Search results for query: Myoclonus

JayG what you are describing is middle ear Myoclonus. Some of us on this forum have it. It's rare and difficult to treat. Please see this thread https://www.tinnitustalk.com/threads/for-those-with-middle-ear-myoclonus.16222/#post-300227 I actually don't think it's the middle ear muscles. I...

Thanks. So the myoclonus was gone all day yesterday until I woke up in the middle of the night to use the bathroom. It was banging away then. It was about 3:30 am. When I woke up it was gone! What a pleasant surprise. So far today it isn't back and it is after sundown too. Hoping this is a good...

I already tried Klonopin for the myoclonus, it didn't stop it. Baclofen controlled it, but it brought back the tinnitus. I take Klonopin 1 mg for sleep now, but unfortunately it doesn't control the myoclonus. I have no way of knowing if it is moving while I sleep, but my guess would be that it...

Yep, sounds like middle ear myoclonus. I also had pulsatile tinnitus for many ears, but developed constant ringing in my ears 2 months ago, and myoclonus. When searching the internet, I have noticed that many people who have pulsatile tinnitus, seem to develop ear myoclonus! There might be a...

Yes I experience a humming/vibration almost generator like sound/feeling. I also feel something spasming in both ears at times (it's not the ear drum fluttering). Has anyone connected this feeling to tensor tympani myoclonus or stapedius myoclonus?

I have an unusual form of tinnitus. It is in my right ear only. It sounds like water dropping on my eardrum - click, click, click all day and night. It is called tensor tympani myoclonus. It responds to Amitriptyline.

...the volume. I’m considering whether bone conduction headsets might help—though I’d have to hope they don’t worsen my existing middle ear myoclonus muscle spasm issue. Ideally, they would eliminate the need to raise the volume for better clarity. Alternatively, I wonder if some type of...

This is called myoclonus.

Sounds like Middle Ear Myoclonus.

Hello, I am in the same boat. I am taking Mysoline for my Palatal Myoclonus and it does decrease it, however, it doesn't stop it. I am going absolutely insane that this is going to be a permanent condition. I cannot live with this.

@japongus There's a new thread about Stapedius myoclonus surgery up at chat-H. Don't know if you're still banned from there though, but I thought of you when I saw it. http://www.chat-hyperacusis.net/post/stapedius-myoclonus-surgery-8394482

My name is Emma and I live in Sweden. I’m new here and thought I’d say hi. I’ve had ringing in my ears since 2016 which can be tough at times. But just recently I’ve developed MEM, which is honestly ruining my life and sleep. Very little is known about this condition in my country. So a bit...

Hope your myoclonus stays away! Tinnitus is a strange thing, does whatever it wants which makes it so unnerving... Plus we have zero control. My tinnitus has been terrible during lockdown but has calmed down a bit, giving way to the horrible myoclonus. Our brain is chief executive of our whole...

...accounts and threads, emailed a few of them too, and I've looked it up on google and libgen.io/scimag, with search terms like ''middle ear myoclonus'' or ''middle myoclonus'' and so on, and you get a few that talk fairly ambiguously of things like subjective hyperacusis when they're looking...

@Chelles - yes, I know that we don't have the typical palatal myoclonus which produces a clicking sound while contracting rhythmically, but I'm wondering if the palatal myoclonus could be so subtle that no doctor can see the movement of palate but we sufferer can feel it in the area of our...

...early and he wants me to discontinue a certain medication I've been on for over five years because he read somewhere it can cause myoclonus. If that doesn't work, he said we can try the Botox. I'll let everyone know how things go. I don't see him again for a few more months. This is where I...

Well after doing a test of eating more and more carbs gradually over a few days the tinnitus is heavier louder and the myoclonus began again. So I'm going to go back to keto/high fat low carb diet and will see how long (and if at all) it can help with the myoclonus and tinnitus. Both of these...

https://www.tinnitustalk.com/threads/myoclonus-of-the-middle-ear-stapedius-muscle-and-tensor-tympani-surgery.3924/ https://www.tinnitustalk.com/threads/eardrum-vibration-tensor-tympani-myoclonus.1198/#post-37090...

...this happened, it sometimes triggered a strange sensation, like the eardrum was flapping or spasming, leading to a suspicion of middle ear myoclonus. Testing and Treatment (Left Ear) Multiple hearing tests were done. Some showed low-frequency loss in the left ear, others did not. Another...

Hey, I just started using Floradix magnesium to try and resolve Middle Ear Myoclonus - which it did mostly. However, it also seems to have coincided with a new tinnitus tone which also includes constant slight crackling too for 3 days now, although I'm not sure if that's from the magnesium or...

Hi Hichem, The twitching may be middle ear myoclonus. Check out tensor tympanic, stapedial, and palatal myoclonus. Middle ear muscle spasms that can be very disturbing. Often brought on from stress/anxiety or other neuro disorder. A good ENT will be able to confirm. Hope you feel better.

Hello I have hyperacusis and stapedius myoclonus from 2010. Someone have visited this clinic? I don't know is be worth the effort travel there. I need to know if I need a surgery or botox or... for my stapedius myoclonus. http://www.clinique-causse.com/ thanks and a hug

...used this web page, to determine the frequency. It's only 76 Hz (cycles per sec). I'm trying to determine if it's tinnitus or stapedial myoclonus. If the latter, I'm going to opt for surgery. But can tinnitus occur at such a low level? It almost always occurs when I'm in a quiet or...

@mermaid from my research palatal myoclonus is more common also if you research it (the ones I've found) are visible and it makes a clicking sound. That's very different from what I hear and feel. This is an example of palatal myoclonus Sent from my iPhone

Sounds like Tensor Tympani Syndrome and/or Stapedius Myoclonus.

...side experiencing ringing, is protruding. I read online that it could be caused by a middle ear infection. I am suspected to have Stapedial Myoclonus, though I don't know if that is a middle ear infection. At this point, I don't even know if it is mastoiditis. Basically, my right ear rings...

Palatal Myoclonus is notorious for not responding to one specific med. Multiple have to be tried. Unfortunately sometimes it is stuff like Klonopin that works. Do you know if it happens while you are sleeping?

I now believe this is middle ear myoclonus. Tympanic Resonance Hypothesis At times my voice, pulse, and head movements resonate from my neck to my ear. Does anyone get these symptoms and had a diagnosis / cure?

Im loocking for a middle ear myoclonus specialist

...at UCH London ENT department last week. I got a phone call follow-up appointment today and was told they think I've got Middle Ear Myoclonus. My tinnitus has been off the scale and now things make sense as to why it's so bad. I don't know what's next. I'm so desperate I can't explain. I...

...one ear, and hyperacusis in both ears. I have come to realize that imo, I never had loud standard subjective tinnitus; I have only had the myoclonus/objective tinnitus. I did get a distant helicopter rumbling as the myoclonus caused the eardrum to rumble. My hyperacusis comes back in tadem...

Do you think Lenire could also treat symptoms of vibrations/myoclonus of the eardrum? (Caused by muscles...)

I'm not sure, because this does not sound exactly like that, but middle ear myoclonus/TTTS present itself tipically in intermittent sounds, but more like thumping or clicking.

Well, there's not much info about it. Neither patients or doctors knows much about hyperacusis, TTS etc at the moment. There is this thread about Botox for middle ear myoclonus: https://www.tinnitustalk.com/threads/middle-ear-myoclonus-a-treatable-cause-of-objective-tinnitus.4096/

It could be some sort of middle ear myoclonus if you have hyperacusis.

I had never heard of NAC until I found this thread. My tinnitus came on from a middle ear surgery that I had to cure my middle ear myoclonus. My tensor tympani and stapedius muscle were cut in my right ear which has left me without protective muscles to dampen loud noises and makes me fearful of...

i have this too, it s from sounds, it much more at the mornings whene i weak up. i sure this is not myoclonus

Yes maybe I have stapedial myoclonus and not TTS then. But I think I have mild TTS also, it's the sound that resembles a flapping flag.

Mike I have the same generator noise and vibration through the whole head:( Is yours constant and how do you cope?

hi are you moshe mitrani, the user in the middle ear myoclonus thread?

That is very interesting. Hopefully “rare” not meaning untreatable? Do you have any good threads on finding more information on this? I have had a quick look myself. I don’t have tapping or thumping but I do experience it every couple of years.

I may be a bit late, but I recently read that stapedious myoclonus can cause clock-ticking like tinnitus. Maybe you want to read more about it?

...been examined yet and I have no idea what I have beyond the multi rings/tones, high-squeals and ears cracking at sound, is it hearing loss, middle ear myoclonus, hyperacusis, etc? Does anyone here have any tips or advice for seeing him and getting to be a part of his clinical trials? Thank you.

Definitely sounds like Tonic Tensor Tympani Syndrome/myoclonus. I agree with @Cal18

anybody find anything that has helped the myoclonus? It's driving me nuts and I can barely do life.

@ridgew how long have you had myoclonus? Is yours 24/7?

Sorry I should’ve specified mem is middle ear myoclonus. I’m quite skeptical on trying the muscle relaxants because they indicate that it can cause ringing in the ears and I don’t want to make that worse. As for surgery it’d be very last resort but cutting the tensor tympani and stapedius. He...

Please see this thread: This is middle ear myoclonus and I experience the exact same symptoms after burping. Although it sounds like you just get a thump and it doesn't turn into a series of thumps every few seconds the way some of us do...

...of tinnitus. But of course has a completely different etiology than the "eeeeeeeeee" T. I heard that clicking can be cause by ETD (Eustachian tubes dysfunction), tympanic myoclonus, as well as soft palate myoclonus, which are other neurological problems than neurons hyperactivity, of course.

@felinefine - do you experience fluttering of your eardrum or middle ear myoclonus?

So I have been put on Clonazepam for the palatal myoclonus that started last month. The tinnitus is not spiking (knock wood).

Hello! I hope someone is still active here. I might have Stapedial Myoclonus. I have a few links below, and I hope that someone can read them in detail and tell me if it is indeed Stapedial Myoclonus...

I got full on middle ear myoclonus two hours after the first Amoxicillin pill. I am going insane, why is this happening?

...disinterested Doctors who wouldn't even consider differential diagnoses. Its all just tinnitus to them. I think it could be chronic middle ear myoclonus, particularly stapedial myoclonus, because I know that has been implicated in ongoing high frequency tinnitus going by some papers I've seen.

@Erin0830 if you go to an ENT he should know what middle ear myoclonus is. I took magnesium oxide for a couple of months and saw a little improvement. I know how lonely ear problems can be since we don't look sick people can't understand what we are going through :(. I'm in the US as well...

There seems to be some neural communication both afferent and efferent between the brain and the organs in the ear. I think this explains why people like me also suffer from myoclonus in the middle ear muscles.

Something like what is described here: https://www.tinnitustalk.com/threads/eardrum-vibration-tensor-tympani-myoclonus.1198/?

Middle ear myoclonus is clicking tho isnt it? The videos I saw of that are not even close to low humming.