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dude6830
HI LJMD

How are you ?
sorry to disturb you
just checking if you have any updates regarding your t after your stemcell therapy ?
your stemcell therapy you did two times correct ?
may I know what was the stemcell count you used for both treatment and where did you do your 2nd treatment
your reply is much appreciated
4Grace
Hey buddy. ❤️
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L along the way
Also, working less, going out more for walks, and finding some more comfort in distractions.. and doing daily mindfulness meditations and inspiration and such. And a better connection with family and friends i'm grateful for.
L along the way
A friend of mine has the perspective on T to accept.. i've been contemplating, but i don't know.. i'd say i still live on a hope that it will heal (lifestyle, time & sleep) or even for a next life that things will be better.
L along the way
But at the same time.. just going day by day.

To just feel at ease, healthy & well.. it's worth the world eh.. i pray some day it will be so.

Happy to hear from you, wishing you a good day my friend!!
Tryn2BHopeful
I cant go out anymore... I don't do anything. I am scared to go to my kids graduation in a couple of months. Despite some of the positive messages I have received on this site, I just feel like I am spiraling. T is worse then the first time I got it, maybe even catastrophic... I have always tried to avoid labeling it... but IDK. Nothing I do helps, sound is reactivity and silence is humming.
MindOverMatter
You need to concentrate on you getting better @Tryn2BHopeful You will be losing out, and you might have to skip graduation day. If it scares you off and stressing you out, you shouldn't attend. It is hard, but its your life. Ive missed out on a lot of stuff myself, for quite some time, but I had to. I had to make space for myself, and not add any stress to my life. As far as possible.
Tryn2BHopeful
I always considered my T moderate... but I think its severe now...trying to hold a job, raise kids, do everything that one needs to do to live is exhausting wit h T... Nobody seems to notice or care that I am struggling... After almost 2 years you would think I would simply know that. Its the life of someone with T.
dude6830
HI Fernando
for LLLT what im worried is the massive spikes , discourages me from trying
Need your advise thank you
vilebubbles
I wish I didn't know what was happening to me. I used to hope it'd stabilize. Now I see it's just going to progress.
DamagedJoe
What was your first noise trauma?
vilebubbles
Loud music in a really strong speaker system in a car. Blasting music on headphones. MRI.
DamagedJoe
I feel your pain. Today ist a bad day for me. This condition will kill me someday.
nedenben
My tinnitus is unbearable, my exam yesterday went terribly, and I still have to study for another exam, but I can't focus :).
S
Why do you torment me loud dial tone frequency, the times you are gone I cope so much better and then you bring physical sensations to make yourself known.
just1morething
I had a CT scan of my temporal bone near my ear and also a CT scan of my TMJ. I'm still waiting for my TMJ report.
vilebubbles
Everytime I think it can't get worse, I'm proven wrong with a new tone, that is often worse. Just trying to do basic things like taking a bath or eating or taking ear plugs out for a few hours at night. At this point I don't know if the new tones are sound exposure or from meds and my brain is just too beyond messed up. My vss is also progressing. Nox seems controlled still with quiet.
S
My tinnitus was never bad. No matter what I ate nothing triggered it. my sister spent 20 minute shouting prob 100 plus decibels and I was few meters away I felt her shouts in my eardrum. I should've left the house. After her shouting I had no spike and went to bed 7 hours after now I wake up with 6x spike. 😭
in_the_shadows
Hey, how are you doing? our tinnitus profiles seem surprisingly similar. Most people mention a couple of tones, but I get several dozen in each ear, and none of them are constant too--they're all rhythmic and melodic ("alien" as you described), like my brain is looping random bits of sound it picked up at some point in life and just keeps playing them back.
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in_the_shadows
I took SSRIs 10 years ago, which led to tremors and some neurological issues. But only a year ago after a concert, antibiotics and some bad luck I developed severe tinnitus. Needing rescue doses of Diazepam once a week hasn't helped long term either.
vilebubbles
I cold turkeyed an SSRI. I see a lot of SSRI people have the crazy tones.
in_the_shadows
Same. I had brain zaps and other brutal stuff after going cold turkey. Now even one antihistamine messes me up for weeks. Only benzos and alcohol make me feel normal.
F
Take life one day at a time and pray a lot. The Lord hears our prayers, He may not give you an answer, but He hears our prayers. As for fearing death, most everyone fears death. It's normal to be afraid of the unknown. Prayers have helped me to cope.
S
Thanks, but I'm afraid I am not a religious man and this sort of torment is unlikely to change my views on the matter...
S
I can't go on with this indefinitely, I'm just not cut out for it, what life is it to just carry on existing for fear of death. How can something so cruel have not just no safe treatment, to take the edge off, but the potential to worsen without a moments notice.
I've always been depressed, but at least I could hope for something better... this has stolen my hope.
kingsfan
I'd say you're more likely to habituate and find your life again in time. Don't let us unfortunate few pull you down into our depths.
S
@kingsfan Wish I had a life to go back to! Spent the last 5 years as a carer and I lost the life I had before then.

Throw in some fairly nasty tinnitus, a pinch of hyperacusis and a host of weird physical sensations with a life time of anxiety, depression and aural abuse and I think I AM one of you unfortunate few.
DamagedJoe
I saw a clip of the movie "Baby Driver" today. The memory hit me like a ton of bricks. I had seen the movie years ago and shuddered at the thought of having to suffer something like tinnitus. I knew then that I would eventually kill myself over something like that. Now I'm sitting here years later, laughing out loud and bitterly at that memory. Fate is sometimes cruel.
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DamagedJoe
Shit man. I am very sorry to hear that. I'd like to know the future 2 years from now on. It's an unforgiving mistake. I just want a second chance for us, because we deserve it.
vilebubbles
Me too. So scared I won't be around long. I can't deal with these tones and spending my life listening to torture in ear plugs hiding in a closet. Fuck that.
DamagedJoe
Same for me. The sounds are awful. It's torture. If it gets worse, im out. Life sucks. I can Not See a future where i habituate.
vilebubbles
Hello, how are you doing now? My tinnitus also gets worse with walking and driving
Juliane
Dear all,

I need to go through a medical examination that's necessary - a sigmoidoscopy. I am terrified. To get through it, I consider taking a Xanax, aka Alprazolam before. Do you think one Xanax could worsen my tinnitus? Any advice? Thanks so much!
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Juliane
kingsfan
@Juliane I haven't been well the past few weeks. A couple noise traumas, that really shouldn't have been that bad, have made things worse but I'm trying to push through. I hope you are well.
Juliane
That sounds really tough @kingsfan :-( You deserve to be happy! You always send out such good vibes here. As for me, life just keeps throwing tough stuff my way :-( I don't get it.
Bob3382
My T has been raging more and more recently. I wake from a short nap and it's all I can hear. I did habituate up to a certain point, but it seems to be getting worse.
MindOverMatter
Hearing t loud after naps is quite common for ppl with bothersome t. Have you done anything particular lately that could lead up to a spike/setback? Noise / stress / events in your life?
Bob3382
Stress.
just1morething
The CT scan of my left temporal bone shows some issues. I have very loud brutal tinnitus in my left ear at 5:30 am. I hope surgery will give me relief.
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