I Think This Is the End

Discussion in 'Support' started by Nathalie, Dec 29, 2016.

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    1. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      I think you should be ok but could always see if your doctor will prescribe steroids a few days.
      Mine goes off especially if hubby is frying food and sets the other one off and my ears spike for a few hours.
      Try stay calm so you don't feed your tinnitus with stress ..
      Lots of love glynis
       
    2. AUTHOR
      AUTHOR
      Nathalie
      Sad

      Nathalie Member

      Location:
      Tallinn, Tallinna linn, Estonia
      Tinnitus Since:
      10/2016
      Cause of Tinnitus:
      Unknown
      Yeah I am trying to stay calm and not think about it too much. I hope all is well and what I am going through is just temporary.
       
    3. Foncky
      Tired

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      March 2004
      Cause of Tinnitus:
      Music. Balloon. Genes.
      The low battery alarm is not as loud as the fire alarm I think.

      But you should put it elsewhere, next to the bed is not ideal.
       
    4. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      @Nathalie
      The best advice that I am able to give you from my own experience, on being exposed to brief loud noise is to try and forget it. I doubt any damage was caused. The ear is quite resiliant so just put it behind you and try to focus on the future and getting better. Try using sound enrichment at night using a sound machine by the bedside, keeping the volume low, preferably below the tinnitus. It will also help to desenstise your auditory system and thus treating the hyperacusis.
      Michael
       
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    5. AUTHOR
      AUTHOR
      Nathalie
      Sad

      Nathalie Member

      Location:
      Tallinn, Tallinna linn, Estonia
      Tinnitus Since:
      10/2016
      Cause of Tinnitus:
      Unknown
      Yes I agree, not an ideal location. It has been there for years and even after getting T I didn't really think about the location. I have learned my lesson now.
       
    6. AUTHOR
      AUTHOR
      Nathalie
      Sad

      Nathalie Member

      Location:
      Tallinn, Tallinna linn, Estonia
      Tinnitus Since:
      10/2016
      Cause of Tinnitus:
      Unknown
      Thank you Michael for your advice. I hope no permanent effects were caused. The ear should have a protective mechanism as well, right? Especially if you aren't exposed for too long. I try and not worry about it.
       
    7. Foncky
      Tired

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      March 2004
      Cause of Tinnitus:
      Music. Balloon. Genes.
      Even at full blast, those things are not that loud. In my country, the norm is 85dB at a 3 meters distance. But boy this is not a pretty sound.

      The stapedius reflex is the protective mechanism so yes, your ears have it.
       
      • Helpful Helpful x 1
    8. AUTHOR
      AUTHOR
      Nathalie
      Sad

      Nathalie Member

      Location:
      Tallinn, Tallinna linn, Estonia
      Tinnitus Since:
      10/2016
      Cause of Tinnitus:
      Unknown
      You guys have no idea what I am currently hearing on my phone...honestly shocking and heartbreaking. I will tell about it later when I can. What the heck...devastating.
       
    9. Foncky
      Tired

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      March 2004
      Cause of Tinnitus:
      Music. Balloon. Genes.
      So just hang up the phone and use it only for taking more self-portraits :cool:
       
      • Funny Funny x 1
    10. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      @Nathalie
      Trying not to worry about it is the right approach. You haven't had tinnitus and hyperacusis long. Understandably you are concerned but to help reassure you, please read the following post below that I recently wrote. Although it addresses hyperacusis, the same advice applies to tinnitus.

      Hyperacusis, As I See It.

      Some members have asked for my opinion on hyperacusis as they are finding it increasingly difficult to live with. They want to know if there is a way of treating this condition so that their life can become a little easier? Or whether it can be completely cured? For a few it has become so distressing they have decided to only leave their homes when it’s absolutely necessary. This is because of the fear of making the symptoms worse, by subjecting their ears to the hustle and bustle of everyday road traffic noise and other environmental sounds that we are all familiar with.

      Reading some of the posts in this forum, one can easily see that certain people daren’t leave their homes without first checking they have their earmuffs and an assortment of earplugs in various degrees of attenuation, in readiness for any potential environment that they happen to find themselves in. The cinema, nightclub, restaurant, or on public transport. If money is no object aspiring to custom made moulded earplugs for some is the way to go. It can bring the added assurance they will be getting the best hearing protection. Whether this is true or not doesn’t really matter because it’s what the person believes and this helps to give them that peace of mind which is something many of us strive for at one time or another.

      The above may seem a little extreme until I tell you one member provoked a lot of discussion here, when he mentioned having the air bag in a car that he had just purchased disabled in case it was deployed in an accident. I suppose the thought of 170 decibels raining down on his auditory system and the possibility of his tinnitus and hyperacusis shooting through the roof was too much too bear and is more important than a potential life saving device. As strange as this might seem, others have discussed doing the same thing elsewhere on the Internet.

      I am not an expert in this field but do have the experience of living with very severe hyperacusis that was brought on with the onset of my tinnitus twenty years ago due to loud noise exposure. It was so severe; conversation with someone at times caused immense pain. However, it was completely cured in two years with TRT and having counselling with a hearing therapist. I wore white noise generators for 10hrs a day and used a sound machine throughout the night until morning for sound enrichment. My tinnitus had reduced to a very low level.

      Some people believe hyperacusis cannot be cured and if treatment such as TRT works then it merely suppresses the condition. In the event of future loud noise exposure it will return and the condition will be worse than before. I believe it's up to the individual to take care of their hearing and not subject themselves to loud noise exposure. However, accidents do happen as in my case. I have previously explained in this forum that my tinnitus increased to very severe levels in 2008 due to noise exposure so won’t go over it again. To my surprise the hyperacusis did not return and has remained the same till this day, completely silent.

      This summer I went onto the Brighton Pier and into the arcade. The place was a hive of activity and many people were using the slot machines. Music was playing and mixed with loud laughter so everyone seemed to be having a good time. I had my sound level meter and also a sound App on my mobile phone. Just in case things got too uncomfortable I had my noise reducing earplugs with me that reduce sound levels by 18 decibels. This was a test and not something I normally do or recommend anyone else to try.

      The sound level in that place remained constant at just over 100 decibels. My ears didn’t feel uncomfortable and I felt no pain. I stayed at the venue for 30 minutes and then left.

      The next morning my tinnitus was silent and I experienced no symptoms of hyperacusis. I do not believe that it is a good idea for someone with tinnitus or hyperacusis (or both) to wear earplugs or noise-reducing earplugs with filters too often, because it’s possible for the auditory system to become hypersensitive. In some cases it could make matters worse and cause a condition called phonophobia. This is literally having a fear of sound.

      I used to counsel someone that had phonophobia like symptoms although she wasn’t diagnosed. This person had hypercausis that gradually got worse and at every opportunity she kept away from sound. This got so bad going out the front door because of the noise was a problem. Her ears couldn’t tolerate the sound of the microwave, dishwasher or the washing machine. She even complained of the sound of rain falling on her conservatory roof that was made of glass. Fortunately she has improved.

      There is much discussion on this in the medical field from experts saying that the overuse of hearing protection isn’t good and therefore discouraged as it will lower loudness threshold and I completely agree with this. I think if one isn’t careful they can become paranoid over sound making their hyperacusis and tinnitus worse and I don’t think it’s healthy.

      I believe the answer is to seek proper treatment. If TRT is unavailable then start using a sound machine by the bedside at night for sound enrichment. This usually helps to desensitise the auditory system. Try going out for long walks and getting used to everyday sounds instead of keeping away from them by staying at home. I don’t normally recommend anyone to use white noise generators unless they are under the care of a hearing therapist. However, if your tinnitus is under control and you have habituated but experience hyperacusis, that some call: Reactive tinnitus. Then white noise generators could be the way to go. Two should be used to keep the auditory system in balance and set the volume level low, preferably below the tinnitus. This will help to desensitise the auditory system and treat the hypercusis.

      Hearing protection is important and does have its place. If I am going to venues where I believe noise level could become loud then I have my earplugs with me. Night clubs, parties etc. I would always use them at the cinema although I haven’t been to one in years. Reading some of the posts on this forum people say those places can be very loud.

      When I use my petrol lawn mower or electric power tools for those DIY jobs around the home, I always use my ear defenders. I want to live life and enjoy it. Not to be living in fear of hearing a fire truck or ambulance siren coming towards me and I have to panic and quickly insert earplugs or reach for earmuffs to protect my hearing. I just think this is overkill.

      Michael
       
      • Helpful Helpful x 1
    11. AUTHOR
      AUTHOR
      Nathalie
      Sad

      Nathalie Member

      Location:
      Tallinn, Tallinna linn, Estonia
      Tinnitus Since:
      10/2016
      Cause of Tinnitus:
      Unknown
      Lets just say I now truly know what my "loving" mother and brother speak of me behind my back. I called my mom and the phone answered but no one was talking, all I could hear was them talking in the car driving.

      I heard them speaking about me and I continued listening and I witnessed them saying all the opposite things they say to me every day. I have literally been stabbed in the back. I cannot believe this just happened.

      Maybe it was a sign I was given to realize I have no real family or supportive people in my home. Maybe it is a wake up call to me. I am actually glad it happened because better be a painful truth than a beautiful lie. It is still shocking.

      My mom and brother basically talked about how unbearable I am as a person. My mom said that she has had a hard time with me since I was like 10 years old and now I am impossible to deal with. She said she is tired of me and plans on sending me away in about a year max. She told my brother I must leave home and get out. Sooner the better. She said she can't stand looking into my face. She said my eyes are evil. She said I am toxic. A person that only brings negative energy. There was more to it but I don't wanna say it out. It was simply heartbreaking. She even told my brother that in the future he must distance himself from me and move far away so I cannot see him. She told my brother that I can only communicate over the phone.

      She warned my brother of me and told him to never start living close to me. She told him she wants him far away from me. As far as possible. But the most bizarre is what my brother said. How he responded. He agreed to all she said. He told her that he has loathed me for a long time and I am the source of all our family problems. He told her we would be better off without me. He said I am a total idiot and I deserve nothing.

      He said he will be happy the day I will be finally gone from their lives. He said he cannot stand me. I would have never expected this from my brother. I genuinely thought at least he cared about me among all the others who had abandoned me. And guess what... when they came home they found me in my room (with a locked door of course, I dread their faces now and do not wish to see them). My mom asked what the hell is wrong with you now. I said I just want to be alone and please let me be. Then she freaked out and started bashing me. I admitted I had heard their talk through the phone. Then she said great, now I don't have to do any additional talking.

      Afterwards she told me to go fuck myself and get out. I am still in my room and thinking about what the heck just happened. First the loud fire alarm, now this. Each time I feel like there is a light at the end of the tunnel the opposite happens.

      And guess what? I hear them talking just now as I am writing this post. Still bashing me. They know I am able to hear them. She is blaming for listening to their conversation via the phone. Well am I really to blame? After the alarm incident, I wanted to call my mom and say I have a panic attack, that I love her and I am feeling really dizzy from all this anxiety, please tell me some comforting words so I feel better. And I wanna talk to my brother too. But instead, I called and the phone instantly answered...no one was talking to me but I could hear them talking about what a burden I am. Most likely the phone answered by accidentally something pushing on its buttons. I am sorry but I don't see where my blame is. I really don't. Not this time. If someone wants to say something to me, whatever it is, say it straight to my face. Not rant about what kind of a bad person I am behind my back for 20min straight. I loved my mom and my brother. As of now I don't know anymore. I feel betrayed and for a good reason.
       
    12. AUTHOR
      AUTHOR
      Nathalie
      Sad

      Nathalie Member

      Location:
      Tallinn, Tallinna linn, Estonia
      Tinnitus Since:
      10/2016
      Cause of Tinnitus:
      Unknown
      Right now I am more suicidal than ever. But I wanna fight and survive. I don't wanna give up. No matter what. I REFUSE to give up. I am not gonna kill myself. I am not gonna let them win. They will see me rise from the ashes. They will witness me thriving again. They will see that I am a true warrior and NOTHING can strike me down. I will strike way harder. I will get back up. I WILL GET BACK UP. I will wear my weakness as my armour and wield my strength as my sword. The sword is sharp and will cut deep. The armour is strong and won't perish. This is not the end. I won't let this be the end. Some walks must be walked alone.
       
      • Hug Hug x 3
      • Agree Agree x 1
    13. lolkas

      lolkas Member

      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Don`t know
      Girl, you strong!
       
    14. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      @Nathalie ,
      I think you could benefit from family counselling and your mum and brother.
      There is a bond and that can be worked on over time as it can be a clash of personalities feeding off each other and hormones and health issues and each not know where to go from here.
      Space apart and sitting down together talking is better than a slinging match of insults etc.
      I'm sure you can move forwards with this but I still don't think it's a place on tinnitus talk for family fall outs other than tinnitus problems and emotional support through your tinnitus journey.

      I'm sure family relations counselling is the best way and doctors support and sycologist support too.

      We all care for you on here and we will always support you but we are not trained like the Samaratins or Mental Health.
      My goal in Life is to work voluntary as a Samaritan and I have a good understanding and listening ear.
      I think a nutural person can help you work on problems together and help you and your mum work through this difficult time.
      People can not hear what out tinnitus sounds like and how we feel and what we might have been able to shrug off as nothing can become a big issue when we feel stuck in a rut needing help.

      Sit and talk together calm and not shout and work on ground rules and feelings .
      Life does not come with rules only the law so you all can work on your relationships and amend broken bridges and start caring again for each other and listen to each other's concerns, feelings and fun times.
      Do some nice things together away from home and look forward to each pamper time
      ..stay strong this will get better and can be turned around.
      Lots of love glynis
       
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    15. billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      Don't panic Nathalie. According to these two sites, that short exposure to the alarm sound shouldn't do permanent damage. Hope that any spike it generates is temporary because your ears are still a bit unstable in the healing phase. Perhaps unplug the alarm for the time being until someone can replace it with a new one. In the meantime, T may try your patience with some spikes. Try think of yourself a few years down the road when T is no longer an issue with habituation or with it fading slowly. That way, you won't sink into a mental black hole every time T throws a curveball your way. Take these as the little bumps on the road towards final habituation. Keeping positive and calm will help healing any spikes much faster as the nerves are not in hyperactive stage, thus calming down any hyper neurons that generate the T signal. Here are the sites with some guidelines on various noises and their dBs:

      How loud are various noises and dangerous duration of exposure:

      http://www.dangerousdecibels.org/education/information-center/decibel-exposure-time-guidelines/

      http://www.gcaudio.com/resources/howtos/loudness.html
       
      • Helpful Helpful x 1
    16. billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      Nathanie, I am sorry to hear about your latest issue with your mom and brother. I guess frustrations at this challenging time in the family lead loved ones saying thing they don't mean to, just to let out their frustration. This is call ranting, and worse it ranting not realizing it is being heard. We do that sometimes to people behind their back when they offended us. This may not reflect their true feeling. As Glynis said above, there is a bond of kinship, of flesh and blood, tying all members of the family. When the tough time is over, there will be renewed feeling of love between each other.

      I can kind of relate to your situation growing up. I was a troubled teen and was near joining youth gangs. My parents had a hard time dealing with me, leading my father literally saying in frustration in one of our fights 'you are the worst among my children and you are just hopeless!'. It was a blow to my young mind, but kind of like what you posted above, I used that to motivate myself the fighting spirit, wanting to prove to my parents that I will succeed beyond their wildest dream. I decided I would work hard to prove that I will be their pride and joy in the family among all my siblings. I put that in action to study harder than never before, and I joined a Christian group. From there I learn the miracle of forgiveness and Christ like love, and I realize that I had much to do with my parents' frustration with my riotous youth. I began to show acts of love and gesture of care to them instead of the usual confrontation and yelling. I learn to forgive them for what was said as I also forgive myself for my silly youth.

      I went on to university, as the only one among my siblings, and to graduate with summa cum laude, the top honor in our graduating class. Then I went into IT as a software engineer, dealing with state of the art computer systems. This was back in the early 70's when hardly any one heard of computer, not to say designing and programming them. My parents were more than amazed at my transformation and they feel so proud of my achievement among our relatives. Of course I didn't really do all that solely to prove them wrong. Perhaps initially as a motivation to kick off the transformation but eventually is because I want to excel in life and explore my intellectual potential. But as I grew older and having faith in Christ, I realize the error of my youth and understand why my parents were so frustrated with me. It is out of love and respect for them and for my own dream that I wish to excel academically.

      I hope you will climb over this mountain in your life right now. It is tough for a young girl to deal with all this but I have faith in you and your intelligence. Try to forgive them and forgive yourself. Try, if you humanly can, say sorry to them that your struggle with tinnitus and hyperacusis have bought them so much pain and trouble (as they don't understand the gravity and severity of our sufferings and the impact on our emotions) and ask them to forgive and be patient with you, and that you will endeavor to change for the better. This is not easy to do for your young age. But this may prove that you are stronger than them in solving this problem. Try not hate them. Try understand and forgive. It may bring about a miracle to resolve the family problem. I am sure your mom loves you a lot if there is a way she can go forward living in peace and harmony with her children. Some one just needs to do the braver and stronger move to break the viscous cycle of frustration and mistrust. I have faith in you Nathanie, because you are a deep thinker, and you are capable of doing things a normal soul can't do. You go girl. Cheers.

      God bless,
      Billie
       
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    17. Lex
      Blah

      Lex Member Benefactor

      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Bad decisions
      I was just going to make a comment on how it amuses me that a thread named "I Think This is the End" doesn't look like it's ending soon. :p Hope you're feeling better today, @Nathalie. And even if you're not, hope that you'll feel that this, too, shall pass. Good or bad, nothing lasts forever. Take care.
       
      • Agree Agree x 2
      • Hug Hug x 1
    18. derpytia
      Pooptoast

      derpytia Member Benefactor

      Location:
      Rescue, California
      Tinnitus Since:
      04/2014 (many increases since then)
      Cause of Tinnitus:
      Progressive hearing loss / noise / ETD
      @Nathalie I just graduated from school for music about 6 months ago. I used to sing and play music and listen to it all the time (I sang soprano 1) I understand totally and completely how you feel. I mean it. I was you when my T first started three years ago. I'm you right now with my newest increase. If you ever want to talk to me, feel free. Because I literally was in your shoes. I almost took my life twice and I'm glad I chickened out each time. There is more to life than this T though I know it is hard to see that at this time.
       
      • Hug Hug x 3
    19. billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      @Nathalie hope you are doing ok. Remember you have friends here on this forum. If you need support or wish to rant your feelings please do write to us here. You are so young to having to face these challenges in health and family issue all alone. Sure hope that you and your mother can reconcile and move forward with love and affection.
       
    20. John Meyers
      Artistic

      John Meyers Member

      Location:
      Chicago, IL
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Just One (1) Loud Rock Concert!
      Hello Nathalie. You are young and have your whole life ahead of you. -- Call a helpline and get some help.

      Tinnitus sucks but shouldn't push you over the edge. You will habituate.

      As you mentioned, your challenges are deep rooted but you can break free and be your own person. -- Break from the mold that you are stuck in.

      There is a lot of help out there but you need to take the first step. -- You can do it. -- I can tell by your writing and self-analysis that you are smart too. :)

      Sincerely,
      John
       
    21. Amber
      Depressed

      Amber Member

      Location:
      Alberta
      Tinnitus Since:
      03/1999
      Why haven't you posted in weeks. Are you OK. Your tinnitus went away?
       
      • Creative Creative x 1
    22. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      She was last seen yesterday.
       
    23. AUTHOR
      AUTHOR
      Nathalie
      Sad

      Nathalie Member

      Location:
      Tallinn, Tallinna linn, Estonia
      Tinnitus Since:
      10/2016
      Cause of Tinnitus:
      Unknown
      Didn't go away, everything remains the same. I am very very busy at the moment with work and school, let alone family matters. I am sorry I haven't said anything in a while.
       
      • Hug Hug x 1
    24. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      Off topic but how big was that balloon?Did a hot air balloon pop beside your head?Had no idea those things could do so much damage.
       
    25. Foncky
      Tired

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      March 2004
      Cause of Tinnitus:
      Music. Balloon. Genes.
      This was a regular kid sized balloon, not hot air or anything special.

      140dB in my face several times (because of the closed environnement).
       
      • Hug Hug x 1
    26. Sam Bridge

      Sam Bridge Member Benefactor

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Loud music/gigs probably
      Several times? Were there multiple balloons?

      I wonder how the kids hearing is..
       
    27. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      He's talking about the sound reflecting off the car's "outer frame" and bouncing back towards him.
       
      • Helpful Helpful x 1
    28. Marie79

      Marie79 Member

      Location:
      USA
      Tinnitus Since:
      2/1/16
      Cause of Tinnitus:
      Ear infection
      You are VERY early on in your T. You WILL feel better about that. I promise. I wont' lie and say I'm "there" yet but I am leaps and bounds better than when if first started. Hold on longer. It DOES get better
       
      • Hug Hug x 1
    29. Foncky
      Tired

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      March 2004
      Cause of Tinnitus:
      Music. Balloon. Genes.
      No, just one bang, but the sound goes back and forth because of the closed windows of the car.
       
    30. Alue
      No Mood

      Alue Member Hall of Fame

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      Do you think it might have just been the straw that broke the camel's back? My acoustic trauma was in a small enclosed space with metal walls.
       
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