Neuromonics

@Steve I posted that last reply before I remembered to ask you what was the ANM trial? How long did your worsening tinnitus and horrendous hyperacusis last? What did you do about it? I know everyone is different, but I am experiencing that right now. I guess misery really does love company. Just as there is no path to happiness: happiness is the path. Right?

 

@Steve Also what are Team Awareness and Team Research? I have a feeling for Team Trobalt, and Team Tech is pretty self-explanatory. Really, your posts about Neuromonics is what brought me to join Tinnitus Talk. They seemed upfront, level-headed and accurate. I found them on a Google search. Thank you!

 

Thanks @Markku. I will look at this thread.

 

You can read what i'm doing in the Research thread. It's the Vagus Nerve Stimulation Study.

 

@svintegrity Thank you for your response. I have two kinds of T... One is a beeeeee sound the other goes with my heart race.I am glad you didn't settle and found the root of the problem. Also i wish you a very good luck in your procedure.Please let us all know how it went. Thank you

 

@labrat10687 Read about study. Very interesting. I hope it is going well for you!

 

@Rog Thank you for your good wishes. I have pre-op tomorrow.

 

ANM is Acoustic Neuromodulation, I was on the UK trial for it. The hyperacusis lasted for (I think) around 4 months before it subsided. I used sound enrichment where I could but otherwise didn't do anything special apart from staying away from situations that would cause me discomfort. The recovery just happened naturally, far quicker than when I first got it many years ago. First time around was harder, maybe more because of the shock of it and my lack of understanding of the condition due to poor medical care. I used a mix of self-CBT and white noise generators at that time.

It's a shame that you found the thread after you got the device, it feels wrong that figures and statements are thrown around when the evidence base is flimsy at best. I really believe that this sort of advertising shouldn't be allowed if the studies are not good enough quality to back it up.

 

@Steve I agree on all counts. Thank you for your informative posts!

 

LadyDi wrote:
Anyway, I was offered two options beyond trying to do it myself with an MP3 player:
Neuromonics Oasis: $5,900 (ouch). Device is not returnable.
Widex Zen (even though I don't have a hearing problem): $3,200. Most of my investment can be recovered within 60 days if I am not satisfied.

These prices indeed are outrageous. But I do feel I would benefit, as the aud agreed, as I will feel I am doing something to help myself. I still am on very very low doses of alprazolam, which isn't ideal, but the aud said were low enough that it still would be effective. There was no high pressure to buy, though. The prices include rechecks and counseling sessions.

So: What are members experiences here with these devices? I have already read some of the many posts on here, and see the opinions are mixed. I agree the prices are absurd. But I am willing to pay it if it helps.

A good read and expose of some in the audiology business:

Have I Got A Hearing Aid For You.

http://www.abc.net.au/radionational/programs/backgroundbriefing/2015-04-26/6407390

 

My audiologist recently told me that Neuromonics is in the process of developing an app for IOS devices (I think similar to it's serenity device)? The app is reportedly scheduled to be released for purchase sometime in Feb. 2016. In the meantime, Neuromonics is offering a free trial to the first 250 people who sign up. You can sign up by filling out a form on their website: neuromonics.com (on the right side there is a box titled "sign up now, free downloadable product offer").
It took about 48 hours for Neuromonics to send me the link to download the app and I'm listening to it right now. I'm hoping that this will be a way to try a sound therapy that I could not have afforded otherwise

 

Good for the folks @ Neuromonics.

Another way to rip off those who couldn't pay $5,000 for their sound files, but can pay less out of desperation.

They must have made millions of dollars out of the "treatment", since it's pushed by many audiologists, but funnily enough they haven't decided to invest in a proper trial. All their trials so far are flawed and inconclusive.

I'm interested if it works for you.

 

Windex hearing aids! I got a free set because my hearing problem was job related. I got all the bells and whissels and they do help by the distraction to the brain. I do not think they will lower the noise envolved with having t's . They are like a hopped race car because of the Zen features and white noise features. I have been wearing pretty much 11 months now with no problem. You would think you would get tired of the gong sounds but most of the time I don't hear it. But the t's are still there! I can also play other music (MP3) and that is a nice feature. I do not wear them to bed because I think I could damage the lead wire running from the hearing aid to the speakers. Anyway any more questions about these devices?

 

I see Neuromonics is selling something new called The Refuge directly for $275 + shipping. I don't know if it's any better than downloading your own tracks at SimplyNoise, iTunes etc. though.
http://neuromonics.com/relief-ringing-ears/

 

I've just been offered Neuromonics. Would I pay the $4k to have my tinnitus removed or quietened? Hell yes. However, it would have to be assured before I'd give up my hard earned.

 

This dispaire that en riches thé charlatans

 

The app has recently been released by Neuromonics. However, during the trial period, I honestly found it difficult between work and taking care of the kids to listen to it 2-4 hours a day (plus I find that I get very sleepy when I listen to the tracks). I'm still planning to make an effort to give this a real try--maybe over the summer when work settles down.

 

I think for the price, it's worth a try. Better than outlaying $5k and not to have it make a difference.

Might make it my night time listening. I'm normally in bed by 9 anyway.

 

I just got an email yesterday from Neuromonics Inc about their new "Tinnitus Alleviator" now available for use with IPads and IPhones. you can get a free one week trial so I signed up and tried it last night. I can find virtually no information about it, as I have several questions and just emailed the contact listed on the email, hoping he will get back to me tomorrow.

Has anyone here tried this yet? I assume it is a home version of one of Neuromonics products that they sell through Tinnitus specialists, but wondering if it is different at all. The email also offered a 30% discount on orders now.

 

If your t is not mild it 's a waste of money. Despaire that enriches the charlatans. Keep your money

 

Neuromonics are a scam, avoid at all cost, it won't help.

 

I know I've heard that from others. Has no one had any success with it?

 

I put this somewhere on this site a few days ago. As you can tell, am not much into all this technology. I do know about the Neuromonics device as I purchased it in 2007 from the Hearing Center in Knoxville, TN. Did a hearing test on me and said I would benefit. The cost was between $4,000. to $5,000. to me. Would have to look up paperwork. I even called the Rep. in Australia where the device was made at that time. After a while with no results I transferred my records to Duke University Audiology. Have made 2 trips there. Still wear the device 2 hrs. a day. Would do a lot of investigation on this product before purchasing. I was desperate and alone. Although, the price at Duke would have been half the cost to me; didn't know they offered it at the time. Maybe helpful.

ibelievetoo in NC

 

If you had no results, why are you still using it? And there seem to be several different products made by Neuromonics. I don't know if this new one, the Tinnitus Alleviator, is different from all the others.

 

This really shows that doctors don't know all the answers and they are just as much in the dark about tinnitus as the rest of us, it's true that music therapy work for some and some it don't because tinnitus can subjective to many different ppl it effects everyone differently in some way, of course the only pattern we notice is dizziness and constant ringing. Doctors may not know everything about there is to know about the human body especially the brain, but they are getting lots of dollars for whatever their degreee in, with that said dont never take everything the doctor says to heart, some partialy actually looking out for your health or others are their just to make money.

Read this article about this girl who suffered through it and recovered from it, it will inspire you and give you hope.

http://www.xojane.com/healthy/getting-through-my-twenties-with-tinnitus

 

Sooo...very late to this thread. I have been trying to find something to match my frequency with no luck, but I have no idea how to figure out what my frequency is.

I do have the chart here from my recent hearing test that shows where the high-frequency hearing loss lands (red=right, blue=left)

Is someone able to interpret this for me??

 

I did a search and I found that this link was not published: it's a clinical trial about Neuromonics
https://clinicaltrials.gov/show/NCT02829073

 

I saw a new Audiologist last week to try and get a new frequency match since I suspected my pitch had changed from my original match of 4K. I was not able to say with any certainty what my frequency is. I kind of settled on 6K but it really wasn't quite right. There was a limitation in their equipment that only allowed frequency matches in 1K increments. I honestly don't believe it makes much of a difference in my case. I've used every sound protocol known and not much has changed. What has happened is by some miracle I am suddenly able to ignore it and go about my life.

 

Are you using the Neuromonics system? Remember, their goal is to help you habituate, which it sounds like its doing