Almost Every Noise Spikes My Tinnitus

Discussion in 'Support' started by AnthonyMcDonald, Nov 18, 2021.

    1. Wrfortiscue
      Probing

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      @ZFire, @Stacken77, @GeorgeLG, thank you for the kind words, you don’t know how much it means :)

      @aura, @Damocles, you guys crack me up lmao. I know aura first pointed that out... my bad @Michael Leigh, it’s just a habit I have.

      I use humor daily to get me through even before tinnitus, life is just hilarious even if I’m at the butt end of the cruel joke.

      Lol.
       
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    2. GeorgeLG
      Wishful

      GeorgeLG Member

      Tinnitus Since:
      05/2021
      Cause of Tinnitus:
      Leaf blower after yrs of rock guitar, constr & comp shooting
      LOL.
       
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    3. AUTHOR
      AUTHOR
      AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      With all due respect I haven't been in "panic mode" for many months now. I do not have panic attacks. I do not have anxiety. I just suffer. I cannot live a normal life when chewing food and swallowing water permanently increases my tinnitus loudness and tones, and catastrophic hyperacusis keeps me from leaving my bed or even moving.
       
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    4. GeorgeLG
      Wishful

      GeorgeLG Member

      Tinnitus Since:
      05/2021
      Cause of Tinnitus:
      Leaf blower after yrs of rock guitar, constr & comp shooting
      There are many causes for tinnitus and hyperausis so this is not one monolithic condition. One cause has to do with nerves that originate in the body or neck/jaw, especially related to hyperacusis. The vagus and trigeminal nerves are examples. Part of what you describe sounds like a nerve disorder which may refer pain and sensitivity to the ear. You may want to consider seeing a neurologist or specialist in TMJ.

      George
       
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    5. Wrfortiscue
      Probing

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Do you have a theory in which noise induced tinnitus can be somatic as well? Jaw/neck.. You said vagus and trigeminal nerves?
       
    6. GeorgeLG
      Wishful

      GeorgeLG Member

      Tinnitus Since:
      05/2021
      Cause of Tinnitus:
      Leaf blower after yrs of rock guitar, constr & comp shooting
      My research is related to hyperacusis because for me that is the bigger challenge. I have been able to largely ignore tinnitus most days but the ear and head pain from normal sounds is the bigger challenge because I am a musician. I got started down this path because jaw pain and clicking showed up as well as neck face and head pain with the ear pain. Research led me to a comprehensive research paper on primary and secondary causes for ear pain and that is where I saw references to nerve function as a possible secondary cause. My ENT also mentioned TMJ. It can be nerves that terminate at or near the ears or travel alongside nerves that involve the ears. I do not have much of a sense if this can also explain some cases of tinnitus without ear pain.

      For me, neuroplasticity and brain retraining is doing a good enough job making tinnitus a relative non issue. Since the ear pain has not resolved with the tinnitus my sense is that this for me has its origins in nerve function. I also have a large tumor in my chest covering my heart that is on the side of my ear pain that has started to affect breathing, swallowing and heart function. This will be removed at the end of the month and may have an effect on this problem, hopefully positively.

      Hey, where is my lol after your question? Lol.

      George
       
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    7. volsung37

      volsung37 Member Benefactor

      Tinnitus Since:
      2014
      I am sorry if I jumped to conclusions Anthony.

      May you be well.
       
    8. AUTHOR
      AUTHOR
      AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      Thank you for the reply. You mean that hyperacusis of this magnitude can be caused by the jaw?
       
    9. GeorgeLG
      Wishful

      GeorgeLG Member

      Tinnitus Since:
      05/2021
      Cause of Tinnitus:
      Leaf blower after yrs of rock guitar, constr & comp shooting
      I am saying that hyperacusis or ear pain can be caused by nerve problems and one possibility is the jaw/TMJ/trigeminal nerve system. I am not a doctor and have no clinical treatment experience and so I cannot assess your particular symptoms and know the likelihood of this possibility but I brought it up as one possibility for you because of the way you describe your symptoms. I think that for most of us relief comes with trial and error, working through the most likely things that might bring relief. This is not just one condition with only one cause.

      All the best,
      George
       
    10. ZFire
      Conehead

      ZFire Member Benefactor

      Tinnitus Since:
      2011(mild) April2021 (severe)
      Cause of Tinnitus:
      Ototoxicity (2012) Unknown-likely noise induce (2021)
      There is definitely an observable relationship between hyperacusis and reactive tinnitus and so I agree too. When my sound sensitivity was at its worse (August), if I were to make splash noises in a bathtub filled with water, I would end up having a spike (new tinnitus noise) almost immediately which would last for a few days. Now that my sound sensitivity has improved immensely, I tried replicating this same scenario multiple of times, but nothing happens now! I even raised the stakes by dropping water at a much higher height. No reactive spike from it anymore. I’m now exploring listening to sounds at much longer durations to see what kind of impact if any it causes me. Once you get a good handle on hyperacusis, I think all the other pieces of the puzzle like tinnitus, reactivity, distortions will fall into place.

      PS. If you detect even the slightest hint of improvement, take that as a major sign that you are headed in the right direction. Non linear progression is a real thing.
       
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    11. Stacken77
      Wishful

      Stacken77 Member Benefactor Hall of Fame

      Location:
      Sweden
      Tinnitus Since:
      10/2020
      Cause of Tinnitus:
      Noise (likely headphones & cars), Acoustic trauma did me in
      Thank you for sharing!
       
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    12. Forever hopeful
      Depressed

      Forever hopeful Member

      Location:
      USA
      Tinnitus Since:
      2015 resolved, 4/20 L ear, increase 2/21
      Cause of Tinnitus:
      2015,noise,2020-21 SNHL
      I’m so sorry you’re going through this. I don’t have hyperacusis but the spikes you describe are me. Knives being sharpened for a short period of time. Sometimes it lasts longer. What the heck is going on? It is maddening. Then it will quiet down for a while. Sometimes for a few months I can still hear it but the spikes are much quietly although just as high pitched. This is the second day this week I have had massive spikes. I’m told my therapist my life was over. I can barely work. Can’t sleep. I am a mess. This is no life.
       
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    13. Exit

      Exit Member Benefactor Hall of Fame

      Tinnitus Since:
      01/2020
      Cause of Tinnitus:
      Noise
      Mine was opposite when my hyperacusis was at its worst (moving on a pillow felt too loud).

      My reactivity went constant and then faded away to a gentle hiss within 10 days.

      It was a very odd behaviour...
       
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    14. UKBloke

      UKBloke Member Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      Have you read Neil Bauman's Hypersensitive To Sound? If not, I'd recommend purchasing it. He offers an inexpensive download version too. There's discussion in there about reactive tinnitus (a term, which I believe describes a symptomatic intersect in some people between tinnitus and hyperacusis). As well as tinnitus, it may be that you also have a very mild form of hyperacusis that is essentially creating what some in the book refer to as 'funny' tinnitus or strange tinnitus. Essentially a tinnitus that misbehaves itself as ours does.

      I now believe my original 'funny' tinnitus was basically a form of reactive tinnitus back in the days when I didn't have much sense of there being a mild hyperacusis present. Unfortunately, I continued to assault my ears with headphones and have ended up paying the price. I think the main thing is to try and find a sympathetic audiologist that specialises in tinnitus/hyperacusis management. We can fall into the trap of believing that our local health care providers/ENT/Audiologists do have a firm grip on this malady, but in my ongoing experience that hasn't been entirely true. All the best.
       
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    15. Forever hopeful
      Depressed

      Forever hopeful Member

      Location:
      USA
      Tinnitus Since:
      2015 resolved, 4/20 L ear, increase 2/21
      Cause of Tinnitus:
      2015,noise,2020-21 SNHL
      I am so sorry that you’re going through this. My heart breaks for you. I know what it’s like to feel trapped in your own body although I don’t really have hyperacusis. But I do get screaming tinnitus that makes me wanna claw my ears off. But I really do believe that you need some help to sleep.

      I know you wrote that you don’t think medication would help you, but have you tried any? Lack of sleep is a huge contributor to the increase in tinnitus.
       
    16. Forever hopeful
      Depressed

      Forever hopeful Member

      Location:
      USA
      Tinnitus Since:
      2015 resolved, 4/20 L ear, increase 2/21
      Cause of Tinnitus:
      2015,noise,2020-21 SNHL
      Thanks. Perhaps but I can’t figure out what it is reacting to. It has been quiet all day. Right now I’m just sitting down in a quiet living room and it is blaring away. I have not assaulted my ears in the past few years. As a matter fact I’ve been very careful. I wear earplugs in loud environment. Never use headphones. My ENT has tinnitus herself.
       
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    17. UKBloke

      UKBloke Member Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      If your ENT has tinnitus then at least she can relate to what you're dealing with.

      My own experience with reactive tinnitus is that it doesn't necessarily require an immediate external sound to react to. It's just that overall, the tinnitus these days for me is very dynamic, which during the past couple of years I've associated with a gradual onset of mild hyperacusis. I find diet can be a factor too, inflammation, even the weather. Hope things improve for you soon.
       
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