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SharonBell
I actually ordered it off Amazon. I sleep with it on every night, leave it on nonstop in my bedroom and sleep with my fan on that has helped me so much.
henkess
Thanx will try it for my Tensor tympani syndrom :) i have a fan on when my ears start to spasmer it helps. I cant hear my spasmer in ear then
Nes
A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.
henkess
happened to me to, i hate that. It takes some days for me to settle down
Nes
@henkess it's gone now, but it took almost a week to go away. Usually, it lasts four days max.
Nes
I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week. When it's not vacuums, it's alarms. I rarely have a full night of sleep; it's insane.
Juliane
How are you all doing? Life is tough on me atm. Hugs to you
henkess
Sorry to here that, hope it gets better :) i´m struggle to with tenstor tympani syndrom
adpolandam
Hey. Nice to see you :) I don't feel well, I would say it's getting worse. One day we'll meet, all the sufferers on the other side:) We'll have a big party. There'll be loud music, fireworks and screaming, and we won't care :)
Lynny
Everything was going better until I lost my hearing aids😭 I'm too broke to replace them… does anyone have suggestions?
Nes
I get a tingling sensation from my cheekbone to above my lips when i'm exposed to too much sound. It's not painful but it's annoying. I used to get that when i was very stressed or when my tmj is very bad.
Does anyone else have that?
View previous comments…
Nes
@Scruffiey probably just stress as I do not have (visible) hearing loss! I always thought my tmj damaged my nerve, but the tightening hypothesis makes much more sense
S
@Nes Could just be the TMJ, but I'm thinking if it was nerve damage you'd be getting more actual numbness than just tingling and possibly some pain or cold/warmth.
Guess one way to test it... once it's settled down, purposefully tense up your face for a minute or two and see if it's the same feeling?
Nes
@Scruffiey IT IS! Why did I never think of that!
Sodlin
Today there was a "heated meeting" for like 20-30 min where ppl where raising their voices alot talking about some issues at my workplace. i sat there like an idiot without earplugs and got stressed in this 4X4 metre room with like 10 people. Should just have put my earplugs in. Got a spike. Hopefully just because of the stress of being in that enviroment. Just use ur normal indoor voice god damit....
hunu92
do u have any hearing loss? have u tested extended high frequencies?
vilebubbles
Yesterday wasn't too bad. We will see what today holds. Left ear feeling very sensitive and popping along with unstable tinnitus and H in both ears still. Nox seems…controlled? (Fingers crossed).
Joshua Macleod
My fingers are crossed for you, mate. Taking it day by day feels so difficult but you're doing great.
vilebubbles
thank you. Today was weird. I took a nap and as I was falling asleep my ears began just screaming with a new tone. It left but it was terrifying…for now I'm back to baseline auditory nightmare lol.
orenge01
I'm skeptical of the idea of making tinnitus worse at very low volume from headphones, especially if you take frequent breaks and such.
View previous comments…
orenge01
@adpolandam Yeah sorry if it came off a bit ignorant. That's good that you can give up using headphones. I wish I geniunely could but at the moment it doesn't feel like I can :/
S
@orenge01 Well, it's really your call... can you cope with a worsening of your tinnitus? Was it originally caused by noise damage?

Me, this level of tinnitus is something I can just about deal with, it was noise induced and no in ear audio seems like a really small sacrifice even if it just potentially prevents worsening.

If it gets bad, you'll be sacrificing more than headphones.
orenge01
@Scruffiey I feel like its been ok, and I barely listen to music or audio as much as I used to anymore through headphones. That's why I use a balanced approach I don't know what else to do. Probably caused by loud noise, but it was loud I listen to and I listen 1-2% volumes always now for years. But just wearing normal non-anc headphones without sound is apparently bad as well. Idk.
Nes
Well, i don't think i'll be able to get out of my protections in my house. Constant vacuum and power tool noises today. Yesterday got blasted with a high pitch pure tone coming out of nowhere. Looking to move out
vilebubbles
So sorry. Same for me. Constant cars going by and family. Love them so much but they can be loud.
S
i injected lidocaine inside my eardrum, T immediately got turned off, but I got vertigo because the fucking cochlear and vestibular are connected to each other, I got punished heavily for this try by the creator.its like they are telling me don't touch the untouchable
D
Complete turn off or reduction? How long did it last? Any other side effects? Sorry too many questions. I guess you can take some vertigo medication with it and balance it out?
S
like completely turned off but the total sound also got thinner, after about 20 minutes , t started slowing fade in, then about two hours, it completely returned to normal level, at the same time the vertigo started to fade out but not completely disappear even after very long time
PennyCat
Today is day 5 of taking lamictal/lamotrigine. Last night I noticed a new tone in my right ear that is still there today. Could just be a spike but if it persists tomorrow I'm probably going to stop the medicine.
PennyCat
It really sucks because I struggle so bad with my mental health. I can't and don't function. But so many mental health meds can aggravate existing tinnitus or even cause it. I'm damned if I do and damned if I don't.
henkess
Hi How long did it take you manage your tinnitus? I was good for some years but its getting worse i think, for no reason :(
SharonBell
@henkess it has taken me over a year to learn to deal with it. Mine is a buzzing, static, electricity 24/7. I have to have my sound machine still 24/7. I finally went back to work though a while back. When I first got it, I about went crazy and lost 30 pounds in about 3 weeks.I guess maybe I have habituated.
henkess
Oh seems hard to deal with. Happy you feel some relief atleast. Where did you get that sound machine?
DamagedJoe
Update: Something new. my lowpitch tone on my bad left ear is now louder than the high pitch one. I don't know why. It's now something like 980 hz. I wonder how i can habituate to this, if its fluctuating all the time. This is new. Does this mean, that im improving?
S
You're only a couple of months in if I remember, yeah? It does fluctuate for the first few months to a year, try not to read too much in to each and every change, it will almost certainly settle down.

I had a regular eee turn to an extremely loud siren & screams that's gone down to a gentle buzzing and hoovering noise over 4.5 months. Had physical vibration, fluttering, fleeting squeals, and all sorts along the way.
DamagedJoe
Thanks for your comment. if i understand correctly, you have also had your T since october 2024.

I honestly don't notice that "something is settling down". I envy your confidence. I'm happy about small changes. Unfortunately, I lack the imagination to believe that it can still improve. I've reached a point where I'm fed up with it. I'm going to get Noisers soon.
Nes
Trying to stop wearing earmuffs in my home. The psychological aspect is hard to overcome ! On a good note, my reactive tinnitus is a bit less reactive.
S
Try sticking some cotton wool in your ears, it's a little bit of defence without too much rebound when you take it out, plus it's a fairly comforting feeling.

But I'd still wear the muffs in the kitchen my self, better safe than sorry!
Nes
@Scruffiey thank you very much for the advice. Today I spent most of my day without my ear muffs. The cotton lets just enough sound so I can habituate to everyday noises without too much stress and pain
S
@Nes Glad it's working out for you! :) Before I knew what I had was hyperacusis (I thought the nasal steroid had just cleared my Eustachian's out and I just wasn't used to how good my hearing was...) I'd started doing it around the house and I attribute it to my natural recovery while keeping my tinnitus in check.
adpolandam
Yesterday was my "good day". From the morning riding on 3 boiling kettles plus star wars in my ears
vilebubbles
I have star wars too and headache and pressure. Plus a high pitched eeeee (this one comes and goes but alien ones stay). I'm glad you had a good morning.
ellees
hello, have you tried any other medication since getting T? what has been your experience like with taking other meds or vaccines?
just1morething
Something is still haywire in my left ear. I'm getting a CT scan of the temporal bone done. I wanted a CT scan done of my TMJ but am unable to find a Dr. to order one.
B
I just saw the neurologist today. He is now referring me to a surgeon and to an EMG test.
D
What are your issues? What are they looking for with that? I've also been having muscle twitches all over the body for many years, and the last 2 it also hit my ears with MEM/spasms/fluttering, so maybe a visit to neurologist or an EMG would be worth it.
B
@DimLeb I have multiple herniated discs and bone spurs in my neck causing moderate to severe spinal stenosis. About 15 months ago, I started to get constant twitching and vibrating on the left side of my body along with MEM with my left ear. Was finally referred to a neurologist and then an MRI and this is what was found.
B
@DimLeb I should add that I also have a history of neck pain and burning pain in my hands, arms and shoulders. The pain has been off and on throughout the last 5 to 10 years. The twitching and vibrating has been there constantly since it started in December of 2023. The MEM comes and goes. My left ear fluttered some yesterday but not today.
Sodlin
Been a really hard week with a loud spike that seems like it came after the change of wheelbearing on my car. Im also very tensed and i feel abit more sensitive to sounds. Im also VERY tired. on saturday its childbirthday...... Hate those birthdays with 7 hours of intense screaming children running around me......
Juliane
Cancel the birthday. With tinnitus there are things we cannot do anymore
Sodlin
Went to the birthday and it went suprisingly good! :)
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