Marina Moon

Treatment options he mentioned inluded injections, plates, muscle relaxers, but i need to get an MRI first to know what the tissues look like in my jaw point, and how to proceed foward. Surgery terrrfies me and something i really, really don't want and can potentially leave me in a worse condition.

My condition could have also started in my back and then slowly affected my jaw joints, as everything is connected, and i was having lower back pain for a while before all these other symptoms manifested.

I still regret eating that burger in september of last year because on that day that's when my bad headaches manifested. Maybe it wouldn't have mattered if i ate the burger, or eaten something else a day later, my TMJ was probably already weakened (?) and then the burger was just the last straw, the catalyst for everyhting else inevitably to happen.

@SarahMLFlemmer Since the onset of my condition, i'm starting to re-evaluate the dynamics of my family...and how dysfunctional it is....

I am so sorry you are going through this. It’s incredible how similar all of our experiences are… I can relate to everyone of your sentiments. I’m not a fan of those life affirming quotes but one stuck with me. We need to be strong, endure and accept because the reality is that every other choice is worse. Every other option is not better. I wish you only better days. You are so strong and very smart.

@4Grace Thank you for your kindness, i needed to hear this <3

@Juliane No. Thankfully there was no drilling involved. Mostly just discomfort and paranoia.

@brixenbrixen LOL.. seems that way :D

@BrOKeN_1 Thank you! The dentist said my bite was normal, and though it may not be aesthetic, it wouldn't be causing me issues. So in that area i'm relieved!

Right?!

Same! And to think I had that little over a year ago (I had mild T, which for me would be the same as cured) and did not thank my Lucky stars EVERY DAY! Just mindblowing... Sure don't know what we got till it's gone

It's crazy how long it can take. I had to wait several weeks when I made an appt. with an ENT. Then it took another two to three weeks to get into the university for a hearing test upon the ENT's referral. Fortunately, I got into my PCP within a week the last two times I scheduled appts. But, I never attempted to see a neurologist, psych, therapist, or sleep doctor.

@RunningMan That's rough, i'm sorry. It's insane how hard it is to just get help.

In Canada one guy - 12 month wait. MRI - 6 months. Health care went to crap after Covid

@SarahMLFlemmer I'm researching and making appointments with dentists, regardless of what my parents think! I'M TAKING BACK MY LIFE!

@Tryn2BHopeful I always wanted straighter teeth, but I never had teeth problems, but then again, i never noticed that last molar was raised until recently. Maybe if i went to a dentist sooner, my situation now could have been entirely prevented, perhaps...May I ask if your son had impacted wisdom teeth and were they painful?

They were not impacted. We had his removed before they became an issue. I had impacted wisdom teeth when I was younger and I had jaw pain. After they were removed that went away.

@4Grace I'm sorry, i know the feeling all too well. Thank you. Things are looking up a little better after i visited the dentist today!

@Tryn2BHopeful I'll keep moving forward, it's hard but better days are coming, hopefully. Thank you <3

@SarahMLFlemmer I still love them, it's just getting hard these days to function, and i still feel guilty that this condition happened to me because it is affecting my family too. I just want to go on vacations again, watch movies, and have fun like we used to. I feel like i disrupted all that was good...

We all understand here. ❤️

Hey Marina Moon. Please vent, then vent, then vent, then vent some more and try not to feel the need to apologize. We all understand is an understatement. It helps me A LOT when I vent here. It’s the only place of understanding.

@Tryn2BHopeful @SarahMLFlemmer @4Grace Thank you all <3 T_T

Your in good company! We can all be a little nutty together :]

@BrOKeN_1 Hazzah! XD

I think that too LOL

I think this way sometimes- but who will pay for it, and the ringing will follow me there, too. Wherever you go, there you are.

My dentist confirmed it was TMD and knew what is exactly happening to me. My left cartilage disc is out of place and is stuck, preventing my jaw from opening wide, and all the pain that is associated with that. He talked to me and my parents and showed what is anatomically happening (via animation). It clicked with my parents and now i feel like they finally believe me.

@Tryn2BHopeful This dentist (the same guy who did my sister's braces) said my bite is normal and wouldn't be causing me issues, nor would invisalign help, so he told me to see an oral surgeon he recommended and get an MRI of the jaw. TBH i already knew waht he was going to say, but i needed a doctor to explain it to my parents T_T

While I am not happy you had to suffer this I am glad you have come to a diagnosis and hopefully the support of your parents! I truly believe your on the road to recovery and better things are coming. Now for you to get better and leave this forum and do what teenager's do!

Happy Spooky Day!

@Mo8409 thank uuuuu :3 May your day be full of fun and sweets!

@Juliane Thank you! I'll definitely post something here when I get the chance :3 T and pain make it hard, but it's my dream to write a book and I really, really want to make it happen. Over the past few days I was writing down notes and that felt like an accomplishment XD

@Marina Moon Sounds great! Please do! I am working on a book too but haven't written anything since my tinnitus worsened

@Juliane I'm sorry :( but don't worry or put pressure on yourself, your stories will always be waiting for you to come back to them. We're still writers, regardless of our conditions.

when i was telling my mom when i first had T and all the sounds there were, she laughed at me and asked If I was hearing voices in my head.........i might die in this house is2g.

don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset don't get upset

I wish i wasn't going through this

I am sorry to hear that. There is so much hate in my heart too - towards the people who worsened me on New Year's Eve. It's a horrible feeling but it's genuine. I cannot help hating them for ruining my life. I hope hate with time fades for both of us.

@Juliane I'm so sorry, and i understand. It's cruel to have more pain toppled on more pain. It's so unfair. I hate holding this feeling of hatred, but i feel like i'm going to hold this grudge over my parents for the rest of my life for condemning me to suffer like this. I hope it fades too, we deserve to be happy and thrive.

I hope it was worth it!

@Tryn2BHopeful Best fried chicken I've ever eaten in my whole life!!!

but not i'm remembering i would listen to loud music in the car with headphones last summer....maybe i did muck up my hearing then...

I wish I could tell you. I don't even have a good answer for myself. Try not to blame yourself, you didn't know this was going to happen. It might of been unavoidable. Try to focus on the present and improving the situation. Advice I should take myself!

@Tryn2BHopeful I'll try to be kinder to myself, because I must be an advocate for the betterment of my own health. I still wonder if my back and abdominal pain was a warning sign and if i did something THEN i wouldn't be suffering now.. I'm trying to keep it together mentally, i have an ENT visit next week!

TBH i'm not sure if this is really improvement as the pain is terrible...

Well it atleast shows it can change, and that your symptoms such as T might be resolvable if your TMJ is addressed.

@Tryn2BHopeful You're right, (T is still reactive though...) i should be looking at the bright side, because lately i hate living.

Oh man, I hate wasps so much. Did it hurt?

@TheCapybara when i got stung It! HURT! SO! MUCH! I was walking under a tree with low hanging branches and it fell in my hair. at first i thought it was a leaf until I picked it out and it stung my thumb. I ran back home wailing....At least it wasn't my face or neck! it's the third day now, so my thumb is just sore, but still slightly swollen.

@Tryn2BHopeful Hi, thanks for asking. Mental health hasn't been good. The pain spread from my face to my neck/shoudlers/back and i'm in constant pain, plus tingling in my arms and legs. Then i was stung by a yellow jacket recently, which intensified everything i was already feeling and i had a breakdown yesterday. I wish i had good news to share, but i'll try to stay strong, thank you. I hope you're doing ok too!

@Tryn2BHopeful I'm gonna start seeing doctors in November, hopefully they'll help me!

@Mo8409 Thank you T_T We're all strong for enduring through this awful thing. The resilience to edure is a powerful one.

@Juliane You're so right T_T <3 I'll keep trying my best. People's conditions should never be disregarded because we don't look stereotypically ill. As if we need to walk about with bandages strapped around our heads and wear eye patches just to be taken seriously...When people are in constant pain everyday, it should be looked into because something is clearly not right.

We get it. =( Hang in there. ❤️

Sorry that she is saying that to you :-(

One day at a time. ❤️

@SarahMLFlemmer <3

Aww.

It’s hard because there can be many different causes just like normal tinnitus. Mine is caused by venous sinus stenosis.