Act Now Your Sound Therapy Experiences — For Tinnitus Talk Podcast

Discussion in 'Support' started by Hazel, Apr 17, 2022.

    1. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)


      We need your input for the Tinnitus Talk Podcast!

      We're preparing for an episode on sound therapy. That's a broad subject obviously, because there are many formal and informal treatments out there that include some element of sound. So we're really referring to any of those, from just playing masking sounds on your phone to using in-ear noise generators to purchasing an expensive device like DeSyncra or Lenire.

      We know that many of you have tried at least one form of sound therapy, whether as part of a "do it yourself" approach or under healthcare supervision. So we want to hear about your experiences. What did you try? For how long? What were the pros and cons? And most importantly, did it help?

      We'll play some of your contributions during the podcast episode, as examples and to give the episode some extra colour. Our aim with the episode is to give you a (more or less) complete overview of what's out there, and what to be aware of when trying sound therapy.

      Looking forward to hearing from you! You can respond either in video or audio format, and the time limit for your recorded experience is 5 minutes.
       
      • Like Like x 6
      • Winner Winner x 1
    2. 2noist

      2noist Member

      Tinnitus Since:
      04/2015
      • Like Like x 2
      • Agree Agree x 1
      • Hug Hug x 1
    3. DaveFromChicago

      DaveFromChicago Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2014
      Cause of Tinnitus:
      Headcold/Flu
      OMG, 2noist, will I ever!
       
      • Like Like x 1
    4. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      I've tried sound therapy on 3 occasions. Twice with hearing aids (Widex, Oticon), once with bone conducting headphones. None has helped. I use it over speakers sometimes.
       
      • Like Like x 1
    5. EDDTEKK

      EDDTEKK Member

      Location:
      Germany
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Acoustic Trauma
      I tried Tinnitus Mix - no help. I tried Desyncra - no help.
       
      • Like Like x 1
    6. Mags

      Mags Member

      Tinnitus Since:
      10/2020
      Cause of Tinnitus:
      Stress
      Sleeping with sleep headband playing rain sounds when my tinnitus started. In my case, I kept developing new tones and felt it was because my ears were receiving constant flow of sound at night. I stopped this after 3 months and slowly the tones reduced to two or three. This was advised to me to do by a tinnitus clinic. I wouldn't do it again. I don't play sounds directly into my ears anymore. I listen to music from speakers only. Occasionally headphones on low volume.
       
    7. Óscar PP

      Óscar PP Member

      Tinnitus Since:
      Nov 2020
      Cause of Tinnitus:
      Coronavirus
      I don't know if listening to random pink noise YouTube videos counts as sound therapy but they certainly did nothing at all for me.

      My tinnitus is too high pitched so nothing can mask it unless it's a sound of similar pitch which of course is equally annoying than my tinnitus, and hence misses the whole point of sound therapy.
       
      • Agree Agree x 2
    8. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      In the beginning I used white noise / cricket noises at night to help me sleep, but I didn't notice an increase in my habituation when I stopped using it. I mainly use everyday noise or music to help me if needed.
       
    9. Ulaid

      Ulaid Member

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Noise exposure
      I have high pitched reactive tinnitus which gets louder with white noise.

      Brown noise only helps me.
       
    10. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      Made me worse on 2 separate occasions. White noise and pink noise.
       
    11. AUTHOR
      AUTHOR
      Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
    12. Sonic17
      Wishful

      Sonic17 Member Benefactor

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ? neck injury/unknown
      I have used a sound machine to help me fall asleep ever since I developed tinnitus 5 years ago. I set it for one hour, and am usually asleep before the hour is up. The sound machine has a few different settings that I can choose from: rain sounds, ocean waves, thunderstorm, babbling brook or white noise. I used to set it for all night but found this would aggravate my tinnitus even more. I also will sometimes use sweeping white noise from YouTube, but once again only for the first hour or so to put me to sleep.
       
    13. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I recorded! I hope others do as well!
       
      • Winner Winner x 1
    14. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      I am going to revisit sound therapy again next week (I posted about it in Treatments → Hearing Aids). Not holding my breath. Like many have said, it's one of the few options available. I am simply hoping it gets me through rough days.
       
    15. Christiaan
      Inspired

      Christiaan Member Podcast Patron Benefactor Hall of Fame

      Location:
      The Hague, the Netherlands
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      2016: headphones, 2020: worsened thanks to Rammstein
      I've been using notched sound therapy for more than a year. My tinnitus is now way lower than it once was, but I can't say for sure if sound therapy has helped me in that case, since I also adhere to a strict anti-inflammatory, plant-based/vegan diet and HIIT exercise (to boost BDNF for neuroplasticity/neurogenesis). Those two things could also have played a part in that regard. Or maybe it's just sheer luck :whistle:
       
      • Friendly Friendly x 1
    16. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      Another epic failure. After less than a day of trialing the Phonak P70, I'm having a massive spike since 3 AM. I tried to put the hearing aids in only to realize that the sharpness of the sound aggravates things. For shits & giggles I popped in my bone conducting headphones and sure enough they are not as aggravating.
       
    17. MartinPihl

      MartinPihl Member Benefactor

      Location:
      Denmark
      Tinnitus Since:
      2021
      Cause of Tinnitus:
      Unkown
      Notched music therapy did absolutely nothing for me.
       
Loading...

Share This Page