Moni97

I've recently developed some partial facial numbness/tightness & I'm not sure of the origin. My TMJD has gotten worse though with all the clenching around sound & hearing protection, so I wonder whether it's this agitating my TN.

Slowly getting through it. My TTTS is acting up but I hope it calms down soon. How are you?

@haha ear go eeee im sorry to hear that. I’m alright. Just struggling with my H. I have to wear protection 24/7 and ear plugs work best however my canals are swollen and need a break but I can’t wear my headphones without setting off my TMJ symptoms which is mostly face pain and sever nausea:D you ya know, just another day in this life

What are you doing for the TMJD? Have you gotten any imaging to diagnose the problem?

@MadeleineHope As of right now nothing but cold compress and pain meds. My insurance covers no treatment options. And no I didn’t. Apparently I have enough tell tale signs from questions and physical exams.

@ErikaS im so sorry to hear that my friend. I just got back from a girls trip and suffered a setback myself .-.

Do you guys have hearing loss with your T?

@Mo8409 yes I had sudden hearing loss in my right ear from an ear infection back in September, that is what caused my tinnitus. However the HL is ultra high frequency so it wasn’t seen on normal audiogram that only tests up to 8k hz. my loss starts at 12k hz and going to about 17k. And that’s where my most debilitating sounds are ;( How about you ?

@Strawberryblonde No there wasn’t. Just the state and specifically the city I live in lifted the restrictions around fireworks so as soon as it’s nice out, people start letting them off.

@MadeleineHope im okay, just small setbacks. Where can I purchase NAC?
@sakrt STG! This is insane

@Moni97 glad to hear you're still doing okay :) I purchased NAC on Amazon; hope that helps!

Depressing how something so simple is now an achievement isn’t it lol. Happy for you though

Using them with earplugs is such a task lol

Seriously!! The shit that can effect never ends :( hope you are doing well despite the TMJ @Moni97 :) ?

@Strawberryblonde Im okay for the most part :) how are you doing?

Pretty much the same as you, doing ok, days ebb and flow and T not knowing what to do \0/ @Moni97

Theres even a kpop song called TINNITUS of all things lol @Joe Cuber

Well THAT I did not know @Strawberryblonde lol!

https://www.youtube.com/watch?v=1QoSkGMQLx4
@Joe Cuber

I mean some music, yes. Softer stuff. (Not classical though, I think the piano/violin messes with me) But my ears get tired and achy from music. Someday are better than others though.

My poor parents. We might as well live in that town from footloose

Lol mon. Not too loud though.

For real @Moni97, where's Kevin Bacon when you need him!?



Answer: probably filming another EE ad.

https://www.youtube.com/watch?v=CffqKx369O4

Glad to see you improving!!

@eagerUser welp it certainly helps my mood lol
@ErikaS yes to all the above. It makes my H semi adaptable. Let’s me able to socialize and leave the house more, and as for T, it makes me less aware and anxious about it which tunes it down in my head.
It definitely helps my awareness of both.

@Sammy0225 slooooowly but surely I think lol how are you doing??

Snap!! Raining here too. Hoping for some sun for the Bank holiday easter weekend :D

Still just snowing here.. Breaking all the records!

I was indoors working all day, it could've rained and I wouldn't've even known lol

it is very important to start listening to music again. One of the best ways to facilitate habituation. :)

@Strawberryblonde I listened to mostly country and rap yesterday :) but I love all music, Im very polyJAMerous xD right now Im listening to Heather Dale which is folk type music

@InfiniteLoop I feel like it really is, though I will say that speaker and car sounds are still the hardest sounds for me to handle

You're a crack up @Moni97. Hope you're doing ok.

@tpj ive been doing good, Mum, how are you? Lol

Happy to hear that my adorable daughter :)

How are you doing my friends? :) @Strawberryblonde @Sammy0225

I'm not too bad a few ups and downs but otherwise feeling ok today :) @Moni97 How have you been?

@Strawberryblonde im doing alright. My ears seem better, I have T and H but with ear plugs I can function somewhat in the world again if I’m mindful. Mostly just tired lol

Do you sleep in silence @ErikaS ? I tried in the past for a good month and somehow managed to get decent sleep. A cold a month ago gave me louder T and a new tone with with recent bout.

@Strawberryblonde I usually am sleeping to the sound of our baseboard heating system, which isn’t loud in the room I sleep in but enough to be a background noise that mixes in with T. However, as weather gets warmer and heater doesn’t run all night, like last night, I slept in silence. Will be interesting when weather officially turns because the heating system is kind of like a security blanket for me.

@ErikaS yes I do. Actually I’m still in db 32 ear protection almost 25/7

So far it’s loud and uncomfy at times but the only pain is my swollen ear canals lol

Good luck!!

Definitely achy and sensitive today. Gonna take it real easy this next week or so. Hoping to bounce back

Anxiety/Stress response.. I don't grind my teeth. But if I don't have something to chew on I'll grit myself into a migraine.

Try the tip of the tongue at the roof of the mouth. My chriopractor suggested this for my clenching. That keeps the jaw in a relaxed position.

Same here when asleep :*(

Yes in my experience after pushing a small bit my ears felt achy and kinda throbbing the next day.

@Sammy0225 i appreciate the response. I went out shopping with my mom for a few hours Monday, I wore protection at all times but it was still a lot of noise exposure and my ears have been achy and a little more sensitive since. Maybe I pushed to far?

Your welcome and if it's achy still after 4 days just wait at least 7 before pushing into any other semi loud places. Good rule of thumb is try again after the achiness is 100% gone

Good to hear you got to enjoy some music :) @Moni97

@Strawberryblonde no music. Asmr. Idk why but music sets my ears way off.

Asmr is still good to listen to and very relaxing. Could also be the frequency of the music played perhaps :)

@Lurius Meaning a charming chatbot? ;)

@Strawberryblonde , with or without ear protection? Lol
@Lurius yeaaa at that rate I feel I’d be better off with a OF making feet videos with an accent xD
@ZFire idk if I should be gambling, don’t exactly have the best luck since I’m on this forum lol

@Moni97 both :)

ears take alot of time to recover. It can take months before seeing some progress

I know you’re right @Strawberryblonde :) I’m just impatient to live a life. I’m tired of being in my house all the time.

Ofcourse @Moni97 you are in the prime of life at your age and it should be enjoyed :) think of it as a little blip that will get better and thr prize will be you getting to enjoy life once more :-D

)

Asmr videos have been very calming and I have been using them for years. Fingers crossed you will be able to enjoy them soon :) @Moni97

Just curious, @Strawberryblonde, any particular you enjoy?

I'm subscribed to so many asmr artists atm lol I don't really have a go to artist as I enjoy them all, it depends on content :) the first ever asmr artists I liked was asmrmassage and Brittanyasmr. How about you @Lurius?