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kaymath
Officially two months with Tina. She's unpredictable. She's quiet in the morning, all kinds of sounds In both ears that change like the wind. She ramps up a little around 2pm and bothers me for the rest of the afternoon. She keeps me guessing. I can't even describe the sound in my left ear rn. It's like your grandmas squeeky porch swing. Back and fourth.
SumGuy
this dang ear rumbling is getting concerning
orenge01
What rumbling exactly? Personally I can hear like rumbling like humming, when I try to strain my jaw. But I think I have always had that.
SumGuy
its like that one muscle in your ears that make this very loud rumbling noise I really dont know how to explain it, and I got this geiger counter tinnitus for a few seconds.
orenge01
Yeah I get what you mean, I get that noise when I put my teeth together really hard for example. Geicer counter sounds awful. :/ I hope your T improves and stays away again.
Nemoriri
Before Christmas my tinnitus was better than it'd ever been since I got it. Was usually just a faint white noise that I rarely ever thought about. Felt so very habituated..

Then on Christmas eve, my brother's shetland sheepdog let out her usual godawful loud highpiched bark 1,5m from my bad ear. And since then it's been bad again.. sigh.. 😞
L
My left ear has started to ring but my audiologist thinks it's ramping up trying to make up for the moderate to severe hearing loss in my right. Hearing aid comes in next Friday.
L
Had a bad T day yesterday. some of it to do with anxiety, some of it stress, and of course the fail proof demon of noise. I had SUCH a good day the day before which also made yesterday difficult :( luckily was able to grab a couple hours of sleep (although choppy) and hoping it's improved or i'm at least calmer with dealing with it.
Sodlin
Trying to care more about my posture now, Stretching the SCM muscle and neck ALOT which sent my TT ballistic but i keep doing it in hope that it will calm down when i get all the muscles "stretched and calm". Hope everyone is doing good! :)
orenge01
"Oh but, but you are completely normal there is nothing wrong with you, you have no issues, you have no problem with doing your tasks, you are not crying constantly, you don't look distressed at all, you've been managing fine. Which means you are fine."

Ugh...
BrOKeN_1
Well. It was nice while it lasted. Nothing like a good spike to remind you how obnoxiously relentless this condition is.
HighleyTall
Trouble is when you experience 'better' days you naturally expose yourself to more noise and 'normal' behavior causing T and pain returning like a boomerang.
orenge01
Also funny how you are almost expected to function normally/unstressed with all this added pressure from external unchangeable factors and other bs. Almost like having a four legged animal walk with one leg instead of four and somehow expecting it to behave the exact same way and at the same capacity/efficiency as it did before. Absolutely ridiculous.
kaymath
Week 7. We got static and an occasional hiss or EE that fluctuate in my left ear. Lower volume than it has been for a while. But still annoying. Right ear is wind. It's obnoxious. How did we go from fire alarm in my head to faint jingle bells in my right ear to this!? Doing all the things to better myself all but my sleep is very broken, I'm just sleeping so lightly. blaming the prednisone. And the bout of insomnia.
orenge01
for me its high pitched ee, but it also started with a fire alarm sound which was really loud in my head, that first night with tinnitus was devastating to say the least. I hope yours improves further. Best wishes.
kaymath
Yes. I will never forget that first week. I lost all sleep, 5 lbs, and could not stop shaking and crying. This whole thing has been very traumatic. I hope you heal too. I hope we all do.
johnjacobjingle
Hope youre doing good! I am also having distortions and reactive/multitone tinnitus here... I am also a car lover too so its been really hard here. Its been about almost a month since the Acoustic trauma I had so seeing your success really gives me hope (Im 27). Sadly music sounds like distorted trash right now and ears are still sensitive. :(
billie48
@Delta12 , thank you for contacting me. Sorry you suffer so much from tinnitus. At the start we usually suffer much as the ringing is so alien. Given time we will get better. I had to use medications too to help me, Ativan, Prozac, and sleeping bills. Check my success story "From Darkness to Light..." for detail. Take care. God bless.
Delta12
Suddenly last week tintles cane
it started because i had a lott.of stress, little overheated People say

Then i go to my doc, and i cry and cry he said you got a panic or anexity disorder.

So he discribe medication ( Nortriptellyne) how helps me with stress and anexity its my second day, but is its not working yet.



Since yesterday i started with my nortroptelyne.
RunningMan
Nortriptyline takes several weeks to begin to work with anxiety. I took 50 mg for 3 months solid, and I never felt it worked for me. Benzos give immediate relief, but you can build tolerance and dependency within a couple weeks if you take them every day.
orenge01
Lovely how unfair things can feel and you're just supposed to pretend everything is fine. I'm tired of pretending.
kaymath
Wind in right ear static somewhere (maybe left) and EEE or Ewwwa EWwwwah in left ear that both come and go.

It changes so much still 😩 last night wasn't great. Wine is not my friend.

Taking more hydroxyzine than I'd like. :/ don't wanna make it worse but I need help sleeping still I guess.

Can make it louder when yawning or bending head forward.
Sodlin
Im still in this UBERspike. I start to think more that its my reaction + tension from the incidents that spikes me, makes no sense that dropping a catcage door that made like 100-120 DB send my TT from 4-5 to a solid 8/10. Its crazy. Anyone got tips how to adress the jaw and neck? :) Tried to go for a walk today but felt more like i was running away from people with dogs so that didnt make me more relaxed.
kaymath
Wind and static today. So weird. Occasional pings an Eeeeees. had a fairly quiet day other than the gym and kids wrestling practice yesterday and didn't mask last night, took 50mg of hydroxyzine to sleep and got a lot of sleep. Been taking ginkgo and iron again. Lots of variables. Staying positive.
BrOKeN_1
*knock on wood* having alot of good days lately. Pain and noise tolerance is up. Anxiety and depression are at a low ebb. T is still loud and all encompassing but doesn't seem to be in the driver's seat for now. Wishing everyone here better days.
delta784
My distortions are gone sadly reactive t started and noxacusis (ear pain) hopefully i improve pray for me <3
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Alexis413
Sound trauma :( Ive been home bound for the past few weeks now. It originally started with only loudness hyperacusis about a month and a half ago but then the nox kicked in about 2 weeks ago
TheCapybara
@delta784 @Alexis413 I have no idea what noxacusis is like since I deal with distortions and reactivity, but I really hope both of you see improvement over time!
Alexis413
Thank you @TheCapybara. It means a lot. It's been a brutal journey and its hard to see an end to this. I remain hopeful that we'll get better with time
delta784
hello are you turkish by any chance?
hlm
yes
hunu92
hey i'm also turkish… do u guys have any hearing loss?
HighleyTall
I keep myself busy as much as possible so i'm excausted in the evening and sleep well (VERY important). I don't answer phone calls, attend meetings or whatever. I avoid going to shops as much as possible. My wife is very caring and understanding. She goes to visit friends and family. But it always breaks my heart when she sends pictures at a dinner table in a restaurant f.e. It could have been us two together...
Sodlin
I feel you! ill hope we will all see an improvement soon! :) I also sleep very well in silence even tho i got loud tinnitus. Have hard time sleeping when im in a spike and anxious tho
HighleyTall
Seems i can't reply on previous messages to answer your questions. I have mild T and H since 2004 but this escalated 2018. I have had periods of improvements but basicly this is just a roler coaster. But lately symptoms just have increased. I'm lucky I'm self employed (IT) and work from my home office. But I noticed a lot of computerwork is not good so i help my daughter in her art studio.
Sodlin
Why is alot of computer work "not good"? Is it because it makes you get tension or do your ear handle the computer sound poorly? Maybe your symptoms "increased" bc sitting at the computer (i think that is atleast alittle part in my case since almost all my sounds are extremly somatics and i sit at a desk ALOT (around 10-15 hours a day).
HighleyTall
I really don't know but I have the feeling. Maybe it is a bad posture? My neck? The screen? In my case facial nerves are definitly involved (tingling in face and on skull). My T is somatic sensoric too (neck, jaw...). I notice when a reduce screentime and do more physical work i'm usually in better condition.
Sodlin
its a hard thing becuase since im scared of all other things i sit like 90% of my awakening time at the computer and i seems to get spikes from it aswell (also think its the posture since i got speakers on supppppperlow). But at the same time since its my only "safe space" its hard to get away from it.
Juliane
How do you guys handle flying with T and H? Does it worsen you? Any tips or precautions? Thanks in advance
cjbhab
Noise cancelling headphones with light music playing - or if it is still too loud. Earplugs with noise cancelling headphones on top. Have had pretty good luck. I fly 2-3 times a year from Canada to southern California.
Sodlin
Read about your incident with the "toilet lid slam" you had. Did you get a spike from it and if you did, did it go back to baseline? :)
MakaveliTheDon
Hi Martin,
I've read your story and can really relate. After a period of health issues and anxiety, I've developed a high-pitched sound/hissing. I had mild tinnitus for 5 years, likely from a sinus infection, but it's now stronger. I can even change the sound with neck or jaw movements. It's tough knowing there's no cure, just CBT and therapy. How have you been doing? God bless.
K
I have the same thing jaw and neck movement change the sound sometimes for the better no always though. At the moment it's gotten so bad I get 2 or 3 different sounds at the same time. Hopefully one day we will vet so.e kind of relief. Could you tell me what is CBT. I only just joined this group needed to.find some support I'm going nuts and local doctor is no help at all...
Sodlin
Today my boss "rewarded me" for my hard work by taking hes palm and smash it on my shoulder 5-6 times really hard and said "GOODJOB *name*!". This is the EXACT same person i said that i have very hard for people talking loudly close to me or clapping their hands. Its make me so frustrating and sad. Cant tell if im spiking since im already in a spike from the catcarrier incident....
View previous comments…
HighleyTall
Even now, on one of the few occasions when I go anywhere, I still catch myself talking at normal volume to people and pretend that everything is normal with all the consequences that entails. If a conversation in a room is at 50dB, how much dB would that make at your vocal cords? 70 or 80db? This is enough for me to suffer from burning ears, facial/skull sensations and migraines for days.
Sodlin
@HighleyTall How long have you had it? Have you improved? Is it "hard" to live with another person and having this condition? I cant imagine having a girlfriend with this condition, dont seem fair for her to live the same isolation i live in atm.
Sodlin
@HighleyTall i understand what you mean. At my last worsening 2 years ago i couldnt hold meetings or have conversations before getting "tired" in my ears. Now i can handle that pretty well if its just a 1 on 1 conversation. Cant handle multiple people talking at once tho.
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