New profile posts

What's new New posts New resources New profile posts Latest activity
Sodlin
Starting to forget my tinnitus a little bit more again. Still think it spiked thru the wardrobe incident but somehow i dont "care as much" when the anxiety is low. I actually manage to work up the courage to prebook a trip to an all you can eat shrimp buffe in the next week!
Picassocat
I have tinnitus and ED and was prescribed 5 mg of Cialis daily. I started with a smaller dose, less than half maybe, and within an hour my T was up
noticeably, had a very hard time sleeping and now next morning, T is still up. I hope it will taper off. My advice to you: if you have tinnitus, stay away from Cialis or the like.
tiniturk
Had to get dried earwax sucked out of my ear because my hearing became muffled. I now feel like my tinnitus worsened and my hearing is still muffled (lmao?). I hope it's because the drops of olive oil I had to use to make the earwax smoother otherwise I am cooked beyond belief.
delta784
I can't believe my life ended due to health anxiety and wrong medication usage for basically nothing. Now all i think about ending my life. I had no other option + i don't wanna live like a cockroach at the age of 29 thanks to my genes and thanks to my clueless brainless ent
Kam75
Hi mate, I lost mine at the age of 28. I'm 34 now. I know this horrible feeling. I'm like a zombie everyday because of the lack of sleep. I live isolated in my room, doing nothing. It is terrible. Personaly I don't want to kill myslef, but I don't want to live like this for the 40 years to come...
S
Still doing alright. My tinnitus is higher than it used to be back in 2018, but I am not bothered by it much.

I did get quite a lot of ear pain from watching an especially loud movie in the movie theater couple of months ago. I put my ear plugs at the half way point, but it was too late. I only thankfully had to be in pain for roughly 2 weeks. Lesson learned: always have ear plugs on at movie theaters just in case.
Sodlin
Anxiety gone now after the wardrobe incident. I still have a spike tho. the only good thing about this is that i actually realized that i suffer from phonofobia (always thought so but now i know for sure)
E
TinnitusTune is very slick. It's awesome! Just a thought - would if it makes sense to have other colors of noise other than white noise like pink, purple, and violet? I would guess that some combination of noise and frequency would not make sense.
BartE
Thanks so much for the lovely feedback! You're absolutely right - different noise colors are definitely on the roadmap!

Roadmap:
• Pink/Brown/Violet/Blue noise options
• Downloadable MP3s for offline use
• Separate L/R ear configurations
• Multiple tones per ear support

The app will recommend which noise types work best for you. Since this is my free-time project, features will roll out
gradually 😊
PennyCat
I didn't stay away very long. I don't know how to get through this. The distortions are driving me crazy. Clonazepam made it temporarily louder. Vomiting daily. Crying all the time. I'm so scared
PennyCat
I genuinely don't know what to do anymore. I reached habituation and then the rug was pulled from under my feet and now I'm worse off than I've ever been. I keep getting new tones because my nervous system is shot. I can't calm down, can't stop obsessing, researching, crying.
BrOKeN_1
Maybe it's just me. But anytime I find a public bathroom with a paper towel dispenser I give a little prayer of thanks. Lol.
MindOverMatter
I can assure its not just you @BrOKeN_1 Nothing beats plain paper 😅
kingsfan
First thing I do when I enter a restroom is check for hand dryers. If there are any I march right back out and find somewhere else. Those little family restrooms are a life saver sometimes.
W
I feel this.
Sodlin
Anxiety seems to mostly have subsided now which is great. Now im more "annoyed" then scared of the spike. Tinnitus still loud tho, hope it will subside
MindOverMatter
Painful feelings are, by their very nature, temporary. They will weaken over time as long as we don't prolong or amplify them through resistance or avoidance. The only way to eventually free ourselves from debilitating pain, therefore, is to be with it as it is. The only way out is through. - Kristin Neff
Sodlin
Still in the wardrobe spike. Anxiety kind off comes in "wawes" its like im feeling okey then suddenly i get heatstroke and getting butterflies in my stomatch etc. I hope the spike will subside when the anxiety symptoms end. Its not fun when u cant mask it and u have 2 more sounds in your head. Hope every1 is feeling well!
Samy
I took the airplane 2 times this Summer (with ear protection), and also did lots of small road trips WITHOUT ear protection!!
Sodlin
Whooop Whoop! So glad for you! what a victory! If i would be better i would easy travel around the world! :)
Samy
  • Samy

    Samy

@Sodlin I hope it'll be you too soon! It took me 2 years after my onset to re-start really travelling.
Sodlin
Still in the spike, anxietywise i feel alot better with less doom and gloom thinking but the spike is still agressive and loud. If it is bc of the anxiety over the wardrobe accident i wonder how long after the anxiety is gone the spike will actually calm down.
PennyCat
I'm going to try to stay off of here for a little while. I know anxiety is not the cause of my tinnitus but it sure as hell is making it sound 10x worse right now. I need to stop fixating and calm my nervous system down because I'm in a really bad place. I'll check back in at some point, hopefully I'll be doing better
DorianP
@DimLeb I think I'm experiencing the same thing you describe in your post from Apr 27, 2025. Do you still have this?
D
I really don't know, it's weird. There are a few sounds in my routine which seem to have that distortion, but in most other situations I don't hear it. Either I fixated on those sounds, thinking they have a distortion in my ears, or it is a distortion but it's happening in a very specific (and weird) pattern.
D
I still do hear it on one TV we have, but in the end it maybe just its bad quality. You can't not be paranoid about sound if you get so many ear problems... I also get terrifying episodes of ear pressure/reactive tinnitus that definitely are distorting my hearing.
H
Hey Markku, thank you for all that you do for us. It's greatly appreciated. How have you been? You don't talk about yourself often. Could you let us know how your tinnitus has been lately? Again, thank you for everything you do.
PennyCat
Along with the gabapentin, I got prescribed clonazepam today. I'm scared due to risks of both, however they are only for me to take as needed when my anxiety is severe, not consistently/daily. So I think I'll be okay. Don't comment anything suggesting otherwise lol, thanks
BrOKeN_1
My unofficial opinion with the clonazepam is to try and take it closer to bed time and not if your already deep into an anxiety attack. Benzos are a great last resort and you can really minimize side effects if taken sparingly. For what it's worth meditation (Mostly controlled breathing) helped calm me somewhat when I was spiraling. Be patient and trust yourself.
PennyCat
@BrOKeN_1 Thanks for the insight, I really appreciate it. I haven't been able to pick it up yet because my pharmacy and their warehouse are apparently out of stock, so I have to try to find a different pharmacy that has it and then wait for my psychiatrist to send in a prescription there. The gabapentin hasn't done anything for me so the clonazepam is gonna be my hail mary lmao.
DorianP
Is complete silence bad for reactivity? Everything I do seems to make it worse, I don't know what to do anymore. I also have this weird distorded mettalic sound with it.
Kam75
Salut, I also have a sort of electric/metallic sound that seems to move around inside my head.
This is one of the 5 sounds I hear that bothers me the most.
Complete silence is not good for hyperacusis. Your hears have to get used little by little to noise. But loud noise is definitely dangerous!
S
We can only pray that someday Tinnitus and other ear related symptoms are not "treated" like in medieval times. It amazes me that only treatments they offer is therapy and anti-depressants. This is not depression, or mental issue. Do you heal broken bones with anti-depressants or therapy?
PennyCat
Is gabapentin safe for tinnitus? My psychiatrist really wants me to take it right now because I'm so severely anxious but I'm scared of worsening even more
View previous comments…
D
I've read reports of people developing T with that drug. These drugs that affect the nervous system are always a gamble. I'd try natural methods first if it's just anxiety.
RunningMan
Some people get visual snow or other visual symptoms, which may go away if you stop. Some people report it has been very effective for sleep.
PennyCat
@DimLeb It's not 'just' anxiety. It's so severe and debilitating, I can't stop vomiting multiple times a day and crying all day. Nothing is helping. If I don't have the support of medication I don't think I'll be here much longer
Top Bottom
Back
Forums
Members
Donate
Menu