Do You Know Other People Who Have Tinnitus?

Discussion in 'Support' started by EddieMar, Mar 30, 2017.

    1. Seymour
      Worried

      Seymour Member

      Tinnitus Since:
      2009 at least
      Cause of Tinnitus:
      Probably chronic ear infections as a child
      My mom has tinnitus and gets crazy spikes but she's like a rock mentally so she stays on top of it.
       
      • Optimistic Optimistic x 1
    2. Sybelle
      Mellow

      Sybelle Member

      Tinnitus Since:
      9/2010
      Cause of Tinnitus:
      Genetic predisposition/ compounded acoustic trauma/Antibioti
      It's a genetic predisposition due to hereditary hearing loss in my family. My brother, mother, uncle, and grandfather all had Tinnitus ranging from severely incapacitating to mild yet they are all currently habituated so the noise is imperceptible.

      I had habituated so completely that I forgot I had Tinnitus until two months ago after an aberrant spike that's still persisting two months later. I'm hopeful I can habituate again but this time I'm having musical ear syndrome symptoms too...I just can't stop listening to it.

      All the internal 'infrastructure' I had in place to attenuate the Tinnitus has just crumbled around me. Dear god, I cannot believe my ears can produce such a cacophony of sirens, wailing tones, crickets, and music. It's hell on earth living with this.
       
      • Hug Hug x 1
    3. jeas

      jeas Member Benefactor

      Tinnitus Since:
      October 25, 2018
      Cause of Tinnitus:
      TMJ/Neck
      My dad, he says his is 9/10 and can hear it over everything, including the shower. My cousin, same severity as my dads. Two coworkers, again severe, can hear it over everything.

      All four of them have severe hearing loss, and a history of operating heavy equipment, shooting guns, etc.

      They all live a completely normal life.

      I don't know how they do it.
       
      • Like Like x 2
    4. AUTHOR
      AUTHOR
      EddieMar
      Wishful

      EddieMar Member

      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Wish I knew
      Just bumping it in case there are others that would like to share.
       
      • Like Like x 1
    5. Sam Bridge

      Sam Bridge Member Benefactor

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Loud music/gigs probably
      My uncle, granddad, and my dad gets tinnitus frequently and I'm sure my mum said she does too. Do they protect their ears? Never. Strange ailment this is.
       
    6. Steph1710
      Old hag

      Steph1710 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Location:
      England
      Tinnitus Since:
      08/04/2020
      Cause of Tinnitus:
      Antibiotics - I think
      My Grandad, because of hearing loss.

      My brother-in-law, because of multiple ear infections as a child.

      My best friend, because of being a DJ. Oh and his dad, from using machinery.

      My parents-in-law's best friend, because of being death in one ear.

      My mother's best friend, unknown reason.

      My doctor, but his went away.

      Our cleaner, who had labyrinthitis (hers disappeared eventually).

      My lecturer's sister, who suffers with it terribly - apparently.

      The list goes on...
       
    7. Tatsopa

      Tatsopa Member Benefactor

      Location:
      France
      Tinnitus Since:
      2005 (Onset) 05/2020 (Worsening)
      Cause of Tinnitus:
      No clue
      A co-worker of mine has a pretty loud "hiss" in both ears for some years (she says she can hear it over everything) : it has absolutely no effect on her life.

      She admits the onset was kinda harsh though.
       
    8. wwtsai
      Assassinator

      wwtsai Member Podcast Patron Benefactor

      Location:
      San Francisco
      Tinnitus Since:
      Mild (2016) Bothersome (8/20)
      Cause of Tinnitus:
      SNHL
      My mom, uncle, grandfather, and sister-in-law’s father have it. Theirs along with their hearing loss onset in their 50s which is probably presbycusis? It's frustrating that my hearing loss started in my teens.
       
      • Hug Hug x 1
    9. SB1981

      SB1981 Member Benefactor

      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Multifactorial
      My father.
       
    10. GBB

      GBB Member Hall of Fame

      Location:
      NYC
      Tinnitus Since:
      2016-2019 (Mild, Cured) 8/2020 (Severe)
      Cause of Tinnitus:
      Virus / Microsuction / Acoustic Trauma
      Both my parents have it, but for them it is just a soft shhhhhhhhhhhhhhhhhhhhhhh that can only be heard in silence.
       
    11. Rjbookworm
      Brooding

      Rjbookworm Member

      Location:
      Western United States
      Tinnitus Since:
      05/08/2020
      Cause of Tinnitus:
      Ototoxic medication
      The lady who cuts my hair has tinnitus and she doesn't know the cause.

      My mom's ex-boyfriend who was in the military has tinnitus from 'shooting guns and blowing things up.' He did these things without hearing protection. He is still a family friend.
       
    12. twa
      Busy

      twa Member Benefactor Hall of Fame

      Location:
      US
      Tinnitus Since:
      2017- mild /Sept. 2020-moderate
      Cause of Tinnitus:
      meds/acoustic trauma
      How long have they had it?
       
    13. GBB

      GBB Member Hall of Fame

      Location:
      NYC
      Tinnitus Since:
      2016-2019 (Mild, Cured) 8/2020 (Severe)
      Cause of Tinnitus:
      Virus / Microsuction / Acoustic Trauma
      They are both over 60 - I doubt whether either of them could recall, unfortunately.
       
      • Like Like x 1
    14. Tanni
      Devilish

      Tanni Member Benefactor

      Tinnitus Since:
      October 2017
      Cause of Tinnitus:
      ???
      It would be difficult not to, as so many people have it. I can think of several, just off the top of my head.
       
    15. Orions Pain
      Sad

      Orions Pain Member Benefactor Hall of Fame

      Tinnitus Since:
      11/2019
      Cause of Tinnitus:
      Noise
      A couple of my friends have a barely audible "eee" when they have their pillow to their ear. A coworker has it, a bit louder (says he can clearly hear it sitting in a quiet room or car that is off). My mom has it but she also only hears it when it's completely silent.
       
    16. aot
      Depressed

      aot Member Podcast Patron Benefactor Hall of Fame

      Location:
      USA
      Tinnitus Since:
      2016. Worsened 11/2019.
      Cause of Tinnitus:
      Probably sound induced, worsened due to noise expouse + flu.
      My friend, due to noise exposure. (Doesn't bother her unless she's trying to focus on something in a quiet environment.)

      My mother, due to Meniere's Disease. It's severe, but doesn't seem to bother her at all.
       
      • Like Like x 2
    17. weab00
      Gloomy

      weab00 Member Benefactor

      Location:
      Joe Dart's basement
      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      some good mf music
      My dad, a trumpet player for 30 years, has mild tinnitus.
      My dad's dad had SNHL and tinnitus as a result.
      Congenital hearing loss from my mom's aunts and her kids.
       
    18. Michael B
      No Mood

      Michael B Member Benefactor

      Location:
      San Diego
      Tinnitus Since:
      '11
      Cause of Tinnitus:
      Noise Induced
      When I first got tinnitus, I told people that I had it and was surprised at how many people told me that they had it as well. I was shocked and asked why they never mentioned it thinking they all have it like mine. Most told me it didn't bother them. That was when I realized that not all tinnitus is created equal. Now I'm hesitant to tell anyone thinking they'll tell me the same.
       
      • Like Like x 1
    19. AUTHOR
      AUTHOR
      EddieMar
      Wishful

      EddieMar Member

      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Wish I knew
      Bumping it, in case there any other people that would like to add. I find it therapeutic to read that others have it and seem to live a completely normal life.
       
      • Like Like x 1
    20. convolution

      convolution Member Podcast Patron Benefactor

      Location:
      Sweden - Italy
      Tinnitus Since:
      26/11/2020
      Cause of Tinnitus:
      White Noise from Headphones (likely)
      My PhD advisor has it, he got it 14 years ago. I do not know how loud it is/was, but he told me that he needed antidepressants to cope with it. My uncle has it too, and from what I understood it is on the moderate side like mine ("it blasts when I try to sleep", "I can hear it while speaking", "some everyday sounds mask it, some do not"); he got it more than 20 years ago but kept using chainsaws and power tools without hearing protection. They are both doing fine, I never ever imagined they could have it (until I asked). Other people told me they have a bit of tinnitus, but "a gas leak that I can hear only if I plug my ears or I am in a quiet room" is not classified as tinnitus to me.
       
    21. kingsfan
      Mellow

      kingsfan Member Benefactor

      Location:
      Southern California
      Tinnitus Since:
      9-17-20 / 10-20-20 / 3-31-21 / 5-23-21
      Cause of Tinnitus:
      turning everything up to 11
      My stepdad. I don't know how bad he has it, but he's worked in mechanics, fixing and repurposing factory machines for many years.
       
    22. AliasM
      Depressed

      AliasM Member

      Location:
      Australia
      Tinnitus Since:
      September 2020
      Cause of Tinnitus:
      Botched lumbar puncture, CSF leak.
      My mother got it at 38. She is 70 now and she said it bothers her still, every single day.

      Her father, my grandfather, came home from WWII with it.

      My friend has it, born same year as me (1978). She got it 3 years ago. She said she hasn't bothered seeing a doctor or anything because it's quiet and she just got use to it.

      My uncle has it in one ear. He played in bands (guitar and lead singer) all his life. He said it is a high pitch ring but not that loud and only hears it when he thinks about it. Had it almost 50 years.

      My husband's old boss said he hears a roaring both ears. He is now late 40s and had it since his 30s. Never bothered him apparently. Fairly quiet and only hears it in the dead of night. It changed from a constant high pitch whistle to a low pitch roar literally overnight apparently about 5 years ago.

      A friend of my father's, in her 60s. Fairly quiet, doesn't bother her apparently.

      None seem to have it loud and intrusive like I do. Indeed not all tinnitus is created equal. None of the aforementioned would have come to Tinnitus Talk in despair looking for support like so many do, myself included.

      I have asked them all (except my grandfather, deceased) how they were when it first started. They all said they weren't too bothered. My mother said she was mad though because she got it from wearing headsets at work and the pay wasn't worth life with tinnitus.
       
    23. Rainer

      Rainer Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      12/2020
      Cause of Tinnitus:
      Unknown
      Absolutely. It just came to my mind that the chasm between these types of tinnitus might be comparable to the difference between ordinary sadness and clinical depression.

      This may lead others to mistakenly believe they can assess the situation because they know the condition from their own experience.
       
      • Like Like x 1
    24. AUTHOR
      AUTHOR
      EddieMar
      Wishful

      EddieMar Member

      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Wish I knew
      Any others?
       
    25. DimLeb

      DimLeb Member

      Tinnitus Since:
      14/03/2021
      Cause of Tinnitus:
      Idiopathic Cochleopathy Or Maybe Loud Music
      I very recently learnt that my mother has it (60+ years old)... Apparently it doesn't annoy her at all so she didn't bother to tell me all these months that I'm "struggling" with it.

      I have it generally mild but it's multi-tonal and sometimes it doesn't let me sleep. However, being a musician and a by nature anxious person, it hit me hard like a truck and I'm so afraid of it getting worse.

      She also seems to have a similar set of sounds and can do the same modulation move by clenching the jaw as I can do. It's weird how many close people might have it and you may never know.
       
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