Supersix

Can’t even merely exist with tinnitus

"It's tough. If we isolate, it will make matters worse.

All 3 things can absolutely can make it worse.

@Pixelito Thank you!

Now I know why there's been a BIG spike. I need to get it under control and bring it back down

None of those things seems to affect mine, but anxiety and insomnia suck even without tinnitus.

I have had it for nine years.

A little over 13 months now.

7 months. 0-100 in two days. Feels like a lifetime.

Probably average about 5 hours of broken sleep, sometimes just 3 or 4. I wake up several times that I can remember. I take zolpidem partial tablet sublingual most nights sometime overnight to get back to sleep, sometimes more than once, and occasionally lorazepam early morning to aid in some additional sleep. Getting close to 2 years of this.

@Supersix I'm not sure if insomnia causes spikes. But I do think lack of sleep and stress may cause the body do weird things.

My ringing fades to nothing when I fall asleep. In the beginning I needed a fan and sounds of insects playing on my bluetooth speaker. I've adjusted to sleeping in silence. I've had issues sleeping for years, waking up in the middle of the night, etc. but tinnitus doesn't affect my sleep much.

I feel pretty safe taking 0.5 mg Lorazepam every 3rd morning. I don't experience any intradose withdrawal. Back in mid December, I took it 5 times in an 8 morning stretch. Didn't have any negative effect, but that was short term, and now just 4 times in 13 days. Unfortunately, that means I'm just suffering most of the time anxiety comes on. Sucks.

I have certain T tones that aren't affected by medication and others that are incredibly sensitive to it. None of it makes sense.

@Tryn2BHopeful It may be the type of magnesium. Threonate does bother my tinnitus but Oxide does, for example. This is assuming you haven't tried them all, of course.

@kingsfan
I have never taken Magnesium does it help reduce your T?

I have only taken half a Zolpedian dose once before, and it caused a spike in my symptoms. If a medication causes my symptoms to spike, I avoid retaking it. However, Lorazepam has never caused a spike in my symptoms.I can’t continue taking benzo even tho I take a very small dose

I have a sound oasis but barely use it. I find noise generators more annoying after T. My T came on one night on the night that I was using a sound generator. When I turned it off was when T came on. There were other stressful events that happened around the time, but the timing was a bit strange.

"When I experience intense ringing, I use white—Noise through my hearing aid during the day or at night after a few hours of sleep. My wife also likes to listen while we sleep, but I have told her that it makes the hissing/ringing sound louder. We have argued about it, but I am trying to be flexible. We do not play it because I wouldn't say I like it.but if there was a benefit for my T i would be more open to it

White noise seems to raise my T at first by morning it's ok.

Merry Christmas.

Merry Christmas @RunningMan
Have you taken Gapatenpin? I'm so scared to take anything after the bad trip on Trazadone.

Gabapentin? I have not taken it. I've seen it mentioned on the forum quite a bit. It may help for tinnitus and/or anxiety.

@4alien2

When you say "blockage," do you mean it gets backed up with mucus at night, and you try to clear it to open your ET? Does this cause a spike in your tinnitus?

No, it's not because of the mucus. I did some research and read that the muscles that activate the eustachian go to rest during sleep. This may be due to increased resting tone of the tensor veli palatini muscle. @Supersix

@4alien2
"Are you currently experiencing tinnitus as a result of Veli Palatini? I'm curious about the specific type of sound you hear. For me, it's more of a constant hissing sound that persists throughout the day. Occasionally, I also experience a deep ringing sound when I'm sleeping, particularly if my ear is producing excess wax and becomes damp inside."

Well.. same to you... ! - _ -

I try to keep an open mind for people on this. I know it has helped some, but I entirely feel it caused my tinnitus.

@Tryn2BHopeful

"I know it could benefit me, but I'm afraid to take it after reading your story. I have a script I filled out at home.

When lying in bed to sleep, I would occasionally have a muscle twitch in an arm or leg. After being off the medication, that seems to have stopped, but I'm still having some stomach discomfort and growling after it had eased a lot temporarily. That was the worst part about being on it for me, and I'm still dealing with that part. Maybe it aggravated an underlying condition.

For Zolpidem, that's what I do. Just one pill at a time, but I want to have at least 2 pieces ready. For Ativan, just have the bottle and take a full 0.5mg pill occasionally. Hydroxyzine full pills also, but rarely use it. Had bad night last night - couldn't sleep til after 4 AM. Had COVID shot in afternoon, maybe related.

@RunningMan
Did your T spike from the shot ?

It's been 5 days. No, I didn't notice any change in my tinnitus.

The Barometer has increased today, and I feel fullness and pressure in my ear. In the past, I thought something was going on inside my ear. When the Barometer decreases, the fullness and pressures will go away. My ENT told me this and he is spot on.

@RunningMan @Tryn2BHopeful @4alien2 @cjbhab @SarahMLFlemmer @BrOKeN_1

Download my barometer app and let me know if you feel pressure in your ear when it increases in your area. I think people with a bad ETD would probably notice it more.

Ugh. I probably have ETD now. I haven't had too much pressure lately but we're coming into colder months so IDK if that's why or what.

Pumpkin pie with homemade whipped cream?

Without homemade gravy, Thanksgiving would be bland. The sauce goes well with everything. Mash potatoes and Gravy with butter on your biscuits are my #1

@Tryn2BHopeful "I'm glad you're getting a mental break today. Those are gold."

STUFFING! And extra gravy. =D

@RunningMan
What vaccine did you get?

Only flu vaccine so far. In the past, my COVID vaccinations were all Moderna.

I got my COVID vaccination (Moderna) yesterday afternoon. Couldn't get to sleep last night until after 4 AM, which could be related. Also took NAC prior to the vaccination.

:((

Doesn’t even make sense. Same here. Great couple days then bang.. terrible TTTS and a spike.

@cjbhab

It never makes sense. It's rare for me to have three good days in a row.

Good afternoon. Well, I had maybe 6 hours of sleep. Mine is broken up so much, it's pretty hard to know the total any night. Fitbit is very inaccurate. I got by with just 1.7 mg of zolpidem when I woke at 3:30 AM and finally got to sleep again after 4 AM.

My fitbit says 9hours... I doubt that.

All they gave me was tylenol, ibuprofen, and oxybutynin. I didn't have T yet so I had no concerns. I wonder if it all created the perfect storm...

@Tryn2BHopeful

I had tinnitus when my stone dropped, with no spike from the morphine.

It dropped. I found out about it once it did thats for sure.

@Tryn2BHopeful
I crawled into the ER when my 3mm stone dropped. It was the most painful thing I ever experienced. Do you remember what size your stone was?

8mm

It sure feels that way doesn't it. Hell masking sounds just make my T louder. That said I actually found myself laughing at something the other day, for the first time in 5 months. Maybe things can get better albeit not the same?

@SharonBell
Do you ever have a day when the noise comes down a little?

Nice. That seems like pretty good sleep on such a small dose of Lorazepam. Good to avoid zolpidem if you can get by without it. I wish I could.

@RunningMan
Would you prefer to fall asleep on half of 0.5 Lorazepam or 1.7 Zolpidem? Long-term, which one is better for you?

I've never tried Lorazepam for sleep near 3 AM to really compare, plus not all nights are equal, but it takes longer for Loraz to take effect and stays in system longer. Bedtime low dose may give Loraz an advantage vs. my usage. Similar mechanisms, benzo vs benzo-like, so long term probably not much difference.

Honestly its different for everyone. Some people have zero issues with coffee and sugar, others do.

@Tryn2BHopeful @SharonBell

I have been drinking coffee every day for 30 years. I gave it up a month ago when I was going through some destructive cycles. I noticed that my ear is producing less wax than it used to. My ear would be wet three times a week, and it would cause a spike every time it was making wax.

I searched on Google a few weeks back and discovered that coffee consumption can increase earwax production.

I always listen to sound therapy every day and every night.I don’t season my food very much.I sure do miss my sweets though.

@SharonBell
I never have. Try posting in your update status bar. You will get more responses. Also, type the name of a drug in the search bar at the top right it will pop up several discussions on any medication you type in,

Ok thanks for telling me about the search bar.