Tinnitus Masking: In-Ear Maskers

But questions are:

- How loudly do the receivers play at 12,000 Hz? Do they put out significant volume or barely a sound?
- Is the sound at 12,000 Hz clear, or is it heavily distorted?

I'm not sure there are good answers to these questions available, which is why I suggest testing for yourself if you can.

 

Tinnitus maskers are something I really consider buying and using because it doesn't look like my very ugly tinnitus is going to be a bit better/softer despite many treatments/therapies so I need to do something more radical to get a better life.

I am scared the maskers won't mask my tinnitus fully and that even with the white noise in the background I would still hear that ugly unstable randomly pulsing high pitched hiss that my tinnitus is. My second concern is that since I have noticed some hearing distortions, I fear that the tinnitus will react to the white noise.

However, when I breathe louder, it seems to mask it pretty well, therefore it might work. In that case, I would like to get some maskers that are preferably in the ear and discrete, as I don't need hearing amplification because I have no hearing loss. Then I would use it 24/7 and in the meanwhile I would still regularly take Ginkgo biloba-like drugs I've been prescribed because they take months to work and there is still a chance they can make the tinnitus softer or even less loud. Just with the difference that I wouldn't depend on them like today because the tinnitus wouldn't be such a big issue.

Unfortunately, insurance companies will cover the cost of maskers only after a year of failed treatments, which would mean I can either wait and suffer for months or pay for the maskers myself out of pocket which isn't a great option considering the price but if they can help, then it doesn't matter that much.

I really don't care if the maskers will prevent me from habituating. The idea of having maskers that could permanently change my tinnitus to white noise appears enticing.

 

Personally I wouldn’t worry about this. An analogy is that when it’s cold out, you have to deal with the cold, but you also wear a jacket to help you deal with it. No one would say “but if you wear a jacket, how ever will you get used to dealing with the cold?” The point is that you don’t need to get *so* used to it as to be able to go outside jacketless. You can wear a jacket any time you want, so that’s the full extent you need to get used to.

I feel the same about white noise generators. If you can habituate to tinnitus while wearing white noise generators, in my opinion you are “as habituated as you need to be.”

 

Little update from my experience.

I still have not got tinnitus maskers, but I have visited local Phonak office to get some info about them. I must say, I am terrified. The employee was mean as hell, was literally laughing at me. She said there is no such thing as tinnitus maskers, only hearing aids with tinnitus masking as a secondary function. She wants €800 EUR for both hearing aids from me and doesn't even allow me to try it if I don't pay the full price first, and thanks to a mistake a stupid ENT that robbed and scammed me did, the insurance company might not even cover them for me, meaning I would have pay it entirely by myself.

I am still shocked how bad things are. They want me to put my entire year's scholarship for pathetic devices whose only function is to play a white noise to my ears and they are also mean as hell, like the good old "Our customer is our master" wasn't a thing at all. Their device is not even going to cure my tinnitus, only make me look like an idiot and force me to hear white noise for life. This is even worse than having vision loss and wearing glasses or hearing loss and wearing hearing aids. Because this is not like you wear it and hear silence.

I really expected to go to some nice looking office with kind empathic employees that understand my misfortune and try to find a solution that is worth the money. Instead, I came into trashy looking dirty office with fat angry woman that laughed and yelled at me, wanting hundreds of euros for nothing. Also, these Phonak hearing aids look like 20 years old, with stupid functions like Bluetooth and so on, that I do not need, and are huge, absolutely non-discreet.

I don't really know what to do now. I think wearing a $30 dollar Bluetooth earbuds would do the same. Do you know any other company that does these things? I found some very discreet at £250 GBP in-ear maskers from PureTone. However, these weirdos at Phonak wanted me to stay there for 1 hour so they could set the masker up for my tone. I don't know why it would take so long to set a volume of a white noise to have it masked. Also, my tinnitus is not a constant tone, it goes up and down. What if I ordered the PureTone ones from the UK and set them myself?

I don't know, maybe the fate will play against me and I will be forced to buy maskers from Phonak. But at the mment I am more angry than desperate, so I also think about not buying anything and try to learn to live with my tinnitus instead.

Sorry for the negativity in this post, I've been so angry. It literally feels some people are like "you have had misfortune that was not caused by you" - Let's make it even worse for you by taking all your money and making you feel a bit more miserable.

 

Sorry for my ignorance, but I see a lot of details about in-ear masking devices and why to use them, but not much discussion from folks who can say definitively that they have benefitted from using these things, much less a particular model.

Does anyone have success stories they could share with respect to habituation or full remission of their hyperacusis or tinnitus related to using in-ear noise generators?

 

Just putting this out there in case anyone still comes to this thread.

The new background sounds as part of iPhone iOS 15 are great. For me they seem much better than those loaded into my hearing aids at the audiologist office.

 

Keep in mind the (fairly recent) option of bone conducting headphones.

I ordered a pair just now and they offer incredible sound and they sit on top of your ears, so you can still hear people when they talk to you + your own voice / eating sounds do not sound too loud either; an effect you DO get when you put in regular in-ear headphones.

 

I just got these also. I like the way they work, as they don't have to be in your ear, yet, provide the distraction of having sounds/white noise. I also bought a set of IQbuds, wireless ear buds. They work great. The can be used for amplification and/or play background noises. The were a little pricy, like $400 USD, but they are way cheaper than most hearing aids and I think, work better. I have had two sets of Phonak hearing aids, and while they worked OK, If I had to have paid for them out of pocket as opposed to my insurance, I don't believe it would have been worth it...

 

I know you posted this a few months ago, but if your still looking for a solution, I recommend Nuheara IQbuds. I have had 2 sets of Phonak, which were expensive. If my insurance had not paid for them, for me, would NOT have been worth the money. I use my IQbuds pretty much in place of my hearing aids. The IQbuds work via Bluetooth on your phone from an app and you can adjust the sound/tones to what works for you. Might be a solution for you to consider.

 

Just get some cheap wireless earbuds and download the free tinnitus apps available. White noise works best for me, but single tones in the 8000 to 9000 Hz range also work. No need to spend hundreds and thousands of dollars.

 

Hi, where can I find the single tones you are referring to?

 

Can't say enough good things about my Widex hearing aids.

I'm on day 4 now and I can say strongly that they work and I haven't been bothered by tinnitus nearly as much. I have no hearing loss but the audiologist boosted background noise by about 10%, plus there's a white noise feature that all combined makes my tinnitus still there, but not bothersome. I'm sure if I turned the volume up I'd completely not hear my tinnitus but she said not to as it can make the tinnitus compete and get louder. I don't wear them at night and still take Xanax plus having a fan and nature sound app on my phone, but I've taken Xanax to sleep for years so no biggie.

Best decision I've ever made, I wish I would have gotten these 7 months ago. I'm even considering getting my 2nd COVID-19 shot now that I can handle the tinnitus; my fear before was that it would make it worse.

 

Howdy--I was considering bone conducting headphones. Perhaps you can fill me in: in more intimate environments, say social situations where silence is the norm (group meditation, for example) are these headphones going to be more prone to leaking audio?

I want to be able to cover those cases where my tinnitus is acting up in situations where it is silent in a group setting.

 

I don't have them here with me but if I remember correctly, they don't leak more than regular in-ear headphones.

Keep in mind to not put the bone conducting ones too loud either.

 

I avoid putting anything in my ears. They cause fluid buildup, pain and infections.

So at night I wear a Bluetooth sidesleeper headphone headset and listen to my "binaural beats neuromodulated" YouTube videos to fall asleep (I download them and converted them to mp3s). The speakers are thin and after the first night you won't feel them, very comfortable.

During the day I use Aftershokz Aeropex bone conduction Bluetooth headset. It's the most expensive but it's the smallest, most comfortable and has the least amount of sound leakage.

These will cost you thousands less than in-ear maskers that generally go for $4k + and are very hard to find.

 

Can I ask why the hearing aids weren't an option for you?

 

My experience of in-ear maskers was not good. I have tinnitus and hyperacusis (caused by noise trauma) and some sounds trigger pain. I have recovered a lot but I experience hyperacusis setbacks sometimes. When my hyperacusis was at its worst, I did not even want to leave home and could not watch TV because my ears were that sensitive a few months ago. I had constant pain and ear fullness. I have made progress and have felt benefit from quiet sound enrichment (only certain sounds work for me) from speakers at home and knowing my limits what is too much for my hyperacusis and slowly trying to increase sound levels. I can't listen to quiet sound therapy from headphones or earbuds because my symptoms spike.

However, my tinnitus bothers me a lot and I still can't go out without earplugs (hyperacusis). So I was recommended in-ear maskers for hyperacusis/tinnitus.

I tried Audex hearing aids/maskers for short periods of time. Certain external frequencies (speech frequencies) were amplified even though I don't have hearing loss. Obviously the maskers prevent hearing normally because they are like little earplugs that are put inside of ears and they block sounds a bit. During the tuning, I felt autophony; I heard my own voice and crackling. My ears did not like those. I have been thinking is amplification really such a good idea for a person like me who has this type of hyperacusis and get setbacks easily. After the hearing test and tuning of the Audex hearing aids/maskers, I experienced ear fatigue and a little bit of burning inside of my "better ear".

I then used Phonak hearing devices (maskers) and listened to white noise. The idea was to slowly increase white noise during the next months. My reactive tinnitus reacted to the white noise and got even louder and climbed on top of the white noise. I think the white noise was not right for my ears even though it was gentle. I don't like listening to white noise at all as a sound therapy.

Then I started to experience worse hyperacusis, burning sensation in my usually normal ear and worse tinnitus. That moment I decided to stop using the maskers. I also got insomnia when my ear became so sensitive I couldn't mask my tinnitus because of hyperacusis. Now I am experiencing a setback and I still experience hyperacusis and tinnitus spike days later.

I don't want those maskers near my ear ever again. On the other hand, maybe some other type of masking sound, different frequencies and no amplification could work better. I can listen to certain type of pink noise without issues. Some type of notched pink noise does not bother my reactive tinnitus. But at the moment I don't feel like trying them again anytime soon.

 

I had the same experience with Phonak P70s a few weeks back. I returned them within 24 hours.

 

I am sorry that you experienced harm too. I used Phonak Audeo B70 model. I wrote accidentally Audex first but I meant Phonak Audeo B70 model.

I regret so much trying them because I was feeling much better before this.

Did you experience a spike after trying them and did the spike go down soon? Did you have any issues during the tuning of the hearing aids when they were connected to a computer? I had to ask the hearing aid dispenser do something because the hearing aid was making this weird uncomfortable crackling sound when it was connected to the computer. I also experienced occlusion effect where I heard my own voice oddly during the tuning. I have no idea what was the thing that irritated my ear the most and caused this spike though.

 

You can read about it in the "Your Sound Therapy Experiences" thread:

Thinking about it, I have had issues every time I tried sound therapy. Back in 2018 Widex drove me to tears in less than 24 hours. 2 years ago I trialed Oticons for approx 3 weeks to a month. Upon wearing them on the 1st day, I went to a loud restaurant and wound up throwing up from the intrusion they caused but they then became more tolerable but did not really help in the end. And lastly the recent Phonak P70s. My wife said "why do you keep trying." Good point...

 

I am glad that you have found something that helps you.

How are you getting on now? I would love to hear a positive update.

 

I am sorry to hear you haven't got help from sound therapy. I did not have high hopes before trying in-ear maskers but this experience was even worse than I would have thought. In short time my hyperacusis went from tolerable to intolerable.