ErikaS

I remember my symptoms taking a few days to settle down after my second shot too. I wouldn’t worry too much for the time being. Sending good vibes your way!

Thank you @CRGC ! I think that was the last shot. He offered to do 3, but with not noticing any type of improvement at this point, and with sensitivity lingering longer than first, unfortunately I think this “experiment” is done.

@Biaxca so sorry you’re dealing with reactivity. I’ve had it just over 4 months. Cannot say I’ve had any improvement, but I am able to run to a store, drive to therapy and not deal with a permanent spike. Always seems to settle. I started some treatments & have TRT consult coming up. Really hoping the next 4 months outweigh the last 4 with improvement and healing.

Sorry to hear that @ErikaS. When I first started to listen to nature sounds, it would set off my reactivity. What I did was listen to it for about 30 minutes at a time then take a break. My T would react, but over time I found I could listen longer and longer.

@ErikaS ah I see so if the tap is making your T spike then I can see how everyday normal noise is doing the same. It definitely should get to a point where after running the tap your T will not spike anymore. Since onset you sleep with maskers? I tried the first week then I would wake up with crazy spikes so I just slept in silence my brain sadly adapted to the high screeching and I would fall asleep quickly.

@Sammy0225 its not a horrible spike, but makes tinnitus go higher pitch/more aggravated. I still do dishes and such and when I’m doing them I don’t hear anything, it’s when I turn it off.
I do sleep with sounds/instrumental music. May have to try silence more often.

Benzos are a great solution when you feel like you've reached the point where you are about ready to step in front of a bus but just be careful with over using them! I keep a few around for emergencies but I try as much as possible to tough it out. My ears always ring louder the day after I take Xanax and Benzos don't help you confront the feelings of distress, just hide from them.

@Barry098 thanks for the advice. I have been doing the microdose of .25mg daily for about 3 months, I plan to wean off in a month or so. Thankfully I’ve never upped the dose permanently, only rarely took .5mg. I went from having silence to multi-tone reactive tinnitus, so unfortunately it completely bombarded my life.

When things got really rough for me about a year and a half ago Xanax helped a lot with sleep. I cut .25mg tabs in half and even that small amount worked wonders. When you go to taper, try that dosage and see if it helps.

I hope everything works out well for you. My dex shots were a couple years after I had the fluid and redness in my ear from the barotrauma. I don’t wish tinnitus on anyone.

I remember how much it hurt when the ENT missed the initial injection hole and hit my eardrum with the needle. A year later at Shea they used a laser which didn’t cause pain.

I hope it helps! all the best

@Barry098 I appreciate your insight! It is SO hard to improve/change attitude as it still very much scares me with reactivity and the potential for getting worse. And it’s just so overwhelming with multiple sounds that contain high hissing, dog whistle, electric cicada, mores code, pure tone, etc. I would do anything for 1-2 nonreactive tones.

I know the feelings you are experiencing. I’ve been caught in the spiral a few times now. The thing is…time heals. Hard to see right now because you are suffering and can’t imagine things turning around.

When you can let go of the fear, your brain will let go of those sounds. Very easy to say this by the way and very hard to do it…but you can do this…best advice I ever received is, “put one foot in front of the next.” You will get to a better place!

@ErikaS Yup, those random fleeting T moments actually make my other tones (reactive ones) nearly non-existent momentarily. Doesn’t last too long though

@ZFire yes when the fleeting T comes on in an ear all other sounds go away for that moment. Although fleeting T is louder than my T sounds, it’s a nice little break that brings consistency and non-reactivity

@ErikaS I wish you luck with your trt endeavor. You're still early in so hopefully there will be healing and progress. Have you had an audiogram done or tried one online? For me everything is good until 4khz and then dips sharply until 8khz which I can hear, then nothing beyond 8khz.

@Guywithapug is the loss just in your affected ear from the neuroma? I have completed more than one audiogram up to 8k hz. All is within normal range, I’m at 0 up to 4k hz, then it dips a little at 6 and 8k, but it symmetrical & within normal range. Because no one would test past 8k, I did it myself at home & that’s when I discovered my right ear has notable loss around 12.5k & up compared to left.

@ErikaS Yeah, just the left ear, which surprisingly, can still hear fairly well given the amount of hearing loss I have in it. I sincerely hope we have hearing restoration in our lifetime because there's more to it than just the hearing deficit. Tinnitus, reactivity, hyperacusis etc are such terrible afflictions!

@Sammy0225 yes I think we are saying the same thing. Not only volume but a sound may be beeping like Morris code or another is like up a higher note, then down a lower note and repeating. MADDENING but if this kind of shit subsided for you I hope to God it can for me too

@ErikaS it definitely is maddening I left a detailed history on your thread if you wanna give it a quick read. If mine faded so can yours (:

Yours sound exactly like how mine was

For me it was acceptance, accepting that it was part of me, at least for now. The Back to Silence method turned me around

@CRGC i got the first shot in R ear. Not very painful at all. Now just dealing with the fullness, but the worst is increased T with my high hiss and tone sound. I know this is normal to happen. Did this happen to you and did it calm down in a few days?

@ErikaS Happy to hear the injection wasn't too painful! Every time I got the shot, my T increased temporarily and the tone became sharper. But that always subsided within 24-48h. I blamed it on the fact that my ear was blocked (with the liquid cortisone).

@CRGC the hardest part was trying not to swallow for 20 mins! I was honest with him and said my swallow triggered 3x and I couldn’t help it lol he checked and fluid still filled the middle ear so thankfully no issue.
It’s better/less when I am up and walking around, I tried laying down and whoa that was a no right now lol

I did prp and bone marrow injections in July in Florida and it did nothing to help me at all unfortunately...

@scotty03874 im so sorry none of those helped. I know I am far out from my T starting, I kind of just did the shot to address any possible ongoing inflammation. Will see how I feel in a few days and if I want to try anymore.

It would just confirm it.

@AfroSnowman thanks. I figured as much. Wish ENTs actually gave a shit about testing above 8k, If they did it could have been caught 3 months ago at the start of it and I at least could have tried steroid shot(s) to that ear

Hi @ErikaS, it will get better, the first 3-5 months I slept maybe 1-2 hours a night waking up every 20 minutes, covered in sweat, it was crazy, my anxiety was so high. Don't know how I survived haha. Just try to rest and sleep if possible. Now I just take 1mg Melatonin and I will try to come off in January, I'm sleeping 6-8 hours a night

Trazodone has been a godsend for me, but it really only started working "great" when my anxiety levels came down. It helped a lot before that too though.

@DeanD Thank you, I hope the NM goes well for you too if you choose that! Do you have multiple tones and is the T unilateral or both ears?

@ErikaS - yes, similar to you (from what I have read on your posts), multiple tones - and my t is bilateral. Are all your different tones down to further acoustic setbacks, or did they all come on at once?

@DeanD I cannot say that new tones came from acoustic setbacks, I think my reactivity got a little more sensitive, however newer tones came on with 2 colds/viruses. which is interesting because first ring came on with ear infection, so sensitive to viruses after that.

@Forever hopeful ugh what has the audiologist said about this to you? The loss is only in my R ear and it now makes all the sense in how T first presented and how the reactivity is mainly in R ear. I’m just SO mad this wasn’t caught at onset when I could have gotten IT shot in ear.

@Forever hopeful I am 33 and the only reason I am experiencing this in R ear was due to ear infection and ear inflammation leading up to ear infection. I am hoping given my age, and time, my brain will reorganize and things will calm down. My T is not very loud (thankfully) but it is many changing tones and high electric hiss is reactive so it still is very overwhelming and haulting my life.

@ErikaS You have youth on your side. Hoping it improves soon.

@ErikaS, when they say you have no hearing loss. It just means you have no hearing loss in the ranges that are specific to speech. You may have hearing loss above that. I don’t know how old you are but it comes with age. They don’t test for it because they don’t have any benchmarking for it. So how are you score is not always that relevant if you have no reference point. It sucks either way.

You still have alot of time for improvement I’m hoping the best for us both

Thanks @Sammy0225 , right back to you. Month 3-4 may be the worst, I am hoping for a turn around at month 5-6. Hope your little improvements you’ve seen lately continue !

I hope it will make a difference to your tinnitus in the long run. Let us know how it goes.

I hope you're able to find some relief! You're still early with this, as am I. We have to remember to be patient, healing takes time.

@CRGC I know, it’s just scary when you’re taking precautions and doing things to help but it’s not getting better, just worse. When did the H start for you?

Mine started at the same time as the rest of my symptoms, so 6 months ago. Overall I’m a bit better than in the summer when it was at its worse, but still struggling as the pain fluctuates unpredictably. Being very careful about everything i can control, and trying to stay patient and optimistic.

Hi @ErikaS I see. For me, my reactivity on a bad day immediately picks up when I hear certain noises and gets louder and louder the longer I keep hearing those noises. When I step away, it'll either calm down or be spiked for the rest of the day. I didn't ever experience ear fullness at its peak. I only experienced ear fullness for a few days when my tinnitus started. Is the fullness bothersome?

@Joe Cuber cant tell if fullness is coming from some sinus inflammation or T sensitivity.
What do you think helped your reactivity improve? Anything specifically?

Hi @ErikaS - I personally think that sound enrichment at home (low, background nature sounds like rain) and going out to expose myself for short durations to parks, cafes, small downtowns. Going out sometimes made me spike, but sometimes it would settle down. Over time, it got better. I can often go out now without spiking.

@MindOverMatter I developed the T just over 3 months ago in R ear with ear infection. Started as high electric hiss, now 5-6 tones with reactive hiss and distortions. I know it takes time to get better, but what I do not understand is why getting worse?

@MindOverMatter i took a leave from work, do not go around very loud sounds, do not wear protection in the house and have low background sound on from something. But going in the car sends my reactivity up and recently the R ear is now “feeling” it through this sensation rather than just hearing it.

@ErikaS You seem to be doing "what you should", in my humble opinion. T winding up while in the car is, unfortunately, very common for many with different versions of sound sensitivity and reactive t. "Feeling" it, yes. I know what you mean. It will get better with time, 3 months is not a long time. There is a good chance for you to feel at least better within a time frame of 6-9 months.

@ErikaS Around the house during the day, I play nature sounds from Youtube (like water fountain sounds) on my computer. For bed, I use the Resound app on my phone to play a combination of pink noise/thunder/crickets. I connect my phone to this pillow speaker https://a.co/d/j3ZWyzw, which I lay my bad ear on (my T is in my right ear, my reactivity is in both ears).

Hi @ErikaS took a good break from here so just saw message. My therapist pretty much said to me ditch the ear plugs and get used to normal sound again. Reactive tinnitus just happens according to him and they don't know why :/. 1)

2) not very helpful in my opinion my hearing therapist as they just don't know much other than sound therapy and white noise generators. Figuring it out myself, well trying too. :-( my T had been reactive this week so sleep has been limited but learning to tune it out which takes a lot of mental strength.

@Joe Cuber yes, it definitely has an affect which is a blessing and a curse. I have been taking .25mg at night for about 2 months, going to taper soon. I have read on here that it can hold up healing. Glad I’m on such a low amount though.

@Strawberryblonde I have been taking .25mg at night for about 2 months, going to me tapering off over the next few weeks. Doesn’t really do anything for sleep anymore.

@Strawberryblonde I take clonazepam. Doesn’t really help my tinnitus at all.

Got any tips kn decreasing neurological inflammation

@Travis Henry, I would look up things/supplements for nerve inflammation and mitochondrial dysfunction. I don’t have anything specific for you as it can be trial and error.

@Travis Henry I know ur against meds, but have u considered switch to Valium to wean from Clonaz. more easily, then wean from V? Also wondering if u’d benefit from nerve pain med, with how loud ur T is & if nerve inflammation based, just a thought. I know meds suck, but the goal is to get ur body/mind to come down from the “fire in the house” state, then once you get there, address weaning.