Tinnitus Retraining Therapy

Discussion in 'Treatments' started by Jim, Mar 11, 2011.

    1. bobvann
      Cheeky

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      I thought I did not have anyone who did it properly as well. I found a therapist that does. I am covered under my wife's plan so really nothing to lose. She stated in an email that depending on level of hearing loss hearing aids may not be necessary. There is a trial period if we choose to go down that road.
       
    2. serendipity1996
      No Mood

      serendipity1996 Member Podcast Patron Hall of Fame

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown but suspect noise-induced
      Ugh - the audiologist who runs the Hearing Loss Help website, Dr. Neil Bauman, wrote an article on reactive tinnitus - he stated reactive tinnitus and hyperacusis are essentially psychosomatic conditions and was incredibly dismissive of some in the comment section.

      "You don’t understand what this article is saying. I think you’ve read too much on the negative on-line boards so have closed your mind to the reality of what you have to do in order to gain control over your reactive tinnitus. You want somebody to do something to you (like the FX-322 or Hough) rather than somebody help you to do what you alone need to do in order to reprogram your brain so neither tinnitus nor hyperacusis are a problem anymore."​

      These kinds of statements honestly disgust me - the victim-blaming is on full display here. Would you tell someone with cancer that they just have to 'reprogram your brain' to overcome it? And what's wrong with wanting a treatment?

      Also states this:

      "When you hang out on boards like tinnitustalk and others, you will typically find a preponderance of people who are not successfully dealing with their tinnitus–so they bellyache and moan–and everyone reading these boards thinks that nothing can be done."​

      It's funny because this guy has hearing loss himself but clearly is lacking in empathy. According to his bio, he presents at conferences on a national and international level. It's scary that someone who holds sufferers in such contempt wields such influence.
       
      • Agree Agree x 4
    3. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
      Dr. Neil Bauman is a quack.

      He is NOT an audiologist.

      Dr. Neil Bauman earned several degrees in fields ranging from forestry to ancient astronomy (Ph.D.) and theology (Th.D.). Later, he trained as a hearing loss coping skills specialist.

      Source is his website.
       
      • Agree Agree x 3
      • Like Like x 2
      • Informative Informative x 1
    4. serendipity1996
      No Mood

      serendipity1996 Member Podcast Patron Hall of Fame

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown but suspect noise-induced
      Oh man, apologies - I think I was just so annoyed that in my haste I overlooked that. Thanks for correcting. Still disappointing that he propagates such harmful views.
       
    5. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      April /1996
      Cause of Tinnitus:
      Noise induced
      Interesting post @ajc, although I've never heard of Dr. Neil Bauman. Perhaps he's another one that's hoping to impress those that don't know better. Armed with a Ph.D and a trained hearing loss specialist, makes him think he's a tinnitus expert. If he doesn't have the condition then he's definitely a quack, because he'll have no knowledge of what it's like to live with it. I believe if one is going into practice to help people with tinnitus, they have to have it.
       
      • Like Like x 1
    6. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Unknown
      Neil Bauman is a fraud made in a factory. I love the moment when "experts" are dealing with cognitive dissonance and they make it go away by saying that the sufferers are crazy.

      It's nuts how searchable this clown is. I remember googling things and his name came up very quickly like he had some major credibility. It really is unbelievable.
       
      • Like Like x 1
    7. T Toledo OH

      T Toledo OH Member

      Tinnitus Since:
      2/26/20
      Cause of Tinnitus:
      Likely loud noise and earbuds
      Dr. Neil Bauman claims pretty much every med is ototoxic and scares people away from taking things that can help them cope.
       
      • Informative Informative x 1
    8. jimmiii

      jimmiii Member

      Tinnitus Since:
      2020
      Cause of Tinnitus:
      unkown
      I just enquired for Tinnitus Retraining Therapy in Ontario, Canada at chs.ca.

      They told cost of equipment would be $3000 for each ear and $150/session for the therapy stretched in 18-24 months for 6 sessions.

      Is this any good?

      Thanks.
       
    9. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      April /1996
      Cause of Tinnitus:
      Noise induced
      Six therapy sessions over 18 to 24 months is not enough. I have had the full TRT treatment twice. Wearing two white noise generators. The treatment lasted two years. I had regular counselling with my Hearing Therapist lasting a minimum of 1 hour, once every 2 weeks for around 4 months then extended to once a month.

      TRT or CBT cannot do all the work. A person has to try and help themselves by reinforcing positivity. This is achieved by engaging in the things they like to do. This may not be easy at first so take things slowly. If you start a tinnitus treatment, my advice is to keep away from tinnitus forums and don't discuss the treatment you are having in them. The reason being, some people believe no tinnitus treatment can help unless it's a cure for the condition. This type of mindset can hinder or prevent you responding to whatever tinnitus therapy you're having with your Audiologist.

      Please click on the links follow link that explain more about TRT:
      What Is TRT and When Should It Be Started? | Tinnitus Talk Support Forum

      Michael
       
    10. Koz
      Dreaming

      Koz Member

      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Unilateral hearing loss
      I really hope the message gets across to him how useless and counterproductive he's been to the tinnitus community. It's all well and good people complain about it on here but I wish somehow people let him know themselves.

      Spending money and working on changing "perceptual awareness" is not a fucking treatment, its an expensive coping mechanism that doesn't 100% work for everyone and tests your resilience on the bad days. Money well spent huh.
       
      • Agree Agree x 5
    11. FGG
      No Mood

      FGG Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      He wouldn't be receptive to it. He blames the sufferer if they don't get better on his treatment.
       
      • Agree Agree x 12
    12. Koz
      Dreaming

      Koz Member

      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Unilateral hearing loss
      I read one of his interviews and the categories he puts certain tinnitus patients under and it just screams - wow, you really underestimate and undersell the suffering of those who have severe cases of this, don't you?

      Sounds like he needs a good slap, he'd be quite receptive to it I think. I blame my hand.
       
      • Like Like x 2
    13. Jrblovsky

      Jrblovsky Member

      Location:
      USA
      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      NOISE/Menieres Who knows
      I'm sure he doesn't give a shit. It has made him millions.
       
      • Agree Agree x 6
    14. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Unknown
      He's a narcissist. In an interview, he said that the only people that TRT doesn't work for are people who like the attention of being disabled or have financial interests to not get better, such as maintaining disability (which btw, is a joke since hyperacusis and tinnitus are impossible to get approved for).

      I promise you that he views you and I as crazies on a medical forum enabling each other. Just gross, to be honest.
       
      • Agree Agree x 5
    15. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
    16. Shizune
      Wishful

      Shizune Member

      Location:
      The bell tower
      Tinnitus Since:
      H: 6/2020 T: 7/2020
      Cause of Tinnitus:
      Chemical exposure, made worse with benzo withdrawal(??)
      Bit of a morbid and tasteless question but when he finally kicks the bucket, will his reign end? I assume his wife would be next in line. But with them both gone would we finally see some progress? Or is his ideology just going to be regurgitated until the ends of time? I've heard the stuff about him controlling audiology grants and all that. Genuinely curious.
      Disgusting. If he walked even 2 steps in our shoes, he'd see that nobody wants to live this way. And what "attention" is he even on about? Other than being impossible to get disability, the whole world already laughs at us and treats us like lunatics. There is no "attention" to be received.
       
      • Agree Agree x 2
    17. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Unknown
      That's such an odd video. Like at the beginning, it's not really that bad, he's just talking about his approach to tinnitus in the 80s. Then it becomes insane very quickly when he suggests that the only people that TRT doesn't work for are basically people who don't want to get better. Like what?!?!

      My god, even something like Ibuprofen, which is like the go-to drug for a headache, doesn't have a 100% full-proof success rate. He even made a point to say that it doesn't even matter the cause. It always works.

      That interview became batshit insane so fast; I remember it shocked me the first time I watched it.
       
    18. Jrblovsky

      Jrblovsky Member

      Location:
      USA
      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      NOISE/Menieres Who knows
      You have to remember these people don't care. Look at Agent Orange that was used in Vietnam. It was "safe" too. So many vets have died from it. None of these drugs are safe. However I would take anything that would help at this point. One reason being is I honestly don't care either. This noise has ruined my life.
       
    19. serendipity1996
      No Mood

      serendipity1996 Member Podcast Patron Hall of Fame

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown but suspect noise-induced
      What planet is he on where he thinks that people are living a life of luxury on disability payments?!
       
    20. Jcmc

      Jcmc Member

      Tinnitus Since:
      11/2020
      Cause of Tinnitus:
      Headphones and stress
      We need to stop this, we need to go to the news, we need to do something.
       
    21. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Unknown
      He also invokes a mega straw man and says that the person could be suing their employer for large sums of money. Who the hell thinks in that way? And let's say there was one nefarious person doing this. How does that possibly come up as a central talking point?
       
      • Like Like x 1
    22. DaveFromChicago

      DaveFromChicago Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2014
      Cause of Tinnitus:
      Headcold/Flu
      I've commented on this video before.

      To Shizune:

      I agree entirely.

      Can you f***ing imagine going to see this guy?

      His unconditional, absolutist demeanor (let's just call it pig-headed) would prompt me to flee the building.

      What disgracefully specious conclusions he draws regarding his example of the kitchen refrigerator hum.

      The refrigerator sound is easy to ignore because it is very low volume, not really unpleasant, and to eliminate it you have only to leave the room.

      I have never encountered anyone who would to any degree fit his description of "Flag Wavers", i.e. those who refuse to improve their attitude to this so that they can garner attention.

      Also, he comments about those who want to maintain this for a financial settlement. If you offered me $5 mil or the permanent elimination of this, I would (I kid you not) take the latter.

      When he mentions Xanax, he talks about a huge, potentially lethal dosage that no physician would prescribe.

      I wanted to laugh out loud when at the end he said that regarding other clinical trials there should be "more stringent methods for the evaluation of clinical outcomes"; I would impress upon him the real need to apply this to his own TRT.

      It apparently never occurs to him that I have seen a number of ENT Doctors, and none have ever recommended TRT.

      In fact, just out of curiosity I Googled TRT in Chicago, and in the entire Metropolitan area there was only one practitioner in Highland Park, which is a totally out-of-sight wealthy North Shore suburb. It is hard to get to and I can only imagine the infarction I would have when I was quoted the total cost.
       
      • Like Like x 1
    23. serendipity1996
      No Mood

      serendipity1996 Member Podcast Patron Hall of Fame

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown but suspect noise-induced
      These people honestly make me sick - how delusional and arrogant do you have to be to believe that people enjoy being chronically ill.

      It's a similar situation with Chronic Fatigue Syndrome/ME - I don't have any personal connections with this condition but for decades research funds have been funnelled into psychological treatments. Research and funding is essentially controlled by a group of "biopsychosocial" proponents who champion CBT and graded exercise therapy (GET) which has now been proven to be harmful to sufferers (as post-exertional malaise is a core feature of the condition). The NHS guidelines in the UK have only very recently been updated to reflect that. This group of researchers talk about how "illness beliefs" serve to perpetuate the condition, which is essentially just victim-blaming.

      There's a professor from Berkeley called David Tuller who has exposed these guys and continues to do so. I feel like we need someone similar for tinnitus and hyperacusis lol.
       
      • Like Like x 1
      • Agree Agree x 1
    24. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Unknown
      I felt exactly the same way. There's no amount of money that I would trade in exchange for becoming a completely healthy 30 year old with zero chronic illness or hyperacusis.
       
    25. Guywithapug
      Dreaming

      Guywithapug Member

      Location:
      USA
      Tinnitus Since:
      October 2020
      Cause of Tinnitus:
      SSHL
      Agreed. Money is nothing more than ink printed on special paper. Our health however is priceless.
       
    26. DaveFromChicago

      DaveFromChicago Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2014
      Cause of Tinnitus:
      Headcold/Flu
      To jimmiii:

      If TRT is $3,000 per ear and involves 6 sessions, do we then have the following costs:

      $3,000 per ear x 2 = $6,000
      6 sessions @ $150 each = $900
      TOTAL: $6,900

      This is utterly outrageous - what percentage of the population has this kind of discretionary income, especially when no tinnitus reduction is offered and you are the one blamed if you don't "get it"?

      I dropped $5,269.00 on that useless Desyncra (who incidentally are no longer in business) and I am determined not to throw good money after bad, which is why I am also very skeptical as well about Lenire's overpriced $3,000 fee for at best no more than a 15% reduction on some sort of factitious Irritability Index.

      As someone on Tinnitus Talk mentioned, there are various electrical stimulation devices on Amazon that sell for only $79.99; all of these current and past "therapies" are merely ruses to financially gouge us by taking unscrupulous advantage our our desperation.
       
      • Agree Agree x 1
Loading...

Share This Page