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Juliane
The moment I start living a bit more, everything goes to hell
Kam75
Same for me, same for nearly all of us here :( Two years ago I started living almost normally, going to bars and clubs, as I felt better. But now I'm living a nightmare... Tinnitus increased because of that. I have sleepless nights every nights. This conditions always reminds you that your life will never be the same. We have to forget our social life forever...
cjbhab
you hit it bang on. I was feeling pretty good in April/May - started doing a few more things - bang head hurts bad and in a long spike now.
Nes
I'm getting weird headaches/tinnitus flare ups in the early morning. It's like my head is pulsating with sound. Hyperacusis has been flaring up too after a noisy day, although it's getting better by day 3
Sodlin
Had a conversation with a coworker that is VERY loud when she talks. I thought my Hyperacusis was better so i just took 2-3 steps back and had the conversation for around 1 hour without earplugs. Was so proud that i managed handle it decent! Today im paying with a pretty huge spike tho :/
S
Had movie night at my friends place and my ears are slightly worse again. The movie wasn't even loud! My ears haven't been this bad in many, many ( y )ears. Frustrating. But what am I gonna do?
Maruashen
I think you should focus on the success you had 19/6! Recovery and habitulation seems like 2 steps forward and 1 step backward for most people. The key is to slowly push forward. One setback isnt the end, because each time you push forward, you risk a setback, and thats the whole point sort of. :)
ellees
hello, i read on your profile that part of your tinnitus was caused by ototoxicity, and i was wondering which medication made it worse? And i was also wondering if antidepressants worsen your tinnitus? which medication do you take and which have you previously tried, and what kind of effect do they have on your tinnitus? thanks!
Kam75
Naproxen made my tinnitus worse. My ENT specialist confirmed afterwards that it was indeed an ototoxic anti-inflammatory.
I started with Amitriptyline and have now been on Mirtazapine for 4 years.
Neither of the 2 antidepressants made my tinnitus worse.
Going to music evenings has made it much worse.
ellees
so it was the naproxen that gave you tinnitus?

did you start the amiptriptyline before or after getting tinnitus? (what was and are your doses for these meds?)

why did you switch to mirtazapine?
Kam75
Naproxen made my tinnitus worse. You can find my whole story here.
I swiched to Mirtazapine because Amitriptyline no longer worked. Now Mirtazapine no longer works because 2 years ago I resumed a social life and exposed myself to music.
Tom Okay
A motorbike honked its very loud horn right next to me. Now I'm worried that it has caused a permanent spike :( it's kind of loud since it happened yesterday … I had no chance to put in earplugs
henkess
Bought myself a cat :)

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henkess
Yes i love it to they are so fun to play with, and you think alittle less on all the problems =)
SharonBell
Such a beautiful cat!
henkess
Thanx Sharonbell =) Its a little scared and hides under my bed alot, but it will get better i hope. I´m new with cats, so dont know so much yet :)
zatara92
I was able to enjoy music for the first time in 3 months. I felt like my inner child was alive again.

These 3 months was one of the worst spikes I've had in my 13 years with T. I'm still at a complete loss as to what caused it, but I'm glad I've come out of the other side for now.
delta784
I am thinking to use clonazepam same way you do but i am only 29 years old. My tinnitus, visual snow came after methylprednisolone intravenous which damaged my ears and brain it seems very odd reaction. Saturday is my off day where i usually go out meet my gf is it okay to take wednesday and saturday?
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delta784
if you dont mind may i ask how old are you @Cmspgran
Cmspgran
Hi, I don't mind you asking I'm in my early 40s, clonazepam isn't an ideal drug to be on at all but if it allows you to function and continue to work my philosophy is then it's the only option in my case. Tough at your age but understand what it's like to struggle so much.
delta784
so daily 0.5 stopped working for tinnitus or anxiety? i know sedation affect goes away
S
A great success! Felt almost like my old self yesterday. This has been very difficult month and a half, so I did celebrate a little! I deserved it! Still, not yet completely as I used to be.
DamagedJoe
I am very happy for you! Gives me hope for my own future. I can not accept i will have this for life...
S
@DamagedJoe Thanks! Just give it time. :)

I don't still feel like before the evening in the club, but it's been almost 2 months now. So these thing take LOTS of time. Never going to a club again. Or any loud places.
delta784
hows your tinnitus after clonazepam why did you stop after 7 months it stopped working?
Marina Moon
Today, I did something I thought I'd never be able to do, something I feared. Today, I mowed the lawn! It was an eletric lawn mower and I wore earplugs. I was definitely sore afterwards (pain in my face) and muscle stiffness around my body, but I did it! And I had fun! :D
Marina Moon
T is normal like usual. My right ear was a little loud afterwards, but I did do a cardio workout earlier in the day before mowing, and the pressure in my right eustachian tube is always messed up. I'll wait and see.
Marina Moon
An odd thing happened last night, not sure if it was contributed to by the mowing. But in bed, as I laid on my left side, the ringing in my right ear went up and the ringing in my left ear turned off (or so quiet that I didn't even perceive T) This occurred for less than a minute, then it went back to as it was before. I don't know why this happens at times, but the human body is an odd thing.
Foamearplugssuck
My parents are forcing me to go to the ER with catastrophic nox LMAOOOOOOOO pray for me
ECP
You've had nox for a long time, haven't you? Why are they making you go to the ER today? Did something new happen to your ears? Sending hugs.
ECP
How did things turn out yesterday? Are you all right?
cjbhab
how are you doing? hope you are well.
Frédéric
I am currently browsing each university website based on the Shanghai Ranking to find information about research in tinnitus...
ECP
Hello, are you still following the NeuroMed protocol at home? Have you found it helpful?
Yellowblue44
Hi @ECP nortriptyline helped lower a killer tinnitus tone but not much else.
How is your ear pain nowadays. On top of everything I've developed ear pain, that lingers even in silence. Do you have this?
ECP
Sorry to hear that. I do have ear pain in silence sometimes. Are you taking B2 and magnesium along with the nortriptyline?
4Grace
@L along the way - hello!!! How are you doing? If ever anyone sees me back here … it's a sign I am much worse. My God am i progressing. I have not been able to talk due to pain for over a year. I'm also in the best shape of my life because I bike 26 km a day. It's saving me and killing me at the same time.
L along the way
oh dear.. sorry to hear that.. but happy to read that you're in good spirits biking a lot. Myself... also ups & downs. Finding calmth for sleep has been an issue.. but it's been a bit better recently. Besides the physical pain from t, i'm also feeling a lot of emotional pain and sadness linked to it i guess.
L along the way
But well.. day by day.. trying to find inspiration too, distract myself a bit with gaming, eating healthy and going for long walks each day too.. i still kinda live on hope for a recovery with time
4Grace
@L along the way - good to hear from you. Yes, the physical pain is the worst. I find the only way I have a chance is to live a little but everything I do makes me worse. It's crazy. I did an MRI the other day. Nothing. Ufffff my ears are screaming. I could do T no pain maybe.
S
One evening in loud place with earplugs, and now it's been 1,5 months of hell. I was basically cured already. What a stupid thing to do.
kingsfan
Despite knowing better, we do make poor decisions. It's our human condition to be among others and connect – to feel alive. It's in our nature, and it always wins.
L
Actually had an acoustic reflex test performed during the tympanometry test that I was not informed of. "Informed consent". Went up to 95db. New, high-pitched electrical current noise.
kingsfan
I am so sorry. I was also a victim of this test, nearly 5 years ago.
L
Thank you for your sympathy, I appreciate it a lot. How are you doing these days?
Marina Moon
my sister yelled directly into my right ear. it was the first time for me that sound caused immediate ear pain, and it hurt alot. (the pain in my face/jaw today was bad, like most days. Woke up with my right ear and tmj hurting) My life is ruled by pain. I am filled with so much anger right now. I don't want to feel this way, i hate that too!
4Grace
@Tryn2BHopeful - hey old friend. Miss talking to you. I'm exposing more and more at the cost of louder T. No concerts and stuff but the bare minimum to live. I feel like I need to learn to live with it no matter how loud. I just can't get over people that have it and still go to concerts. I am doing better with it but it's always a step ahead of me getting worse.
Tryn2BHopeful
I understand. Glad you are doing better with it. I feel defeated today. I don't recognize the person I the mirror. Disheveled and sad looking. My life reached it's peak 2 years ago and now it's in a downward spiral. I was doing well and I guess i wasn't deserving.
4Grace
You are not alone. You are deserving. Honestly, I'm not doing better. I go bike riding to distract and each ride makes it louder. Can't work or be around family .. can't even be around my daughter. I have not been able to speak due to pain for over a year.
4Grace
It's interesting that i was so happy and I too came to the conclusion that I was undeserving. I am in church 3 times a day praying. Food impacts mine almost more then additional sound. Every breath is hard. This am it's louder then ever. My left ear feels like there is a spike in it. We are so deserving. Happy Father's Day.
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