound sensitivity in connection with my T. Though it really isn't hyperacusis.
    lanterns&coffee
    Hey @Safari1999 ! It's nice (kind of) to see another 16 year old here :D!! I'm also 16!! How are you feeling/coping with your H & T?
    View previous comments…
    Safari1999
    also im 17 now :3
    Safari1999
    ***i dont think screaming is an impact noise, what i meant was short but loud noises like a dish breaking, someone suddenly screaming etc
    lanterns&coffee
    @Safari1999 thats great! I'm glad your t has gotten so much better, or we'll your coping with it. Health issues suck and I understand how you feel especially with this condition being the cherry on top. I should buy earplugs huh .. anyways though I hope you continue to do better & better! P.s i turn 17 this year :3
    Safari1999
    "The human body is amazing!" no it isnt.
    View previous comments…
    ThomasF
    Specifically there is Frequency Therapeutics, A research team at Severance Hospital in S.Korea, and Northwest college.
    Safari1999
    @ThomasF If these teams/companies succeed? Will they be able to treat H and T and VSS caused by acoustic trauma?
    ThomasF
    I can't say for certain as the direct causes for H and T aren't 100% known similarly with VSS there isn't anything written in stone. Doctors connect Hair cells and hearing as well as H and T to Hearing loss. It's described as possible that fixing Hearing can fix T and H but until they do that and see the result it's not something certain.
    Safari1999
    are spikes from holding in a sneeze permenant? im so dumb
    Marshall
    Don't hold a sneeze. You're essentially giving your sneeze no where to go but up your ears and can cause no damage to deafness depending on the pressure. Always sneeze out your mouth.
    Marshall
    But if you didn't feel any dizziness/vertigo/muffled hearing after the sneeze I wouldn't worry about it. The spike should calm down.
    Safari1999
    @Marshall Im fine now I think but thanks, I'll never hold in a sneeze again lol
    Safari1999
    ok i just now realised that it was 3 hours of the new batman in a cinema which messed up my ears and not the TV lol.
    ZFire
    Was it a loud film for most its duration? Like lots of explosions/gunfire etc?
    Safari1999
    @ZFire at least half of the movie was explosions, gunfire etc i remember thinking it was loud asf in the theatre lol
    Safari1999
    How common is VSS for tinnitus sufferers?
    View previous comments…
    Marshall
    A lot of people have a mild form of it you just don't notice it unless you pay attention
    Safari1999
    @Snake If you dont mind, could you describe your symptoms? I just want to understand the condition better.
    F
    I discovered I had vss back in February of 2020, really not a good time for me. Although 2 years have passed and I haven't paid much mind to it as my symptoms are mild.
    Safari1999
    I know that wearing ear protection at homr is bad, but what if some noises make me uncomfortable/hurt such as flushing the toilet?
    View previous comments…
    Marshall
    I'm not sure if it matters. But those things used to be piercing to me but the more I subjected myself to them the less bothersome they got. I'm not sure why or what happened. But if something is above 80dbs or I know there a possibility of being loud and damaging, I wear muffs. Like vacuuming and the blender. I also switched to paper plates lol
    Safari1999
    @Marshall yeah im not protecting my ears from those sounds anymore, anything over 79db however i will use protection. but, its hard to do even that.
    Marshall
    It's really a catch 22 all we can do is do our best and hope for the best
    Safari1999
    Can anyone link me some good earplugs that allow me to talk to other people?
    View previous comments…
    Safari1999
    @Diesel Where would I get custom earplugs? And how much do they usually cost?
    kingsfan
    Most audiologists can take molds and place an order for you. Most seem to deal with Westone, but there are other companies such as Sensaphonics and ACS Custom. The latter two use a softer material which I find more comfortable, but seems to wear faster.

    They are typically around $200-$300. You are expected to re-mold and replace them every 4 years as the ear canal tends to change shape.
    kingsfan
    Keep in mind that every earplug will have some level of occlusion. Using them as intended, in loud environments such as clubs or industrial jobs, you won't notice this. Us with bad tinnitus use them on lower volume situations which tends to accentuate it.
    Safari1999
    Counting my blessings: my T is mild, I can do pretty much everything as normal if I wear ear plugs, my pain is reducing and I can sleep!
    Safari1999
    3 weeks in and no improvements
    Safari1999
    Ughhh spoke to soon, I think my tinnitus has gotten louder.
    Rockman
    There's a good chance it will very over time and settle into constant sound you get use to or goes away hope for the second one
    Safari1999
    Did anyone experience unexplainable tingling in hands and feet prior to hyperacusis? Like pins and needles but for no reason.
    View previous comments…
    Safari1999
    @Wrfortiscue I have those same sensations but a lot less extreme. I feel like I get pins and needles much more easily than I used to. When did this start for you BTW?
    makeyourownluck
    Pins and needles/pain shouldn't be much of a concern. The nerve may be pinched or inflamed, but it still works, and in all likelihood will resolve by itself.

    When things start going numb, that's a problem.
    Wrfortiscue
    @Safari1999 all those issues started after having years of anxiety and panic. My nervous system got fried. Please find ways to calm your anxiety right now
    Safari1999
    Does anyone have any tips on how to use earplugs safely? Sometimes I press too hard and feel pain :(
    Guywithapug
    Foam plugs should be rolled and compressed and then slid into the ear canal. You will feel it decompress in the canal and fill up space until it sits tight. The outer face of it should be flush and not extend out if you're looking into a mirror. When you remove it, dont just yank it out, pinch the face and pull slowly with a twisting motion. This is how most instructions read as well as online tutorials.
    Safari1999
    I think I developed something called trigeminal neuralgia, the right side of my face/head hurts so much. I'm just getting worse day by day.
    MindOverMatter
    What are your symptoms? More specifically?
    Safari1999
    @MindOverMatter Pain in my right ear radiating to my right cheek, right side of my head and the right side of my jaw. Its sort of gone now though :).
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