My Trip to Bangkok: Stem Cell Treatment [Comments]

Discussion in 'Treatments' started by Markku, Aug 18, 2013.

    1. Ray552

      Ray552 Member

      Tinnitus Since:
      12/18
      Cause of Tinnitus:
      Noise trauma
      What type of hearing loss did he have?
       
    2. annV
      Fine

      annV Member

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      Ask her husband/boyfriend to come here to answer questions!!!!
       
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    3. dan26
      Frustrated

      dan26 Member

      Location:
      NJ
      Tinnitus Since:
      1981
      Cause of Tinnitus:
      complete loss of hearing. motorcycle accident
      Without scientific proof of stem cells eliminating or suppressing tinnitus, it's very dangerous going that route!!

      Just my 2 cents!!
       
    4. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      how does lack of efficacy data indicate negative safety attributes?
       
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    5. dayma
      Frustrated

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      There are known risks with stem cell treatments such as cancer. I do not know fully how but the FDA has commented on it a few times.
       
    6. HootOwl

      HootOwl Member Benefactor

      Location:
      California
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Explanation in About You
      Has anyone looked into exosome stem cell therapy? I was calling around to a few stem cell clinics and one mentioned that they offer an exosome infusion directly. They claim they are moving away from umbilical cord MSCs since they’ve found much better results from using the exosomes directly (which are secreted by MSCs). So it’s kind of like a cut out the middle man approach.

      What’s interesting is that from what I understand from this paper here (https://www.ncbi.nlm.nih.gov/m/pubmed/30295280/) is that the growth factors that you usually have injected along with the stem cells stimulate the MSCs to release more exosomes, so getting as many of these guys released as possible sounds like the goal.

      So would that mean that a direct exosome IV is considerably more potent?

      The lab they source from is here -> https://kimeralabs.com/

      Now this could just be an upsell since it’s $1000 more, but after doing a search on the forum here and not seeing anyone mention them outside of a gene therapy thread, I was curious if anyone had any additional info or opinions on this?
       
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    7. HootOwl

      HootOwl Member Benefactor

      Location:
      California
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Explanation in About You
      So I’ve scheduled a consultation with this clinic and 2 others. I’m interested in getting the ball rolling and seeing if I can alleviate these screeching bells even a little.
       
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    8. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Are you going to shoot it into the ear, intratympanic injection?
       
    9. HootOwl

      HootOwl Member Benefactor

      Location:
      California
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Explanation in About You
      No, standard IV and intranasal. They can’t do intratympabic for liability reasons, which is understandable.

      I would kill however, for a clinical study that shows the safety and efficacy of a PRP/Exosome/NT-3 mix administered via Intratympanic. We will at least have some more concrete data for the efficacy of BDNF once Otonomy finishes trialing OTO-313, even if they are only trailing acute cases and not chronic.
       
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    10. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      What do you want to know?
       
    11. HootOwl

      HootOwl Member Benefactor

      Location:
      California
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Explanation in About You
      Mostly if there’s a synergistic effect that could profoundly repair synaptic damage or other neuropathies. Maybe I’m off base here, feel free to correct me if I’m wrong.
       
    12. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Perhaps.
       
    13. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      I’d hold off on spending your money or go to South Korea, it’s got to get into and behind the round window... I believe. I may be wrong if you have auto immune disorders.

      The sweet spot is the inner ear.
       
    14. spinnaker

      spinnaker Member

      Tinnitus Since:
      1980s
      Cause of Tinnitus:
      Unknown / hearing loss
      What was the so called cure with avocados that you could get in Mexico called? My co-worker's wife had cancer. They spent $30000 for the treatment which was probably a good chunk of their life's savings. She was dead within months.
       
    15. lcj

      lcj Member Podcast Patron Benefactor

      Tinnitus Since:
      2001
      Cause of Tinnitus:
      medication
      @Samantha R I know this is an old thread, but would you mind sharing the name of the clinic in NY?
      Also, for anyone who is interested, I reached out to Macquarie to ask for more info and the below is what they wrote back. Anybody living in Australia know anything about this?

      Thank you for your enquiry, our treatment is on hold.
      We have added your enquiry into our database and will get back to you when treatments resume.

      Unfortunately we are showing you this automated message to inform you that Stem Cell Therapies are paused as of 30th of June 2019, due to new TGA regulations.
      Our calendar is currently exhausted and we are not in a position to take on any new patients.

      New regulations were introduced from 1 July 2018, transitional arrangements applied until 30 June 2019.
      These actions are beyond our control and enforced by the government. These regulations apply to all stem cell clinics in Australia. In the meantime, we will be working towards the new regulations.

      We will contact you, once we can resume stem cell treatments, this may take a few months or possibly up to 3 years.
       
    16. dan26
      Frustrated

      dan26 Member

      Location:
      NJ
      Tinnitus Since:
      1981
      Cause of Tinnitus:
      complete loss of hearing. motorcycle accident
      Stem cells are way far in the future as far as reducing or eliminating tinnitus! My doctor's words, not mine!
       
    17. Sevv

      Sevv Member Benefactor

      Tinnitus Since:
      14.04.2019
      Cause of Tinnitus:
      Loud concert
      Dude hasnt heard of FX-322 and the Audion/Regain project.
       
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    18. Vincent R
      Caffeine

      Vincent R Member Benefactor

      Location:
      Sweden
      Tinnitus Since:
      09/2014
      Cause of Tinnitus:
      Acoustic trauma


      When I googled the name of the doctor in charge, I found this article:

      Health Care Complaints Commission is investigating a Liverpool doctor after a 75-year-old woman bled to death after an “experimental” stem cell operation purporting to help her dementia.

      [...]

      “I cannot say what motivated Dr Bright to perform this unproven, dubious procedure on Sheila Drysdale. For all I know he may have been motivated by pity for her,” the coroner said. “But regardless of his motivation, Dr Bright’s performance as a medical practitioner was poor and resulted in Sheila Drysdale’s death.
      https://www.dailytelegraph.com.au/n...h/news-story/b98a51f325356cef16cfb31636faea99

      I know of at least one person here at TT who experienced improvements after being treated at Macquarie. It might be that adipos stem cells can have a positive effect on T, but many of those in the field are gold diggers. Personally, I would stick to Stemcell21 in Bangkok.
       
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    19. InfiniteLoop
      Relaxed

      InfiniteLoop Member Benefactor

      Location:
      Redwood City, California
      Tinnitus Since:
      01/21/2014
      Cause of Tinnitus:
      Very high frequency hearing loss in left ear.
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    20. Chinmoku

      Chinmoku Member Benefactor

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Unknown, possibly medication
      I wrote to them a while back, from their reply my impression is that they treat primarily hearing loss and that, as a side effect, you may get benefits for tinnitus, but they don't treat tinnitus as a primary condition apparently.
       
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    21. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Columbia University is currently doing a clinical trial with stem cells for hearing loss.
      Stanford is doing pioneering research.

      Outside of perhaps an autoimmune illness, BK Thailand is more than happy to take your $50,000 and have lots of good looking smartly dressed people be super gracious and polite as they fleece your money. I live In SE Asia, it’s standard operating procedure. Japan and Korea are a much better bet for cutting edge science. In my not so humble opinion.
       
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    22. Chinmoku

      Chinmoku Member Benefactor

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Unknown, possibly medication
      Indeed, occasionally they emphasize venue and shopping more than science. There is no systematic dataset on the efficacy of the treatment for tinnitus/hearing. Having said that, they do have a good reputation in the stem cells industry as far as I understand. But I would be more confident in spending those amounts of money in presence of clear statistics showing efficacy rather than anecdotal reports from a couple of people here. Such stats aren't available anywhere else, to be fair to them.
       
    23. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Ok, I’ll be fair, and keep my mouth zipped.
      Be careful please.
       
    24. Chinmoku

      Chinmoku Member Benefactor

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Unknown, possibly medication
      I'm not really planning to go short term, and your opinion is most welcome. I contacted a stem cell academic in London for suggestions.
       
    25. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Do let us know what your friend in London says, the more input and info the better.

      Perhaps in 10 years stem cells will be routine. Now it seems to be a cowboy industry, with a few amazing results for sure, countered by a huge amount of failures. I suppose that's the evolution of medicine or innovation in general. I hope our time comes this coming decade. Sure would be nice, for us and the youngsters visiting this forum. Take care friend.
       
    26. Chinmoku

      Chinmoku Member Benefactor

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Unknown, possibly medication
      Absolutely. I'll share any feedback I get from the UCL team. I agree with you on the cowboy assessment. These clinics are in Thailand, Russia, China. Nothing wrong with that, but I'd like one in Europe or US for comparison. The fun one is the one called Swiss Medica, I thought it was in Switzerland so I looked it up, to find it was actually based in Russia.

      I am also concerned about the safety of stem cells. More research is needed for that. Let's hope we can all benefit from this in 10 years or less once many of these issues are hopefully clarified. Take care.
       
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    27. mrbrightside614

      mrbrightside614 Member

      Tinnitus Since:
      July 2019
      Cause of Tinnitus:
      unknown; acoustic trauma/hyperacusis/sshl
      Can someone refresh my memory as to the three (?) participants who underwent this therapy? @attheedgeofscience saw modest to significant improvement, @undecided went in complete remission, and I can’t remember the third?
       
    28. Jefferson Nunn
      Torturous

      Jefferson Nunn Member Benefactor

      Location:
      Texas
      Tinnitus Since:
      3/2019
      Cause of Tinnitus:
      Toxic Mold Exposure
      I stumbled across this thread while looking for something else...

      Stem Cell Treatments are now around $5,000 at several places near me. For pain relief, I'm considering Ketamine but I understand that Stem Cells can do pain relief as well. And it may correct my Tinnitus as a bonus. Mine was caused by toxic mold exposure my ears were basically poisoned.

      What is the difference between those stem cell places that are everywhere now and the one in Thailand?
       
      • Good Question Good Question x 1
    29. mrbrightside614

      mrbrightside614 Member

      Tinnitus Since:
      July 2019
      Cause of Tinnitus:
      unknown; acoustic trauma/hyperacusis/sshl
      Well, first, where are these clinics and what stem cells did they indicate they used?
       
    30. Jefferson Nunn
      Torturous

      Jefferson Nunn Member Benefactor

      Location:
      Texas
      Tinnitus Since:
      3/2019
      Cause of Tinnitus:
      Toxic Mold Exposure

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