Search results for query: TTTS

ENT can just run tests (which can cause worsening), may not even see TTTS when you're there, and can't do anything about it, anyway. Anxiety can make it worse. Some people think overprotection can make it worse. I've heard some people have said it was better with some muscle relaxers. And it...

...They were so loud I couldn't understand speech at times. Hyperacusis is still there, but I can go out and it does not cause much problems. TTTS, on the other hand... So yeah. In my opinion, for mental health, I would suggests no pills at all. I got hurt by them immensely, how could I...

How long were you on the Mirtazapine and at what dosage? How are you certain it was Mirtazapine and not antibiotics that negatively impacted you? No acoustic trauma or anything of that sort around the time you were using these medications? In your opinion, would an SSRI be more appropriate if...

Sorry to hear you're going through that. That makes the commonly mentioned weight gain side effect sound mild by comparison. How much of a dose were you taking each day and for how long? I've read some similar posts from @TheDanishGirl about taking Mirtazapine (30 mg was needed for sleep) in...

...you'd be dealing with all kinds of horrible tinnitus sounds. I have all these symptoms. Luckily my tinnitus is better, but is still there. The TTTS I got from Mirtazapine is horrible. The problem with Mirtazapine is that it hits TOO MANY receptors (if I'm not mistaken, could be as high as...

2/2 TTTS w/ H. Fluttering. A constant tugging feeling. Crackling. CONSTANT Acidic Burning pain. Nothing works. NOT due to anxiety. HELP!

I’m not sure I’m best to answer this. I have had MEM & TTTS episodes for about 10 years now, but I have a whole host of ear issues on top of that, and have had ear issues my whole life. In these 10 years I have had periods of remission from the thumping spasms (the sort from...

Going mad from these TTTS/MEM episodes daily, along with frequent weird SBUTT episodes, & worsening pulsatile tinnitus on top of everything

Yes, if it feels like your eardrum is thumping or fluttering, that sounds like TTTS (Tonic Tensor Tympani Syndrome), which is a type of MEM (middle ear myoclonus). I don't get it from typing or any sounds except sometimes from voices, which results in my left ear fluttering when the voice is...

...as having the muffled hearing/louder tinnitus from it, it also gets reactive and distorted often too and it’s quite scary. I also have both TTTS and MEM, with episodes of the MEM happening pretty much everyday and lasting hours usually, and also many regular tinnitus tones, pulsatile...

...Was it ear fullness or a stabbing sensation in response to sound? Hey Keith - fellow Delawarian here. How're you doing these days? Did your MEM/TTTS feel like hyperacusis at any point or really reactive to sound? I am so uncomfortable in loud environments now and in response to unexpected...

Can my jaw problems aggravate my painful hyperacusis (TTTS) and the intensity of my somatosensory tinnitus? The main cause is sound trauma

...mid-November. Since the shock I have had tinnitus (ranging from 3 out of 10, back to 1-2 out of 10, with days of 1 lately), hyperacusis and TTTS, which have been much more troublesome than the tinnitus. This has improved over the past 7 weeks quite a bit. About 20-25 percent I would say. Per...

What doses of CBD?

The docent I have been seeing said something that would verify this, when I first mentioned my TTTS symptoms to him, he said what I might be feeling (pain, vibrations to sounds and touching face), could be because of the trigeminal nerve acting up due to the chaos in the dorsal cochlear nucleus...

4Grace did you see the one I put up there about TTTS Tanic Tensor Tympani syndrome where you have fluttering in ears, heat, pain, fullness, hyperacusis and dizziness. I just don’t have pain and dizziness. I don’t know if you have ever heard of this before.

Happy Holidays! My TTTS is still here & is really bad today :( Scared it’ll never go away again… but it has before, so odds are good, right?

Hey Kiel, I hope you're doing better. I'm posting on your page wondering if when your ear infection cleared did your ttts and hyperacusis eventually subside? I currently have an ear infection in both ears on top of my pre existing hyperacusis, brushing over my ear drives its nuts and so does my...

Wow! That's a lot you're dealing with. Based on what I picked up from reading your response, I'd say your tinnitus would be severe? Would you agree with that? What has been helpful for you to reduce/manage your anxiety?

...a pair of Bluetooth speakers to each side helps take away some of the focus on it. Fortunately, my hyperacusis hasn't been too bad, and my TTTS isn't acting up most of the time. If I have any pain in my ears, it's pretty brief with no change over the last 22 months. So, I realize I don't...

I don't know how to move forward anymore. My life is so different.

I also have moderate hearing loss and tinnitus, plus mild hyperacusis and TTTS. It has been almost 23 months since my tinnitus level jumped and became distressing, and my brain still isn't accepting it. Anxiety continues, insomnia continues. Antidepressants help some people deal with it...

...the office room, and then to the air compressor. I'm usual very well prepared, and I don't usually panic, but this felt like a huge hit. Having TTTS to sounds that don't usual cause it. Ears feel kind of full and 'clicky'. FML. I've got too much hardship going on in my life right now to...

I don't think I will ever stop researching it. It's just how I am. I have read everything I can get my hands on about it. Lenire actually just got in touch with me. In the US it's $300 for the consultation and $4,000 for the device... Based on what I've researched on it and read on Tinnitus...

My TTTS is still bothering me. Really hope it settles again

That’s temporary; in no way can overprotection make tinnitus permanently worse. Temporarily louder, sure. And why did you tag me and my comment? I was talking about hyperacusis. Painful muscle spasms is middle ear related. Relaxation and not being anxious can help the middle ear relax. So...

...And guess what, over every white-noise alike sound, I started hearing crickets, intermittent beeps (sound distortions). I even developed TTTS such that when someone was talking to me, a muscle in my left ear (i guess tensor tympani), was contracting very hard and painfully every time they...

What was the new supplement you tried?

TTTS back with a vengeance today. Hoping it settles back down again soon. :/

How are you feeling these days? Gabapentin is helping me a bit which sort of lends itself to what you posted here about the trigeminal nerve.

Someone experiences with TTTS ? I was searching it because someone was saying the name and I searched on it and found similar things

Thanksgiving Dinner gathering went surprisingly well for me. Hyperacusis sensitivity was kept in check in check this time and didn't even need to wear earplugs. Anxiety was low also. Some TTTS fluttering among the voices, but not too bad. I'll take a win for once.

Is this TTTS? Symptoms: This started a few days ago—my ears thump or wince whenever I swallow, close my eyes tightly, burp, touch my ear canal, hear a plate clatter, or speak too loudly. Inserting an earplug or sticking my finger in my ear also causes a twinge or wince, accompanied by a...

TTTS has been back a bit. I’m sure it’s due to the recent increase in anxiety about my T. Trying to remain calm… I need to get through this

...in my ears accompanied by face and jaw discomfort/tightness. It feels like the muscles in my ears are tightened, I assume this is related to TTTS. The other difference I've experienced with this setback is that my anxiety levels are SIGNIFICANTLY higher. Perhaps due to the physical symptoms...

...You are right. The effects vary from person to person. → Here is Juan Carlos's experience with Retigabine on his tinnitus and hyperacusis. His TTTS also improved while on Retigabine. Then there were users like @snow86 and @Christian78, who benefitted from taking Retigabine, but the...

@Mithrandir had TTTS. Trobalt would probably work relatively less effectively for tinnitus and hyperacusis sufferers where a spastic muscle is a major contributor to the symptoms. Why do you think the fact that "Retigabine had inconsistent results" has more to do with the drug itself or Kv7...

Hi @Tweedleman, Glad to hear that you are about 85% back to normal with your hearing, and that your tinnitus is 2/10, four years on. What was the timeline for your recovery? Has it just been a case of gradual steady improvement over the four years? I am two months in, after acoustic trauma...

I take Robaxin for another reason and it helps my TTTS a lot. My tinnitus counselor, audiologist with tinnitus, takes Turmeric --- swears by it, and claims tinnitus irritated my inflammation.

...to the cochlear, synapses or simply whether sound stimulates further maladaptation in the brain. It could be all three, or more to do with TTTS and other related pathologies (which I am quite sure do not apply to me). I need to wait more and give myself time. 1 year anniversary is within...

This sounds a really good success story - and one, as I also had mild tinnitus since birth that got worse after trauma, that I needed to read today. Can I ask whether your tinnitus was ever sound reactive - and over those four years did you protect your ears much when out and about, or not at all?

Very interesting to find this thread regarding Turmeric and TTTS because I have recently had bad headaches and spiked tinnitus. I thought maybe taking Turmeric in a fairly large dose could help me get out of this, but it was followed by a very bad bout of TTTS which is still going on now...

...months now, but I have never noticed any reactivity effect to masking sounds, TV, fans, etc. recently or going back 21 months when my tinnitus intensity increased. My TTTS (to both sound stimulus and spontaneously) also started in recent months. That might be more associated with the...

I agree! I thought the exact same thing, how mostly I get no response or short responses with no further conversation when I were to contact someone or a team. I will say I think he is mid 30s, so he may just be wanting to do his due diligence as part of this company (he joined the team in June...

...Have they thought if their device could help with any other symptoms (related to tinnitus), meaning hyperacusis, noxacusis, reactive tinnitus, TTTS/ear spasms, diplacusis, visual snow etc? It's a long shot I know, but we often neglect that many people here suffer from a mixture of those and...