ErikaS
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Gender:
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Location:
Pennsylvania, USA

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ErikaS

Member, Female, from Pennsylvania, USA

Please June, bring us the publication. Update: This post worked well! Next week I will be asking June to bring us FDA approval :) Jun 2, 2023 at 4:21 PM

    1. ErikaS
      ErikaS
      Had some relatively “calmer” T moments today. Shocked with my lack of sleep lately. But hey I’ll take what I can get.
      1. Joe Cuber, DeanD and NYCGuy like this.
    2. ErikaS
      ErikaS
      I cannot get my sleep better/consistent.I am on 1/2 of 7.5mg Remeron, melatonin, & microdose ativan (.25mg).Not getting more than 3-4 hours.
      1. NYCGuy likes this.
      2. dennis_me
        dennis_me
        Hi @ErikaS, it will get better, the first 3-5 months I slept maybe 1-2 hours a night waking up every 20 minutes, covered in sweat, it was crazy, my anxiety was so high. Don't know how I survived haha. Just try to rest and sleep if possible. Now I just take 1mg Melatonin and I will try to come off in January, I'm sleeping 6-8 hours a night
        Dec 16, 2022
        Joe Cuber and ErikaS like this.
      3. blamingeverything
        blamingeverything
        Trazodone has been a godsend for me, but it really only started working "great" when my anxiety levels came down. It helped a lot before that too though.
        Dec 21, 2022
        ErikaS likes this.
    3. ErikaS
      ErikaS
      2nd Neurofeedback session 2day. The T protocol involves working w/slow brainwaves in many areas including calming down system hyperactivity.
      1. MindOverMatter, Leila, Ngo13 and 2 others like this.
      2. View previous comments...
      3. ErikaS
        ErikaS
        @DeanD Thank you, I hope the NM goes well for you too if you choose that! Do you have multiple tones and is the T unilateral or both ears?
        Dec 15, 2022
      4. DeanD
        DeanD
        @ErikaS - yes, similar to you (from what I have read on your posts), multiple tones - and my t is bilateral. Are all your different tones down to further acoustic setbacks, or did they all come on at once?
        Dec 16, 2022
      5. ErikaS
        ErikaS
        @DeanD I cannot say that new tones came from acoustic setbacks, I think my reactivity got a little more sensitive, however newer tones came on with 2 colds/viruses. which is interesting because first ring came on with ear infection, so sensitive to viruses after that.
        Dec 16, 2022
    4. ErikaS
      ErikaS
      Can a unilateral hearing loss/difference around 13000hz and higher trigger tinnitus/possibly be the cause of high electric hiss tinnitus?
      1. NYCGuy likes this.
      2. View previous comments...
      3. ErikaS
        ErikaS
        @Forever hopeful ugh what has the audiologist said about this to you? The loss is only in my R ear and it now makes all the sense in how T first presented and how the reactivity is mainly in R ear. I’m just SO mad this wasn’t caught at onset when I could have gotten IT shot in ear.
        Dec 11, 2022
      4. ErikaS
        ErikaS
        @Forever hopeful I am 33 and the only reason I am experiencing this in R ear was due to ear infection and ear inflammation leading up to ear infection. I am hoping given my age, and time, my brain will reorganize and things will calm down. My T is not very loud (thankfully) but it is many changing tones and high electric hiss is reactive so it still is very overwhelming and haulting my life.
        Dec 12, 2022
        Forever hopeful likes this.
      5. Forever hopeful
        Forever hopeful
        @ErikaS You have youth on your side. Hoping it improves soon.
        Dec 12, 2022
        ErikaS likes this.
    5. ErikaS
      ErikaS
      3 years of infertility & loss.We would be planning an embryo transfer if it wasn’t for T onset.Now I worry if I will ever be able to do it.
      1. View previous comments...
      2. Forever hopeful
        Forever hopeful
        @ErikaS, when they say you have no hearing loss. It just means you have no hearing loss in the ranges that are specific to speech. You may have hearing loss above that. I don’t know how old you are but it comes with age. They don’t test for it because they don’t have any benchmarking for it. So how are you score is not always that relevant if you have no reference point. It sucks either way.
        Dec 12, 2022
      3. Sammy0225
        Sammy0225
        You still have alot of time for improvement I’m hoping the best for us both
        Dec 12, 2022
        ErikaS likes this.
      4. ErikaS
        ErikaS
        Thanks @Sammy0225 , right back to you. Month 3-4 may be the worst, I am hoping for a turn around at month 5-6. Hope your little improvements you’ve seen lately continue !
        Dec 12, 2022
        Sammy0225 likes this.
    6. ErikaS
      ErikaS
      Best/most liked ear protection when driving, specifically with reactive Tinnitus. Thanks for any recommendations.
      1. Sammy0225 and NYCGuy like this.
    7. ErikaS
      ErikaS
      If you deal with reactive T/mild H w/no pain, I would appreciate any feedback in my support thread “Just How Far Can I Push Reactive T”. TY!
    8. ErikaS
      ErikaS
      Headed to my first Neurofeedback today. It is specific for tinnitus as it applies to the mind-body approach & how it’s “wired” in the brain.
      1. CRGC likes this.
      2. Leila
        Leila
        I hope it will make a difference to your tinnitus in the long run. Let us know how it goes.
        Dec 9, 2022
        ErikaS likes this.
    9. ErikaS
      ErikaS
      3 mos. since T onset, R ear is very reactive. I have ENT willing to do intratymp. dex shot. Any case known where this made it worse?
      1. View previous comments...
      2. CRGC
        CRGC
        I hope you're able to find some relief! You're still early with this, as am I. We have to remember to be patient, healing takes time.
        Dec 7, 2022
      3. ErikaS
        ErikaS
        @CRGC I know, it’s just scary when you’re taking precautions and doing things to help but it’s not getting better, just worse. When did the H start for you?
        Dec 7, 2022
        Nadia231 likes this.
      4. CRGC
        CRGC
        Mine started at the same time as the rest of my symptoms, so 6 months ago. Overall I’m a bit better than in the summer when it was at its worse, but still struggling as the pain fluctuates unpredictably. Being very careful about everything i can control, and trying to stay patient and optimistic.
        Dec 8, 2022
    10. ErikaS
      ErikaS
      The reactive electric hiss is so awful. 3 months in and I feel like it’s way more sensitive now than 1-2 months ago.
      1. View previous comments...
      2. Joe Cuber
        Joe Cuber
        Hi @ErikaS I see. For me, my reactivity on a bad day immediately picks up when I hear certain noises and gets louder and louder the longer I keep hearing those noises. When I step away, it'll either calm down or be spiked for the rest of the day. I didn't ever experience ear fullness at its peak. I only experienced ear fullness for a few days when my tinnitus started. Is the fullness bothersome?
        Dec 8, 2022
      3. ErikaS
        ErikaS
        @Joe Cuber cant tell if fullness is coming from some sinus inflammation or T sensitivity.
        What do you think helped your reactivity improve? Anything specifically?
        Dec 11, 2022
        Joe Cuber likes this.
      4. Joe Cuber
        Joe Cuber
        Hi @ErikaS - I personally think that sound enrichment at home (low, background nature sounds like rain) and going out to expose myself for short durations to parks, cafes, small downtowns. Going out sometimes made me spike, but sometimes it would settle down. Over time, it got better. I can often go out now without spiking.
        Dec 11, 2022
        ErikaS likes this.
    11. ErikaS
      ErikaS
      Does reactive tinnitus make any one else’s inner ear feel weird? It doesn’t feel full, almost that feeling you get with fleeting tinnitus
      1. Nadia231 likes this.
      2. View previous comments...
      3. ErikaS
        ErikaS
        @MindOverMatter I developed the T just over 3 months ago in R ear with ear infection. Started as high electric hiss, now 5-6 tones with reactive hiss and distortions. I know it takes time to get better, but what I do not understand is why getting worse?
        Dec 6, 2022
      4. ErikaS
        ErikaS
        @MindOverMatter i took a leave from work, do not go around very loud sounds, do not wear protection in the house and have low background sound on from something. But going in the car sends my reactivity up and recently the R ear is now “feeling” it through this sensation rather than just hearing it.
        Dec 6, 2022
      5. MindOverMatter
        MindOverMatter
        @ErikaS You seem to be doing "what you should", in my humble opinion. T winding up while in the car is, unfortunately, very common for many with different versions of sound sensitivity and reactive t. "Feeling" it, yes. I know what you mean. It will get better with time, 3 months is not a long time. There is a good chance for you to feel at least better within a time frame of 6-9 months.
        Dec 6, 2022
        Sammy0225 and ZFire like this.
    12. ErikaS
      ErikaS
      Those with reactivity: anything for sleep when ringing becomes loud when laying down, but obviously can’t drown it out? Weaning off Ativan.
      1. View previous comments...
      2. Joe Cuber
        Joe Cuber
        @ErikaS Around the house during the day, I play nature sounds from Youtube (like water fountain sounds) on my computer. For bed, I use the Resound app on my phone to play a combination of pink noise/thunder/crickets. I connect my phone to this pillow speaker https://a.co/d/j3ZWyzw, which I lay my bad ear on (my T is in my right ear, my reactivity is in both ears).
        Dec 4, 2022
      3. Strawberryblonde
        Strawberryblonde
        Hi @ErikaS took a good break from here so just saw message. My therapist pretty much said to me ditch the ear plugs and get used to normal sound again. Reactive tinnitus just happens according to him and they don't know why :/. 1)
        Jan 9, 2023
      4. Strawberryblonde
        Strawberryblonde
        2) not very helpful in my opinion my hearing therapist as they just don't know much other than sound therapy and white noise generators. Figuring it out myself, well trying too. :-( my T had been reactive this week so sleep has been limited but learning to tune it out which takes a lot of mental strength.
        Jan 9, 2023
    13. ErikaS
      ErikaS
      Love/hate how a dash of Ativan quiets the T and reactivity, even if it’s brief. How have they not figured out a safer med with same affects?
      1. View previous comments...
      2. ErikaS
        ErikaS
        @Joe Cuber yes, it definitely has an affect which is a blessing and a curse. I have been taking .25mg at night for about 2 months, going to taper soon. I have read on here that it can hold up healing. Glad I’m on such a low amount though.
        Dec 2, 2022
        Joe Cuber likes this.
      3. ErikaS
        ErikaS
        @Strawberryblonde I have been taking .25mg at night for about 2 months, going to me tapering off over the next few weeks. Doesn’t really do anything for sleep anymore.
        Dec 2, 2022
        Strawberryblonde likes this.
      4. Forever hopeful
        Forever hopeful
        Dec 11, 2022
    14. Travis Henry
      Travis Henry
      Hope u are ok. How is Neurofeedback going ?
      1. View previous comments...
      2. Travis Henry
        Travis Henry
        Got any tips kn decreasing neurological inflammation
        Dec 7, 2022
      3. ErikaS
        ErikaS
        @Travis Henry, I would look up things/supplements for nerve inflammation and mitochondrial dysfunction. I don’t have anything specific for you as it can be trial and error.
        Dec 16, 2022
      4. ErikaS
        ErikaS
        @Travis Henry I know ur against meds, but have u considered switch to Valium to wean from Clonaz. more easily, then wean from V? Also wondering if u’d benefit from nerve pain med, with how loud ur T is & if nerve inflammation based, just a thought. I know meds suck, but the goal is to get ur body/mind to come down from the “fire in the house” state, then once you get there, address weaning.
        Dec 16, 2022
    15. ErikaS
      ErikaS
      I am praying that next week is the start of brain and body healing, as well as a decrease in tinnitus.
    16. ErikaS
      ErikaS
      It’s not getting better. Only worse. Especially reactivity. I believe that it has become brain based as I am not showing any hearing loss.
    17. ErikaS
      ErikaS
      I am 3 months into tinnitus that started with ear infection and only on sound in R ear, but has now become multiple sounds and in both ears.
    18. ErikaS
      ErikaS
      Next week I start craniosacral therapy & will do a brain map to begin a specific Neurofeedback therpay progam that is designed for tinnitus.
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  • About

    Gender:
    Female
    Location:
    Pennsylvania, USA
    Tinnitus Since:
    09/2022
    Cause of Tinnitus:
    Ear infection/Ultra High Frequency SSHL in Right Ear