Angry!

So everywhere I read about this condition, it all says the same thing. "It's a riddle in the brain." This makes me so angry at government and society for not making others aware!!!

 

Dubbyaman the sooner you accept that nobody cares about tinnitus, awareness or us in general the better for you, less stress.

You've been here long enough now to see the tragedy happening amongst tinnitus community where those habituated blame those who are not, where mild cases are giving us a recipe how to get better and where the lethargy to do something is not sad but rather tragic!

We deserve this!

 

@Dubbyaman . Try not to stress. We all have it That's the bottom line. No cure is coming our way as yet.

 

You've been here long enough now to see the tragedy happening amongst tinnitus community where those who claim to be habituated blame those who are not (fixed it Val).

 

it is not as if they don't want to cure tinnitus. nobody has a clue how to.

 

The brain is a riddle, if anyone ever solves it I imagine we'll all just spontaneously vanish because the exit criteria for the Universal Loop will have finally been achieved.

There are no answers here, turtles all the way down, it can be fun to play with these concepts in meditative spaces, sensory deprivation tanks, or possibly in an Ayahausca ritual if you are strong of mind and spirit.

 

There is actually plenty of awareness, but admittedly, it seems to be in the wrong direction...

 

Paul Stanley speaks out regarding hearing loss

And

http://ultimateclassicrock.com/kiss-paul-stanley-hearing-loss-prevention/

 

There is however a definite lack of education about other causes of tinnitus than acoustic, including ototoxicity. My GP still remains convinced that only the sorts of drugs that might be given during chemo, or other extremely serious illnesses in hospital will cause it - appalling ignorance.

 

Its a known side effect of some old and common antibiotics and diuretics, drugs a GP has no business not knowing about.

 

I couldn't agree more. Having never really needed the doctors much until I became ill about 5 years ago, I had no strong opinions on doctors, but having needed them, I can honestly say that if I was as useless at my job, I would expect to be sacked!

 

@Sebastians Very good Paul Stanley video but notice how he just talks about hearing loss. He does not mention T or H. I'm sorry but to some people, hearing loss isn't as threatening as hearing a non stop noise that causes concentration problems, anxiety, depression, sleep disturbances and even suicide in some cases....and thats not even including the hell of Hyperacusis. There are tons of people who live just fine with just hearing loss. There's an article on the ATA website of a firemen's journey with T and it says right there in the opening, "Most people think of hearing loss as a peaceful day fishing at the lake but don't realize that that's not the case for some. It can also be non stop screaming in the head." I'm paraphrasing what it says but it's the truth.

 

I would choose to be deaf if that would mean complete silence!

 

All it takes is one good lawyer and a good payout for all this to change!

 

Or someone uber famous to get it badly to the point that others have gotten it that have silenced it all!!!!

 

Money talks better than anything!
Few millions in compensation would teach them a lesson!

 

Fear not! The counter-movement has already been started...

 

I've noted before, and its worth mentioning again that were we to flood our various nation's welfare services with claims for permanent disability then you would see some practical change.

 

Agree!
But tinnitus is hardly considered a disability and people may spend years trying to prove that they are actually disabled by it, with various results in the end, mostly negative.

 

One of the guilt trips a registrar at the Royal Ear Nose and Throat hospital gave me was:
"Millions of people have got what you have and don't even know it."

Implying that the problem was with me for just not being able to cope with it. And this was the UK's most reputable hospital for ENT based in London. I went there to get a second opinion, they fobbed me off with a registrar who has sent me for another round of TRT. He also pointed at my headphones and said "you have the hearing of a 45 year old (I don't) because you listen to loud music." I don't do that either, I use the noise cancelling headphones to protect my ears from noise because I have hyperacusis. A symptom he couldn't even hear me say apparently.

Funny story: because I knew they weren't going to take me seriously I already saw one of their consultants privately, £200 for 30mins. He thought I should be referred to a neuro-otologist. Strange how when you pay a doctor he thinks what you have is serious but when he's just on a salary and is over worked he just wants you out the door.

I will be putting in a complaint. I can't say I recommend the Royal Ear Nose and Throat hospital for anyone with Tinnitus as a symptom.

 

This happens in America too, with upper-tier private health providers no less. My own doc told me to "give it a month"; implying that I was freaking out over nothing. It's 10 months later and my tinnitus is still just as loud as day 1.

 

Then there will be floods of denials. In the US tinnitus is only considered a disability if you are a veteran, and only a partial one at that.

 

I asked this very question to the audiologist I met yesterday. He said that the assessment is typically done through the psychiatric route (even for non veterans), as you can't trust a "I can't work because I have tinnitus" statement since you can't measure it.

 

Grr, but tinnitus isn't a psychological problem!
It pisses me off to no end when doctors pass people with conditions they don't know how to treat off to a psychiatrist.

 

I think he was just talking about the assessment from the disability perspective, not necessarily the diagnosis or treatment.
Without any means of measuring T "from the outside", they're looking for a "plausible proxy". I guess it's too easy to lie and say "I have T and cannot work", but on the other hand I'm sure you can lie to a psychiatrist too.

What seems reasonable is that someone with intrusive T will probably have had some kind of contact with a psychiatrist somewhere in their T journey.

I admit it's a condition that is hard to establish from the outside. A good liar can probably fake a lot of it, so they may have to conduct an investigation with multiple clues collected to see if it "fits", not unlike what immigration officers do to spot "fake marriages".

 

I was pondering this since I posted above. We all know that this is a physical reality, but to an outsider who doesn't have it, it presents not unlike a "psychiatric" condition when they see us. I wonder if the same can be said for other chronic pain syndromes. I've been Nursing long enough to know how quickly we health care people pull out the "oh he's just putting it on to get more drugs" line. Sometimes that is true, but most times I think we just use it as a cop-out, and I've been as guilty of it in the past as any other Doctor or Nurse. (Kind of karma right back at me to find myself in this situation now).