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vilebubbles
Everytime I think it can't get worse, I'm proven wrong with a new tone, that is often worse. Just trying to do basic things like taking a bath or eating or taking ear plugs out for a few hours at night. At this point I don't know if the new tones are sound exposure or from meds and my brain is just too beyond messed up. My vss is also progressing. Nox seems controlled still with quiet.
S
My tinnitus was never bad. No matter what I ate nothing triggered it. my sister spent 20 minute shouting prob 100 plus decibels and I was few meters away I felt her shouts in my eardrum. I should've left the house. After her shouting I had no spike and went to bed 7 hours after now I wake up with 6x spike. 😭
in_the_shadows
Hey, how are you doing? our tinnitus profiles seem surprisingly similar. Most people mention a couple of tones, but I get several dozen in each ear, and none of them are constant too--they're all rhythmic and melodic ("alien" as you described), like my brain is looping random bits of sound it picked up at some point in life and just keeps playing them back.
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in_the_shadows
I took SSRIs 10 years ago, which led to tremors and some neurological issues. But only a year ago after a concert, antibiotics and some bad luck I developed severe tinnitus. Needing rescue doses of Diazepam once a week hasn't helped long term either.
vilebubbles
I cold turkeyed an SSRI. I see a lot of SSRI people have the crazy tones.
in_the_shadows
Same. I had brain zaps and other brutal stuff after going cold turkey. Now even one antihistamine messes me up for weeks. Only benzos and alcohol make me feel normal.
F
Take life one day at a time and pray a lot. The Lord hears our prayers, He may not give you an answer, but He hears our prayers. As for fearing death, most everyone fears death. It's normal to be afraid of the unknown. Prayers have helped me to cope.
S
Thanks, but I'm afraid I am not a religious man and this sort of torment is unlikely to change my views on the matter...
S
I can't go on with this indefinitely, I'm just not cut out for it, what life is it to just carry on existing for fear of death. How can something so cruel have not just no safe treatment, to take the edge off, but the potential to worsen without a moments notice.
I've always been depressed, but at least I could hope for something better... this has stolen my hope.
kingsfan
I'd say you're more likely to habituate and find your life again in time. Don't let us unfortunate few pull you down into our depths.
S
@kingsfan Wish I had a life to go back to! Spent the last 5 years as a carer and I lost the life I had before then.

Throw in some fairly nasty tinnitus, a pinch of hyperacusis and a host of weird physical sensations with a life time of anxiety, depression and aural abuse and I think I AM one of you unfortunate few.
DamagedJoe
I saw a clip of the movie "Baby Driver" today. The memory hit me like a ton of bricks. I had seen the movie years ago and shuddered at the thought of having to suffer something like tinnitus. I knew then that I would eventually kill myself over something like that. Now I'm sitting here years later, laughing out loud and bitterly at that memory. Fate is sometimes cruel.
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DamagedJoe
Shit man. I am very sorry to hear that. I'd like to know the future 2 years from now on. It's an unforgiving mistake. I just want a second chance for us, because we deserve it.
vilebubbles
Me too. So scared I won't be around long. I can't deal with these tones and spending my life listening to torture in ear plugs hiding in a closet. Fuck that.
DamagedJoe
Same for me. The sounds are awful. It's torture. If it gets worse, im out. Life sucks. I can Not See a future where i habituate.
vilebubbles
Hello, how are you doing now? My tinnitus also gets worse with walking and driving
Juliane
Dear all,

I need to go through a medical examination that's necessary - a sigmoidoscopy. I am terrified. To get through it, I consider taking a Xanax, aka Alprazolam before. Do you think one Xanax could worsen my tinnitus? Any advice? Thanks so much!
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Juliane
kingsfan
@Juliane I haven't been well the past few weeks. A couple noise traumas, that really shouldn't have been that bad, have made things worse but I'm trying to push through. I hope you are well.
Juliane
That sounds really tough @kingsfan :-( You deserve to be happy! You always send out such good vibes here. As for me, life just keeps throwing tough stuff my way :-( I don't get it.
Bob3382
My T has been raging more and more recently. I wake from a short nap and it's all I can hear. I did habituate up to a certain point, but it seems to be getting worse.
MindOverMatter
Hearing t loud after naps is quite common for ppl with bothersome t. Have you done anything particular lately that could lead up to a spike/setback? Noise / stress / events in your life?
Bob3382
Stress.
just1morething
The CT scan of my left temporal bone shows some issues. I have very loud brutal tinnitus in my left ear at 5:30 am. I hope surgery will give me relief.
S
Realising the hearing regeneration I'd pinned my hopes on probably isn't going to be suitable for me is really crushing me right now... The hearing loss isn't even really an issue, I just want the tinnitus & hyperacusis gone so I can go to the shops without ear plugs. A life of solitude & suffering is no life at all.
vilebubbles
No longer able to sleep over 3 hours even on benzos. T is too intrusive and h causes every noise to jolt me awake. Nox is off and on I guess.
Accidentally messed up my benzo cross taper and was taking way too little. Went up to almost the correct dose but it isn't working.
vilebubbles
Hi you said Rojo is still alive back in 2021. Do you have their fb name? I have very similar symptoms to them and want to know how they are
vilebubbles
Hey! How are you doing now?
B
Sorry didn't see your post until now. Not doing great unfortunately. Everything has just worsened.
vilebubbles
I'm so sorry. Me too. Did you end up using ear plugs a lot or no? I've been using them but still worsening.
delta784
Are you still blaming yourself by taking wellbutrin mine is caused by medication as well
Andrei88
Tinnitus sucks!!! I just want to be able to make music again and enjoy life.
BrOKeN_1
I always wonder how musicians such as Ozzy Osbourne, Eric Clapton, Chris Martin, Neil Young, Phil Collins and I'm sure a few others continue to have successful careers in the industry while also dealing with this condition. At what point do you start not giving a f**k?
Andrei88
@BrOKeN_1 if you dont have hyperacusis pain I suppose you can still get around it, using good in ear monitors. I cant use those.
Sodlin
The thing i struggle with the most are meetings lately. Today i hade a 3 hour meeting with 4 persons in a small room of like 3X3 metres. One person talked SO loudly (was 82 DB on the phone when he was talking). I endured 1 hour before i just had to ask for a bathroom break and came back with earplugs inserted. Should have inserted them straight away but had no clue it was that loud.
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MindOverMatter
@orenge01 So Finland has a bad/difficult job market these days? In Norway, at the time, Id say its very good with extremely low unemployment rate.
orenge01
@MindOverMatter Yeah Norway is probably a different story. When I said this though, I kinda meant the job market in general in the world hasn't been the greatest at the moment. I mean that the requirements of skills/skill ceiling for jobs has been quite high of recent, not to mention the multiple phases now in the recruitment process.
Sodlin
@MindOverMatter the problem is tho WHAT work to get into. Office job seems like the most quiet job i can find :/
Nes
We also had mold issues in our bedrooms, and the two times it happened, my tinnitus lessened a lot after clearing the mold.
Nes
Since last November, I've been having more and longer periods where my T is predominantly a hiss. Although it's also reactive, the intensity of neck and jaw pain I have is directly related to the loudness and nature of my T.
S
Okay explain this one... past couple of days my bad ear seems to be losing hearing, or at least the hyperacusis is quickly dying down, but my droning tinnitus tone is simultaneously getting quieter with it?
I had a literal air raid siren & cacophony of squealing brakes 5 months ago, the hell is going on in there.
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S
@vilebubbles It is, in a way, this is downright liveable, but I've now been through so much and have zero idea of what's actually happened that I don't know how I'll reclaim life without fear of worsening it...

I hope you do too, I'm sure once the benzo taper is over you'll eventually get some improvement though :)
Tryn2BHopeful
I hope it continues for you. I was having similar progress in December 2024. Since my last setback the "drone" has been terrible, along with the high pitched reactive T. Going past month 3 of that setback and onto year 2 of T. Not to scare you, but all I can say is be careful, its easy to feel complacent when things are going well, and one thing can undo all your progress and then some.
S
@Tryn2BHopeful Nope! The drone came back of its own accord this afternoon... but having a lay-in this morning with just my 'ear against the pillow electric'... better than sex.

Oh I'm well aware, but I'm quite content living the quiet life as long as I can get out in nature a bit now and then... wouldn't mind a holiday one day but we'll cross that bridge when it comes to it.
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