Hamsti

You okay now @Hamsti?

No. Finally believing this is going to kill me. Must be the punishment from god for all my failures in life. Bye everyone, thank you for your understanding an kindness. I really hope they are going to find a cure for T and hearing loss for eyeryone one of you. I wish you the best.

You'll be alright @Hamsti, I promise.

Just wait for the Shore device and Xen1101 to hit the market and you'll see. It is very unlikely 1 of the 2 won't improve your QoL.

❤️️

Thank you @Damocles, Spike is here, not sure from the fear or what else. T is atop everything, the last to nights I heard orchestral music and buzzing as if a had headphones on. I hear barely anything else. In a dark place right now.

Sorry @Hamsti. Not good to hear. So some musical tinnitus also?

Let your ears rest, until the spike disappears.

And don't worry, exciting treatments are on their way. Just got to be patient.

I just got one as well. What did you decide or what have you noticed so far?

I tried it over several months for severe pms symptoms. Didnt have any effect on me at all.

So so sad news, shocls me a lot. He was a great guy and we suffer similar things as pulsatile, mem etc

Yes, I have to cry again and again today because it hits me so much. I think we're all afraid that it was suicide and he just couldn't take it anymore.

RIP to a fellow sufferer. Such a tragedy :( May he be in a better place.

I know that there are certain floor mats you can use to help block noise from your tires hitting road, but other than that not sure.

Depends on what type of noise? Sirens will cut right through it.

I think any antibiotic ending in ‘cin’ should be avoided. No personal experience though.

Thanks @Damocles @makeyourownluck the doctor said in front of the eardrum should be all fine, but I refused and I'm going to try a lotion with cortison now...

Understandable @Hamsti. d(-_☆)

@Hamsti, stop worrying about events so far into the future, we can't predict how bad or good they'll be, so there's no point dwelling on them.

Always keep your focus on the problems in the now and near.

For all we know, by the time your daughter's 5, there'll be some drug that prevents acoustic trauma.

As for the problem at hand, I think you should do what @Stacken77 suggested and go and see an Audiologist/ENT about different Hearing Aids, that would better accommodate protecting your hearing when your daughter cries.

Don't worry about the cost. If there's a pair of hearing aids that will address your problem, then we can just set up a crowdfunding page and link it to TT.

I'm sure people here would love to be able to help you with this.

I would also be ok with just a TT hall of fame long time sufferers not cured. Just a medal for enduring for so long without offing yourself. That deserves an award.

Erdbeer Margarita? Es wird Ihnen gut gehen. Ich hatte 2 weißen Tee und mein Tinnitus wird zunehmen. Wird bis Sonntag abnehmen. Kein Problem. :)

Hey Hamsti, really nice of you to ask. Hope you enjoyed the Margarita. :) Life has not been going smoothly over here, but trying my best to manage.

@Hamsti thanks for asking! :) Well, I am now working in conservation - which I am loving. I am off to Italy in a few weeks for my 32nd birthday. And I am soon to move back into my van, so I’ll be on the road again. T wise, not so great. Having a spike, & my H is playing up. Still, I’m getting on with life. How are you doing? X

Depends on the distance, the loudness and whether you had ear pro. If you don't experience any pain, dull hearing or worsening, that's a good sign.

No tears left to cry @Hamsti. No tears left to cry.

Said this before: but thanks again to Ariana Grande for making that so uncool when I say it now....

>:(

@Hamsti this is such a sad post :( I hope you’re okay. And of course I can completely sympathise. I am also in the same boat.

@Stacken77 I would recommend it. Been on it for little over a year now and no matter how intrusive and obnoxious the sound in my head is I always sleep through like a baby. It also helps you see the light at the end of the tunnel. If you decide to go with then don’t go over 15 mg. That’s when it starts losing its sedative properties

Thank you so much @Hamsti and @danielthor for your input. I'm going to try to persevere with melatonin and Hydroxzyine a bit longer, but knowing that mirtazapine is an option further down the road is great!

Hamsti, does the Mirtzapene help your MES?

Here's to coffee: the cause of, and solution to, tinnitus spikes

@Hamsti your profile pic is so cute. :)

@danielthor me to! I think I even put it as a background for my cell phone and my computer

@Steph1710 thank you :)

oh yea, I have developed a definite "fuck it" attitude towards my tinnitus. I'm coming up on 1 years since the Acoustice relfex test. I doubt mine will have any improvement after that much time, but I hope yours continues to get better.

Im having same issue made my ears buzz more been 5 hours since .. echo bells is higher that was mostly masked all day

Is there an alternative to the Acoustic reflex test?

It's back again now, but it was so great :)

Hi there @Hamsti , hope your baby is not that naughty the last few days;) How are you & your baby btw? Did you enjoy your weekend a little?

Hey, thanks for asking @Christiaan :) She is really naughty the last few days, I assume she's getting a new tooth. The weekend was quite nice, but now I've got a new ear infection :(

Oh, you’ve a daughter. How nice. Well , that’s at least one, now 31 teeth to go:) I’m sorry about your ear infection btw. Have you tried some meds or over-the- counter remedies? Ginger, garlic & a bit of rest seem to do the trick. Fingers crossed that your ears heal asap!

@Christiaan @Damocles had to google Schultenbräu...you are invited to drink REAL german beer, just come over to my place haha

@Hamsti Haha, I’ve also just taken a quick look on internet to find out that Germans barely sell this beer at the German Aldi. It’s like we get the leftovers in NL and you just keep the best like Warsteiner to yourselves. How nice of you lot! That other thing sounds great btw. Maybe in the near tinnitus-free future, we can all sit together enjoying the silence while drinking a pint of your good German beer:)

@Damocles It’s actually a German beer. I think it’s fairly decent for the price you pay for it. As a matter of fact, you can probably get it at your local Aldi in the UK:o

@Christiaan, I'm going to wait, for sure. I am living in Germany, so I have to wait till they at least test it in Europe.

I’m glad you brought this up. I think it holds promise

I've been practicing in the mirror what I'm going to say when I first wake up from surgery. "I know kung fu"

Agreed!

And though it may not seem like it, but time is on our side as we're on the cusp of many bio-medical and technological breakthroughs, such as Ebselen, new tDCS applications for tinnitus (at Regensburg university and at Antwerp Medical Hospital if you're interested), FX-322 trials that could take place in Europe in 2022 and Susan Shore's device could very well be commercialised in a year or two (fingers crossed!).

There's definitely so much to hope for .And if all goes well, you won't be hearing bagpipes in a few years or so:)

Thanks @Christiaan. Your words are always kind and hopeful, that really helps me.

Me too :(

I remember the story of a patient who had multi tonal tinnitus and mentioned that DBS (Cheung, et al. 2019) helped her tremendously. Here's a vid of her testimonial: https://vimeo.com/340421200

Maastricht University is one of the few institutes in Europe that is currently working on a new DBS treatment, but god knows how long their current trial will take. Maybe in 2 years or so, we could know more if it's effective or not