New profile posts
A door slammed on my finger on the 14th of last month and it's healing better, i guess? It's still stiff and swollen but it doesn't hurt when I move it (much) hopefully it heals completely this month. I've been avoiding using it unnecessarily and have been splinting it, along with moving it a bit for light exercise.
I also bit into an apple earlier today and my right TMJ hasn't stopped hurting. My facial muscles have been spasming alot more lately too and it's painful, and odd looking. I'd hate if anyone were to see me like this, because my facial expressions look funny. I'm not purposely making a face at anyone, my facial muscles (in my cheeks and jaw) do what they want without my control...but damn it hurts.
It's been more than a year and I am back here. I don't really have good news, just the same pain and T symptoms like before, just kind of worse. I honestly don't know what's wrong with me, but I still crave for my old normal where constant pain was never in the scope of my reality. I have a follow up appointment with my physical therapy doctor tomorrow.
Back once again. I write this to myself as a reminder as well: NEVER GO INTO ANY LOUD PLACES, EVEN WITH EARPLUGS! I've been doing so well for past 2 years. My T&H were basically gone, I found new joy in life. But, because I just wanted to be with my friends just for ONCE before we graduate, it's all gone in few alcohol induced hours. A terrible spike going on. I even had my earplugs on all the time.
T still raging but my mood has stabilised. I'm by no means happy, but at least I'm avoiding the deep pits of despair I was feeling before. Except when I try to listen to music - that really gets me down.
mine is caused by prednisolone which i used to avoid tinnitus i was so mild why? is it because of my veins?
Man im so frustrated. We got these old doors at my work that are "hard to close". You need to close it and then push very hard for it to stay closed. My IDIOT college was closing the door right next to me but instead of doing it the right way he takes and close it by just smashing it shut super hard creating a superloud BAM, i wasnt looking since i was talking to someone else. Anxiety is thru the roof!
My tinnitus has been elavated for like 3-4 weeks now and i cant really find why it got louder. Ive had some misshapps happening but nothing extreme. i also feel a little bit "clogged" in my right ear where the spike is happening. Im getting less and less anxiety over "loud stuff" thats happening so thats good!
I find it difficult to put into words how much I hate this horrible disease. My hate for tinnitus is deep and all-consuming. It has stolen so much life from me and I will never recover from that loss and pain. Never.
I took vitamin D everyday for about 2 weeks. My tinnitus worsened around this time. Does vitamin D affect your tinnitus?
Having a little spike today (6months in) but on the whole my t is much quieter and I cling on to that
My T is XL I don't think I can continue weight training.
God, if you're real... please, just take me away. I can't keep doing this.
In two days, it'll be my two-year anniversary.
I can't bear to look at pictures of my younger self anymore without being overwhelmed by guilt. I'm only 21, but it feels like I've already ruined my life. I just don't see how I could possibly build a future for myself. . And the hardest part is… I don't know if I'll ever get to be a mom. Not the way things are right now.
Thalamocortical Dysrhythmia
2 years of T. wouldnt say it has gotten noticeably worse. hoping for better treatments
Feeling more resolute today. Despite the relentless and overpowering T now, I can remember that in the last 13 years I have had more good days than bad days. And on the best days, the T didnt matter one bit. That's got to count for something. I have to believe that I can make it through this hurdle. All I can do is take it one day at a time.
T is very loud today. Trying to deal with it and not break down. Seems like the same pattern every week. M-OK, T-Moderate, W - Severe, T- Moderate, F-OK, Sat -OK, Sun - Severe. OK is not great but livable. Its the humming, hissing, ear sensations... ugh... Sometimes I just don't understand the point of "this".
The tinnitus just keeps getting worse. I stay in my room or the hallway in quiet. Doesn't seem to matter.
Currently trying to not care about my tinnitus and hyperacusis and it's actually working. Tinnitus is less reactive and when it is, it doesn't last long (except for the 2 days of ambulance siren phantom noise I got lol)
I have made up my mind. I will not take a Xanax or other benzos before my medical procedure. The risk of a spike not worth it. Now I need to find a way to calm myself enough to be able to go through with the procedure.
Feeling really down. I'm so tired of having to live with this. The psychological and emotional burden of trying to be strong and carry on through every major spike has slowly chipped away at my resolve each time. It's so loud, louder than everything. Nothing can mask it. This is hell
Great, now trying to deal with a new sudden reactive tone/distortion on top of sounds, after 4 years with tinnitus, SBUTT's, scary inner ear sensations, TTTS, MEM, tinnitus spikes etc, now this. Shit keeps piling up. Do you think this can go away? After waking up it seems gone, and ramps up towards the night mostly.