New profile posts

Marcello · Mar 30, 2025

Hello Kam, how's going? Marcello here from Brazil. I've read your story in some posts and I've been facing some situations very similar, I went from mild tinnitus to the point of can't get asleep naturally at the moment. How is your sleep today? What medications do you use? I've trying some combination of them to get the best benefit to the sleep. It would be nice to be able to talk about it and exchange some tips.

dude6830 · Mar 30, 2025

hi Aetos
you mentioned chloe had all 600 milcells through iv infusion but here says some were through her auditory system ?
may i know how many mil cells were through her auditory system ?
pls advise tku

600 million cells were administered by three injections with 5 day intervals. The cells were injected into her veins and auditory system.

Frando4719 · Mar 29, 2025

Hi Asta, how is your hearing now? Hoping things have improved for you as I too am suffering after recently having had microsuction in both ears.

Kain · Mar 29, 2025

7 year tinniversary

vilebubbles · Mar 29, 2025

If I've had a new tone for a week, it's probably permanent right? Sounds like rapid fire piano keys banging.

just1morething · Mar 28, 2025

My left ear hissing is intolerable today. I rode my motorcycle a bit as it is 76 degrees today.

dude6830 · Mar 28, 2025

HI LJMD

How are you ?
sorry to disturb you
just checking if you have any updates regarding your t after your stemcell therapy ?
your stemcell therapy you did two times correct ?
may I know what was the stemcell count you used for both treatment and where did you do your 2nd treatment
your reply is much appreciated

Frando4719 · Mar 28, 2025

Hi Superworm, did your tinnitus get any better in the end after you stopped riding?

poop · Mar 28, 2025

Have you seen any improvements since your last post?

4Grace · Mar 28, 2025

Hey buddy.

Tryn2BHopeful · Mar 27, 2025

I cant go out anymore... I don't do anything. I am scared to go to my kids graduation in a couple of months. Despite some of the positive messages I have received on this site, I just feel like I am spiraling. T is worse then the first time I got it, maybe even catastrophic... I have always tried to avoid labeling it... but IDK. Nothing I do helps, sound is reactivity and silence is humming.

Tryn2BHopeful · Mar 27, 2025

I always considered my T moderate... but I think its severe now...trying to hold a job, raise kids, do everything that one needs to do to live is exhausting wit h T... Nobody seems to notice or care that I am struggling... After almost 2 years you would think I would simply know that. Its the life of someone with T.

dude6830 · Mar 27, 2025

HI Fernando
for LLLT what im worried is the massive spikes , discourages me from trying
Need your advise thank you

vilebubbles · Mar 27, 2025

I wish I didn't know what was happening to me. I used to hope it'd stabilize. Now I see it's just going to progress.

spedgas · Mar 26, 2025

My habituation has taken a hit. Got to a good enough place. That's gone now. I don't want to do this again.

delta784 · Mar 26, 2025

how is your dysacusis

nedenben · Mar 26, 2025

My tinnitus is unbearable, my exam yesterday went terribly, and I still have to study for another exam, but I can't focus

.

Scruffiey · Mar 26, 2025

Why do you torment me loud dial tone frequency, the times you are gone I cope so much better and then you bring physical sensations to make yourself known.

trevl · Mar 25, 2025

just1morething · Mar 25, 2025

I had a CT scan of my temporal bone near my ear and also a CT scan of my TMJ. I'm still waiting for my TMJ report.

just1morething · Mar 25, 2025

Another bad tinnitus day mainly in my left ear. Maybe a Norwegian could put me out of my misery?

vilebubbles · Mar 25, 2025

Everytime I think it can't get worse, I'm proven wrong with a new tone, that is often worse. Just trying to do basic things like taking a bath or eating or taking ear plugs out for a few hours at night. At this point I don't know if the new tones are sound exposure or from meds and my brain is just too beyond messed up. My vss is also progressing. Nox seems controlled still with quiet.

Safari1999 · Mar 25, 2025

im back

somucuagony · Mar 25, 2025

My tinnitus was never bad. No matter what I ate nothing triggered it. my sister spent 20 minute shouting prob 100 plus decibels and I was few meters away I felt her shouts in my eardrum. I should've left the house. After her shouting I had no spike and went to bed 7 hours after now I wake up with 6x spike.

dude6830 · Mar 25, 2025

hi jojo
how is your tinnitus ?
any updates

in_the_shadows · Mar 24, 2025

Hey, how are you doing? our tinnitus profiles seem surprisingly similar. Most people mention a couple of tones, but I get several dozen in each ear, and none of them are constant too--they're all rhythmic and melodic ("alien" as you described), like my brain is looping random bits of sound it picked up at some point in life and just keeps playing them back.

Frankabc · Mar 24, 2025

Take life one day at a time and pray a lot. The Lord hears our prayers, He may not give you an answer, but He hears our prayers. As for fearing death, most everyone fears death. It's normal to be afraid of the unknown. Prayers have helped me to cope.

Scruffiey · Mar 24, 2025

I can't go on with this indefinitely, I'm just not cut out for it, what life is it to just carry on existing for fear of death. How can something so cruel have not just no safe treatment, to take the edge off, but the potential to worsen without a moments notice.
I've always been depressed, but at least I could hope for something better... this has stolen my hope.

dude6830 · Mar 24, 2025

Dear Yvonne09

how is your lllt therapy going ?
any updates ?
pls advise tku

DamagedJoe · Mar 23, 2025

I saw a clip of the movie "Baby Driver" today. The memory hit me like a ton of bricks. I had seen the movie years ago and shuddered at the thought of having to suffer something like tinnitus. I knew then that I would eventually kill myself over something like that. Now I'm sitting here years later, laughing out loud and bitterly at that memory. Fate is sometimes cruel.