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duck0
well, hyperacusis has reached unimaginable levels. I am going to die in my bed homebound for life. crazy huh?
S
4 hours of fun - 4 weeks of ear ache, increased T, feeling of fullness, tiredness, nausea, increased H, depression, poor sleep etc. And this happened while wearing earplugs. Stay out of nightclubs people. Not worth it.
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S
Just 2 years ago I still had sensitivity for fan noises and I couldnt hear lyrics on one song. Just little over year ago I noticed that I can hear the lyrics again and I toleratw fan noises etc. It's been a slow process.
DamagedJoe
And how was your T before your Spike?
S
Basically gone. I really had to try to hear it, even in silence. I was doing very well. Honestly I didn't usually even remember I had this condition anymore. Still had to be careful with headphones, wind noise etc.
just1morething
I visited a Neurotologist and he said he could fix my temporal bone but he doesn't think it's related to my left ear tinnitus. He commented that Lenire helped some people.
Nes
My radiator was super loud, which caused an accidental sound enrichement in my room for 2 days. My hyperacusis today is almost gone and my T doesn't react. I've decided to do sound enrichment by opening the windows
D
Oh wow. I recently got an annoying morse code thing that appears on top of some sounds. Maybe the treatment is more sound exposure after all?
Nes
@DimLeb I spoke too soon, as yesterday I tried to sound enrich with waves sounds on my phone and it caused me a spike and a bit of pain. I protected for the rest of the night and sleep reset the spike. But so far, sounds not coming from a digital source have been very effective for me!
delta784
@DimLeb that morse code i have it too its dysacusis
victoria9273
I have had no problems with hyperacusis or noise sensitivity for the past 5-6 years. I am fine with loud noises from acoustic pianos or live venues. I don't need earplugs at all, and the whole thing that happened to me seems like a weird dream.

I wish I could help those in need of my advice who suspects that their cause of hyperacusis might have stemmed from emotional sufferings.
Marina Moon
I'm going to hate on myself rn because I'm such an idiot. I walked right past a group of landscapers and they were blaring their equipment really loud and I didn't cover my ears. I hope I don't get a spike or any more damage, I didn't want to cover my ears because I thought I would look crazy, but now I hate myself because I didn't.
Marina Moon
from the bottom of my heart I enjoy going on walks, but it wasn't until tinnitus that I hadn't become aware of all the loud sounds around me. Today I was more cautious while going for a walk and covered my ears while passing by landscapers, but now it makes me want to cry. A normal and relaxing activity like going for a walk has now become a stressful one. I refuse to accept this as my reality T-T
marqualler
Finished two business trips in two weeks. A year ago at this time I wasn't sure I'd ever be able to go again. Ended the last trip with a fun night of karaoke, wearing my earplugs. I'm grateful for all life has given me.
SimonRK
Just writing here because my tinnitus is annoying me a lot lately. Usually, this happens at times when other problems in my life are more managable. Funny how that works.
BrOKeN_1
Trying keep you on your toes I guess. Stupid azz T!
DamagedJoe
I can't do that anymore. I'm not strong enough for it. My life no longer has any meaning. I can no longer feel joy. My relationships are suffering. I am suffering. I don't want to wake up tomorrow.
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2049v
@dreamer16 it's still the same level, severe. It was impossible to cope in the beginning, still hard. I was planning to k*ll myself. I started to work again, kept myself as busy as possible. Shortly, I'm constantly running away from it 😂😂😂otherwise it becomes unbearable again.
DamagedJoe
@2049v i do the same. Always masking, Always running. I think i worsened my T last Weekend. Was in a bar with an average of 68db. Got a new tone. I could cry. I am disabled, i get it now.
2049v
@DamagedJoe as I said before I don't like pretending that everything is gonna be great etc. I'm just sharing my own experience and hoping that it would help you understand. This shit is really hard to live with my friend. It really is a torture but since nothing really helps it's better to try to have "peace deal" with it. Even though it's sound impossible we should try to achieve it 😃
Sodlin
This day atleast i wasnt the clumsy one..... My coworker fell over 4 chairs stacked on each other right next to me. Loud bam when all the chair feel to the floor and i didnt see it since they were behind me, everyone started to applause and laughing, it was very loud. Trying to stay calm.
Jsm_Joestar
Still doing good. Went on vacation, i go to conventions that are decently loud( i wear my costum plugs then but alot of the times i dont need them). Wishing yall a good recovery. Most people who recover leave this site so dont get discouraged if you dont see alot of success
Ivano_m
Going to Mass is becoming way troublesome, with those damn loudspeakers as if we were in a nightclub!
W
I remember dealing with this. Call around to other parishes, usually one of them has a no music mass. Sit where it is quietist, step out during songs, or bring plugs that you can easily pop in, but whatever you do, don't give up on the sacraments. Even make time for adoration, even if it's dead quiet in there.
BrOKeN_1
My denomination uses the Organ and I cannot stand the sound of it. Needless to say I have become mostly inactive this past year.
Sodlin
Also to mention my Hyperacusis is WAAAAAAAY worse after stretching for some weird reason.
Sodlin
ive always wondered if my TT is bc of muscle from just anxiety/OCD. I have been stretching for 2 days since i got a quite nasty spike that i had for 2 months. After i stretched my TT is like 8-9/10 instead of 6-7/10 and its been staying for days. Maybe my muscles are just messed up from all the stress from this condition after all these years???? Should ill keep stretching or just let it be is the question.
delta784
I will suicide soon i have no other option at the age of 29. One simple mistake i read from these forums methylprednisolone intravenous ruined my life. My life was heaven. I never went to loud places i was asocial but one f'ing medication ruined my life. I have visual snow syndrome some nox dysacusis and tinnitus most bothersome is tinnitus by far
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S
Maybe just spend some more time healing. Peace and quiet for a few months. Get some CBT and work on yourself inside. I know how it feels to want to die because of these conditions. I never did loud things either and got this from an ear infection. I had zero control.
4Grace
Hang in there. You are not alone in your suffering. It could get better for you. Hope. Please hang on to hope. Anything can happen.
dreamer16
Don't do it, it might fade over time and get better. ♥ Update us when it inevitably gets better.
ErikaS
Six and a half weeks since my most severe bout of MEM/TTTS vibrations started in my right ear. It is so frustrating and mood crushing. Things that gave me relief or took it away in the past (chiropractor ear adjustments) don't seem to be working right now.
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ErikaS
@MindOverMatter I then get upset and think "if I don't stop simple life things for a while, it will continue to be agitated and become permanent". But also staying at home and limiting more simple things life has me fixated on it and increases depression because I'm isolating.
ErikaS
@MindOverMatter what also makes it tricky is if I'm around other ambient sound, it's stops while the other sound is going on, so that gives me a nice mental break and boost. But after I stop talking, turn the car off, go into the quiet, go to bed, etc that's where it really comes out and shows me its agitated state. Waking up is rough too.
MindOverMatter
I do get where you come from @ErikaS - it is all familiar to me. You can't stop living, but you need to pace tmyour life and make time for proper rest. I would not stop doing things, but maybe limit things until you stabilize more. My process was non-linear. Setbacks, unless you do something "stupid", is an unavoidable part of this journey.
JJL
Hi - any even 5% help from doing the NYU tDCS study? Where did they place the electrodes?
W
I'll share a detailed report in a month or so. While I was using it, I felt some mild improvement. But I wasn't tracking it very systematically so I took a couple months off and have been tracking my tinnitus so I can see if it actually improves when I start again in a couple weeks.
W
The clinic I am working with built the headset custom to place the electrodes in the correct spot. I sent them the study and a measurement of the circumference of my head.
Tryn2BHopeful
Missing another one of my kids school events. Breaks my heart.
MindOverMatter
Don't be so hard on yourself @Tryn2BHopeful It doesn't help. I've missed out on a lot of my kids happenings, but they understand why. I've come to peace with it. I can support them with other things/in other ways.
Sodlin
Seems like the tinnitus is really flaring up now and mostly on the ear i hit with the rake. Im feeling very low at the moment and sad, im really struggling to find the tools how to make progress with both H and T that keeps spiking and i would say in the last 2 months it got like 20 % louder. :(
delta784
hello do you used lamictal at the end or any other meds doesnt touch serotonin
delta784
Grodan how are you :(
GrodanB
Bad, really bad. But soon it will again be another level of bad. Nothing good happens anymore. Im negative, im sorry. I thank you for asking though, i really do appreciate it.
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