New profile posts

What's new New posts New resources New profile posts Latest activity
ErikaS
Six and a half weeks since my most severe bout of MEM/TTTS vibrations started in my right ear. It is so frustrating and mood crushing. Things that gave me relief or took it away in the past (chiropractor ear adjustments) don't seem to be working right now.
JJL
Hi - any even 5% help from doing the NYU tDCS study? Where did they place the electrodes?
W
I'll share a detailed report in a month or so. While I was using it, I felt some mild improvement. But I wasn't tracking it very systematically so I took a couple months off and have been tracking my tinnitus so I can see if it actually improves when I start again in a couple weeks.
W
The clinic I am working with built the headset custom to place the electrodes in the correct spot. I sent them the study and a measurement of the circumference of my head.
Sodlin
Seems like the tinnitus is really flaring up now and mostly on the ear i hit with the rake. Im feeling very low at the moment and sad, im really struggling to find the tools how to make progress with both H and T that keeps spiking and i would say in the last 2 months it got like 20 % louder. :(
Tryn2BHopeful
Think I got a new "pure tone" in my left ear... its relatively low atm, I don't hear it all the time and is maskable unlike all the others but is definitely new... ugh... Even avoiding everything and protecting my ears... Trying to not feel doomed. My right ear on the other hand seems to be doing better than it was, but still loud. The "hum" is still very hard to deal with.
Sodlin
Urk im so clumsy. Was out in the shed with earmuffs to remove all the leafs that blow in during the winter. Stepped on a rake that went up with full force and hit my earmuff... Little bit panicky now since it was very loud on the plastic but hope it will not make a spike.
in_LA
Hi, hope you're well, you got tinnitus from acutane? I took acutane when I was in my teens, that stuff made me feel really sad all the time, later found out some users had unalived themselves.
Marina Moon
A door slammed on my finger on the 14th of last month and it's healing better, i guess? It's still stiff and swollen but it doesn't hurt when I move it (much) hopefully it heals completely this month. I've been avoiding using it unnecessarily and have been splinting it, along with moving it a bit for light exercise.
ECP
  • ECP

    ECP

That's great news! I hope it continues to heal quickly and completely. And I bet it feels strangely gratifying to watch an injured body part heal at a reasonably acceptable pace. Our ear problems are so much slower to resolve.
Marina Moon
@ECP Thank you! I can already tell that it feels better week by week :D I thought about this earlier and it really does feel strangely gratifying in perspective to everything else. The improvement reminded me how fast healing can occur, for some things. Being stuck in my chronic health issues made me forget that healing could occur at all 😂
Strife_84
"Have you ever danced with the devil in the pale moonlight? I ask that of all my prey. I just like the sound of it." -Tinnitus
Marina Moon
I also bit into an apple earlier today and my right TMJ hasn't stopped hurting. My facial muscles have been spasming alot more lately too and it's painful, and odd looking. I'd hate if anyone were to see me like this, because my facial expressions look funny. I'm not purposely making a face at anyone, my facial muscles (in my cheeks and jaw) do what they want without my control...but damn it hurts.
Marina Moon
It's been more than a year and I am back here. I don't really have good news, just the same pain and T symptoms like before, just kind of worse. I honestly don't know what's wrong with me, but I still crave for my old normal where constant pain was never in the scope of my reality. I have a follow up appointment with my physical therapy doctor tomorrow.
Strife_84
Back once again. I write this to myself as a reminder as well: NEVER GO INTO ANY LOUD PLACES, EVEN WITH EARPLUGS! I've been doing so well for past 2 years. My T&H were basically gone, I found new joy in life. But, because I just wanted to be with my friends just for ONCE before we graduate, it's all gone in few alcohol induced hours. A terrible spike going on. I even had my earplugs on all the time.
S
Suicidal. I can't live like this. I'm ready to go.
dreamer16
It might fade and lessen its impact with time, please stay safe.
D
Me too. And it's not even the main tinnitus which is mild... It's the crap it has gathered and keeps popping up over time... TTTS/MEM, spasms, fullness, transient loud tinnitus blasts, reactivity/distortion etc.
DamagedJoe
@DimLeb exactly, the fcking reactivity doesnt even let you mask it. @samantha66 i can feel your pain, i am there too.
zatara92
T still raging but my mood has stabilised. I'm by no means happy, but at least I'm avoiding the deep pits of despair I was feeling before. Except when I try to listen to music - that really gets me down.
delta784
mine is caused by prednisolone which i used to avoid tinnitus i was so mild why? is it because of my veins?
Sodlin
Man im so frustrated. We got these old doors at my work that are "hard to close". You need to close it and then push very hard for it to stay closed. My IDIOT college was closing the door right next to me but instead of doing it the right way he takes and close it by just smashing it shut super hard creating a superloud BAM, i wasnt looking since i was talking to someone else. Anxiety is thru the roof!
kingsfan
Yeah no one bothers to accommodate me with anything despite constantly reminding them to just be quieter around me.
Top Bottom
Back
Forums
Members
Donate
Menu