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Hi all, for a couple months now (Yeah, thought it would clear on its own, didn't want to bother doctors) I've had muffled hearing in my left ear (tinnitus ear). I decided finally best see the doctor. She looks in and said she cannot see the eardrum as too much puss. This was actually a surprise...

There might be a marketing issue for this device. Many of us with tinnitus and residual or normal hearing have been told we are not eligible for cochlear implants, so some people who could participate in the clinical trial might not even be considering it. No, this device does not go into the...

2028 is shaping up to be a good year for tinnitus. Cilcare results are expected, Neuralink may become available, Cochlear is expanding their tinnitus implant to a pivotal trial, and the SSD is finally being released. My crystal ball says to bet big on 2028!

Cochlear is currently recruiting for a clinical trial of a device that aims to quiet tinnitus via electrical stimulation of the cochlea via the mastoid bone. You can find more info here. Another thing that makes me excited about this trial is that they have a very robust screening method to...

Wow, @Jammer, I just want to say thank you for your service to the tinnitus community. Your experience with this clinical trial is an example to all of us of the importance of research and the risks involved. I’m deeply grateful that you took that chance for the sake of advancing scientific...

Yes, I carry earplugs with me just in case. Every day is agonizing. It no longer feels like living, just existing. I yearn for a moment of silence, a chance to be at peace with the sounds around me. For what it’s worth, I’m a former member here who deleted their account but has now returned, so...

Placeeeeeeeeeeeeeeeeeebo!!!

This is a great combination that has helped many people, according to numerous online posts.

Yes, I’m lying flat. I used to sleep on my side, but back in February I started getting ear pain from it and had to go to the ER twice. Now I’m afraid to sleep on my side. Today I just took my last pill of Amoxicillin. I skipped the Flonase nasal spray yesterday because it was getting late...

Yes, it's something we've talked about. An endowment would be a great way to create steady, long-term funding for research. The challenge is that it only really makes sense once there's a big enough starting amount. For example, a $1 million fund earning around 4 to 5 percent per year would...

I would assume cost is the main factor. Beyond the price of travel and lodging, I am willing to bet the treatment itself will be very expensive. I imagine that even those of us in the United States will struggle to afford it.

Labetalol is supposed to be one of the safer options, along with Nebivolol. I had to stop taking Guanfacine because it caused insomnia, which led to some rebound hypertension. I suggested Nebivolol as a substitute, but my numbers were good enough with just Benazepril. The Neil Bauman blog has...

Your wish is my command, D lol. Tried to grow some broccoli from seed this year. Hopefully, by Xmas, there'll be a bit more on the crown than this current state of affairs. You're never far away from my thoughts, @tpj, and likewise, it's always nice to hear from you.

I couldn't disagree more with this point. We ought to be way past contextualizing tinnitus science in this way. Providers of tinnitus treatment devices really should position themselves to complete the following most basic question with a binary answer: Does your device reduce the volume of...

I tried it twice, with a break of a few days in between. My notes show that my tinnitus increased about four times in intensity after taking 20 mg of Telmisartan, and it took around two days to clear up. I then tried it a second time and experienced a similar fourfold increase, which again...

Would Tinnitus Quest ever consider creating a separate account, for example, an endowment, that people can donate to where only the income would be used to fund research while the principal balance remains untouched? This would create a permanent source of funding for the charity. Thank you for...

How long did you take Clonazepam, and what was your dosage?

Thank you very much for your message and for all the work you are doing with Tinnitus Quest. I already follow your Instagram page closely and regularly share your updates on X, BlueSky, Threads, and other platforms. I really like the spirit of the project and do what I can to help spread the word.

I will try to come back and keep you updated.

So now I have been sleeping much better. I still have the whooshing, pulsating sound, which I would rate as a 6 or 7 these days. I changed the time of day that I take my supplements and high blood pressure medicine. I used to take everything in the morning, but now I take them at dinner time...

Your position supports modern slave labor for the profit of those who employ it. Ironically, working-class, taxpaying citizens are the ones financing these illegal immigrants while also being victimized by the many criminals among them. I look forward to ICE and the National Guard arriving in...

I've been having these sudden spikes in my tinnitus lately. Obviously really annoying but has anybody been experiencing this due to the weather? ChatGPT said that the sudden drop in Barometric Pressure coincides with my spikes, but other factors like emotions and sinus congestion could be...

For one thing, no one has applied to research this area. Even if we wanted a specific topic to be explored, we cannot compel researchers to pursue it. Our entire process depends on researchers taking the initiative to submit grant applications to us. (That said, we certainly hope that through...

In any case, even if the device becomes available only in a few years, we should acknowledge the extensive research and remarkable career of Dr. Susan Shore. I truly hope her work will inspire other researchers and laboratories to continue exploring this path, whether through new molecules or...

What strikes me the most is that no other research groups seem to be pursuing the same approach or attempting to replicate these findings, even though this procedure has long been shown to be effective. This should be standard practice in the scientific community. When a breakthrough is...

It can be explained to other tinnitus sufferers. There is nothing you have written that has not been said before. You have reactive tinnitus, and it also worsens easily with additional noise exposure. These factors make your condition more serious. Do you use earplugs and earmuffs in...

Give it time. You are still in early stages. I've had tinnitus for decades, and while I can't say it's decreased, I can say I can ignore it much more easily than before. Please take MAID off your to-do list and give yourself more time to adapt. You will almost certainly adapt to the point you...

Wow, you are definitely brainwashed, but that's expected from a person who would lick the shoes of your disgusting government. A true shoe licker. ICE is arresting innocent people. Here's an idea, why don't you go pick fruit and vegetables now that half of your so-called illegal people aren't...

Hello, I’m really sorry for what you’re going through. From what you’ve told us, it seems that your ears have been able to heal, which is amazing and a wonderful thing in itself. I’m truly happy for you about that. As for the head tinnitus, there is always a chance it will improve or that you...

This is a sad time for America. Trump is demoing the East Wing of the White House to build his golden dance hall. This is all completely normal, right?! No Congressional oversight, no historic commission involvement, no report on condition, needs, or plans. We don't even have blueprints of a new...

Your noise will go down again. It's very possible the spike would have happened no matter what you did. I had a day about 7 weeks in where it nearly vanished and I celebrated like you did, then it came back. I was injured in January and I think April through June were actually the worst months...

Are you lying flat at night? Elevating your head with an extra pillow, or sleeping in a recliner if you have one, could help the fluid in your ear drain more effectively. If it is collecting at night, that could definitely explain the reduced hearing in the morning. Try drinking something warm...

That’s great to hear! I think having a busy household is actually beneficial. It gives your brain many opportunities to learn that sound is not threatening and provides plenty of distractions from the tinnitus. Sometimes I wonder if living alone in a very quiet house has actually slowed my...

It’s wordings like “probably” and the generic “you” that I have a problem with if you are trying to point out that these deterrents are of a relatively exclusive kind. Besides, why shouldn’t the vast majority be able to take the necessary time off work, including planning ahead? Why shouldn’t...

@UKBloke, for context, that is one of the figures accompanying Dr. Shore’s journal article published after the most recent human study. It is easy to find online; it is eFigure 5 in the supplement to the article. I have attached a PDF of the full text of her article, along with the supplement...

My tinnitus story. Trigger warning: assisted suicide. Last year, I got a potential ear infection that caused tinnitus on my left side. I got medication to treat it, but during the treatment course, I got worried about having a brain tumor, since people online in Facebook groups said to watch...

That’s great to hear, Sonia. I didn’t feel like the water irrigation affected me at all either, but after reading the stories here and on Reddit, I got scared. I’m on day ten since the concert and feel like I’m doing better. The tinnitus seems to have gotten somewhat quieter, and the...

What do you mean? You can get an ABR test that shows synaptopathy?

I assume that you have frustratingly bad problems, and lashing out at others with filth online is a way of coping. They're getting rid of criminals and illegals, and the National Guard is there to make it safe for ICE to carry out their roles. If you do not like that, there's not much to say...

Now that the dust has settled a little further over these past few days, I would like to say that the thing that still p*sses me off perhaps the most about the way this whole situation has played out is the chart below (which I'm finding increasingly difficult to locate online - but maybe that's...

Turning to poetry here, and this is on the topic of discovery. I don’t have a degree in English literature, so this is just my interpretation of some lines by Keats that I remember from high school: “…Or like stout Cortez when with eagle eyes He stared at the Pacific and all his men Looked at...

Hi, I just wanted to extend a kind word and let you know that I’ve been in your shoes, as many of us have. I’m a relatively new sufferer of tinnitus, which I developed suddenly back in April. I was seven weeks pregnant when it began (though it wasn’t related to the pregnancy), and it has...

I’m researching blood pressure medications that are easiest on the ear, and it seems that Labetalol is the only beta blocker not associated with tinnitus, although there’s one story here from someone who said otherwise. It might be a good option to keep in mind if Guanfacine doesn’t work out...

Telmisartan is supposed to be one of the better blood pressure drugs for tinnitus. It has even been shown to be otoprotective. Are you sure that particular one made your tinnitus worse?

I doubt it. The real issue is not the volume but if it caused the membrane to tear or pop. I guess constant popping could weaken it over time, but for as many times as I've had the suction thing happen (thankfully not recently), any discomfort or fullness always DID go away. I think the sudden...

Give it a good one to two weeks before worrying too much. Most of my spikes haven’t lasted longer than that. Easier said than done, I know.

I have always wondered what would happen to this device if, unfortunately, Susan Shore were to pass away before it was brought to market. Now that we have learned that more tests need to be carried out, which will take many more years, and given Shore’s advanced age, this is a legitimate...

I'm thinking go to ENT today, as I barely hear my voice in two mornings now, it's quite annoying to deal with this, but good news is vibration, and echo is gone, well vibration almost gone, but the ringing is back to normal which doesn't bother me much than my hearing right now.

Update 4: Yesterday, I took Amoxicillin, which helped temporarily until I slept the next night. I also used Flonase, but only my left nostril had a nosebleed, while the right one tolerated it fine.

Curious if anyone has experienced a long-lasting spike in tinnitus or hyperacusis, or any hearing loss issues, with just Trimethoprim (not Trimethoprim-Sulfamethoxazole/Bactrim)? I’ve had mild tinnitus and severe, now moderate, hyperacusis for several years. I’m a musician, and of the two...