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dude6830
hi Fernando

please kindly respond
I know youre a busy guy but please take a few minutes to help a brother out
For first initial treatment , is it important to go first for the stemcells 21 treatment similar to yours ? or can I just go directly for iv infusion treatment only ?
please I need your expert advice urgently, please kindly help ,Really need your advice
thank you very much
dude6830
hi Aetos

please kindly respond
I know youre a busy guy but please take a few minutes to help a brother out
For first initial treatment , is it important to go first for the stemcells 21 treatment similar to yours ? or can I just go directly for iv infusion treatment only ?
please I need your expert advice urgently, please kindly help ,Really need your advice
thank you very much
vilebubbles
Been talking to chat gpt. Apparently rapid paced tones that don't change and are in your brain rather than ears is a symptom of severe auditory hyperactivity and likely permanent. I'm fucked. If some of these tones don't go away I'm out.
Sodlin
Had a drawer out and somehow managed to get my knee into it on full force. Was proper loud and i got a slight fullness in the ear from the sound. Took NAC and Magnesium instantly. Hope i wont spike.
orenge01
Same has happened to me many times, it's weird how I manage to bump myself into thing so much. Just know you're not alone :LOL:
Sodlin
@orenge01 Just hate when stuff like that happens -.- My tinnitus is superloud atm but i think that is because im sick. Got a very large "lump" on my neck thats hurts alot
orenge01
Yeah tinnitus can definitely fluctuate when sick :/ , hopefully you get well soon.
PennyCat
Haven't had my TTTS flare up in a long time but it's back today. Frustrating, but scrolling thru my own posts helps reassure me that it always does eventually settle after a few days.
henkess
I have big trouble with it, i got muscles relaxer now and it gets away in 3-5 hours. So thats a relief atleast. Why do you think your starts?
Marcello
Hello Kam, how's going? Marcello here from Brazil. I've read your story in some posts and I've been facing some situations very similar, I went from mild tinnitus to the point of can't get asleep naturally at the moment. How is your sleep today? What medications do you use? I've trying some combination of them to get the best benefit to the sleep. It would be nice to be able to talk about it and exchange some tips.
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L
@Kam75 maybe updose really slow? Dont know where you live but there might be liquid version. Then theres always the possibility to file and weight a pill
N
Hi @Kam75 ! I know we never interacted before, but I'm writing because I'm about to switch from Duloxetine (been taking it for 4 months) to Venlafaxine. Both are SNRIs (not SSRIs). My psychiatrist was very cautious about SSRIs as it's known they can worsen T, but considers SNRIs to be rather safe for tinnitus sufferers. Bon courage pour tout.
Kam75
Hi @Nocca, as I said in my thread in which you have commented, I'm going to ask my psychiatrist to add Duloxetine to my current treatment (Mirtazapine) :) My appoitment with him is in July. Best wishes to you too.
dude6830
hi Aetos
you mentioned chloe had all 600 milcells through iv infusion but here says some were through her auditory system ?
may i know how many mil cells were through her auditory system ?
pls advise tku

600 million cells were administered by three injections with 5 day intervals. The cells were injected into her veins and auditory system.
F
Hi Asta, how is your hearing now? Hoping things have improved for you as I too am suffering after recently having had microsuction in both ears.
Kain
7 year tinniversary

IMG_7708.jpeg
BrOKeN_1
Definitely "Raaaaaaaaaagh".
I never know how to congratulate someone on these big occasions. So lest just go with FUCK TINNITUS!

But seriously. Hope your coping reasonably well. Big Hugs!
Kain
@BrOKeN_1 Thanks, I've been doing okay I think! Thankful to still push forward! Hope you're doing well too brother man.
vilebubbles
If I've had a new tone for a week, it's probably permanent right? Sounds like rapid fire piano keys banging.
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vilebubbles
Thanks but I had tinnitus, hyperacusis, and nox before benzos. Nox is why I went on them :/. T just got much worse when I began tapering. But it was already getting bad.
S
How long had you been suffering when you went on the benzo's?

Unless you were years in already, given some extra time after the benzo's to settle, things might gradually improve after and you could get a good bit of your life back...

You said yourself you've noticed an improvement in the nox and that's while withdrawing.

My T/H/N all got a lot worse before they started getting better.
vilebubbles
I'd had T and nox about 4 months before benzos. I'm just scared bc the tones are getting louder and more
Aggressive and none are eeeee or hiss. They're like rapid tones all over
My head
just1morething
My left ear hissing is intolerable today. I rode my motorcycle a bit as it is 76 degrees today.
LukeYoung
Does that spike it? I had a motorcycle, oddly it seems the wind noise spiked mine every time. I sold it unfortunately, I loved riding for the short time I did get to.
BrOKeN_1
T just can't let you have a Lil fun. I'm having new tires put on the motorcycle Tuesday and wr will see what a bad idea that is. Haha. The weather is nicer and I hate having the bike rot away in a corner of the garage.
dude6830
HI LJMD

How are you ?
sorry to disturb you
just checking if you have any updates regarding your t after your stemcell therapy ?
your stemcell therapy you did two times correct ?
may I know what was the stemcell count you used for both treatment and where did you do your 2nd treatment
your reply is much appreciated
4Grace
Hey buddy. ❤️
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L along the way
Also, working less, going out more for walks, and finding some more comfort in distractions.. and doing daily mindfulness meditations and inspiration and such. And a better connection with family and friends i'm grateful for.
L along the way
A friend of mine has the perspective on T to accept.. i've been contemplating, but i don't know.. i'd say i still live on a hope that it will heal (lifestyle, time & sleep) or even for a next life that things will be better.
L along the way
But at the same time.. just going day by day.

To just feel at ease, healthy & well.. it's worth the world eh.. i pray some day it will be so.

Happy to hear from you, wishing you a good day my friend!!
Tryn2BHopeful
I cant go out anymore... I don't do anything. I am scared to go to my kids graduation in a couple of months. Despite some of the positive messages I have received on this site, I just feel like I am spiraling. T is worse then the first time I got it, maybe even catastrophic... I have always tried to avoid labeling it... but IDK. Nothing I do helps, sound is reactivity and silence is humming.
MindOverMatter
You need to concentrate on you getting better @Tryn2BHopeful You will be losing out, and you might have to skip graduation day. If it scares you off and stressing you out, you shouldn't attend. It is hard, but its your life. Ive missed out on a lot of stuff myself, for quite some time, but I had to. I had to make space for myself, and not add any stress to my life. As far as possible.
Tryn2BHopeful
I always considered my T moderate... but I think its severe now...trying to hold a job, raise kids, do everything that one needs to do to live is exhausting wit h T... Nobody seems to notice or care that I am struggling... After almost 2 years you would think I would simply know that. Its the life of someone with T.
dude6830
HI Fernando
for LLLT what im worried is the massive spikes , discourages me from trying
Need your advise thank you
vilebubbles
I wish I didn't know what was happening to me. I used to hope it'd stabilize. Now I see it's just going to progress.
DamagedJoe
What was your first noise trauma?
vilebubbles
Loud music in a really strong speaker system in a car. Blasting music on headphones. MRI.
DamagedJoe
I feel your pain. Today ist a bad day for me. This condition will kill me someday.
nedenben
My tinnitus is unbearable, my exam yesterday went terribly, and I still have to study for another exam, but I can't focus :).
S
Why do you torment me loud dial tone frequency, the times you are gone I cope so much better and then you bring physical sensations to make yourself known.
just1morething
I had a CT scan of my temporal bone near my ear and also a CT scan of my TMJ. I'm still waiting for my TMJ report.
vilebubbles
Everytime I think it can't get worse, I'm proven wrong with a new tone, that is often worse. Just trying to do basic things like taking a bath or eating or taking ear plugs out for a few hours at night. At this point I don't know if the new tones are sound exposure or from meds and my brain is just too beyond messed up. My vss is also progressing. Nox seems controlled still with quiet.
S
My tinnitus was never bad. No matter what I ate nothing triggered it. my sister spent 20 minute shouting prob 100 plus decibels and I was few meters away I felt her shouts in my eardrum. I should've left the house. After her shouting I had no spike and went to bed 7 hours after now I wake up with 6x spike. 😭
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