Moni97
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Gender:
Female
Location:
Midwest United States
Occupation:
Funeral Staff

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Moni97

Member, Female, from Midwest United States

Either I take the Cymbalta like the Dr said or there will be a petition to give my mom medical guardianship over me. That’s where I’m at now Feb 3, 2023 at 5:16 PM

    1. Moni97
      Moni97
      Either I take the Cymbalta like the Dr said or there will be a petition to give my mom medical guardianship over me. That’s where I’m at now
    2. Moni97
      Moni97
      Welp. All tests are negative. So now my GP wants a psych evaluation. Cause apparently it may all just be my mind.
      1. Guywithapug
        Feb 3, 2023 at 4:55 PM
    3. Moni97
      Moni97
      GP said no. Knew how bad I am. Still made me come just to tell me no to my face. Hell get in trouble. I don’t want to do this anymore.
      1. Strawberryblonde
        Strawberryblonde
        What did he say no to? The LDN?
        Feb 3, 2023 at 4:12 PM
        Moni97 likes this.
      2. Moni97
        Moni97
        Yes. Because I’m not an addict and he’ll lose his license prescribing it.
        Feb 3, 2023 at 5:13 PM
    4. Moni97
      Moni97
      At the doctors and already in pain.
      1. ErikaS
        ErikaS
        @Moni97 so happy you made it there. Praying your doctor does the right thing for you.
        Feb 3, 2023 at 3:19 PM
      2. Strawberryblonde
        Strawberryblonde
        Good luck :) deep breaths though the nose and try and remain as calm as you can be given your situation :)
        Feb 3, 2023 at 3:26 PM
    5. Moni97
      Moni97
      Tomorrow I have to go to my Doctors to try and get LDN.. I’m so scared I feel sick.
      1. NYCGuy, JPGL and Strawberryblonde like this.
      2. View previous comments...
      3. Strawberryblonde
        Strawberryblonde
        Hormones make me pretty anxious at times and they definitely effect me and my ability to handle my T :-/ have you had a complete blood panel done? @Moni97
        Feb 2, 2023 at 10:17 PM
      4. ErikaS
        ErikaS
        Good luck, @Moni97 !! If unable to get there, are they willing to do over the phone with you ??
        Feb 2, 2023 at 10:45 PM
      5. Moni97
        Moni97
        @Strawberryblonde im just curious cause I got a lot worse at the end of my cycle. I have before but not since all this business with my ears. And @ErikaS I haven’t been able to use my phone in a month. My mother and partner have been making all my phone calls for me. My dr said he’ll only consider if I come in…
        Feb 3, 2023 at 8:36 AM
        Strawberryblonde likes this.
    6. Moni97
      Moni97
      I’m trying so hard to stay calm and positive but I have no safe place to run too.. Everywhere in my home is loud. I feel so helpless
      1. Sammy0225, tpj and Strawberryblonde like this.
    7. Moni97
      Moni97
      If I ever get to rejoin society again, I’m gonna start dressing like Fran Fine. Make everyday iconic.
      1. Sammy0225, CRGC, tpj and 5 others like this.
      2. View previous comments...
      3. Lurius
        Lurius
        Start talking like Fran Fine too xD
        Feb 1, 2023 at 6:55 AM
        Moni97 likes this.
      4. Leila
        Leila
        Go for it, @Moni97, we need more Fran Fines in this world!
        Feb 1, 2023 at 7:40 AM
        Moni97 likes this.
      5. Moni97
        Moni97
        Aw thanks for the support guys! ^-^ and @Lurius Im already Italian, my voice gets any louder or higher I’ll have to come with leaflet. xD
        Feb 1, 2023 at 1:42 PM
        Strawberryblonde and Joe Cuber like this.
    8. Moni97
      Moni97
      Life is so boring when your ears have declared war on the rest of your body.
      1. Joe Cuber
        Joe Cuber
        @Moni97 - Are there mindful activities you can do that will keep your interest? One thing I did a lot (like, seriously a lot) when my T first onset was jigsaw puzzles.
        Feb 1, 2023 at 1:15 AM
        twa and Moni97 like this.
      2. Moni97
        Moni97
        @Joe Cuber Unfortunately it seems my T and Nox react every time I move, even just my arm to pick up my phone. Maybe after some rest with double protection, I’ll give puzzles a try :)
        Feb 1, 2023 at 1:53 AM
        Sammy0225 and Joe Cuber like this.
      3. Joe Cuber
        Joe Cuber
        I hope your symptoms improve with rest @Moni97. My symptoms got worse in the beginning before they got better. I hope yours get better soon
        Feb 1, 2023 at 2:37 AM
        Sammy0225 and Moni97 like this.
    9. Moni97
      Moni97
      Woke up to a bad pain in my left ear, according to my db reader, there was a 81db sound at some point. Joy.
    10. Moni97
      Moni97
      I can’t do this.
      1. SamRosemary and NYCGuy like this.
      2. View previous comments...
      3. Moni97
        Moni97
        Hey @ErikaS What would you consider a low low dose of LDN?
        Feb 2, 2023 at 2:32 PM
      4. ErikaS
        ErikaS
        @Moni97 it seems many have started around 1mg and worked their way up to 4.5 mg
        Feb 2, 2023 at 2:42 PM
        Moni97 likes this.
      5. Moni97
        Moni97
        Ok. I saw some people start on .5mg or 1.5 and I wasn’t sure where The baseline was lol
        Feb 2, 2023 at 6:23 PM
    11. Moni97
      Moni97
      Terrified about the three hour round trip to the ENT tomorrow. God I pray my ears will be ok T.T
      1. JPGL, Sammy0225, NYCGuy and 1 other person like this.
      2. View previous comments...
      3. xyz
        xyz
        I have pain and loudness H. But it has improved compared to 2019/20 where it was bad. ANC is particularly good for these low frequency sounds which trigger pain H for me.
        Feb 1, 2023 at 7:33 PM
      4. Moni97
        Moni97
        I do as well. And it’s been getting worse since onset. What kind of ANCs would you recommend?
        Feb 1, 2023 at 7:46 PM
      5. xyz
        xyz
        I have the Sony WH-1000Xm3. Maybe now there are even newer versions of it. They are top ranked when tested for ANC. But you need to wear foam plugs underneath. Some messages "Battery 90%" are quite loud.
        Feb 2, 2023 at 4:47 PM
    12. Moni97
      Moni97
      Ok. So a sound near my L ear caused my R ear to flutter. But the same sound didn’t make R or L ear flutter when sound was next to R. Ideas?
      1. Sammy0225 likes this.
      2. View previous comments...
      3. Sammy0225
        Sammy0225
        From my own experience I noticed the flutter or spasms go hand and hand with H. By that I mean if I experienced the spasms it agitated my H also. I didn’t get medicine unfortunately I just prayed I’m time that it would heal on its own.
        Jan 30, 2023 at 11:14 PM
      4. Moni97
        Moni97
        @Sammy0225 you didn’t happen to develop Noxacusis did you?
        Jan 31, 2023 at 12:15 AM
        Sammy0225 likes this.
      5. Sammy0225
        Sammy0225
        I wanna say I was borderline I was starting to get deep stabbing sensations and nerve pain started shooting around my jaw and neck. I didn't get the burning but I feel it could have gotten to that point @Moni97
        Jan 31, 2023 at 5:21 AM
    13. Moni97
      Moni97
      Alright. Trying not to panic but does anyone else hear their eyes move??
      1. Sammy0225 and Joe Cuber like this.
      2. View previous comments...
      3. Moni97
        Moni97
        @Joe Cuber Since my AT it’s been at a 3-4 fluctuating different sounds in both ears. But yesterday my T dropped to a 1 in my R ear. I really only hear ringing when I’m inserting my earplugs. I’m concerned its SSCD or something like it. But I had numerous MRIs and CTs in the last two years that came back normal
        Jan 29, 2023 at 9:37 AM
        Sammy0225 and tpj like this.
      4. Joe Cuber
        Joe Cuber
        It's nice that it dropped to a 1, that's a positive. I hope it stays down there. Is there any reason to believe you have SSCD?
        Jan 29, 2023 at 4:07 PM
        Moni97 likes this.
      5. Moni97
        Moni97
        @Joe Cuber the autophony, hyperacusis to environmental and bodily sounds especially vibrations, PT, intense ringing when I shake my head, dizziness, T and headaches are all common symptoms of sscd.
        Jan 29, 2023 at 6:38 PM
    14. Moni97
      Moni97
      Throwing myself into meme wars and watching The Nanny reruns is turning to be a decent distraction.
      1. Sammy0225, tpj, Joe Cuber and 4 others like this.
      2. Damocles
        Damocles
        It's about time the Nanny returned.
        Jan 27, 2023
        Sammy0225, tpj, Moni97 and 1 other person like this.
      3. Moni97
        Moni97
        No kidding. Can’t believe they did Full House comeback but not the Nanny. *eye roll*
        Jan 28, 2023 at 1:57 AM
        Sammy0225, tpj and Damocles like this.
    15. Moni97
      Moni97
      I feel so discouraged. My hyperacusis just seems to get getting worse. Even my own voice irritates my ears. I don’t know what to do :’(
      1. View previous comments...
      2. Moni97
        Moni97
        Aw Sammy I’m so sorry :( I was hoping your setbacks wouldn’t be so bad. How are you handling it?
        Jan 28, 2023 at 12:41 PM
        Sammy0225 likes this.
      3. Sammy0225
        Sammy0225
        Thankfully it’s calming down took more less 6 days thank you for checking on me the last few days ^.^
        Jan 28, 2023 at 1:14 PM
        Moni97 likes this.
      4. Moni97
        Moni97
        Of course! ^-^ We all gotta be there for each other. My T is only spiking a few times a day now and settles within in 10mins. So yay us!
        Jan 28, 2023 at 3:02 PM
    16. Moni97
      Moni97
      I have an appointment with an ENT next week. After the last few days I’ve had, I’m so nervous to go. .-.
      1. View previous comments...
      2. Strawberryblonde
        Strawberryblonde
        I had a hearing test in June and it was OK. Just horrible with those headphones that block sound out cause alls you can hear is your tinnitus lol :-(
        Jan 26, 2023
        Sammy0225 likes this.
      3. Moni97
        Moni97
        Oh. Then I think I had one last year with my neurology team. I’m just nervous because I feel like my H is pretty severe. I really can’t handle any sound above 60db with protection on..
        Jan 26, 2023
        Sammy0225 and Strawberryblonde like this.
      4. Strawberryblonde
        Strawberryblonde
        I have H and it didn't effect it in anyway. But everyone is different. Do what you think is correct.
        Jan 26, 2023
        Sammy0225 likes this.
    17. Moni97
      Moni97
      Trying to stay sane. How is everyone else doing? I hope you all are having a good day <3
      1. NYCGuy, Ngo13, JPGL and 1 other person like this.
      2. View previous comments...
      3. Moni97
        Moni97
        How are you feeling today, @Strawberryblonde ? I hope everything is alittle better for you <3
        Jan 25, 2023
        tpj likes this.
      4. Strawberryblonde
        Strawberryblonde
        Still got annoying tooth pain but it keeps moving around my jaw so I think it may be jaw related rather than tooth issues, well I hope so anyway lol Dentist appointment Friday so we shall see! :) how are you @Moni97
        Jan 25, 2023
        NYCGuy, tpj and Moni97 like this.
      5. Moni97
        Moni97
        @Strawberryblonde Aw I hope they can help. Maybe try hot or cold compression and see if it helps? Can’t hurt right? :) and I’m ok, thank you for asking. Today T was a 3/10 with only a few anxiety spikes. After the few days I’ve had, I’m calling it a win lol
        Jan 26, 2023
        Strawberryblonde, Sammy0225 and tpj like this.
    18. Moni97
      Moni97
      If I pop my ears and yawn…my T gets quiet for a bit… what is that all about xD
      1. Ondine, Sammy0225 and Guywithapug like this.
      2. Uklawyer
        Uklawyer
        Eustachian tubes?
        Jan 24, 2023
      3. Moni97
        Moni97
        That’s what I’m thinking. Since every time I swallow my ears crackle.
        Jan 24, 2023
    19. Moni97
      Moni97
      Anyone else feel overwhelmed with anxiety in the morning? Idky, but I always wake up shaking with it, but tend to get better through the day
      1. Guywithapug
        Guywithapug
        Sometimes I feel this at the very end of the day when I lay down to sleep. Awful.
        Jan 23, 2023
      2. Strawberryblonde
        Strawberryblonde
        Some mornings I do wake up sick to my stomach and shaking and then other days I wake up feeling light and euphorically happy.
        Jan 23, 2023
        Joe Cuber, Guywithapug, tpj and 2 others like this.
      3. Moni97
        Moni97
        See my mornings, I’m always so anxious it’s sickening. Even when I’m tired and want to sleep in, I can’t. Like my anxiety is high off my T or something. I’m hyper aware of it in the morning. Which I feel is strange because most people seem to have a better time in the mornings then at night.
        Jan 23, 2023
    20. Moni97
      Moni97
      Ugh why is everything high pitched >.<
      1. View previous comments...
      2. Moni97
        Moni97
        @Joe Cuber you can say that again ._. I’m just hoping it’ll calm down soon.
        Jan 23, 2023
        tpj, Strawberryblonde and Joe Cuber like this.
      3. Joe Cuber
        Joe Cuber
        I hope so too @Moni97, it can be do exhausting to hear it constantly
        Jan 23, 2023
        tpj, Moni97 and Strawberryblonde like this.
      4. Strawberryblonde
        Strawberryblonde
        Yeah! it's awful especially when you can hear it through most things:( ugh.
        Jan 23, 2023
        Sammy0225, tpj, Moni97 and 1 other person like this.
    21. Moni97
      Moni97
      Does anyone else jump or cringe at visual images because we know they make sound that would be uncomfortable or hurt?
      1. NYCGuy and Sammy0225 like this.
      2. Sydney13
        Sydney13
        YES. especially tik tok when bishes be slamming their glass cups or throwing spoons on the table hahaha
        Jan 21, 2023
        NYCGuy, Moni97 and Sammy0225 like this.
      3. Sammy0225
        Sammy0225
        Lmao bishes.. deadddd
        Jan 22, 2023
        NYCGuy and Moni97 like this.
      4. Moni97
        Moni97
        Man, I can’t even with those. I was watching Ratatouille and I cringed each time they moved pots and pans even flinched during the bread scene. T-T
        Jan 22, 2023
        NYCGuy and Sammy0225 like this.
    22. Moni97
      Moni97
      Woo! Started eating again, slowly working through the anxiety \^o^/
      1. NYCGuy, Ondine, tpj and 3 others like this.
      2. View previous comments...
      3. Joe Cuber
        Joe Cuber
        Jan 21, 2023
      4. Ondine
        Ondine
        This is so great to hear !
        Jan 21, 2023
      5. Moni97
        Moni97
        Thanks guys! Your support means a lot. I know to some this doesn’t seem like a big deal but till yesterday, I had collectively eaten 7 times since going into sound isolation. I’ve lost ten pounds. Yesterday I ate throughout the day with minimum issue and it feels good to have some control over myself again.
        Jan 21, 2023
    23. Moni97
      Moni97
      My T really doesn’t seem that loud till I try to listen to it.
      1. Sammy0225 and NYCGuy like this.
      2. Strawberryblonde
        Strawberryblonde
        That's good that you can tune out of it you want too :-D
        Jan 20, 2023
        Moni97 likes this.
      3. Moni97
        Moni97
        Sometimes, then other times it hits like a fire alarm. It’s been up and down all day .-.
        Jan 21, 2023
        Strawberryblonde and NYCGuy like this.
      4. Strawberryblonde
        Strawberryblonde
        It happens, I've had a quietish week and now my head has static overlay and morse code has flared up again. I cherish the good times.
        Jan 21, 2023
        Sammy0225 likes this.
    24. Moni97
      Moni97
      I know I’m still new in this journey but this just doesn’t seem like a winnable condition..
      1. NYCGuy likes this.
      2. View previous comments...
      3. just1morething
        just1morething
        @Moni97, I don’t like SSRI’s or SNRI’s because of their bad side effects. I would sooner use Lyrica or Gabapentin. I did try generic Cymbalta but felt weird on it. I can’t remember all the side affects but I didn’t like it.
        Jan 20, 2023
      4. Moni97
        Moni97
        I was on Lyrica for about 7 weeks, but I suspect that’s what caused my sensitive hearing, then acoustic trauma sent me into full H. I was just wondering if you knew if Cymbalta affected the ears. I’m use to all the other strange side effects of antidepressants. I was on Prozac for a time, and felt like a zombie.
        Jan 20, 2023
      5. just1morething
        just1morething
        I don’t know if Cymbalta affects the ears as I wasn’t on it very long. I take Lyrica mainly for pain in my toes/feet at times. Lamictal doesn’t have noticeable side effects for me but that’s more of a mood stabilizer. I take 50 mg which is a low dose.
        Jan 20, 2023
    25. Moni97
      Moni97
      Welp… there’s a piecing sound in my left ear now and a droning sound in my right.
      1. Sammy0225 and NYCGuy like this.
      2. Sammy0225
        Sammy0225
        The drone usually pops it’s ugly head out when I get sick or ear infection once it clears up I’m sure the droning will fade away, sending positive vibes <3
        Jan 19, 2023
        Moni97 and Strawberryblonde like this.
      3. Moni97
        Moni97
        My GP says he doesn’t think I have an ear infection, just irritation from the foam ear plugs. My T keeps changing but it doesn’t bother me to much when I’m not wearing ear protection but becuz of my H and distortions, I’m always wearing protection. Feels like a vicious circle T.T
        Jan 20, 2023
        Sammy0225 and tpj like this.
    26. Moni97
      Moni97
      “Scurry, Sniff, Flinch!”- Uncle Max Lion King 1 1/2 aka when I learned I had anxiety
      1. Damocles and NYCGuy like this.
      2. Damocles
        Damocles
        Uncle Max throwing down some profound words of wisdom leading to an introspective epiphany, as usual.

        Typical Uncle Max.
        Jan 17, 2023
        Sammy0225, aura, ZFire and 1 other person like this.
      3. Moni97
        Moni97
        Growing up, I hoped I’d be like Nala or Sarabi. Grew up, and accepted I was most likely a Timon. Hyperacusis hit. I’m Uncle Max.
        Jan 17, 2023
        Sammy0225 and Damocles like this.
    27. Moni97
      Moni97
      Woke up to a spike in my T .-.
      1. Strawberryblonde, NYCGuy and JPGL like this.
      2. tpj
        tpj
        @Moni97, did you start the medication?
        Jan 16, 2023
      3. Moni97
        Moni97
        No I didn’t. I keep seeing to many horror stories about them on the forum. Now with this spike, I’m even more hesitant, not wanting to make it worse, while also acknowledging that it could remedy the problem.
        Jan 16, 2023
        NYCGuy, Strawberryblonde and tpj like this.
      4. tpj
        tpj
        @Moni97, how are the ears? Did you take the antibiotics?
        Jan 18, 2023
    28. Moni97
      Moni97
      Clinic gave me methylprednisolone and amoxicillin.. And I’m to petrified to take it. Anyone got any words of wisdom?
      1. JPGL, tpj and NYCGuy like this.
      2. View previous comments...
      3. Guywithapug
        Guywithapug
        @Moni97 I can understand the concern, ultimately the decision is yours to make. That said, amoxicillin is said to be non ototoxic and the prednisilone does a great job reducing inflammation, I believe you should be safe to take them but again it's your choice.
        Jan 16, 2023
      4. Sammy0225
        Sammy0225
        It sounds Like your over stimulated nerves are calming down! This is great news! Definitely be careful with new medication, depending on how severe the infection Is definitely consider taking something to stop the inflammation. As always best of luck (:
        Jan 16, 2023
        just1morething, sakrt and tpj like this.
      5. just1morething
        just1morething
        @Moni97, I think the doctor gave you the best meds for your condition. I recently took a tapered pack of methylprednisolone. One is good for infection and the other for inflammation. Maybe using an EarPopper and Flonase would help open up your Eustachian tubes also.
        Jan 16, 2023
        tpj likes this.
    29. Moni97
      Moni97
      for specialist before diagnosing myself with hyperacusis and tinnitus. 2/2
    30. Moni97
      Moni97
      Just got back from the clinic. Got small fluid in both ears and was told to start antibiotic and steroid treatment. Also told to wait 1/2
      1. NYCGuy, Damocles, Guywithapug and 3 others like this.
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  • About

    Gender:
    Female
    Location:
    Midwest United States
    Occupation:
    Funeral Staff
    Tinnitus Since:
    Whole life?
    Cause of Tinnitus:
    Unknown
    Hi I’m Moni, age 25, I have been suffering from an undiagnosed neurological condition for a few years, gotta worse February of 2022 and battling anxiety and suicidal depression since March 2021. And had episodes of tinnitus as long as I can remember. 1/2/23 I started experiencing extreme sensitivity to sounds. All sounds. Normal sounds caused an uncomfortable fullness and then stabbing pain. By my own research I realized that I had warning signs of hyperacusis (fullness of ear) for at least a month maybe longer. Honestly I just thought I was losing hearing because of nerve issues and because I could still hear, I just continued life as normal. Till I went to a New Years party with a DJ. And two days later, I woke up to everything being painfully loud. From what I’ve read, this would be my first major setback? I’m not sure. But I have been trying to avoid loud sounds and bracing normal sounds without ear protection because I read that makes it worse.. and I noticed that when I am in silence, my tinnitus starts at a high pitch and it cause my already high anxiety to go into over drive. I joined this forum for help, guidance and support because I feel like I’m drowning.