Search results for query: TTTS

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  1. RunningMan

    I have had the TTTS type of MEM also, for a few months. In left ear (fluttering) due to...

    I have had the TTTS type of MEM also, for a few months. In left ear (fluttering) due to sustained voices in quiet environments, and in the right ear (thumps) spontaneously without sound stimulus. The thumps stop after a little while. It doesn't just happen at times when anxiety is high, but...
  2. GG_Ear

    What Do I Have? Loudness Hyperacusis? TTTS (Tonic Tensor Tympani Syndrome)?

    This is great that natural sound therapy helped you. I was talking to an experienced audiologist and she said that the best proven thing for TTTS is CBT and techniques to reduce anxiety and stress. Also gradual reintroduction to natural sounds and not over-using sound protection (i.e. only using...
  3. D

    On top of that, I developed MEM, which is spontaneous thumps every few seconds lasting for hours...

    ...developed MEM, which is spontaneous thumps every few seconds lasting for hours in one ear. That crap usually gets triggered by yawning, hiccups etc or randomly and that happens nearly every day for 1-2 hours. Just when I managed to overcome T and TTTS and their anxiety, this MEM has been...
  4. D

    I appreciate your effort to give insight about TTTS. Unfortunately, there are cases where...

    I appreciate your effort to give insight about TTTS. Unfortunately, there are cases where anxiety plays minimal to no role. My TTTS has persisted for 2,5 years with its ups and downs, most prominently in quiet settings and reacting to short sounds (kitchenware, scratching my face etc). For many...
  5. Keith D Mitchell

    Carbamazepine (Tegretol, Equetro)

    I don't come around here much, but I did want to sound off on Carbamazepine. I started taking it a year or so ago as I developed MEM/TTTS on top of my tinnitus, which sucks. After months, my ENT mentioned Carbamazepine could help, and I've tried it. It doesn't affect my tinnitus at all, but it...
  6. GG_Ear

    CBT today with an audiologist/therapist. Possible acoustic shock caused hyperacusis and TTTS...

    CBT today with an audiologist/therapist. Possible acoustic shock caused hyperacusis and TTTS (underlying ETD/TMD meant ears more vulnerable)
  7. Sammy0225

    I’m gonna leave tips on what I did to heal some of my symptoms Incase I disappear one day and...

    I’m gonna leave tips on what I did to heal some of my symptoms Incase I disappear one day and someone needs info. I’ll start with (TTTS)
  8. Sammy0225

    Suicidal

    ...are days now where my hyperacusis and tinnitus are nearly non-existent or mild enough to overlook. While I still experience days of intense pitch, I'm actively countering the reactivity with the use of pink noise. (Onset reactive tinnitus, dysacusis, loudness hyperacusis, mild noxacusis, and...
  9. GG_Ear

    @Olly132 How did you get TTTS diagnosis as opposed to ETD or TMJD...or are they all interconnected?

    @Olly132 How did you get TTTS diagnosis as opposed to ETD or TMJD...or are they all interconnected?
  10. 4alien2

    @MadeleineHope I'm not sure if it's ttts, my tinnitus is not caused by noise. It was caused by...

    @MadeleineHope I'm not sure if it's ttts, my tinnitus is not caused by noise. It was caused by acid reflux. ear congestion has become chronic, things that work are magnesium citrate and muscle relaxants
  11. MadeleineHope

    *Hugs* I know the feeling, as I've got TTTS. Do you have this too? If so, the ear fullness...

    *Hugs* I know the feeling, as I've got TTTS. Do you have this too? If so, the ear fullness should subside slowly over time (sometimes very slowly) with a quiet enough environment.
  12. Tweedleman

    Tinnitus for 1.5 Months After Music Festival — The Most Horrible Ailment I've Ever Suffered

    ...no longer drowns it out. I was also left with sound distortion (everything sounded brassy and shrill, no warmth), aural fullness, ear popping/TTTS, and sound sensitivity. I was also deafened and it was hard to hear my own voice. And hear anything against background noise. Yet, like many here...
  13. StoneInFocus

    Flupirtine — Another Potassium Channel Opener

    I have the same pills. On the package it says "Lupin Ltd." I don't know if the pills are legitimately from that company. Maybe I will contact the actual company at lupin.com to ask whether they still manufacture Flupirtine. Wish I could give you some advice about your situation...
  14. GG_Ear

    New to Hyperacusis — Pre-Existing Tinnitus from Noise Exposure / TMJ / Stress / TTTS / ETD?

    Hello all, I'm new to hyperacusis since end of June. It has been gradually getting worse. It started as reactive tinnitus to certain external sounds (my own voice - especially with earplugs in- , other people's voices, cars, dogs, doors closing, toilet flushing etc.)... Once the external sound...
  15. MindOverMatter

    @BB23 The only "lasting" solution for this is to get help with "fight or flight" / anxiety...

    ..."lasting" solution for this is to get help with "fight or flight" / anxiety. Muscle relaxants, potent magnesium and so forth can be of help, as mentioned, but imo ttts is very much stress and anxiety related. Once that is under control, it tends to get a lot better (personally experience based).
  16. BB23

    Flupirtine — Another Potassium Channel Opener

    I have a GABA issue due to Fluoroquinolone intoxication + Mirtazapine messing up with my Serotonin causing my tinnitus and hyperacusis along with TTTS. It has improved so much from the beginning but the progression stopped and it's been like this for months. My ex-girlfriend, who is in...
  17. DutchGuyMike

    There's some studies that directly combine the two together, but also the body's muscles...

    ...body's muscles constantly stopped being tight (AND sleep got way better). I know the horror stories that if you get off of it that the tinnitus/TTTS will get worse but if you taper extremely slowly (with weights and capsules) that effect should be very minor. Best is for a physiologist to...
  18. DutchGuyMike

    You most likely stretched muscles "badly". TTTS is often from overly stretching/tightening of...

    You most likely stretched muscles "badly". TTTS is often from overly stretching/tightening of upper body muscles. Most tinnitus sufferers do the "clenching" of the upper body subconsciously, Clonazepam (Klonopin in the US) is helping me IMMENSELY with reducing the volume of the tinnitus (which...
  19. Olly132

    Botox, Tenotomy and Tympanic Neurectomy for Noxacusis

    No, he has carried out this procedure a lot for MEM, TTTS and maybe other conditions that would warrant a tenotomy. And 99% of the cases have been without any side effects. Not necessarily successful. Basically implying it's low risk to give it a go. But only because my situation is so dire. It...
  20. AverageJoe12

    Hyperacusis Cured/Reduced by Clomipramine

    ...L-Threonate off Amazon (I'll double the dosage and split it day and night) and 100-200 mg Gabapentin at night. The Magnesium is helpful for the TTTS/muscular component of this and the Gabapentin for sleep, rest, overall CNS relaxation as well as nerve pain. The last pieces of my toolkit...
  21. Sammy0225

    @ErikaS i had exactly this!! Took months to go away. Yes it had more of a physical feeling of...

    ...more of a physical feeling of vibration more than a noise or sound.It slowly faded after my trip to the beach house last year. Looking back now I feel it was a form of MEM or TTTS. It activated to low bass sounds. (Cars passing outside and such) I’ll add that after a car ride it vibrated like...
  22. ErikaS

    Inner ear vibrations have been getting worse. Worse w/ sound exposure but also under a lot of...

    Inner ear vibrations have been getting worse. Worse w/ sound exposure but also under a lot of stress. It’s opposite of how TTTS described..
  23. RunningMan

    Tonic tensor tympani syndrome (TTTS) My tinnitus got a lot worse about 20 months ago, had one...

    Tonic tensor tympani syndrome (TTTS) My tinnitus got a lot worse about 20 months ago, had one incident of TTTS back then, then it started again reoccurring occasionally a few months ago.
  24. RunningMan

    Oh, is it kind of a flutter or thump that feels like it's your eardrum? It could be TTTS. I...

    Oh, is it kind of a flutter or thump that feels like it's your eardrum? It could be TTTS. I have that, sometimes in left ear in response to certain sounds (like after continued voices in quiet environment) and sometimes spontaneously in right ear rather than responding to sounds, when it might...
  25. Brian Newman

    TTTS Pain/Noxacusis from Tympanometry

    You are a new case. Rest your ears, get silence and don’t take meds. Whatever you do, just don’t do TRT, lol. Things will most definitely calm down but you do need to be patient. Wish I had done this earlier but I kept making my noxacusis worse. Sorry, that’s a crappy way to get noxacusis...
  26. PennyCat

    Hey @Sammy0225 is your TTTS still pretty much gone? I forget if you’ve answered this or not but...

    Hey @Sammy0225 is your TTTS still pretty much gone? I forget if you’ve answered this or not but how long did it take for that to happen? Mine is better than it used to be but comes back for a few days here and there for some reason.
  27. PennyCat

    TTTS has been back again the past few days but esp. today. Trying to remind myself that it’s...

    TTTS has been back again the past few days but esp. today. Trying to remind myself that it’s settled before many times, and it can again.
  28. D

    You noticed no effect because it just doesn't do anything for us. I've tried many forms...

    You noticed no effect because it just doesn't do anything for us. I've tried many forms: chloride, oxide, glycinate, citrate, on various doses, on and off for periods and didn't have any effect on any of my ear problems (T, fullness, TTTS, MEM).
  29. Utdmad89

    Noise-Induced Tinnitus — Positive Success Stories

    How can you be pretty certain it's false? There are 8 billion people on earth, of those 1 in 7 people have tinnitus. If all of those people got worse, then Tinnitus Talk would be inundated and you would hear about tinnitus everywhere in the real world. Once again, this is your experience, not...
  30. RunningMan

    Noise-Induced Tinnitus — Positive Success Stories

    ...can lead to hyperacusis or noxacusis as well. I can certainly say that my tinnitus is much worse than 20 years ago, plus it's more variable now, and now have hyperacusis and TTTS in recent months. Also, low-frequency tinnitus started a few years back, which hasn't improved but varies in...
  31. Olly132

    TTTS Pain/Noxacusis from Tympanometry

    ...At least not yet. I'm currently trying to find an ENT who will inject Botox into my tensor veli palatini muscle. Which may help if you have TTTS and you may have more luck with finding someone who can do that than me. If that is successful and wears off, my long-term view is to look to have...
  32. Ngo13

    TTTS Pain/Noxacusis from Tympanometry

    ...joining in a few months later. Both my ears have felt full and blocked since onset. No hearing loss or anything of note from the tests. I have TTTS in my left ear since sometime last year (not sure when it started, maybe from the beginning). My tinnitus has been slowly getting worse since...
  33. gameover

    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    ...frequent. Not exactly stabbing, but a kind of pressure with a pain feeling. It is a new thing, I did not have it before. No idea if that's TTTS - it's not fluttering/thumping I have experienced before occasionally. I drove in my "loud" car yesterday (with earplugs of course), maybe that's...
  34. Ed209

    I Have 12 Months to Recover from Tinnitus: What Treatments Can I Try? Budget $450,000.

    Yeah, it's the response of you feeling it's a threat which you cannot control. You can't just say to someone “Just relax and don’t let it bother you” and expect them to go “Oh right of course, silly me, I'll be fine now thanks to this sage advice.” You also have to factor in that you may also...
  35. RunningMan

    I Have 12 Months to Recover from Tinnitus: What Treatments Can I Try? Budget $450,000.

    ...From what I read, this is because the brain subconsciously senses the tinnitus as a threat and activates the sympathetic nervous system and gets stuck in the fight or flight response. My tinnitus is variable along with hearing loss, hyperacusis, and TTTS, so it's not easily ignored for long.
  36. slc

    Frequent Reactive Tinnitus Spikes → Any Advice/Support?

    I have a couple of ideas which might help. In terms of TMJ, check with a good dentist to assess your bite and determine whether dental work or a dental guard might help. Another route would be a highly trained craniosacral therapist who might be able to offer relief in terms of TMJ and even...
  37. Kain

    Frequent Reactive Tinnitus Spikes → Any Advice/Support?

    I’ve been okay! Tinnitus is okay and I haven’t had any spikes *knock on wood*. Right now it’s just my hyperacusis, TTTS and reactivity that’s bothering me. My anxiety has been pretty bad lately so that’s also adding fuel to the fire, I’m sure. How are you?
  38. RunningMan

    Never count on healing, if there is such a thing. I'm well over 20 years into tinnitus, and it...

    ...count on healing, if there is such a thing. I'm well over 20 years into tinnitus, and it has only gotten worse, then add on hyperacusis and TTTS more recently. And it affects my anxiety/depression quite a bit still, some days more than others. Just protect without overprotecting and hope...
  39. Ngo13

    @ZFire burning pain on the whole side of my face and ears and sharp pains. Not triggered by...

    @ZFire burning pain on the whole side of my face and ears and sharp pains. Not triggered by noise exactly - only by TTTS movement (which is triggered by noise, lol) but especially talking, chewing, turning neck, etc. I think it was the movement of my eardrum or those muscles.
  40. Ngo13

    Pain is gone now, back to business as usual. Convinced that my issues do actually stem from a...

    Pain is gone now, back to business as usual. Convinced that my issues do actually stem from a physical problem with my ears (TTTS) now
  41. Sammy0225

    @Bimmerboy early on i had bad Reactive tinnitus, Dysacusis, loudnesses H and TTTS, and slight...

    @Bimmerboy early on i had bad Reactive tinnitus, Dysacusis, loudnesses H and TTTS, and slight pain to noise. But it wasn’t stabbing it was more of a deep throbbing ache
  42. gameover

    Loudness Hyperacusis — Sensitive Only to Certain, Mostly Low-Frequency Sounds

    Sorry to hear about your worsening, @RunningMan. Yet some people actually improve, not just habituate. Just as I guess we do not quite understand how the tinnitus/hyperacusis actually happens, we do not understand how it heals. Nerve healing is a thing, it often takes a very long time even in...
  43. RunningMan

    Loudness Hyperacusis — Sensitive Only to Certain, Mostly Low-Frequency Sounds

    ...mostly longer term with repeated exposures / trauma and worsening 19 months ago, so there's not much hope for me. I then started experiencing TTTS 3 months ago. And hyperacusis is a more recent development, becoming more obvious about 6 weeks ago. Also terrifying are the posts from people...
  44. RunningMan

    @4alien2 Thanks. Unless there's a helpful treatment in the future, I think I'm stuck with my T...

    ...in the future, I think I'm stuck with my T and of course hearing loss. No improvement in 19 months and just new problems (hyperacusis, TTTS). So, I just hope I can get to a point I can live more easily with it instead of continued suffering of insomnia, anxiety, and depression. There might...
  45. Jenny_S

    Hi @Ellaenchanted868 My TTTS comes and goes. The cause came from acoustic trauma (Acoustic...

    Hi @Ellaenchanted868 My TTTS comes and goes. The cause came from acoustic trauma (Acoustic reflex test in both ears). No pain then to sound like I have now but just ear pulse like reaction to sounds e.g.a light switch.
  46. Marcuso22

    Frequent Reactive Tinnitus Spikes → Any Advice/Support?

    Lots of factors to consider which makes it more difficult to pinpoint what's happening. From what I've read one can develop TTTS from TMD, anticipatory fear of loud sounds & stress/anxiety. Do you have pulsatile or somatic tinnitus? Have you checked Dr. Silverstein's website? He does surgery...
  47. gameover

    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    ...biggest spike on record from last week. I also felt rhythmic thumping in both of my ears and felt a very high heartbeat. I do not suppose it was TTTS... very strange. Surprisingly, I wasn't even panicked. Just like in disbelief thinking "I can't f****** believe it". I fell asleep again...
  48. RunningMan

    Loudness Hyperacusis — Sensitive Only to Certain, Mostly Low-Frequency Sounds

    ...when fewer people were there. I even put in musician's earplugs at times, which I never felt a need for back in April. I also experienced some TTTS (MEM) fluttering when speaking among a smaller group. Low frequency sounds don't seem to be much of an issue for me. Tinnitus seems worse...
  49. RunningMan

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    Everyone can cope with mild or at least constant tinnitus. Try constantly changing sounds, tones, intensities of tinnitus from day to day combined with hyperacusis, hearing loss, and TTTS, and the resulting anxiety, insomnia, and worse that they can bring. That can crush the strongest of minds.
  50. ahlisa

    Hearing Protection Against Your Own Snoring?

    ...Is this going to worsen my hyperacusis over time? There are some days when I wake up fine, but sometimes I wake up and my loudness hyperacusis/TTTS is more sensitive. Eventually my goal is to resolve my jaw issues so I can sleep on my side again, but I’m currently taking a break from...
  51. Kain

    Frequent Reactive Tinnitus Spikes → Any Advice/Support?

    ...to some sounds gives me a visceral reaction where it seems like my ear is tensing up to these said sounds. I think it may be my hyperacusis and TTTS flaring up in response to these spikes, but the fact that I have had these episodes probably around eight times within the month, does not give...
  52. D

    Loud Tone for a Few Seconds — Fleeting / Transient Spontaneous Tinnitus

    ...with episodes of MEM (spontaneous spasms in the right ear) lasting for hours at a time, triggered by burps/hiccups. And that is on top of TTTS (reactive spasms to some sounds) which I had developed 2 years ago. I've been suspecting I may have something like sinusitis or ETD, because I get a...
  53. gameover

    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    ...do not know which scares me more. They are both hellishly scary on each own. I feel like the suffering has quadrupled by having both (2x2=4). TTTS (?) or thumping sensation seems to be gone for few days. Burning showed up for a moment today. I so wish I could claim I have reached some sense...
  54. Ngo13

    I think it's an eardrum injury as I don't find the pain triggered by sounds themselves. I hope...

    I think it's an eardrum injury as I don't find the pain triggered by sounds themselves. I hope it heals quickly. Stupid ENT. Need to get TTTS under control
  55. Ngo13

    Going to treat it as eardrum injury rather than acoustic injury. Neurologist said I have TN &...

    Going to treat it as eardrum injury rather than acoustic injury. Neurologist said I have TN & gave me meds. Might help TTTS. No change in T
  56. Ngo13

    I think the tympanometry tests bruised my eardrums in combination with my TTTS.Pain is more from...

    I think the tympanometry tests bruised my eardrums in combination with my TTTS.Pain is more from jaw/neck movement and TTTS thump then sound
  57. Benjaminbb

    Low Frequency Tinnitus

    Sorry to hear. Yeah, I've had similar with my slight highs, seems there's a bunch of things that are controllable but regular high-frequency tinnitus isn't one of them. Glad we can get some control over the lows though.
  58. gameover

    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    ...happened in a few days now, no itching. Burning started to appear in both recently, but still rather infrequent. I really do not think I have TTTS. I simply massacred my cochlear hair and/or synapases. I don't know what is causing the worsening. Either my ears are really super delicate, or...
  59. RunningMan

    Low Frequency Tinnitus

    ...like it was at times in the spring. Unfortunately, the higher frequency tones are still there and fluctuating as much as ever plus more recent TTTS (with and without sound stimulus) and hyperacusis development, so it's a net negative for me. My low frequency was easier to deal with because...
  60. jimvee

    Just did some neck exercises/stretching. Now 5 min later really fast and high pitched TTTS that...

    Just did some neck exercises/stretching. Now 5 min later really fast and high pitched TTTS that I've never had. Any experiences/explanation?