My Trip to Bangkok: Stem Cell Treatment [Comments]

Discussion in 'Treatments' started by Markku, Aug 18, 2013.

    1. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      Amen to that.
       
    2. BBApple

      BBApple Member

      Tinnitus Since:
      05/2007
      Cause of Tinnitus:
      Virus? Noise?
      You're right on all counts!

      I had stable T for 9 years and often used to think I didn't care if a cure was found as it just wasn't an issue for me anymore.

      Then things changed in October when reactivity started and progressively worsened. Every person's T is different as well as its effect on their quality of life.

      You're absolutely right. If you come back cured, many of us would likely follow.
       
      • Like Like x 1
    3. Hopeful1
      Depressed

      Hopeful1 Member Benefactor

      Tinnitus Since:
      04/2016
      Cause of Tinnitus:
      Loud Music
      If it works for bill i will be next in the queue for stemcells.
       
    4. lambos

      lambos Member

      Tinnitus Since:
      May 5 2013
      Cause of Tinnitus:
      unsure
      Are there any Stem Cell clinics in North America?...i thought i read of one in New York!..TIA
       
    5. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      Can someone give me a clear idea of how this might actually help?

      I keep researching what they believe to be wrong with us and I just can't see how sticking SC's in your blood would help?Am I missing something?

      For instance,synapses,haircell death,SGN's its a lot for this treatment to correct,I'm just beginning to doubt myself now
       
    6. Samantha R

      Samantha R Member Podcast Patron Benefactor Ambassador

      Location:
      Geelong Australia
      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Unknown
      @lambos yes there are plenty in the US. They use adipose stem cells. The clinic in NY noted a handful of patients who came in to receive treatment for other ailments, noticed an improvement in their tinnitus following treatment.
       
      • Informative Informative x 1
    7. Hopeful1
      Depressed

      Hopeful1 Member Benefactor

      Tinnitus Since:
      04/2016
      Cause of Tinnitus:
      Loud Music
      • Like Like x 1
    8. RaZaH
      Cheeky

      RaZaH Member Benefactor Hall of Fame

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      That is obviously a lot of money for something that only has tiny chance of doing anything.
      Not a lot of money if it were guaranteed to work though.

      And in fact , if i am correct , the ones here that have done this have not had any result to speak of , maybe ATEOS but that is one person , and that one is a maybe.
       
    9. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      Have to say Razah,after you've been in contact with these clinics they rub you up the complete wrong way,saying things like"100% safe"which it's not and saying things like this in broken English"we will treat you and you can hear clearer and more normally and have better quality of life"which they can't quarantee,they know this as on the health check sheet they send you there's a little box you have to tick that says"you know this is a treatment and not a cure and has no quarantees"

      There are a few red flags popping up with every single one I contact and it's worrying,also the lack of success isn't exactly hope inspiring,ATEOS seen improvement but as you said it's just a maybe.I have another few clinics to check out one being in NYC that actually seem,on the face of it,to be very honest when it comes to the treatment.Time will tell.
       
      • Like Like x 1
    10. VRZ78

      VRZ78 Member Benefactor

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      Viral Infection
      It's strange because on the website of SC21 they never state for any of the diseases they treat that it will cure them. For example for T they say it may soften it or sometimes make it disappear.

      But it's true that none of those clinics inspire total confidence. It's a huge risk...

      But if it was me I wouldn't try clinics in USA. They can only use your own stem cell as they are not allowed anything else.
       
    11. RaZaH
      Cheeky

      RaZaH Member Benefactor Hall of Fame

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      There was this Korean guy that did at least demonstrate some results in audiograms?
      Found this somewhere on the forum , maybe even in this thread.
      Maybe someone can pitch in with info about that?
       
    12. RaZaH
      Cheeky

      RaZaH Member Benefactor Hall of Fame

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      If you could hear "clearer" they would probably have some audiograms do show that ? Do they ?
       
    13. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      The sceptic in me wouldn't believe their audiograms,what's to stop them screwing the results to make it look like a huge success and a good investment?Thats how I look at things,always with a sceptical eye.

      Besides my hearing is good,it's unbearable T and H that's my problem which I believe is a result of synapses.

      I have zero loss from 0-10,000hz and can still hear frequencies up to 16000hz quite easily.Sine wave tests showed zero dips in my hearing also.
       
      • Like Like x 1
    14. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      The guy I spoke to asked me to bring my own set of recent audiograms to Bangkok with me,didn't know what to make of that if I'm honest.

      He also gave me an email address to a guy who was successfully treated for T there.I tracked the email address back to a company in the U.K that specialises in aircon equipment along many other things.

      I don't want to give out his name or personal info for obvious reasons but as of yet I haven't heard back from him,for all I know the same people running SC21 are probably running this business also,more digging to do.
       
    15. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      I done minimal research on him(Korean guy),all I've found is pictures of him with other known scientists like Stefan Heller and the likes.Anything else I found was in Korean,there's another member here whose been following him and has way more info than I do.
       
    16. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      I have the email,they speak overly optimistic about the outcome of these procedures even though there's little data to back them up.

      When I had a call with the representative there he started naming out people who seen improvement from DJ's to construction workers,it's all anecdotal but as I said above he did give me an email address to a person treated there successfully,be interesting to see how that turns out.
       
      • Like Like x 1
    17. VRZ78

      VRZ78 Member Benefactor

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      Viral Infection
      Yeah he has been discussed in the hair cell regeneration thread there are a lot of info and a mail.
      I think he's worth the try if there is nothing else...
       
    18. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Wasn't @monacco going to get a treatment in Bangkok? It looks like his account on here disappeared too...!?
       
    19. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      What does he purpose to do?What sets him apart from everyone else?I mean if Heller can't do it then why should he?

      Just things to think about,it was an honour for him to meet Heller a leading researcher into hearing loss who as of yet hasn't regenerated hearing in a single human so how does this guy think he has all the answers?From meeting Heller once for a brief period of time?

      That's just the way my mind works when it comes to these sort of things.
       
      • Like Like x 1
    20. VRZ78

      VRZ78 Member Benefactor

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      Viral Infection
      Mail of the Korean guy: info@cmclinics.com
      His website http://cmclinics.com/
      This is his international website it's a bit shitty he has an official website in Korean which is more professional but the link is lost in the research thread.
      I mailed him and he told me that the treatment consists in intrathympanic injections of stem cells + growth factors. Price is 6000 USD
       
      • Like Like x 1
    21. VRZ78

      VRZ78 Member Benefactor

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      Viral Infection
      As I understand University researchers aren't allowed to use treatment in humans or they have to go with a lot of administrative regulations. Treatment on humans are most often done in collaboration with a company as part of clinical trials.
      Plus treatments on humans are expensive so they need funds.

      I'm not a scientist so I'm not really sure but that's what I gathered from readings...

      So maybe there are less regulations in South Korea.
       
    22. VRZ78

      VRZ78 Member Benefactor

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      Viral Infection
      What sets him apart is that he seems to have visited or collaborated with respected researchers and that he has a lot of audiograms on his website to show improvements.
      Cons is that we haven't read patient testamony but we didn't find a Korean speaking person to help. Also some stuff on his website are cheap like "best Regenerative clinic in the world" and the improvements on the audiograms are not huge.
       
      • Like Like x 1
      • Agree Agree x 1
    23. RaZaH
      Cheeky

      RaZaH Member Benefactor Hall of Fame

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Yes, some of the audiograms are impressive m some within error margins and could just be flukes, (5db improvement for example) and some actually look worse , again by 5 db or so , could be error margins?
      At least his audiograms dont seem to be hyped up fakes.
       
    24. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      The price doesn't sound too bad if I'm honest,6k compared to 35k is nothing to be sniffed at.

      I'm going to do more digging on him and see what I can find,it's difficult as nearly everything is in Korean.
       
    25. VRZ78

      VRZ78 Member Benefactor

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      Viral Infection
      Yeah he seems to use more the speech tests in his latest treatments.
      I guess there is a margin of error in that too like if it's always the same words in the test I guess
       
    26. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      I just emailed him too,hopefully he will get back to me soon.

      I'm actually considering doing this treatment,the cost isn't too much and he does seem to have credible credentials.Ill try anything at this point.
       
    27. bill 112
      Fine

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      I'm emailing him now as we speak,so far he's impressed me.

      He isn't trying to sell me anything,he's asking me questions to ascertain whether he can help me or not which is comforting as it tells me it isn't about money to this guy.
      Just thought I would post a little update.
       
      • Like Like x 1
    28. lambos

      lambos Member

      Tinnitus Since:
      May 5 2013
      Cause of Tinnitus:
      unsure
      Thanks Samantha!!....i had also heard of a Stem Cell center in Mississippi.
       
    29. Samantha R

      Samantha R Member Podcast Patron Benefactor Ambassador

      Location:
      Geelong Australia
      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Unknown
      @lambos. Yeah, there are quite a few clinics around the US.
      Due to FDA regulations, they are limited to what they can do.
      Thailand - not as much restriction.
       
    30. lymebite
      Vegged out

      lymebite Member Podcast Patron Benefactor

      Location:
      United States
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Unknown
Loading...

Share This Page