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Somehow i did get a HUGE spike from that kids birthday even tho i wore earplugs thru the entire 3 hours... stil very tired and felling abit "off" in the neck so hope that is the reason. the spike is only in one ear. Suchs a boomer....
I think my addiction to caffine is keeping me from having meaningful improvement. But how does one live without it? Cocaine isn't an option.
MindOverMatter
Caffeine is, as you know, a stimulant - especially in higher doses. I still drink coffee, but max two small cups before midday. After noon I drink only decaf.

I would consider cut down on the amount if you consume a lot.
Now my TTTS is back. Since this eventually went away for me and only occasionally flared up, I'm sure it will subside again but I'm scared that it won't. It's one thing after another
Everytime i feel more "normal" i go to a kids birthday and realize im still VERY senstitive to noise. Im sitting thru kids crying, screaming, laughing and 2 ballons pooped like 4-5 metres away. Its like sitting on the normandy beach during WW2 and parents just sit there and smiling at the kids and think they are sooooooo cute.... (had 20-25 DB earrplugs) still very loud to me tho
Hello Nes you still take clonazepam occasionally?
Nes
  • Nes

    Nes

Hello! I think the last time I took clonazepam was when I was hospitalized in June and couldn't sleep because I had bad tachycardia. Otherwise no, I don't really need it lately. But I keep pills in my bedside table just in case
This world can be so beautiful, but just as twisted. I hope you all experience silence within your life time. No one deserves discomfort.
I log in usually every time there's a change or a spike. So that means, I am experiencing a spike right now unfortunately. Very quiet morning and then sudden loud ringing with some numbness. Hope it all comes back right but I guess I'll wait and see.
Just wanted to reach out and say that your posts are bringing me massive calm. Thank you 🙏

Sending happiness and tranquility vibes. We got this !!! 👊
S
E
Thank you Sonia. Both links are certainly full of optimism for sure.

May I ask, how would you describe your situation regarding tinnitus before this happened ? I read one of your posts describing how you'd lurk here sometimes even without that last encounter.

I really do appreciate you. Thank you!
S
Before this happened, I had very mild tinnitus in my left ear. My right ear had always been silent. I have no idea what caused the original tinnitus in my left ear, but I've had it for as long as I can remember. Most of the time, I only noticed it in quiet rooms and it never bothered me. I just accepted it as something that was there and once my attention was diverted, I didn't notice it at all. I never even noticed it trying to get to sleep at night.
I recently got sick, and am experiencing SSHL. My left ear feels clogged and I can't hear anything! It's been 3 days please help. I'm terrified this is permanent.
Was on a "real resturant" for the first time in my life after i got worse tinnitus..... Lord what a nightmare, like 90 people talking simutainlously and those sitting next to us shouting and being very noisy. Hard to hear what people around me were saying so would say it was 80-90 DB. Luckily i had my Moldex 35 DB earplugs in. Was only for 1 hour but i was totally exhausted after.
It's now been over 10 months and I don't have the feeling that anything has improved. No habituation in sight... This can't really be my life now.
Having a weird spike for a couple of days now. Been exposed to one scream pretty close to me, one door getting shut HARD by the wind because a window was open and hammering in a couple of nails fixing my roof (of course with dualprotection). Think it will be subsiding i a couple of weeks but a little bit annoying to get a boost in the sound
I miss my old life going out without any problems seeing world clearer hearing much better. I will never forgive that doctor and myself never ever.
Got hit with a sinus infection after not being sick for quite some time. Tinnitus wasn't that bad during the illness, but yesterday when all infection symptoms were gone, whoaaa did my tinnitus spike. Need reminded, is it normal for delay tinnitus spike following illness and it more than likely isn't the Amoxicillin? (Spike came on 3 days after starting amox.)
Sodlin
Agree with mind over matter. Its probably because the sinus and stuff like that keeps being swollen even tho the infection is gone which make the spike take 2-3 weeks to calm down AFTER ur feeling good again
ZFire
Sounds about right. My tinnitus got temporarily worse only after I started feeling better from a bad cold I got 2 months ago. Not only that, but my hearing in my left ear was muffled pretty badly. This took about 2 and half to fully resolve back to "normal"
ErikaS
Thank you for the reassurance! Unfortunately, my sinus infection was resistant to Amoxicillin, I developed worsening sinus pain and pressure by day 5-6 and it worsened with each day. I just started Cefuroxime last night since I cannot take Augmentin with my T. I don't think I've ever taken Cefuroxime before but I am hoping it is one that can fight this off. Now I have to decide to do a Medrol pack with it. It was recommended to help the severe inflammation in the sinuses. Thoughts? Experience?
Two weeks. Still spiking. :/
Sodlin
What was you exposed to that made u spike?
orenge01
@Sodlin I was exposed to like a construction reel while I was operating it for a short while. But yeah it's better now, been able to sleep better now too :)
Sodlin
Glad to hear the spike is going down! We must live our lives! I was at a kids birthday today. 3 hours of kids screaming and crying and 2 ballons pooping like 4-5 metres away from me (got this 20-25 DB earplugs which i can conversate with pretty easy) it really takes ALOT of energi to be able to get thru those days.
If my ocd goes away and i can go back in time i can heal myself september 25 2024
S
Have you seen any improvement at all in any way over the last year?
delta784
no mine got worse despite staying at home most of the time. its been 11 months
S
Hang in there. This stuff takes a long time to resolve. Some people don't see improvements until after 1 year. I'm 7 months in myself, going into month 8. This stuff rarely lasts forever. Are you getting any help for the OCD? That can exacerbate your symptoms as well.
School started today. We had an info event in the auditorium and clapping and cheering of people made my ears feel worse again.
I woke up at 5 am just now. My head really hurts and it's never been this loud before I'm so panicky :( I can't think of anything else but it's so so so loud and I feel like I'm back t square one. I'm so scared.
kingsfan
It's just loud because you woke up at a strange time
Being in extremely hot temperatures lowers my tinnitus by about half. I only realized this past summer and I'm sure it's related to either muscle tension or vasodilation. Something to remember
This condition is endlessly frustrating. Had the quietest day in almost 5 years yesterday for no apparent reason. Made me hopeful. Then today happened... and well. You all know I'm sure. Damn the luck.
MindOverMatter
Thats the relentless nature of t @BrOKeN_1 Embrace the good day you had, knowing that there will be good days coming again. Don't let the bad days dwell too much in your mind.
Tryn2BHopeful
Been there many times.
orenge01
Hey, at least you had a good day I guess. :/ This condition is so damn relentless, I'm going through a spike currently that doesnt want to fade away no matter how hard I seem to try, sleeping quality is decreased too. All we can do is keep our hopes up I guess.
My tinnitus is often lower when I'm exhausted. That's a good news because tinnitus is exhausting lol
Nes
Actually, my hyperacusis is almost completely gone today. It makes no sense, I'm running on 2h of sleep
This is my full name and where i live

Alpay Tunc AGE 29

Istanbul/Bayrampasa 34035

I cannot bear with this anymore. I don't have guts to hurt myself but im tired my heart cannot take it anymore i never thought this will be my life but here we are please hug to your loved ones. If you have mild moderate tinnitus you can live, i never done loud things. mine is medication induced because of clueless ENT take care.
H
Are you managing to sleep at all, if not that something you can try to help first. Are you still taking clonazepam?Is it helping at all?