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Sodlin
Its hard to do stuff in the garden atm. Need to cut stones with a grinder so i have had my dad come to cut them for me since its to loud for me. Tried drill and use a chisel but got around 110DB so i didnt dare to challenge it. Third time my dad is here now to help me cut for like 2-3 minutes each time... Man he most think im supersilly.
orenge01
The tones are a bit worse right now I think It's because I've been sick recently :/
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dreamer16
Had a good thing going, had mild forgettable T, but I unfortunately took SSRIs and cold turkeyed them, which made it worse. I'm in hell.
orenge01
@dreamer16 sorry to hear that :/, hopefully it gets better for you soon
dreamer16
Yeah, unfortunately I'm afraid it ruined my life, I don't see how I can live with it for the rest of my life, I'm just holding on for as long as my parents are alive
BrOKeN_1
I love my life, my wife, and my kids. So its a shame tinnitus gets to steer the ship. Everything now revolves around this horrid condition and I hate it.
just1morething
My noisy left ear really sucks. I get relief when I sleep but when I wake up it rears its ugly head in my left ear. I m still looking for some permanent relief.
Safari1999
3/3:Just wanted to come on here and update.. It doesn't always resolve itself. Ive read that for most people it gets better with time, for me it didn't. Astonishingly, I don't have tinnitus and I don't think I have hearing loss so at least I have that. Also, I get some pain but not that much and, like I previously mentioned, my condition never worsened.
Safari1999
2/3 My tolerance is not good so I am constantly 'on guard' but I am pleased to say I didn't get worse? I also struggle with high frequency sounds which means I always need to be wearing ear plugs when I leave my house because those noises are distressing, not because I believe they are harming me. I think I have TTS too because my main symptoms are aural fullness and feeling my ear drum 'jump'.
Safari1999
1/3: I don't know if anyone remembers me but I was 16 and developed Hyperacusis back in 2022. I received support here but I also scared myself silly reading all the posts I did, I wish I had just pursued medical help. I remember some of the people I spoke with but a lot of them seem to be inactive now :(. I'm back here again at 19 because I never improved unfortunately and I'm pretty sure my condition is permanent.
MindOverMatter
You are young,so a lot can still happen for you. My number one rule for everyone unfortunate enough to get t/h is to stay away from "horror stories". It will feed the brain with information that reinforces that fight or flight cycle. Not a good starting point at all. If you haven't seeked out for any professional help yet, you should take the step.
Safari1999
@MindOverMatter thank you so much! and you're very right about the horror stories. got a few other health issues to resolve rn but seeing an audiologist or something is def on my list.
SharonBell
How are you doing. I'm hanging in there. So glad summer is here. Been working in my yard and going to my sisters next weekend.
Tryn2BHopeful
I am really trying... but I am not sure I can "recover" from this more than once. I should of been more careful. Water under the bridge as they say. Every time it seems like things are going in a positive direction, T smacks me down again. Life can be cruel. 😢
Ken219
Sorry you're going through a rough patch. I'm in the same situation. 35 years of tinnitus with many spikes. As we know time will help us habituate. We did it before and it can be done again! Pray for better treatments or cure! Hang in we're in this together.
kingsfan
It's so difficult. It's hard not to ruminate about what we could have done differently.
delta784
Hey Sharon how old are you happy for you since you are dealing better this shit is worst disease on planet
SharonBell
I will be 51 this month. Yes it is the worst think ever, but I just stay busy and try not to think about it even though I hear it all the time. I do the things I use to and try to have a normal life because I really don't have a choice or stay shut up in my house.
delta784
i am only 29 can i live with this shit i have visual snow syndrome , dysacusis (sound distortions), nox(although feels mild), terrible tinnitus most bothersome seems to be like tinnitus
sandyknight
Hi Erika. I hope you're doing well. I saw that you mentioned your distortions came back. Did they go away a second time? I'm dealing with my own second round of distortions after beating the first.
ErikaS
Hi @sandyknight so sorry I am only responding now. When it comes to distortions, they come and go, but don't seem to stick around or bother me to the extent they used to. Something that I learned that really exacerbates my distortions was wearing in-ear protection, from foam to custom ear plugs. Talking with those in make everything worse for me, especially distortions.
ErikaS
@sandyknight Definitely give your ears rest in lower level sounds, they went away once and should fade again with some time.
Sodlin
Ive actually had 2 days of VERY calm and good tinnitus. Ive even manage to hammer down conrete stuff that you walk on with a rubber hammer (ofc with earplugs) and no spike! So nice being outside in the warmth and do "labour" and just be able to be to good use for once! :)
delta784
Hello are you still on clonazepam since you live in Gent have you talked with Dirk De Ridder about long term clonazepam usage for tinnitus , dysacusis ? thank you
zatara92
Extremely loud spike in T the last few weeks. I've been so careful this last year, I have no idea why it's so bad suddenly.
Danikam
I miss you!

I think about you often and wish I could have done more for you.

I was visiting your Facebook page at least once a year but I think it's been taken down now, it was my way of paying my respects since I don't know where or if you were buried.
Danikam
I think about the final moments of your life and how alone you must of felt and it haunts me, I can't let go of how I didn't reach out that week, life just got in the way but the what ifs...the what ifs will haunt me for the rest of my life.
Danikam
I'll always treasure our phone conversations where we laughed and talked about meeting in real life.

You are not forgotten friend, I carry you with me and will for the rest of my life.
delta784
im suicidal should i take benzos long term im having panic attacks every single day
erthwyrm
if you are feeling suicidal please reach out for help. benzo's are effective at reducing symptoms of anxiety but if you use them please do so with extreme caution. maybe ask your doctor about the dangers of benzo addiction
delta784
what type of help i can get im severe
erthwyrm
are you able to find a counselor or therapist? maybe your family doctor can offer some suggestions?
Tom Okay
I am getting more days where my tinnitus is not the first thing I think about in the morning. But it's still on my mind at least once a day. It's been more than 2½ years since it got worse.
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