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dreamer16
I hate that we must ''rehabituate'' when it gets worse all over again. It's crushing and people without it will never understand.
Sodlin
ive always wondered if my TT is bc of muscle from just anxiety/OCD. I have been stretching for 2 days since i got a quite nasty spike that i had for 2 months. After i stretched my TT is like 8-9/10 instead of 6-7/10 and its been staying for days. Maybe my muscles are just messed up from all the stress from this condition after all these years???? Should ill keep stretching or just let it be is the question.
dreamer16
I'm unable to tune it out whatever I do
BrOKeN_1
That's the real issue isn't it. We don't realize we've tuned out at times until we stop trying to tune it out. Its exhausting to be sure.
dreamer16
Yap.. My family members do not understand. My uncle had it for more than 20 years and he says it doesn't bother him. after days of self harming and hitting myself because of it and then telling about tinnitus to a family member, she says ''you don't really suffer from it'' something along those lines which is bullshit, they don't understand
delta784
I will suicide soon i have no other option at the age of 29. One simple mistake i read from these forums methylprednisolone intravenous ruined my life. My life was heaven. I never went to loud places i was asocial but one f'ing medication ruined my life. I have visual snow syndrome some nox dysacusis and tinnitus most bothersome is tinnitus by far
Eric N
Hang in there, tinnitus can really be unforgiving all it took was a 30 second dentist drill session and now I have a spike from hell
S
Maybe just spend some more time healing. Peace and quiet for a few months. Get some CBT and work on yourself inside. I know how it feels to want to die because of these conditions. I never did loud things either and got this from an ear infection. I had zero control.
4Grace
Hang in there. You are not alone in your suffering. It could get better for you. Hope. Please hang on to hope. Anything can happen.
ErikaS
Six and a half weeks since my most severe bout of MEM/TTTS vibrations started in my right ear. It is so frustrating and mood crushing. Things that gave me relief or took it away in the past (chiropractor ear adjustments) don't seem to be working right now.
D
Do you have it in many-hour episodes, like triggered by yawns, hiccups, stretching? Does it stop when you close the ear with your finger or wearing an earplug/earmuff?
ErikaS
@DimLeb My version of it is a pretty constant rumble/vibration in quiet, I can hear and physically feel it, like a car idling. It stops when another sound is heard, but comes back more aggravated once that sound goes away. Like if I talk, as I talk it stops, but once I stop talking it comes right back. I can also calm it/stop it with a finger in the ear. It is at its worst after driving.
JJL
Hi - any even 5% help from doing the NYU tDCS study? Where did they place the electrodes?
W
I'll share a detailed report in a month or so. While I was using it, I felt some mild improvement. But I wasn't tracking it very systematically so I took a couple months off and have been tracking my tinnitus so I can see if it actually improves when I start again in a couple weeks.
W
The clinic I am working with built the headset custom to place the electrodes in the correct spot. I sent them the study and a measurement of the circumference of my head.
Sodlin
Seems like the tinnitus is really flaring up now and mostly on the ear i hit with the rake. Im feeling very low at the moment and sad, im really struggling to find the tools how to make progress with both H and T that keeps spiking and i would say in the last 2 months it got like 20 % louder. :(
delta784
Grodan how are you :(
GrodanB
Bad, really bad. But soon it will again be another level of bad. Nothing good happens anymore. Im negative, im sorry. I thank you for asking though, i really do appreciate it.
Tryn2BHopeful
Think I got a new "pure tone" in my left ear... its relatively low atm, I don't hear it all the time and is maskable unlike all the others but is definitely new... ugh... Even avoiding everything and protecting my ears... Trying to not feel doomed. My right ear on the other hand seems to be doing better than it was, but still loud. The "hum" is still very hard to deal with.
Sodlin
Urk im so clumsy. Was out in the shed with earmuffs to remove all the leafs that blow in during the winter. Stepped on a rake that went up with full force and hit my earmuff... Little bit panicky now since it was very loud on the plastic but hope it will not make a spike.
Strife_84
Caffeine again affects my T. This hasn't happened in few years now. Darnit. Let me enjoy my morning coffee!!!
in_LA
Hi, hope you're well, you got tinnitus from acutane? I took acutane when I was in my teens, that stuff made me feel really sad all the time, later found out some users had unalived themselves.
Marina Moon
A door slammed on my finger on the 14th of last month and it's healing better, i guess? It's still stiff and swollen but it doesn't hurt when I move it (much) hopefully it heals completely this month. I've been avoiding using it unnecessarily and have been splinting it, along with moving it a bit for light exercise.
ECP
That's great news! I hope it continues to heal quickly and completely. And I bet it feels strangely gratifying to watch an injured body part heal at a reasonably acceptable pace. Our ear problems are so much slower to resolve.
Marina Moon
@ECP Thank you! I can already tell that it feels better week by week :D I thought about this earlier and it really does feel strangely gratifying in perspective to everything else. The improvement reminded me how fast healing can occur, for some things. Being stuck in my chronic health issues made me forget that healing could occur at all 😂
Strife_84
"Have you ever danced with the devil in the pale moonlight? I ask that of all my prey. I just like the sound of it." -Tinnitus
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