Haven't had my TTTS flare up in a long time but it's back today. Frustrating, but scrolling thru my own posts helps reassure me that it always does eventually settle after a few days.
New profile posts
Hello Kam, how's going? Marcello here from Brazil. I've read your story in some posts and I've been facing some situations very similar, I went from mild tinnitus to the point of can't get asleep naturally at the moment. How is your sleep today? What medications do you use? I've trying some combination of them to get the best benefit to the sleep. It would be nice to be able to talk about it and exchange some tips.
hi Aetos
you mentioned chloe had all 600 milcells through iv infusion but here says some were through her auditory system ?
may i know how many mil cells were through her auditory system ?
pls advise tku
600 million cells were administered by three injections with 5 day intervals. The cells were injected into her veins and auditory system.
you mentioned chloe had all 600 milcells through iv infusion but here says some were through her auditory system ?
may i know how many mil cells were through her auditory system ?
pls advise tku
600 million cells were administered by three injections with 5 day intervals. The cells were injected into her veins and auditory system.
7 year tinniversary
If I've had a new tone for a week, it's probably permanent right? Sounds like rapid fire piano keys banging.
My left ear hissing is intolerable today. I rode my motorcycle a bit as it is 76 degrees today.
HI LJMD
How are you ?
sorry to disturb you
just checking if you have any updates regarding your t after your stemcell therapy ?
your stemcell therapy you did two times correct ?
may I know what was the stemcell count you used for both treatment and where did you do your 2nd treatment
your reply is much appreciated
How are you ?
sorry to disturb you
just checking if you have any updates regarding your t after your stemcell therapy ?
your stemcell therapy you did two times correct ?
may I know what was the stemcell count you used for both treatment and where did you do your 2nd treatment
your reply is much appreciated
I cant go out anymore... I don't do anything. I am scared to go to my kids graduation in a couple of months. Despite some of the positive messages I have received on this site, I just feel like I am spiraling. T is worse then the first time I got it, maybe even catastrophic... I have always tried to avoid labeling it... but IDK. Nothing I do helps, sound is reactivity and silence is humming.
I always considered my T moderate... but I think its severe now...trying to hold a job, raise kids, do everything that one needs to do to live is exhausting wit h T... Nobody seems to notice or care that I am struggling... After almost 2 years you would think I would simply know that. Its the life of someone with T.
I wish I didn't know what was happening to me. I used to hope it'd stabilize. Now I see it's just going to progress.
My tinnitus is unbearable, my exam yesterday went terribly, and I still have to study for another exam, but I can't focus 
.
.
I had a CT scan of my temporal bone near my ear and also a CT scan of my TMJ. I'm still waiting for my TMJ report.
Another bad tinnitus day mainly in my left ear. Maybe a Norwegian could put me out of my misery?
Everytime I think it can't get worse, I'm proven wrong with a new tone, that is often worse. Just trying to do basic things like taking a bath or eating or taking ear plugs out for a few hours at night. At this point I don't know if the new tones are sound exposure or from meds and my brain is just too beyond messed up. My vss is also progressing. Nox seems controlled still with quiet.
im back
My tinnitus was never bad. No matter what I ate nothing triggered it. my sister spent 20 minute shouting prob 100 plus decibels and I was few meters away I felt her shouts in my eardrum. I should've left the house. After her shouting I had no spike and went to bed 7 hours after now I wake up with 6x spike. 
Hey, how are you doing? our tinnitus profiles seem surprisingly similar. Most people mention a couple of tones, but I get several dozen in each ear, and none of them are constant too--they're all rhythmic and melodic ("alien" as you described), like my brain is looping random bits of sound it picked up at some point in life and just keeps playing them back.
I can't go on with this indefinitely, I'm just not cut out for it, what life is it to just carry on existing for fear of death. How can something so cruel have not just no safe treatment, to take the edge off, but the potential to worsen without a moments notice.
I've always been depressed, but at least I could hope for something better... this has stolen my hope.
I've always been depressed, but at least I could hope for something better... this has stolen my hope.