Forever hopeful
Mood:
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Last Activity:
Nov 29, 2022 at 2:46 AM
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Sep 5, 2015
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Gender:
Female
Location:
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Forever hopeful

Member, Female, from USA

Wishing all the US folks a Happy Thanksgiving! Nov 24, 2022

Forever hopeful was last seen:
Nov 29, 2022 at 2:46 AM
    1. Forever hopeful
      Forever hopeful
      Wishing all the US folks a Happy Thanksgiving!
    2. Strawberryblonde
      Strawberryblonde
      1. sakrt, NYCGuy and tniuf like this.
      2. Forever hopeful
        Forever hopeful
        @Strawberryblonde, I’m taking it one day at a time. Enter the treatment program with an audiologist. So I have a little bit more hope. How about you?
        Nov 10, 2022
        sakrt, tpj, Strawberryblonde and 2 others like this.
      3. Strawberryblonde
        Strawberryblonde
        What treatment will you be undertaking with the audiologist? And one day at a time is the way I do it too. I'm doing OK, things seem louder but that's either a stress spike or because a neighbour let off some huge fireworks the other night while I was inside. They probably had no effect on the T I just "think" they have.
        Nov 10, 2022
        tpj likes this.
      4. Forever hopeful
        Forever hopeful
        @Strawberryblonde, TRT. Not using the in ear maskers though.

        One day at a time is the way to go. Some days are better than others. This week most days it’s been very loud but last week it was relatively quiet. So the fact that it quiets down gives me hope.
        Nov 18, 2022
        Strawberryblonde likes this.
    3. Forever hopeful
      Forever hopeful
      Tears today. Looking on FB at all the places my friends can go. Used to go with ear plugs now all I hear is my tinnitus when I put them in.
      1. Ngo13, NYCGuy, tniuf and 1 other person like this.
      2. Strawberryblonde
        Strawberryblonde
        Sorry @Forever hopeful. Sending hugs your way from a virtual stranger who sympathises with you very much.
        Oct 25, 2022
        Forever hopeful, tpj and CRGC like this.
      3. CRGC
        CRGC
        Sorry to hear. All I can say is that I understand the feeling. My hyperacusis pain, and the fear of making it worse, are keeping me away from so many things and people I love. All we can do is hang in there and hope for improvement.
        Oct 25, 2022
        volterra, Forever hopeful and tpj like this.
      4. Forever hopeful
        Forever hopeful
        Oct 26, 2022
    4. Forever hopeful
      Forever hopeful
      I am so sick of waking up every morning with this weight of tinnitus on my shoulders. Two months in and no improvement.
      1. NYCGuy, tniuf and Strawberryblonde like this.
      2. Strawberryblonde
        Strawberryblonde
        Third time lucky hopefully you @Forever hopeful. You've done it twice and think positive that you can do it again. Your success stories give me hope!!! :-).
        Oct 25, 2022
    5. Forever hopeful
      Forever hopeful
      Two SBUTT in left ear today. Lasting minutes. Freaked me out. Happy Birthday to me. ☹️
      1. Nadia231 likes this.
      2. View previous comments...
      3. Nadia231
        Nadia231
        What is a SBUTT? Is it like fleeting T?
        Oct 21, 2022
      4. Forever hopeful
        Oct 21, 2022
      5. CW Dragon
        CW Dragon
        Happy belated b-day
        Oct 23, 2022
        Forever hopeful likes this.
    6. tniuf
      tniuf
      hey you were wearing custom made earplugs but still they didn't protect you enough and ended up with a spike? i'm wondering if they are actually worth the additional money
      1. Wrfortiscue and NYCGuy like this.
      2. Stacken77
        Stacken77
        @tniuf They're great when you need to actually hear something in detail, like conversation, because they attenuate sound more equally across all frequencies.

        If you just want maximum protection in a loud environment, you should stick with deeply inserted foam ear plugs, sometimes preferably in combination with ear muffs. However, best course of action is always to avoid situations that might be loud.
        Oct 17, 2022
    7. Forever hopeful
      Forever hopeful
      He’s like a bull in a china closet. I don’t know how many times I told him when I’m in the kitchen don’t load with the dishwasher
      1. Strawberryblonde likes this.
      2. Nadia231
        Nadia231
        When family are not supportive is even more frustrating. I've experienced that. Luckily now I live with my sister and she is always just as caution as I would be when making noise. She always tells me first when she uses the hair dryer, blender, hoover, dishes, so I can run and hide
        Oct 17, 2022
      3. Forever hopeful
        Forever hopeful
        Can I come live with you? LOL.
        Oct 17, 2022
    8. Forever hopeful
      Forever hopeful
      OMG I hate my husband. Putting the dishwasher drawer back in and it came off the track. God was that that loud. Banned him.
    9. DebInAustralia
      DebInAustralia
      I'm sorry this has happened to you. I know you struggle. I still have intrusive head and ear noise ... insomnia .. heat ...doing bhrt ... and about to start addressing mcas ( common in menopause)
      1. Forever hopeful
        Forever hopeful
        @DebInAustralia, I’m so sorry to hear. I think tinnitus is hard enough but then having other medical comorbidities with it, is just the worst
        Oct 16, 2022
    10. DebInAustralia
      DebInAustralia
      How are you getting on?
      1. Eleanor89 likes this.
      2. View previous comments...
      3. Wrfortiscue
        Wrfortiscue
        Does the frequency kinda jolt your brain?
        Oct 16, 2022
      4. Forever hopeful
        Forever hopeful
        @Wrfortiscue, No I can’t say that it does that. It just sounds like a jet engine in my head. Like if you’re sitting inside an airport by the windows and all the jet engines are on and you can kind of hear them through the windows. That’s what it sounds like.
        Oct 16, 2022
        Wrfortiscue likes this.
      5. Wrfortiscue
        Wrfortiscue
        @Forever hopeful i see yeah my right ear does that a bit when spiked. Sorry you’re going through that
        Oct 17, 2022
    11. Forever hopeful
      Forever hopeful
      Loud today. Ugh. Working is tough. High pitched hiss in my right ear super loud. Does a hiss mean it is improving?
      1. Strawberryblonde and Wrfortiscue like this.
      2. Strawberryblonde
        Strawberryblonde
        From a lot of stories I've read a hiss is usually a good sign :D
        Oct 13, 2022
        Wrfortiscue and CRGC like this.
    12. Forever hopeful
      Forever hopeful
      Hearing test today. Super anxious.
      1. ZFire and NYCGuy like this.
      2. View previous comments...
      3. CRGC
        CRGC
        No further measured hearing loss is great news! I’d take it as a sign that your current aggravated tinnitus could be a spike that can subside
        Oct 11, 2022
      4. Forever hopeful
        Forever hopeful
        @CRGC, Well I would really like to believe that but we’re past four weeks now heading on to five. Although I did have some relatively quiet days over the last few days but I had a horrifically loud day on Saturday. I can’t discount high frequency hearing loss it isn’t measured.
        Oct 11, 2022
      5. Strawberryblonde
        Strawberryblonde
        @Forever hopeful same here normal audiogram (have posted it) according to my hearing therapist Audiologist but screeching T. Was told the same about extended test as its no use.
        Oct 11, 2022
        Forever hopeful likes this.
    13. Forever hopeful
      Forever hopeful
      Have to go to dinner with 2 of my loudest friends. Earplugs for sure, which means all I will hear is my tinnitus. ☹️
      1. Nadia231, NYCGuy and tniuf like this.
      2. View previous comments...
      3. Nadia231
        Nadia231
        Hi @Forever hopeful , can I ask you what type of 25dB earplugs did you use? I have bought so many, but can't seem to find the right ones
        Oct 11, 2022
      4. Forever hopeful
        Forever hopeful
        @Nadia231, I have custom molded musicians earplugs. Had the ear molds done at my audiologist’s office. The ear plugs are made by Westone with Etymotic filters. I personally have 15 dB 25 dB and then a solid insert which brings it to about 33 dB. I think for just the molds it was almost $200. They came with my 15 dB inserts and my solid insert And then I bought my 25 db inserts that run about $100.
        Oct 12, 2022
        Nadia231 likes this.
      5. Strawberryblonde
        Strawberryblonde
        @Nadia231 I use the 25db Alpine pluggies for kids as I have small ear canals. Work quite well and block out a fair bit of noise. I paid 12 quid from amazon.
        Oct 12, 2022
        Nadia231 likes this.
    14. Forever hopeful
      Forever hopeful
      Well woke up in the middle of the night. T was even higher pitched. Didn’t think it could get higher. Getting worse not better.
      1. NYCGuy likes this.
    15. Forever hopeful
      Forever hopeful
      Well now I can’t listen to music. Right ear reacts. Ugh. Will that get better?
      1. Wrfortiscue, CRGC and NYCGuy like this.
      2. View previous comments...
      3. Forever hopeful
        Forever hopeful
        @just1morething, I’m surprised that Tylenol and ibuprofen have any impact on your tinnitus I’m terms of quieting it down. That’s very interesting. I have problems with my eustachian tubes as well and I do think that that contributes to the noise along with neck and jaw issues. I use Flonase every day.
        Nov 24, 2022
      4. just1morething
        just1morething
        @Forever hopeful, I tried some Afrin and I was normal all day yesterday. ENT didn’t help much. I wanted try a balloon dilation to my left Eustachian tube but she said that isn’t done because the results aren’t that great. She did prescribe Flonase. Today I’m not doing good. I think I’ll try someone else. Dr. That did my TMJ repair did a great job.
        Nov 24, 2022
      5. just1morething
        just1morething
        I think you just need the right doctor to help our condition. I’m going to still look into balloon dilation elsewhere. Mayo Rochester TMJ Dr. Was worthless on my TMJ but I found Dr. Ketan Patel in Robbinsdale. I have sleep apnea too which last Dr. Said was severe.
        Nov 24, 2022
    16. Forever hopeful
      Forever hopeful
      Never had anxiety till tinnitus. No hope now.
      1. NYCGuy likes this.
      2. BrOKeN_1
        BrOKeN_1
        I'm afraid this is untrue. Anxiety effects everybody. Your just going through a particularly rough patch. It's going to take time and a whole lot of patience and self love. I believe it will settle. These are words I have to tell myself in the mirror every day. You will get through this. WE. Will get through this.
        Oct 6, 2022
      3. Forever hopeful
        Forever hopeful
        @BrOKeN_1 It’s a theory from a neuroscientist who has been studying T for years and why some people W/HL have no T and others have T and no real HL.I am aware of the theory that the gating system is faulty in people who have T. It was the way he talked about people with depression and anxiety as if it was a causative factor on why they hear T and not other as if anxiety and depression predispose you to T.
        Oct 6, 2022
      4. Forever hopeful
        Forever hopeful
        @BrOKeN_1 Interestingly both of my parents have anxiety. Both of my parents have hearing loss. My father’s is occupational, my mother’s is age related. Neither one of them have T. Go figure.
        Oct 6, 2022
    17. Forever hopeful
      Forever hopeful
      Episode 1. It was informative but I never felt so broken in my life. Broken brain. Anxious brain leads to tinnitus.
      1. Joe Cuber
        Joe Cuber
        I wanted to tell you that when I described what I was going through (T, anxiety, depression) to my brother, he said, "You have a broken brain, Joe. I had a broken brain too. You need help to fix your brain."
        Oct 6, 2022
        Forever hopeful likes this.
      2. Forever hopeful
        Forever hopeful
        I was not depressed or anxious before getting T. Our gating system is broken for some reason. My parents both have HL. No T. They both have anxiety. Why is their gating system working and not mine?
        Oct 6, 2022
        Joe Cuber likes this.
      3. Joe Cuber
        Joe Cuber
        I wish we knew. It's sort of like asking why some lifelong smokers develop lung cancer and others don't. There's so much complexity in our chemistry.
        Oct 7, 2022
    18. Forever hopeful
      Forever hopeful
      Been listening to the podcasts. I liked them so far except……
    19. Forever hopeful
      Forever hopeful
      Ambulance was about 200 feet away. Scared the heck out of me. Hope no damage.
      1. NYCGuy likes this.
      2. Strawberryblonde
        Strawberryblonde
        You should be fine, try not too worry.
        Oct 4, 2022
        ZFire likes this.
      3. ZFire
        ZFire
        If it makes you feel any better , I get hit with ambulance noise about 5-10 times a day whether I’m home or walking outside. Live in NYC and near a major hospital, so I have to put up with it all the time. Nothing has come of it so far. The duration of how long you were exposed to noise matters more IMO. 2 seconds is nothing.
        Oct 7, 2022
        Gabriel5050 likes this.
    20. Forever hopeful
      Forever hopeful
      Exposed to ambulance siren. Getting out of my car with my back to the street. Plugged my ears but was exposed one maybe two seconds
      1. NYCGuy likes this.
      2. kingsfan
        kingsfan
        Fingers in ears is pretty good protection, especially if you get a little suction going.
        Oct 4, 2022
        Forever hopeful likes this.
      3. Forever hopeful
        Forever hopeful
        Oct 6, 2022
    21. Forever hopeful
      Forever hopeful
      Using OTO CBT. Narrator’s voice is very soothing.
    22. Forever hopeful
      Forever hopeful
      Omg I didn’t think it could get worse. Right ear is screaming like it never has. It’s kite a jet is taking off in my ear. Can’t mask.
      1. NYCGuy likes this.
      2. View previous comments...
      3. Strawberryblonde
        Strawberryblonde
        Spikes can last a while and fluctuate rapidly. It'll eventually settle down. Please try too keep a positive mindset while this is happening, I know it's hard to do when it's loud and unruly but it'll get better in time.
        Oct 1, 2022
        Joe Cuber and Forever hopeful like this.
      4. Forever hopeful
        Forever hopeful
        Thank you all. It is better now but I had to take some anti anxiety meds. It’s not gone but much quieter after I slept. It scared me so bad. I have had it loud in the last 3 weeks bit this was something else. No way I could live with that.
        Oct 1, 2022
        CRGC likes this.
      5. Forever hopeful
        Forever hopeful
        And just when I was starting to feel a tiny bit better.
        Oct 1, 2022
    23. Forever hopeful
      Forever hopeful
      Good Morning TT friends. Had some mild improvement yesterday. Probably more related to my attitude than the sound.
      1. Joe Cuber
        Joe Cuber
        Sep 30, 2022
      2. CRGC
        CRGC
        Happy to hear that! Any improvement is good improvement :)
        Sep 30, 2022
      3. Strawberryblonde
        Strawberryblonde
        Yes! Great to hear :)
        Sep 30, 2022
    24. Forever hopeful
      Forever hopeful
      Good Morning my TT friends. Welcome to Ground Hog Day! My least favorite time of day. Waking up.
      1. Ngo13, Joe Cuber, NYCGuy and 3 others like this.
      2. Strawberryblonde
        Strawberryblonde
        @Forever hopeful my audiologist recommended the " Resound tinnitus relief" app for masking if you are still looking for something to help with T. You can create your own sounds and mix and match. If you've not come across it already.
        Sep 30, 2022
      3. Forever hopeful
        Forever hopeful
        Had it for years and I’m using it now. I do use the mix and match. Thanks.
        Sep 30, 2022
        Strawberryblonde likes this.
    25. Forever hopeful
      Forever hopeful
      So I need to go on meds. My anxiety is out of control. Scared of meds. Remeron is good for T bad for weight gain and metabolism.
      1. NYCGuy, Ngo13 and Wrfortiscue like this.
      2. View previous comments...
      3. Strawberryblonde
        Strawberryblonde
        @Forever hopeful maybe try zoloft again on a lower dose and see how you get on with that?.
        Sep 27, 2022
      4. Forever hopeful
        Forever hopeful
        @Strawberryblonde. I’m considering but I was just reading some literature around tinnitus and SSRIs, particularly around the extra serotonin in the brain and how that can actually contribute to Tinnitus. I feel like we are damned if we do and we’re damned if we don’t.
        Sep 27, 2022
        Strawberryblonde likes this.
      5. Strawberryblonde
        Strawberryblonde
        Yeah it's a minefield when it comes to things like this unfortunately. Sometimes people benefit form ssris greatly, others it goes the opposite way.
        Sep 27, 2022
    26. Forever hopeful
      Forever hopeful
      Guilt. How to folks deal with it? You did something, You thought you were protected, you weren’t. How do you live with the guilt?
      1. NYCGuy, Tom Okay, Daniel Lion and 2 others like this.
      2. View previous comments...
      3. Gabriel5050
        Gabriel5050
        If I end up in a loud event I say I took the best decisions with the knowledge I had at the time or that the situation was out of my control. Because it's one of these 2. It helps actually not being very reckless with your hearing as if you're healthy.
        Sep 27, 2022
        NYCGuy and Forever hopeful like this.
      4. Forever hopeful
        Forever hopeful
        @BrOKeN_1 Can you come live me and tell me this every day? LOL the loathing and anxiety is making it worse. That’s what I feel when I first open my eyes in the morning.
        Sep 27, 2022
      5. Uklawyer
        Uklawyer
        Try to let it go. Be loving and compassionate with yourself. You wanted to live a bit; to enjoy something. You thought it through, you rightly took precautions. Unfortunately, things happen. Don't blame yourself. Look forward. Be positive like you were before. Focus on other stuff, as you have been doing. x
        Sep 27, 2022
        CRGC and Forever hopeful like this.
    27. Forever hopeful
      Forever hopeful
      So unfair.
      1. kingsfan, NTV, Joe Cuber and 3 others like this.
      2. MindOverMatter
        MindOverMatter
        Life can certainly be and feel unfair at times @Forever hopeful ...but at one point, down the road, I feel certain that you will get better again. The only way is forward.
        Sep 25, 2022
    28. Forever hopeful
      Forever hopeful
      Crazy. celebrated a birthday. Skipped a lot due to noise. Others no issues with volume. Clubs, music, their own screaming voices.
      1. Strawberryblonde
        Strawberryblonde
        It's the luck of the draw with these things in life. It robs you of enjoyment and being carefree especially enjoying yourself at a party.
        Sep 25, 2022
        Wrfortiscue, NTV, CRGC and 1 other person like this.
      2. AnthonyMcDonald
        AnthonyMcDonald
        Hey, my birthday was on the 24th. Happy belated birthday
        Sep 26, 2022
        Wrfortiscue likes this.
    29. BrysonKingMe
      BrysonKingMe
      I did not answer your question about how i am tapering.
      I have a compound pharmacy make a .1mg/ml oral suspension and I use an oral syringe to microtaper daily.
      1. Forever hopeful and NYCGuy like this.
      2. Forever hopeful
        Forever hopeful
        Thanks. That is a good idea. Are you on the US? Did your doc order it that way?
        Sep 25, 2022
      3. BrysonKingMe
        BrysonKingMe
        Hi,

        Yes I am in the U.S.
        My doctor is a complete idiot and told me there was no way to get a suspension made. I called a compound pharmacy and they told him how to write the prescription.
        Sep 25, 2022
    30. Forever hopeful
      Forever hopeful
      Had to deal with her barking dogs x15 minutes. Had ear plugs in thankfully. Right ear now screaming.
      1. Wrfortiscue and NYCGuy like this.
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  • About

    Gender:
    Female
    Location:
    USA
    Tinnitus Since:
    2015 resolved, 4/20 L ear, increase 2/21
    Cause of Tinnitus:
    2015,noise,2020-21 SNHL