Moni97

❤️

So good to hear @Moni97 Hope you are keeping well?

Hello @Ellaenchanted868 i started with heaviness in limps and pain in my fingers and now I’ve lost sensation all over from damage in my neck and lower back. Doctors think that my neck damage is causing my H and T, my H was slowly building over time till an acoustic shock sent me over the edge.I also experience hearing sounds after they’ve stopped, echoing, tinnitus and phantom sounds. Though

vibrations, high frequencies and water sounds are the worst. My own voice hurts at times.

I’m sorry we’re all going through this. Just remember to be kind to your ears

Glad to hear you're okay! Okay is better than awful. ❤️

I always end up buying stuff i dont need when i go the supermarket lol. I hope you enjoyed it? :) @Moni97

@Strawberryblonde i always buy more than I need or nothing at all anxiety and shopping is a strange combo

Oh, good!

Are you just taking the vitamin E in capsules?

@SarahMLFlemmer no , liquid oil

Are you okay?

Your tmj?

@haha ear go eeee im okay now
And @Strawberryblonde my everything was bad. My ear canals got so swollen it caused some serious sharp pains in and all around my ears

Ohhhhhh. Have any fun colors picked out?

Somewhat seems like a good word choice. I’m still very very mindful of sounds, volume and vibrations though my medication Cymbalta really helps my anxiety from those things. Honestly I recommend anxiety medication for anyone with TMJ as it’s brought down my facial pain from less clenching

@Moni97 How were you wearing three layers of protection?

@haha ear go eeee i would wear ear plugs, put wax plugs over those and then noise canceling headphones.

I understand , how long have you been dealing with tinnitus?

@Mattstarr251 honestly I don’t remember a time before tinnitus

do you know what caused it ?

Do you have a night time mouthguard?

No .-. I wear a retainer and didn’t think I could do both

@Moni97 I have one but it doesn't stop the clenching it just saves my teeth from crumbling :-/ maybe one would be more beneficial too you? Or a TMJ clinic may help with xrays or some kind of therapy :)

@Moni97 I am still early into my healing/recovery period but I have also decided to go the overprotection route for now. I've been wearing either ear muffs or plugs as much as possible and staying in my house most of the day.

@Moni97 Watching TV with no sound, reading, etc. Making adjustments and trying to keep myself busy/distracted. I think this is the best method. Allowing the ears to heal and then at some point trying to slowly re introduce normal sounds again.

@LostTruck I 1000% recommend overprotection rather than under. I have been able to reintroduce sounds back into my life(obviously very very mindful about volume vibrations and sounds I expose myself too BUT I am still in 24/7 protection though now I am mostly in ear plugs instead of plugs and headphones. I have only been without protection for max 5 minutes three times so far, 6 days between each.

I've recently developed some partial facial numbness/tightness & I'm not sure of the origin. My TMJD has gotten worse though with all the clenching around sound & hearing protection, so I wonder whether it's this agitating my TN.

Slowly getting through it. My TTTS is acting up but I hope it calms down soon. How are you?

@haha ear go eeee im sorry to hear that. I’m alright. Just struggling with my H. I have to wear protection 24/7 and ear plugs work best however my canals are swollen and need a break but I can’t wear my headphones without setting off my TMJ symptoms which is mostly face pain and sever nausea:D you ya know, just another day in this life

I understand both. Find blessings in every day and every moment, they're there!

What are you doing for the TMJD? Have you gotten any imaging to diagnose the problem?

@MadeleineHope As of right now nothing but cold compress and pain meds. My insurance covers no treatment options. And no I didn’t. Apparently I have enough tell tale signs from questions and physical exams.

Yeah!

@ErikaS im so sorry to hear that my friend. I just got back from a girls trip and suffered a setback myself .-.

Do you guys have hearing loss with your T?

@Mo8409 yes I had sudden hearing loss in my right ear from an ear infection back in September, that is what caused my tinnitus. However the HL is ultra high frequency so it wasn’t seen on normal audiogram that only tests up to 8k hz. my loss starts at 12k hz and going to about 17k. And that’s where my most debilitating sounds are ;( How about you ?

@Strawberryblonde No there wasn’t. Just the state and specifically the city I live in lifted the restrictions around fireworks so as soon as it’s nice out, people start letting them off.

@MadeleineHope im okay, just small setbacks. Where can I purchase NAC?
@sakrt STG! This is insane

@Moni97 glad to hear you're still doing okay :) I purchased NAC on Amazon; hope that helps!

Depressing how something so simple is now an achievement isn’t it lol. Happy for you though

Using them with earplugs is such a task lol

Seriously!! The shit that can effect never ends :( hope you are doing well despite the TMJ @Moni97 :) ?

@Strawberryblonde Im okay for the most part :) how are you doing?

Pretty much the same as you, doing ok, days ebb and flow and T not knowing what to do \0/ @Moni97

What kind of genres do you like, @Joe Cuber :) I got a wide music selection

Theres even a kpop song called TINNITUS of all things lol @Joe Cuber

https://www.youtube.com/watch?v=1QoSkGMQLx4
@Joe Cuber

I mean some music, yes. Softer stuff. (Not classical though, I think the piano/violin messes with me) But my ears get tired and achy from music. Someday are better than others though.

Same.

My poor parents. We might as well live in that town from footloose

For real @Moni97, where's Kevin Bacon when you need him!?



Answer: probably filming another EE ad.

https://www.youtube.com/watch?v=CffqKx369O4